Guest guest Posted November 29, 2000 Report Share Posted November 29, 2000 , I'm so sorry that you are in pain again. Find a pain management clinic or a rehabilition clinic. They understand pain and have a totally different attitude about prescribing pain medication. I recently went through an incredibly difficult time with my back and went through a lot of doctors before I found help. I was on strong pain pills for the first time in my life but it helped me live through it. I had absolutely no problem going off of them once I was out of pain. (relatively, I mean) Hope you find some help soon. Hugs, Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2000 Report Share Posted November 29, 2000 jennifer - hello, another jennifer here, in florida. where do you live? maybe you can ask here if anyone knows of a doctor/healer in your area. if you do not want to take any meds look through the posts for what other people are trying - topical estrace, nutritional sollutions, natural supplements, ect ect . . . . .i wish i had answers for you - we are all here (pretty much) cause we are still suffering Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2000 Report Share Posted November 30, 2000 Hi sorry the surgery didn't work, i was on 70mg of amitryptilin for about 4 months, it made me tired and slow, had a dry mouth and i felt no better so i came off it, however after a month or so off it i did notice an improvement not much but enought to make a difference to the pain, i really dont know if it was the drug that did it or not, but hang on in there, i am sure thing will improve with time, vent as much as you like, i do and it helps Regards and wishing you a pain free f*** very soon Vicki > Hello all: > > I posted to this list right around when I had my surgery this summer - > I figured I'd get all better and would no longer need support. Little > did I know!! > > I actually began to have some improvement about 2 months post- surgery. > I stopped needing as much pain medication (I take Ultram, which has > been an absolute lifesaver for me) and even had 3 days of no > medication. I generally was mostly pain-free except after several > hours of sitting (towards the end of the work day) and was down to a > 1/2 pill in late afternoon. > > Feeling better, my partner and I tried finger penetration, which went > well and was even enjoyable! Then intercourse, which lasted maybe a > minute and was extremely painful. Ever since then, I am back to where > I was pre-surgery. I am in pain all the time. I have started PT with > biofeedback and finally gave in and started Elavil. I'm very > gradually tapering up 5 mg at a time. I'm only up to 15 mg now, so > I've had few side effects and zero pain relief...but I'm supposed to > go up to 30 mg. > > I'm so sick and tired of ice packs, doing the PT exercises, and just > being in pain. I was so hopeful when I started improving, and now I > just worry I will run out of Ultram and my new dr (I moved to Boston > from FL) is very stingy about prescribing it. My old Dr's attitude > was pain is bad and let's do what we can to help you, so he had no > problem with prescriptions. I wait until I really need it, but of > course by then the pain is worse.... > > I've started back at the gym, and everything else in my life is pretty > much good and relatively stress free. Except for my VVS. > > So, I guess that's it. Just an update to let you know another story > with this stupid condition. ANy words of support are appreciated, > either here or in private e-mail! > > - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2000 Report Share Posted December 1, 2000 --- In VulvarDisordersegroups, Candace Craw-Goldman > Hi . > What kind of surgery did you have? I had a " vestibulectomy " as my doctor called it. Most of the skin around the opening to my vagina was cut out. I had a lot of stitches. > I just got back from the gym, it took a long time > before I finally started exercising again. How is that > going for you? That part is going fine. It's sitting that's the much bigger problem. Thanks for asking!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2000 Report Share Posted December 1, 2000 > , I'm so sorry that you are in pain again. Find a pain management > clinic or a rehabilition clinic. They understand pain and have a totally > different attitude about prescribing pain medication. I recently went > through an incredibly difficult time with my back and went through a lot of > doctors before I found help. I was on strong pain pills for the first time > in my life but it helped me live through it. I had absolutely no problem > going off of them once I was out of pain. (relatively, I mean) Hope you find > some help soon. Hugs, Donna Thanks for the advice Donna. If I do not get relief from the amitryptalyne and my dr is still stingy about pain meds, I will pursue a pain clinic - thanks so much for the suggestion. Hopefully they won't have a differnt attitude towards someone with VVS! The irony is some docs consider Ultram totally harmless and it has zero side effects for me!! - jennifer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2000 Report Share Posted December 1, 2000 > jennifer - hello, another jennifer here, in florida. where do you live? I just moved here from FL - I had my surgery there. I was in Tampa. Now i'm in Boston and seeing a dr highly recommended by folks on this list (Dr. ). As far as I can tell, she's pretty much the only doc in Boston who even deals with VVS. > are trying - topical estrace, nutritional sollutions, natural supplements, I'm just going to try one thing at a tim. First it was surgery and now I'm going to give the Elavil and PT a good try. If those don't help, then it'll be on to the next thing. This is the most utterly ridiculous disorder. UGh. I am so sick of it. Thanks for listening! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2001 Report Share Posted March 23, 2001 In a message dated 01-03-23 14:53:54 EST, you write: << I rejoined the list. I sent a message from outlook express but it hasn't arrived yet. I'm testing to see if this message comes to me. >> Hi, Bill, glad you're back. Things have definitely Settled Down...hopefully for a Long Time. Barb is our new Moderator, doing a terrific job and Teri has become a contributing listmate. Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2001 Report Share Posted March 24, 2001 Welcome home, Bill!! I wondered why I wasn't seeing your name in my inbox. Good to hear you are back! {:-D Sheila __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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