Re: Fw: living as we are- Marilyn

[Guest guest]

Sandy,

How wonderful to have someone on the otherside of the world to be so caring. I actually do have a caregiver who comes twice a week. I have to pay out of pocket as I just need help shopping, masking bed, and any other jobs my fatigue and weakness don't allow anymore. Plus she is very good company. We go out for lunch and just fun shopping. I have three daughters, but with work schedules, caring for children, etc. I don't ask for their help too much. They are loving and caring, mbut just not enough hours in the day. Plus I am a very independant person, used to taking care of myself. I live in a senior apartment building, so we have rides to stores, and social times. The only way I will move from here is if it becomes unsafe, with falls, unable to shop, prepare meals, etc. And then it will be where I want to live. I saw my internist last week and will see the neurologist next week. They know I understand my situation very well, and will help in any way they can. I live in the U.S. in Geneva, IL,. about 30 miles west of Chigago.

I hope you stay well and stay strong.

Blessigs, Marilyn

Re: living as we are- Marilyn

Hi Marilyn-- so sorry to hear that you may have to move again-- as Joy says there are some new moves - happening to keep people in own homes-- so be very sure you have tried all areas.

IF they agree you are at that stage then they should be giving you lots of ideas and alternatives.

Centre Care- Anglicare, Blue Care- Oz care- even lifeline and salvos now are training carers - to go into the home-- most of these services are what is called HACC eligible and anyone on any pension is eligible for those services and most are completely free- some have a few dollars request if travel to shops appts etc, BUT otherwise free.

Commonwealth carelink is who you need to call first-they are Australia wide and can link to every suitable service will even co ordinate if you are too unwell to do so.

HACC eligibility - HACC is Home And Community Care.

Centre link also can send the right persons to you and work out a plan to keep you in own place.

Catholic churches do same now, also Uniting care.

I don,t know where you live but in Qland Carers Qland is also the place to get to come see you.

If I knew where you live I would either give you the closest numbers to call or I would ring ahead and arrange they ring you and come see you.

Disability Australia will also help you get services you should be eligible for a package- which means they assess your needs and Govt pay for say up to 4-5 services for you-- ie, 1 service might be home cleaning- another might be meals on wheels or alternative, 3rd might be a nurse x number hrs a week , and then a social service- someone to take you out for couple of hours to shop, or hair done or simply come and sit and chat or take you for drive to a friends etc.

There are several kinds of packages depending on needs and if you are on pension etc.

If you are over 60 there is another package--they would also do an acat/s assessment- and then aged care package to suit etc.

Please don,t give up your home if you don,t want to- I put all these things in place for my mum- till she became palliative then I did most but still had their help in some things.

I have also arranged many types of packages for PWD, and for aged people - some only 62-3, others in 70's etc.

PWD,s any age-- if on pensions etc.

Marilyn I too suffer with neuropathy-- and the treatments well cannot do most- but sure try to--to do my very best--

My neuro stimulator now is out of action-- batteries have become dislodged need op to rehouse etc.

Please don,t give in to having to move until all avenues are exhausted- NOTHING is like being home --

Sandy