Hi

[Guest guest]

:

<<I assume from the way

you have used

it, that EI means something else in your area. Mind

if I ask what

she does, or what they are working on with her for

EI?

>>

EI, or early intervention here in Oregon is a school. She is enrolled 5 days

per week, 9 to 11:30 and during that time she has speech therapy a couple of

days per week and the the usual classroom stuff. She was moved up this year to

a kindergarden type class with 8 other students--all boys.

They have a very cool classroom, and all the kids in the school--every single

one has some challenge. They literally took over an abandoned older school and

changed it to suit. There are units inside the classroom for all kinds of play,

learning, etc for the kids. loves school.

We have meetings to go over her progress and change her IEP as needed.

I don't know what other people have, but this seems like a true effort to me.

I'm just RELIEVED to hear that so many of the kids on this list AND their moms

are coping as I have been. It makes me feel better. I had started to take on

so much guilt because I'm not the perfect earth mom with no tv, who always

serves perfect balanced meals, has their kids potty trained by 18 months, and

all the kids wear baby gap or gymboree.

Sheesh! I garage sale, go to auctions, sell stuff on ebay, and make quilts to

stretch our dollars and cover the cost of 's destruction phases (gg). My

kids wear gap or gymboree if I find it in a yard sale for .50, but not if I have

to spend 28. bucks on one shirt at the mall! I don't really go to the mall, its

just too much stimulation sometimes. Right now, I'm trying anything and

everything I can think of to buy or find a West Highland Terrier for a family

pet for and . is obsessed with them. She is very good with

dogs, but the two we have have to stay outside--bloodhound and great pyrenees.

I want to get an adult westie for her, but the prices! I just can't see 900.

for a pup, and I don't really want a pup anyhow.

Anyway, thanks again!

Tina

Tina

Lebanon, OR

foxcreekquilts@...

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[Guest guest]

> EI, or early intervention here in Oregon is a school. She is

enrolled 5 days per week, 9 to 11:30 and during that time she has

speech therapy a couple of days per week and the the usual classroom

stuff. She was moved up this year to a kindergarden type class with

8 other students--all boys.

They have a very cool classroom, and all the kids in the school--

every single one has some challenge. They literally took over an

abandoned older school and changed it to suit. There are units

inside the classroom for all kinds of play, learning, etc for the

kids. loves school.

> We have meetings to go over her progress and change her IEP as

needed.

> I don't know what other people have, but this seems like a true

effort to me.

>

Wow. Tina, I'm green with envy. Down here the closest thing to that

is through private schools, and they cost money that we definitely

don't have. They used to have an Easter Seals class, but they shut

it down last year due to lack of funding.

We won't even be officially talking to the elementary school people

until April, and I am already really, really worried. I've heard

alot of horror stories about the school system's ways of dealing with

autistic kids, both generally and here in Ft. Myers. I'm doing my

best to collect information starting right now, hoping that the

better armed I am, the better it will go.

> I'm just RELIEVED to hear that so many of the kids on this list AND

their moms are coping as I have been. It makes me feel better. I

had started to take on so much guilt because I'm not the perfect

earth mom with no tv, who always serves perfect balanced meals, has

their kids potty trained by 18 months, and all the kids wear baby gap

or gymboree.

> Sheesh! I garage sale, go to auctions, sell stuff on ebay, and

make quilts to stretch our dollars and cover the cost of 's

destruction phases (gg). My kids wear gap or gymboree if I find it

in a yard sale for .50, but not if I have to spend 28. bucks on one

shirt at the mall! I don't really go to the mall, its just too much

stimulation sometimes.

I am fortunate to have all boys in that respect. While there are

always some items that get worn out before they get to the next boy,

most of the three youger boys clothes are hand-me-downs. As for

A.G.'s clothes and the worn out ones, I know the inside of every

dollar store, thrift shop, and flea market in the area like the back

of my hand.

>Right now, I'm trying anything and everything I can think of to buy

or find a West Highland Terrier for a family pet for and

. is obsessed with them. She is very good with dogs,

but the two we have have to stay outside--bloodhound and great

pyrenees. I want to get an adult westie for her, but the prices! I

just can't see 900. for a pup, and I don't really want a pup anyhow.

>

Good luck! Every time I've looked at fullblooded dogs the prices

have scared me away fast.

> Anyway, thanks again!

> Tina

>

> Tina

> Lebanon, OR

> foxcreekquilts@c...

B

> ___________________________________________________

> The ALL NEW CS2000 from CompuServe

> Better! Faster! More Powerful!

> 250 FREE hours! Sign-on Now!

