Re: epidural contraindications

[Guest guest]

If the anesthesiologist doesn't know this, find another one!! Truly!

Bring your MRI report or the films if you have them. Good luck. I know this

is all overwhelming but it will become less so! Randee

In a message dated 3/22/2011 7:49:08 A.M. Central Daylight Time,

patientperspective@... writes:

if anyone knows any other sites besides this one and Wikipedia that mention

TSC as a relative contraindication, (and scoliosis if you see it because I

have mild scoliosis L3-L4 area) please give me the link

so that I can show it to the anesthesiolgist if I feel the need.

_http://books.google.ca/books?id=vEXJwhPSYpoC & pg=PA609 & lpg=PA609 & dq=epidural

+contraindications+tethered & source=bl & ots=HC9DIRZ4-h & sig=2Ajtc1nHv0m8axq_Ql3

TPMe67Gs & hl=en & ei=p1ODTajFA8XUgAeQ0YHTCA & sa=X & oi=book_result & ct=result & resnu

m=1 & sqi=2 & ved=0CBUQ6AEwAA#v=onepage & q=epidural%20contraindications%20tethere

d & f=false_

(http://books.google.ca/books?id=vEXJwhPSYpoC & pg=PA609 & lpg=PA609 & dq=epidural+con\

traindications+tethered & source=bl & ots=HC9DIRZ4-h & sig=2Ajtc1nH

v0m8axq_Ql3TPMe67Gs & hl=en & ei=p1ODTajFA8XUgAeQ0YHTCA & sa=X & oi=book_result & ct=r

esult & resnum=1 & sqi=2 & ved=0CBUQ6AEwAA#v=onepage & q=epidural%20contraindication

s%20tethered & f=false)

-sorry if the link doesn't work I'm not sure if it will, it is from

Cousins and Bridenbaugh's Neural Blockade in Clinical Anesthesia and Pain-

thank you

Margaret

[Guest guest]

Good link!I agree with Randee, I had 3 neurosurgeons (none TC specialists) tell

me to cancel my epidural. My pain doc wanted to do that and MORE.

Subject: Re: epidural contraindications

To: tetheredspinalcord

Date: Tuesday, March 22, 2011, 7:59 AM

 

If the anesthesiologist doesn't know this, find another one!! Truly!

Bring your MRI report or the films if you have them. Good luck. I know this

is all overwhelming but it will become less so! Randee

In a message dated 3/22/2011 7:49:08 A.M. Central Daylight Time,

patientperspective@... writes:

if anyone knows any other sites besides this one and Wikipedia that mention

TSC as a relative contraindication, (and scoliosis if you see it because I

have mild scoliosis L3-L4 area) please give me the link

so that I can show it to the anesthesiolgist if I feel the need.

_http://books.google.ca/books?id=vEXJwhPSYpoC & pg=PA609 & lpg=PA609 & dq=epidural

+contraindications+tethered & source=bl & ots=HC9DIRZ4-h & sig=2Ajtc1nHv0m8axq_Ql3

TPMe67Gs & hl=en & ei=p1ODTajFA8XUgAeQ0YHTCA & sa=X & oi=book_result & ct=result & resnu

m=1 & sqi=2 & ved=0CBUQ6AEwAA#v=onepage & q=epidural%20contraindications%20tethere

d & f=false_

(http://books.google.ca/books?id=vEXJwhPSYpoC & pg=PA609 & lpg=PA609 & dq=epidural+con\

traindications+tethered & source=bl & ots=HC9DIRZ4-h & sig=2Ajtc1nH

v0m8axq_Ql3TPMe67Gs & hl=en & ei=p1ODTajFA8XUgAeQ0YHTCA & sa=X & oi=book_result & ct=r

esult & resnum=1 & sqi=2 & ved=0CBUQ6AEwAA#v=onepage & q=epidural%20contraindication

s%20tethered & f=false)

-sorry if the link doesn't work I'm not sure if it will, it is from

Cousins and Bridenbaugh's Neural Blockade in Clinical Anesthesia and Pain-

thank you

Margaret

[Guest guest]

hi ,

Did the neurosurgeons happen to say a specific reason that you shouldn't get the

injections? Did they say that no one with TSC should get ever get them, or what

did they say?

thanks

>

>

> Subject: Re: epidural contraindications

> To: tetheredspinalcord

> Date: Tuesday, March 22, 2011, 7:59 AM

>

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> If the anesthesiologist doesn't know this, find another one!! Truly!

