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Re: to jennifer-tort/breastfeeding problems and suggestions

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,

I forgot to add that I don't think you should feel badly AT ALL

about the breastfeeding. You obviously put your best efforts into

it. Sometimes other factors change our most perfect plans, don't

they? I continued to try pumping and alternating between formula

and breastfeeding but by 3 months of age it became such a

frustration for and myself that it was easier to go to

formula. It ended up being a good thing because it turns out that

has a milk allergy and we ended up using Soy Formula.

Whenever friends were sharing their breastfeeding information I just

kind of pretended I knew what they were talking about and did have a

hard time admitting that we had stopped. In retrospect I wish I

didn't give myself such a hard time over it. Shame on anybody for

making you feel badly!!! They should walk in your shoes and feel

all the anxiety that I'm sure you went through. I'd like them to

read literature on the seriousness of jaundice and what could happen

if it's not resolved through bili lights and fluids. If it's ever

and issue with them again just tell them to talk to me!!! :P hehehe

& (17 months, STARband Grad)

> > " She did have problems nursing - I wonder if the tort played a

> > role. I always thought it was the jaundice and early bottle.

She

> > would latch on fine but would always pull away and cry after a

> > couple of swallows. Hmm maybe I will call the lactation ladies

> and

> > let them know they might want to look for tort when nothing else

> > seems to make sense. "

> >

> > , hi. The tort is a direct cause of breastfeeding

problems.

> > You use your neck muscle to suck, establish a good milk supply

and

> > fill up!!! These Tort babies are at a major disadvantage if not

> > caught early as their neck muscles are compromised to suck and

> > establish a good milk supply. Same thing with Sash, would suck

> and

> > take forever to nurse (20min L and R sides, then a 4oz FAST flow

> > nipple bottle!!) She would scream forever after nursing and we

> didnt

> > know why, our pedi. and lc forced formula on us...which I was

glad

> > we did b/c Sasha finally had a full belly, fell asleep and

started

> > growing :) ALL of this was totally unnecessary starving had they

> > caught it and listened to my insisting something was wrong.

> >

> > When Sasha was first diagnosed at 4months...I went on a rampage

> > researching everything I could find b/c our pedi's had no

> > information for me and I had to research/resource course of

> > treatment, specialists, etc. Basically tell them what to do.

> >

> > Go to, and I ENCOURAGE ALL OF YOU, to please check out

> >

> > www.infant-torticollis.org

> >

> > Go to the Childrens Stories section. You will find that

> > breastfeeding problems are in almost every story. I was able to

> > find Lactation Consultant learning modules online training the

> LC's

> > in Torticollis, the symptoms to look for, warning signs,

different

> > holds and how to support the emotional needs of the Mother. I

will

> > try and find the articles in my favorites section and post

them.

> > Will send a post when I do find them....very enlightening stuff.

> >

> > Needless to say I was FLOORED, that here I, could find all this

> > information and everyone at that damn office missed the

> tort/plagio

> > after 4months of Sasha losing weight, head tilt and facial/skull

> > asymmetry that I pointed out at every stinking visit!!!!!! :(

> >

> > Hope I have shed some light here , hang in there and

> remember

> > YOU are the voice of your sweet baby, keep talking to your lc

and

> > pedi until you are heard :)

> >

> > Gotta run, playgroup this morning. xo, jillian in ct

>

>

>

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