Re: to jennifer-tort/breastfeeding problems and suggestions

[Guest guest]

,

That's frightening that YOU had to insist on the formula!!! The

nurses absolutely INSISTED that get fluids in her one way or

another and to use the formula as a supplement to make sure

got completely filled up. The after effects of jaundice were just

way too serious for us to count on to get the fluids from

nursing.

When we brought home from the hospital the first time we were

told to put her in direct sunlight throughout the day. From day ONE

breastfeeding was a disaster, by the 3rd day I was up all night with

screaming her head off, even after nursing for 2 hours

straight (no exaggeration). By then my husband and I were very

scared. The next morning was VERY lethargic and th whites of

her eyes were very yellow. The doctor called with the latest

bilirubin level and told us to get the the hospital ASAP.

What kills me is that I was at home unsuccessfully nursing

surrounded by bottles and bottles of formula samples that were sent

home with me. Isn't that sad???? Oh well, live and learn.

& (17 months, STARband Grad)

> > " She did have problems nursing - I wonder if the tort played a

> > role. I always thought it was the jaundice and early bottle.

She

> > would latch on fine but would always pull away and cry after a

> > couple of swallows. Hmm maybe I will call the lactation ladies

> and

> > let them know they might want to look for tort when nothing else

> > seems to make sense. "

> >

> > , hi. The tort is a direct cause of breastfeeding

problems.

> > You use your neck muscle to suck, establish a good milk supply

and

> > fill up!!! These Tort babies are at a major disadvantage if not

> > caught early as their neck muscles are compromised to suck and

> > establish a good milk supply. Same thing with Sash, would suck

> and

> > take forever to nurse (20min L and R sides, then a 4oz FAST flow

> > nipple bottle!!) She would scream forever after nursing and we

> didnt

> > know why, our pedi. and lc forced formula on us...which I was

glad

> > we did b/c Sasha finally had a full belly, fell asleep and

started

> > growing ALL of this was totally unnecessary starving had they

> > caught it and listened to my insisting something was wrong.

> >

> > When Sasha was first diagnosed at 4months...I went on a rampage

> > researching everything I could find b/c our pedi's had no

> > information for me and I had to research/resource course of

> > treatment, specialists, etc. Basically tell them what to do.

> >

> > Go to, and I ENCOURAGE ALL OF YOU, to please check out

> >

> > www.infant-torticollis.org

> >

> > Go to the Childrens Stories section. You will find that

> > breastfeeding problems are in almost every story. I was able to

> > find Lactation Consultant learning modules online training the

> LC's

> > in Torticollis, the symptoms to look for, warning signs,

different

> > holds and how to support the emotional needs of the Mother. I

will

> > try and find the articles in my favorites section and post

them.

> > Will send a post when I do find them....very enlightening stuff.

> >

> > Needless to say I was FLOORED, that here I, could find all this

> > information and everyone at that damn office missed the

> tort/plagio

> > after 4months of Sasha losing weight, head tilt and facial/skull

> > asymmetry that I pointed out at every stinking visit!!!!!!

> >

> > Hope I have shed some light here , hang in there and

> remember

> > YOU are the voice of your sweet baby, keep talking to your lc

and

> > pedi until you are heard

> >

> > Gotta run, playgroup this morning. xo, jillian in ct

>

>

>