>

> Bring your MRI report or the films if you have them. Good luck. I know this

>

> is all overwhelming but it will become less so! Randee

>

>

>

>

>

> In a message dated 3/22/2011 7:49:08 A.M. Central Daylight Time,

>

> patientperspective@... writes:

>

>

>

> if anyone knows any other sites besides this one and Wikipedia that mention

>

> TSC as a relative contraindication, (and scoliosis if you see it because I

>

> have mild scoliosis L3-L4 area) please give me the link

>

> so that I can show it to the anesthesiolgist if I feel the need.

>

>

>

> _http://books.google.ca/books?id=vEXJwhPSYpoC & pg=PA609 & lpg=PA609 & dq=epidural

>

> +contraindications+tethered & source=bl & ots=HC9DIRZ4-h & sig=2Ajtc1nHv0m8axq_Ql3

>

> TPMe67Gs & hl=en & ei=p1ODTajFA8XUgAeQ0YHTCA & sa=X & oi=book_result & ct=result & resnu

>

> m=1 & sqi=2 & ved=0CBUQ6AEwAA#v=onepage & q=epidural%20contraindications%20tethere

>

> d & f=false_

>

>

(http://books.google.ca/books?id=vEXJwhPSYpoC & pg=PA609 & lpg=PA609 & dq=epidural+con\

traindications+tethered & source=bl & ots=HC9DIRZ4-h & sig=2Ajtc1nH

>

> v0m8axq_Ql3TPMe67Gs & hl=en & ei=p1ODTajFA8XUgAeQ0YHTCA & sa=X & oi=book_result & ct=r

>

> esult & resnum=1 & sqi=2 & ved=0CBUQ6AEwAA#v=onepage & q=epidural%20contraindication

>

> s%20tethered & f=false)

>

>

>

> -sorry if the link doesn't work I'm not sure if it will, it is from

>

> Cousins and Bridenbaugh's Neural Blockade in Clinical Anesthesia and Pain-

>

>

>

> thank you

>

> Margaret

>

>

>

>

[Guest guest]

I was told because there is no way to see how far the cord is stretched.

Actually on my MRI Dr. Frim went all the way down and said he has trouble seeing

how far it goes, he thought it was past L5, but beyond that it was hard to

tell.Secondly because of inflammation.. 

now mind you my pain doc explained that TC was " no big deal' and that the NERVES

were bundled together... and you have surgery to " unbundle " them. He even drew

me a picture of it.

Subject: Re: epidural contraindications

To: tetheredspinalcord

Date: Tuesday, March 22, 2011, 1:49 PM

 

hi ,

Did the neurosurgeons happen to say a specific reason that you shouldn't get the

injections? Did they say that no one with TSC should get ever get them, or what

did they say?

thanks

>

>

> Subject: Re: epidural contraindications

> To: tetheredspinalcord

> Date: Tuesday, March 22, 2011, 7:59 AM

>

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>  

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> If the anesthesiologist doesn't know this, find another one!! Truly!

>

> Bring your MRI report or the films if you have them. Good luck. I know this

>

> is all overwhelming but it will become less so! Randee

>

>

>

>

>

> In a message dated 3/22/2011 7:49:08 A.M. Central Daylight Time,

>

> patientperspective@... writes:

>

>

>

> if anyone knows any other sites besides this one and Wikipedia that mention

>

> TSC as a relative contraindication, (and scoliosis if you see it because I

>

> have mild scoliosis L3-L4 area) please give me the link

>

> so that I can show it to the anesthesiolgist if I feel the need.

>

>

>

> _http://books.google.ca/books?id=vEXJwhPSYpoC & pg=PA609 & lpg=PA609 & dq=epidural

>

> +contraindications+tethered & source=bl & ots=HC9DIRZ4-h & sig=2Ajtc1nHv0m8axq_Ql3

>

> TPMe67Gs & hl=en & ei=p1ODTajFA8XUgAeQ0YHTCA & sa=X & oi=book_result & ct=result & resnu

>

> m=1 & sqi=2 & ved=0CBUQ6AEwAA#v=onepage & q=epidural%20contraindications%20tethere

