Guest guest Posted November 1, 2010 Report Share Posted November 1, 2010 I would like to share this web site from the Center for Disease Control that i found informative:http://webcache.googleusercontent.com/search?q=cache:Xll6MFJwpD8J:www.cdc.gov/EID/content/15/10/1562.htm+NTM+DISEASE & cd=4 & hl=en & ct=clnk & gl=us EILEEN Subject: Re: hard to breatheTo: bronchiectasis Date: Sunday, October 31, 2010, 8:27 PM hi June,the advice you were given re time and strength for the vest sounds pretty similar to what I was told. I guess nurses and physios here aren't any better, so little is known about using them (eg having the vest snug before starting, being aware of tolerances etc).I started having difficulty getting it up (!) whereas never had all my life, was due to plugs forming cos lots of cysts. Still don't know what diff fibrosis makes wrt looseness and able to cough up. Eventually too sick, too weak to use Flutter valve, still don't really have enough breath to use effectively, but probably would have been great 10 or at least 5 years ago!so, maybe it just depends on what kind of phase lungs are going thru...Do hope you're able to find relief to difficulty breathing, a reason and solution.... it's awful being so bad. It's bad enough but we get used to puffing at the smallest thing, but to struggle all the time isn't nice at all...and the coughing is what stuffed my back up. What sputum cultures, CTs etc have you had. I know sometimes these can be overused but for bronch sometimes it's so hard to find out what's going on...all the best, really hope you find help soon,joy Quote Link to comment Share on other sites More sharing options...
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