> http://www.compuserve.com/trycsrv/cs2000/webmail/

[Guest guest]

Early Intervention here is at my home... maybe it's becuase my daughter is

only 2 1/2. She gets an hour of speech therapy on Mondays and Thursdays, an

hour of occupational therapy on Tuesday and Wednesday and two hours with

different teachers on Friday. Starting next week we will get a therapist

(tss) with a bacholars degree four days a week from 9 until 12 for

" behavioral therapy. " She/or he and I will work on 's safety issues,

PICA behaviors, using utensils when eating and PECS. My husband and I will

have " mobil " therapy (meaning they come to the house) one hour a week. I am

praying very hard that he will start talking about everything. Will will

also have a Behavioral Specialist four hours a week. I guess it's a good

thing I won't be working after next week since I won't need the money if I

can't leave the house LOL.

G

[Guest guest]

In a message dated 2/14/2002 2:11:23 PM Eastern Standard Time,

bedells@... writes:

> . Nicky gets 1 hour of ABA per week,

> which we have to pay for out of pocket, and hopefully by March will

> be getting OT, which the Health Planning Council will pay for. He's

> supposed to be getting ST, but we can't afford to pay for it

> ourselves, and the HPC only farms it out to two places, and both

See that WRONG - I can't tell you the different I've seen in my daughter in

the past six months. The most important thing is to start when they are

young I think. these people are stupid! I have the address of my local

senator write here and tomorrow off from work. A Letter will be mailed to

him tomorrow!!!!!!

G

[Guest guest]

Okay, now I'm REALLY jealous. Nicky gets 1 hour of ABA per week,

which we have to pay for out of pocket, and hopefully by March will

be getting OT, which the Health Planning Council will pay for. He's

supposed to be getting ST, but we can't afford to pay for it

ourselves, and the HPC only farms it out to two places, and both of

them have waiting lists a mile long; he's on the waiting list. He

SHOULD be getting PT too (he was already evaluated for it), but the

HPC will only cover just so many therapies at once, so until he's

through with either OT or ST (yea, right), they won't recommend him

for it. So the long and the short of it is that basicly we will get

little to no help until he starts school next year. At that point I

get to fight with the school system instead of the HPC. I just LOVE

the thought of having to start all over again!

Someone have an extra straight jacket handy?

B

> Early Intervention here is at my home... maybe it's becuase my

daughter is

> only 2 1/2. She gets an hour of speech therapy on Mondays and

Thursdays, an

> hour of occupational therapy on Tuesday and Wednesday and two hours

with

> different teachers on Friday. Starting next week we will get a

therapist

> (tss) with a bacholars degree four days a week from 9 until 12 for

> " behavioral therapy. " She/or he and I will work on 's safety

issues,

> PICA behaviors, using utensils when eating and PECS. My husband

and I will

> have " mobil " therapy (meaning they come to the house) one hour a

week. I am

> praying very hard that he will start talking about everything.

Will will

> also have a Behavioral Specialist four hours a week. I guess it's

a good

> thing I won't be working after next week since I won't need the

money if I

> can't leave the house LOL.

>

> G

[Guest guest]

> In a message dated 2/14/2002 2:11:23 PM Eastern Standard Time,

> bedells@i... writes:

>

>

> > . Nicky gets 1 hour of ABA per week,

> > which we have to pay for out of pocket, and hopefully by March

will

> > be getting OT, which the Health Planning Council will pay for.

He's

> > supposed to be getting ST, but we can't afford to pay for it

> > ourselves, and the HPC only farms it out to two places, and both

>

> See that WRONG - I can't tell you the different I've seen in my

daughter in

> the past six months. The most important thing is to start when

they are

> young I think. these people are stupid! I have the address of my

local

> senator write here and tomorrow off from work. A Letter will be

mailed to

> him tomorrow!!!!!!

>

> G

>

>

>

[Guest guest]

> Hi ,over here in Glasgow ,Andy gets 2 full days a week at special

> needs nursery(the most he could get is 3),

I wish we could get daycare, either special needs or inclusive for

Nicky. He wants desparately to socialize -- he just has no idea how

to go about doing it, and he ends up terrifying most NT kids his age

in the process. But nce again, we can't afford the cost, the system

won't provide it (they tried to give me the excuse that it actually

doesn't work,(Yea, riiight...)then when I pushed, they told me they

they don't offer any help with group activities until he's in school.

>he gets speech therapy for

> 1 hour every fortnight and he gets 1 hour with a home

educationalist

> every fortnight(though she had to cancel this week as she's got the

> flu).Because of the way our health service in the UK works ,we

don't

> have to pay for any of this . Even though the ST and the home

> educationalist are only for an hour every fortnight(which doesn't

> seem much),it works for Andy .He couldn't cope with more than an

hour

Nicky actually had to be cut back from a 1.5 hour ABA session because

he can't handle any more than an hour in one session. He loves it,

though, and has shown great improvement. He could probably handle

doing more sessions per week, but once again: $$.