>

> d & f=false_

>

>

(http://books.google.ca/books?id=vEXJwhPSYpoC & pg=PA609 & lpg=PA609 & dq=epidural+con\

traindications+tethered & source=bl & ots=HC9DIRZ4-h & sig=2Ajtc1nH

>

> v0m8axq_Ql3TPMe67Gs & hl=en & ei=p1ODTajFA8XUgAeQ0YHTCA & sa=X & oi=book_result & ct=r

>

> esult & resnum=1 & sqi=2 & ved=0CBUQ6AEwAA#v=onepage & q=epidural%20contraindication

>

> s%20tethered & f=false)

>

>

>

> -sorry if the link doesn't work I'm not sure if it will, it is from

>

> Cousins and Bridenbaugh's Neural Blockade in Clinical Anesthesia and Pain-

>

>

>

> thank you

>

> Margaret

>

>

>

>

[Guest guest]

So if my MRI shows my conus between L2-L3, then it might be different for me?

>

> >

>

> > From: Randeejae@ <Randeejae@>

>

> > Subject: Re: epidural contraindications

>

> > To: tetheredspinalcord

>

> > Date: Tuesday, March 22, 2011, 7:59 AM

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> > If the anesthesiologist doesn't know this, find another one!! Truly!

>

> >

>

> > Bring your MRI report or the films if you have them. Good luck. I know

this

>

> >

>

> > is all overwhelming but it will become less so! Randee

>

> >

>

> >

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> >

>

> >

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>

> > In a message dated 3/22/2011 7:49:08 A.M. Central Daylight Time,

>

> >

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> > patientperspective@ writes:

>

> >

>

> >

>

> >

>

> > if anyone knows any other sites besides this one and Wikipedia that mention

>

> >

>

> > TSC as a relative contraindication, (and scoliosis if you see it because I

>

> >

>

> > have mild scoliosis L3-L4 area) please give me the link

>

> >

>

> > so that I can show it to the anesthesiolgist if I feel the need.

>

> >

>

> >

>

> >

>

> > _http://books.google.ca/books?id=vEXJwhPSYpoC & pg=PA609 & lpg=PA609 & dq=epidural

>

> >

>

> > +contraindications+tethered & source=bl & ots=HC9DIRZ4-h & sig=2Ajtc1nHv0m8axq_Ql3

>

> >

>

> > TPMe67Gs & hl=en & ei=p1ODTajFA8XUgAeQ0YHTCA & sa=X & oi=book_result & ct=result & resnu

>

> >

>

> > m=1 & sqi=2 & ved=0CBUQ6AEwAA#v=onepage & q=epidural%20contraindications%20tethere

>

> >

>

> > d & f=false_

>

> >

>

> >

(http://books.google.ca/books?id=vEXJwhPSYpoC & pg=PA609 & lpg=PA609 & dq=epidural+con\

traindications+tethered & source=bl & ots=HC9DIRZ4-h & sig=2Ajtc1nH

>

> >

>

> > v0m8axq_Ql3TPMe67Gs & hl=en & ei=p1ODTajFA8XUgAeQ0YHTCA & sa=X & oi=book_result & ct=r

>

> >

>

> > esult & resnum=1 & sqi=2 & ved=0CBUQ6AEwAA#v=onepage & q=epidural%20contraindication

>

> >

>

> > s%20tethered & f=false)

>

> >

>

> >

>

> >

>

> > -sorry if the link doesn't work I'm not sure if it will, it is from

>

> >

>

> > Cousins and Bridenbaugh's Neural Blockade in Clinical Anesthesia and Pain-

>

> >

>

> >

>

> >

>

> > thank you

>

> >

>

> > Margaret

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> >

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> >

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> >

[Guest guest]

I have no idea, sorry. I have to caution you. I did have 1 nerve block/epidural

prior to my diagnosis (a week before) and I got worse. I felt like I had lava

going up and down my spine, and pain overall got worse. I was okay on Norco up

to that point, had to switch to morphine. Your cord is not meant to be that low,

so for a " normal " spinal cord ends L1-L2.

Is this a pain doc doing this?

Subject: Re: epidural contraindications

To: tetheredspinalcord

Date: Tuesday, March 22, 2011, 2:26 PM

 

So if my MRI shows my conus between L2-L3, then it might be different for me?

>

> >

>

> > From: Randeejae@ <Randeejae@>

>

> > Subject: Re: epidural contraindications

>

> > To: tetheredspinalcord

>

> > Date: Tuesday, March 22, 2011, 7:59 AM

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> > If the anesthesiologist doesn't know this, find another one!! Truly!

