Re: OT Migraine Update (was Breakfast )

March 27, 2001

Hi, Annette. Thanks for asking.

Yes and no. As the sleeping disorder is coming under control, the " wake up in

hell " migraine attacks that were waking me up and taking over the entire day are

happening less often and are responding to meds. Unfortunately, I'm still having

at least one migraine attack a week, so my preventive meds aren't working. The

new neuro I started seeing in September either doesn't understand the meaning of

the words " desperate to get these under control " or just doesn't care, because

she refuses to schedule appointments for me any closer than three months apart.

So, on the advice of my primary doc, I fired the neuro, and he scheduled an

appointment for me at the Jefferson Headache Center in Philadelphia. That's

great except the first opening they have for a new patient appointment is

November 14. They've put me on their waiting list for a cancellation, so we have

our fingers crossed. Between now and then, my pcp has assurred me that he'll

prescribe the meds I need for the migraine attacks and see me if I have an

especially severe one. It will be worth the wait because the Jefferson is one

of the top clinics in the world. That's why the wait is so long. I've already

met my doc there via email, internet chat and telephone because he was kind

enough to come to a chat session for my About Headaches/Migraine site. I'm

finding it easier to keep my spirits up now that I have an appointment there

because even though it's months away, I have so much confidence that they'll be

able to help me.

hugs,

Teri

Re: OT Breakfast

Are your migraines getting any better? I use to get very bad headaches,

although not migraines, but the BP pills seem to have taken care of them.

Annette

March 28, 2001

In a message dated 3/27/01 8:53:16 PM Pacific Standard Time, teri@...

writes:

> Between now and then, my pcp has assurred me that he'll prescribe the meds

I

> need for the migraine attacks and see me if I have an especially severe one

Teri,

I'm glad to hear that your PCP will do WHATEVER it takes for these nasty

headaches to stop while you wait for an appt at the clinic.

Carol T

March 28, 2001

In a message dated 03/28/2001 11:01:37 PM Eastern Standard Time,

aducedre@... writes:

> Like have they determined that

> something has to be triggering them and they may be able to find out what

> it is?

>

I read in First for

Women magazine, issue april 23,2001, medical update page 23

It says in neurology, reports are showing wheat and gluten are triggers for

migraines.

A protein found in wheat and grains, was removed from participants diets, 9

out of 10 experienced complete or partial headache relief.

Try lowcarb and see what happens. I'd say worth a try. :-)

carol

March 28, 2001

> Yes and no. As the sleeping disorder is coming under control, the " wake up in

hell " migraine attacks that were waking me up and taking over the entire day are

happening less often and are responding to meds. Unfortunately, I'm still having

at least one migraine attack a week, so my preventive meds aren't working. The

new neuro I started seeing in September either doesn't understand the meaning of

the words " desperate to get these under control " or just doesn't care, because

she refuses to schedule appointments for me any closer than three months apart.

>

How much do want to bet your neuro has never had a migraine and doesn't have a

clue what they feel like? I know how hard it was for me to concentrate on

things with the headaches I had and mine were only every 3 weeks or so. I can't

imagine being at a point where I would consider only one headache a week as a

big improvement.

> So, on the advice of my primary doc, I fired the neuro, and he scheduled an