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A river in Egypt

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There is an essay in this week's issue of Time magazine which

discusses my preferred method of dealing with PSC: denial. As far as

coping strategies go, it's served me well during the last five years,

and the writer in Time says that it's done the same for him in

dealing with Parkinson's. Having read the postings to this group for

the last two years, I have the feeling that there might be a gender-

based distinction here (you womenfolk tend to be more proactive about

health matters than we guys are), but everyone uses denial once in

awhile. Anyway, the reading is entertaining!

- Gene A.

http://www.time.com/time/magazine/printout/0,8816,187584,00.html

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Josh, thanks for the article. I printed it off to

remind myself. A few substitutions for the words

Parkinsons and I am all set.

=====

in Michigan (Dx UC 1984, Dx MISSING COLON 1999, Dx PSC 1997, PSC symptoms

2000)

__________________________________________________

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>There is an essay in this week's issue of Time magazine which

>discusses my preferred method of dealing with PSC: denial.

Thanks for the article, I too printed it and gave to Bob, now he

knows the deep thinking on the subject of denial and the words just

give it credence.

Dee in Peoria wife of Bob

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>http://www.time.com/time/magazine/printout/0,8816,187584,00.html

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I met an interesting woman the other day here at the hospital...we got

talking and she told me that she has been HIV positive for 20 years...she

was infected by blood transfusion...here she was healthy, happy, great

attitude...she told me that as far as she knows she is one of the longest

living people with the HIV virus and no symptoms..they watch her T cells and

if they drop below a certain level she must start treatment, which has never

happened...her husband jokingly said she was too stubborn to die or get

sick...

I asked her how she coped with this time bomb inside of her and she told me

that she doesn't think about it...she doesn't let it consume her or become

what she is about...she lives her life as though it isn't there, paces

herself on a tired day and continues on...I don't know if she is in denial

or not, or has just learned how to cope....

I often refer back to the story a doc told my dad when coping with cancer,

it was about a man who had CA of the stomach and was told he needed surgery,

he couldn't possibly have the surgery because he had a garden to put in,

things to do on the farm etc...well, a couple of years passed and the Dr.

was surprised to see this man return to his practice thinking he had long

passed away...why did he want the appt? to see if he could eat anything he

wanted....no trace of cancer was found.

positive thinking?

I think it's important to know and be aware that there are ALOT of success

stories out there with illnesses...ALL illnesses, things that defy the odds

and prognosis, miracles? Flukes? Misdiagnosis? who knows..but that's what

we focus on....not the prognosis of this disease, we just keep trying to

kick the crap out of it and give Mike's liver the things it needs to

maintain itself.

Andi is right...it's hard to deny the sword hanging over our heads.

Patti

>

>Reply-To:

>To:

>Subject: A river in Egypt

>Date: Wed, 19 Dec 2001 18:53:08 -0000

>

>There is an essay in this week's issue of Time magazine which

>discusses my preferred method of dealing with PSC: denial. As far as

>coping strategies go, it's served me well during the last five years,

>and the writer in Time says that it's done the same for him in

>dealing with Parkinson's. Having read the postings to this group for

>the last two years, I have the feeling that there might be a gender-

>based distinction here (you womenfolk tend to be more proactive about

>health matters than we guys are), but everyone uses denial once in

>awhile. Anyway, the reading is entertaining!

>

>- Gene A.

>

>http://www.time.com/time/magazine/printout/0,8816,187584,00.html

>

_________________________________________________________________

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