Guest guest Posted October 2, 2010 Report Share Posted October 2, 2010 No, I just had it end of july through the sacrum. > My neurologist for my daughter thinks she has tcs after all the testing now I > put a call into the nsg to see if he agrees with it. > Before the nsg did not think she had it but agreed to the full workup. But, I > have always thought she may have it once I read the mri report. The nsg thinks > the report of conus mid to lower L2 wasn't low enough. but the urologist said L2 > is low. From my studies a small % of normal people can have a low conus to L2. > but that the vase majority conus normal at L1 or above. It also, said small > fatty filum but the nsg said it was " just a speck " not enough for tc. now the > flurourodyamics test right how shows a hyperactive bladder. He gave her ditropan > to take. > > So, sort of thinking she has it and now researching the best surgery option for > her. I did read somewhere a while back that there is also a scope type one > (probably for just a tight filum) not the lipomas or scar tissue build up, etc > like you said.which will require the standard approach. trying to find it but > thought maybe someone here have heard of it or know more about the different > approaches/choices. Yes, each doctor has their own approach to it. So, guess, > will have to ask and see but want to know so I can ask when he calls. > So, am I understanding, that almost all of this group that got surgery, had it > thru the lumbar region? > > Carol > > > > ________________________________ > > To: tetheredspinalcord > Sent: Thu, September 30, 2010 9:18:49 PM > Subject: Re: types of tc surgeries > > > The surgery is based on the specific condition, individualized to our " quirks " > as we are all tethered at different levels, some with lipomas, some split some > not etc. As for choices, our choice lies in what doctor we pick basically. Since > bone is removed in order to view the cord better and remove scar tissue as well > as opening the dura, I doubt it can be tooo minimally invasive. > > > > > Subject: types of tc surgeries > To: tetheredspinalcord > Date: Thursday, September 30, 2010, 7:40 PM > > > > Can anyone tell me all of the choices of what choices and types of surgery their > > are for tc surgery? > > From what I know the main standard is to go thru the lumbar region, what other > ones are there? Is there a least invasive one? > Carol > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2010 Report Share Posted October 2, 2010 I had fatty tight filum. I had a bi-level lumbar laminectomy (two spinous processes removed) and release without complications except spinal leak. > > > Subject: types of tc surgeries > To: tetheredspinalcord > Date: Thursday, September 30, 2010, 7:40 PM > > > > Can anyone tell me all of the choices of what choices and types of surgery their > > are for tc surgery? > > From what I know the main standard is to go thru the lumbar region, what other > ones are there? Is there a least invasive one? > Carol > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2010 Report Share Posted October 2, 2010 Does he try and go thru the sacrum for most of his tcs? or it still depends on the type of tc and where it is at? thanks for the info. how is he to talk to? carol ________________________________ To: tetheredspinalcord Sent: Sat, October 2, 2010 6:40:26 AM Subject: Re: types of tc surgeries Carol my surgeon, who does this, and did mine 7/30/10 is Dr. Fraser C. , MD in Bethesda, MD. He was with town U Med Center many years, and now is head of neurosurgery at a hospital in Lanham, MD, Doctors Community Hospital, near Greenbelt. He is GREAT and my recovery from the incision was quick. The post op care at the wing of this hospital was great as he has taught all of the nurses and assistants all about TCS, EDS and ACM, and it was like being in the ICU for 5 days. Best, Cate > I believe going thru the sacrum, you don't have to cut thru all that muscle to > get to the dura and spinal cord. Thus, making recovery a little quicker, I > think but don't really know. I would like this one if I can find a surgeon >that > > does this. But, still researching. > Dee, how was it for you? > carol > > ________________________________ > > To: tetheredspinalcord > Sent: Fri, October 1, 2010 11:08:14 AM > Subject: Re: types of tc surgeries > > > what are the advantages of going in through the sacrum rather than Lumbar area? > > Is it less painful? Did you have screw placed or did you require a fusion? > > > > > > > > It depends on where your tether is, and what type of tether you have I would > >think. I had my filum " snipped " for a tight/fatty filum tether. My NS went in > >through the sacrum, staying away from L4/L5. My incision is 8 cm long. > > > > > > > > > > Dee > > > > > > > > > > > > To: tetheredspinalcord > > From: drwoo528@... > > Date: Thu, 30 Sep 2010 17:40:59 -0700 > > Subject: types of tc surgeries > > > > > > > > > > > > > > Can anyone tell me all of the choices of what choices and types of surgery > >their > > > > are for tc surgery? > > > > From what I know the main standard is to go thru the lumbar region, what >other > > > > ones are there? Is there a least invasive one? > > Carol > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2010 Report Share Posted October 3, 2010 Did anyone have the 'minimal invasive tc surgery' which the scar is 1/2 of the size of the standard? ________________________________ To: tetheredspinalcord Sent: Sat, October 2, 2010 9:11:01 AM Subject: Re: types of tc surgeries  I had fatty tight filum. I had a bi-level lumbar laminectomy (two spinous processes removed) and release without complications except spinal leak. > > > Subject: types of tc surgeries > To: tetheredspinalcord > Date: Thursday, September 30, 2010, 7:40 PM > >   > > Can anyone tell me all of the choices of what choices and types of surgery >their > > > are for tc surgery? > > From what I know the main standard is to go thru the lumbar region, what other > ones are there? Is there a least invasive one? > Carol > > Quote Link to comment Share on other sites More sharing options...
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