> and the waiting lists to get anything for any kind of special needs

> are ridiculous.Having said all that ,it is helping.Dh and I see a

big

> change in Andy,he will socalise more with his sister ,and even

though

> his language is still miles behind an NT 4 year old ,he comes out

> with a new word fairly regularly .The most recent " Buzz (Lightyear)

> broked " - of course that was after Andy flung the toy down the

stairs

> in a temper !!! And no it wasn't Andy(or antwu as he calls

> himself!!!) lol

Have room for six more in your house? lol

> Alison

B

[Guest guest]

>

> > Hi ,over here in Glasgow ,Andy gets 2 full days a week at special

> > needs nursery(the most he could get is 3),

>

> I wish we could get daycare, either special needs or inclusive for

> Nicky. He wants desparately to socialize -- he just has no idea

how

> to go about doing it, and he ends up terrifying most NT kids his

age

> in the process. But nce again, we can't afford the cost, the

system

> won't provide it (they tried to give me the excuse that it actually

> doesn't work,(Yea, riiight...)then when I pushed, they told me they

> they don't offer any help with group activities until he's in

school.

>

> >he gets speech therapy for

> > 1 hour every fortnight and he gets 1 hour with a home

> educationalist

> > every fortnight(though she had to cancel this week as she's got

the

> > flu).Because of the way our health service in the UK works ,we

> don't

> > have to pay for any of this . Even though the ST and the home

> > educationalist are only for an hour every fortnight(which doesn't

> > seem much),it works for Andy .He couldn't cope with more than an

> hour

>

> Nicky actually had to be cut back from a 1.5 hour ABA session

because

> he can't handle any more than an hour in one session. He loves it,

> though, and has shown great improvement. He could probably handle

> doing more sessions per week, but once again: $$.

>

> > and the waiting lists to get anything for any kind of special

needs

> > are ridiculous.Having said all that ,it is helping.Dh and I see a

> big

> > change in Andy,he will socalise more with his sister ,and even

> though

> > his language is still miles behind an NT 4 year old ,he comes out

> > with a new word fairly regularly .The most recent " Buzz

(Lightyear)

> > broked " - of course that was after Andy flung the toy down the

> stairs

> > in a temper !!! And no it wasn't Andy(or antwu as he calls

> > himself!!!) lol

>

> Have room for six more in your house? lol

> > Alison

>

> B

Sorry wendy ,there is barely enough room for the 4 of us !!! lol

[Guest guest]

:

This is sick. Why on earth can't they treat autism as fully as possible

when the child is young so as to increase the likelihood of having a good

outcome? Some of this stuff, like the ABA, you can do on your own? There

are some pretty good books to use.

Salli

Nicky gets 1 hour of ABA per week,

> which we have to pay for out of pocket, and hopefully by March will

> be getting OT, which the Health Planning Council will pay for. He's

> supposed to be getting ST, but we can't afford to pay for it

> ourselves, and the HPC only farms it out to two places, and both of

> them have waiting lists a mile long; he's on the waiting list. He

> SHOULD be getting PT too (he was already evaluated for it), but the

> HPC will only cover just so many therapies at once, so until he's

> through with either OT or ST (yea, right), they won't recommend him

> for it. So the long and the short of it is that basicly we will get

> little to no help until he starts school next year. At that point I

> get to fight with the school system instead of the HPC. I just LOVE

> the thought of having to start all over again!

>

> Someone have an extra straight jacket handy?

>

> B

>

>

> > Early Intervention here is at my home... maybe it's becuase my

> daughter is

> > only 2 1/2. She gets an hour of speech therapy on Mondays and

> Thursdays, an

> > hour of occupational therapy on Tuesday and Wednesday and two hours

> with

> > different teachers on Friday. Starting next week we will get a

> therapist

> > (tss) with a bacholars degree four days a week from 9 until 12 for

> > " behavioral therapy. " She/or he and I will work on 's safety

> issues,

> > PICA behaviors, using utensils when eating and PECS. My husband

> and I will

> > have " mobil " therapy (meaning they come to the house) one hour a

> week. I am

> > praying very hard that he will start talking about everything.

> Will will

> > also have a Behavioral Specialist four hours a week. I guess it's

> a good

> > thing I won't be working after next week since I won't need the

> money if I

> > can't leave the house LOL.

> >

> > G

>

>

>

>

>

>

>

>