Re: Living with Bronchiectasis

[Guest guest]

Hi Cindi,

Welcome to the group. There are many fine members with a wealth of knowledge on living with bronchiectasis. Where do you live that the schools have mold problems? It seems criminal that with a doctor's diagnosis of your problems being related to mold at work the district didn't take action. Bless you for staying for the sake of your family. Great news that you got rid of the pseudomonas. Best of luck to you in regaining more of your health.

Kay Living with Bronchiectasis

Hello,My name is Cindi. I have only had bronchiectasis for about 9 years and was only diagnosed having it 4 years ago. I realize that many of you have suffered from it for many more years than myself and probably were diagnosed at a much younger age.I wanted to join this group to see how other people cope with it. I developed bronchiectasis after working in a school that had a mold problem. I had repeated bouts with sinus infections, pneumonia, and mold even cultured my lungs. My doctors asked the school district to move me but they refused. They said it would cause a precedent. My husband had lost his job and I had two teenagers and I stayed because I felt I had no other choice.The next year I moved to a new school which also had mold as I later found out. I continued to have pneumonia and fought a sinus infection for over a year and a half. I moved the next year to a new school where I was some what healthier, except I developed breast cancer. After successfully dealing with that, I continue to try to clear up my constant bronchitis. I finally was diagnosed with bronchiectasis from a CT scan. I still tried fighting the sinus infections and lung infections with antibiotics until I developed a resistant bug called pseudomonas. Doctors gave up after IV's didn't work and I started using alternative health cures. This has helped somewhat. I still need antibiotics at times, but I don't use them continuously. I also finally got rid of pseudomonas.I just want to say that I respect all that most of you go through on a daily basis to stay healthy. I hope I can learn from you how to better cope with all of this.Cindi

[Guest guest]

Welcome, Cindi. You'll get some phenomenal support in this group.

Good luck.

Subject: Re: Living with BronchiectasisTo: bronchiectasis Date: Sunday, April 25, 2010, 2:08 PM

Hi Cindi,

Welcome to the group. There are many fine members with a wealth of knowledge on living with bronchiectasis. Where do you live that the schools have mold problems? It seems criminal that with a doctor's diagnosis of your problems being related to mold at work the district didn't take action. Bless you for staying for the sake of your family. Great news that you got rid of the pseudomonas. Best of luck to you in regaining more of your health.

Kay Living with Bronchiectasis

Hello,My name is Cindi. I have only had bronchiectasis for about 9 years and was only diagnosed having it 4 years ago. I realize that many of you have suffered from it for many more years than myself and probably were diagnosed at a much younger age.I wanted to join this group to see how other people cope with it. I developed bronchiectasis after working in a school that had a mold problem. I had repeated bouts with sinus infections, pneumonia, and mold even cultured my lungs. My doctors asked the school district to move me but they refused. They said it would cause a precedent. My husband had lost his job and I had two teenagers and I stayed because I felt I had no other choice.The next year I moved to a new school which also had mold as I later found out. I continued to have pneumonia and fought a sinus infection for over a year and a half. I moved the next year to a new

school where I was some what healthier, except I developed breast cancer. After successfully dealing with that, I continue to try to clear up my constant bronchitis. I finally was diagnosed with bronchiectasis from a CT scan. I still tried fighting the sinus infections and lung infections with antibiotics until I developed a resistant bug called pseudomonas. Doctors gave up after IV's didn't work and I started using alternative health cures. This has helped somewhat. I still need antibiotics at times, but I don't use them continuously. I also finally got rid of pseudomonas.I just want to say that I respect all that most of you go through on a daily basis to stay healthy. I hope I can learn from you how to better cope with all of this.Cindi

[Guest guest]

Hello Cindi! WOW! Have you been through it! What strength you have. I am the mother of a 7yr old son w/ bronchiectasis. I have to wonder about those schools at which you taught! How many of the students have been suffering w/'strange' lung, sinus, and bronchial issues?? I think that maybe the local news station in your community would likely find this lack of concern for the mold, VERY interesting! It takes a village, right??

Please, if you have any questions about your treatment or prognosis ask this group, but then make sure that you have a pulmonologist that is on top of this. I have read so many times that my friends here on this site are suffering and their dr has reservations about moving on to a more aggressive treatment plan.

We had no idea about this disease until we visited Mayo Clinic. We spent 4yrs here in Florida getting the run-around and lots and lots of drugs, that only did more damage to our little Sammy. Don't let that happen to you!

Sam is on the Hil-Rom Physio vest 20 mins 2x a day. Nebulizer treatment of Genentec's very very expensive drug called Pulmozyme. Also prophylactic anti-biotic M-W-F. Though that would likely be difficult for you.

It sounds as though your medical team is doing right by you, but just don't let them drop the ball!! Do you know if you have cylindrical or saccular bronchiectasis?? The difference is that cylindrical is, by definition, curable. Saccular, unfortunately is not necessarily curable, but, depending on the stage can be highly treatable. Through aggressive treatment, you could find yourself reducing your symptoms dramatically!

I wish you and all in this group, nothing but the best.. It's so hard, but they've come a long way in the treatments for our disease, in recent years. So rest assured, we're here for you! e

From: cynthia winstead winstead.c@...

To: bronchiectasis Sent: Sun, April 25, 2010 10:35:04 AMSubject: Living with Bronchiectasis

Hello,My name is Cindi. I have only had bronchiectasis for about 9 years and was only diagnosed having it 4 years ago. I realize that many of you have suffered from it for many more years than myself and probably were diagnosed at a much younger age.I wanted to join this group to see how other people cope with it. I developed bronchiectasis after working in a school that had a mold problem. I had repeated bouts with sinus infections, pneumonia, and mold even cultured my lungs. My doctors asked the school district to move me but they refused. They said it would cause a precedent. My husband had lost his job and I had two teenagers and I stayed because I felt I had no other choice.The next year I moved to a new school which also had mold as I later found out. I continued to have pneumonia and fought a sinus infection for over a year and a half. I moved the next year to a new

school where I was some what healthier, except I developed breast cancer. After successfully dealing with that, I continue to try to clear up my constant bronchitis. I finally was diagnosed with bronchiectasis from a CT scan. I still tried fighting the sinus infections and lung infections with antibiotics until I developed a resistant bug called pseudomonas. Doctors gave up after IV's didn't work and I started using alternative health cures. This has helped somewhat. I still need antibiotics at times, but I don't use them continuously. I also finally got rid of pseudomonas.I just want to say that I respect all that most of you go through on a daily basis to stay healthy. I hope I can learn from you how to better cope with all of this.Cindi

[Guest guest]

Hi Kay,

I live in Illinois. My school district is u-46 the second largest district in the state. The school was built in 1889. Yes it was very wrong of the school district. Many other teachers were also effected by developing asthma or chronic sinus problems. Our union finally intervened and made them clean it up, but doctors said they could never totally clean out all problems so I didn't stay. We are a poor district and have ongoing problems with money. It takes money to fix problems such as our building had.

I kept thinking it would all go away when I left, but it didn't. I might have sued but I passed the time limit by the time I was given a diagnosis. Normally, I am not the kind of person who would sue, however, this is an expensive illness.

Thank you for your e-mail.

Cindi

To: bronchiectasis Sent: Sun, April 25, 2010 2:08:46 PMSubject: Re: Living with Bronchiectasis

Hi Cindi,

Welcome to the group. There are many fine members with a wealth of knowledge on living with bronchiectasis. Where do you live that the schools have mold problems? It seems criminal that with a doctor's diagnosis of your problems being related to mold at work the district didn't take action. Bless you for staying for the sake of your family. Great news that you got rid of the pseudomonas. Best of luck to you in regaining more of your health.

Kay Living with Bronchiectasis

Hello,My name is Cindi. I have only had bronchiectasis for about 9 years and was only diagnosed having it 4 years ago. I realize that many of you have suffered from it for many more years than myself and probably were diagnosed at a much younger age.I wanted to join this group to see how other people cope with it. I developed bronchiectasis after working in a school that had a mold problem. I had repeated bouts with sinus infections, pneumonia, and mold even cultured my lungs. My doctors asked the school district to move me but they refused. They said it would cause a precedent. My husband had lost his job and I had two teenagers and I stayed because I felt I had no other choice.The next year I moved to a new school which also had mold as I later found out. I continued to have pneumonia and fought a sinus infection for over a year and a half. I moved the next year to a new

school where I was some what healthier, except I developed breast cancer. After successfully dealing with that, I continue to try to clear up my constant bronchitis. I finally was diagnosed with bronchiectasis from a CT scan. I still tried fighting the sinus infections and lung infections with antibiotics until I developed a resistant bug called pseudomonas. Doctors gave up after IV's didn't work and I started using alternative health cures. This has helped somewhat. I still need antibiotics at times, but I don't use them continuously. I also finally got rid of pseudomonas.I just want to say that I respect all that most of you go through on a daily basis to stay healthy. I hope I can learn from you how to better cope with all of this.Cindi