>

> >

>

> > Bring your MRI report or the films if you have them. Good luck. I know

this

>

> >

>

> > is all overwhelming but it will become less so! Randee

>

> >

>

> >

>

> >

>

> >

>

> >

>

> > In a message dated 3/22/2011 7:49:08 A.M. Central Daylight Time,

>

> >

>

> > patientperspective@ writes:

>

> >

>

> >

>

> >

>

> > if anyone knows any other sites besides this one and Wikipedia that mention

>

> >

>

> > TSC as a relative contraindication, (and scoliosis if you see it because I

>

> >

>

> > have mild scoliosis L3-L4 area) please give me the link

>

> >

>

> > so that I can show it to the anesthesiolgist if I feel the need.

>

> >

>

> >

>

> >

>

> > _http://books.google.ca/books?id=vEXJwhPSYpoC & pg=PA609 & lpg=PA609 & dq=epidural

>

> >

>

> > +contraindications+tethered & source=bl & ots=HC9DIRZ4-h & sig=2Ajtc1nHv0m8axq_Ql3

>

> >

>

> > TPMe67Gs & hl=en & ei=p1ODTajFA8XUgAeQ0YHTCA & sa=X & oi=book_result & ct=result & resnu

>

> >

>

> > m=1 & sqi=2 & ved=0CBUQ6AEwAA#v=onepage & q=epidural%20contraindications%20tethere

>

> >

>

> > d & f=false_

>

> >

>

> >

(http://books.google.ca/books?id=vEXJwhPSYpoC & pg=PA609 & lpg=PA609 & dq=epidural+con\

traindications+tethered & source=bl & ots=HC9DIRZ4-h & sig=2Ajtc1nH

>

> >

>

> > v0m8axq_Ql3TPMe67Gs & hl=en & ei=p1ODTajFA8XUgAeQ0YHTCA & sa=X & oi=book_result & ct=r

>

> >

>

> > esult & resnum=1 & sqi=2 & ved=0CBUQ6AEwAA#v=onepage & q=epidural%20contraindication

>

> >

>

> > s%20tethered & f=false)

>

> >

>

> >

>

> >

>

> > -sorry if the link doesn't work I'm not sure if it will, it is from

>

> >

>

> > Cousins and Bridenbaugh's Neural Blockade in Clinical Anesthesia and Pain-

>

> >

>

> >

>

> >

>

> > thank you

>

> >

>

> > Margaret

>

> >

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> >

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> >

>

> >

[Guest guest]

I just e-mailed Dr. Frim... he usually answers

I am considering having the Botox/steroid done on hips and buttocks. So I need

to know too!

Subject: Re: epidural contraindications

To: tetheredspinalcord

Date: Tuesday, March 22, 2011, 2:26 PM

 

So if my MRI shows my conus between L2-L3, then it might be different for me?

>

> >

>

> > From: Randeejae@ <Randeejae@>

>

> > Subject: Re: epidural contraindications

>

> > To: tetheredspinalcord

>

> > Date: Tuesday, March 22, 2011, 7:59 AM

>

> >

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> > If the anesthesiologist doesn't know this, find another one!! Truly!

>

> >

>

> > Bring your MRI report or the films if you have them. Good luck. I know

this

>

> >

>

> > is all overwhelming but it will become less so! Randee

>

> >

>

> >

>

> >

>

> >

>

> >

>

> > In a message dated 3/22/2011 7:49:08 A.M. Central Daylight Time,

>

> >

>

> > patientperspective@ writes:

>

> >

>

> >

>

> >

>

> > if anyone knows any other sites besides this one and Wikipedia that mention

>

> >

>

> > TSC as a relative contraindication, (and scoliosis if you see it because I

>

> >

>

> > have mild scoliosis L3-L4 area) please give me the link

>

> >

>

> > so that I can show it to the anesthesiolgist if I feel the need.

>

> >

>

> >

>

> >

>

> > _http://books.google.ca/books?id=vEXJwhPSYpoC & pg=PA609 & lpg=PA609 & dq=epidural

>

> >

>

> > +contraindications+tethered & source=bl & ots=HC9DIRZ4-h & sig=2Ajtc1nHv0m8axq_Ql3

>

> >

>

> > TPMe67Gs & hl=en & ei=p1ODTajFA8XUgAeQ0YHTCA & sa=X & oi=book_result & ct=result & resnu

>

> >

>

> > m=1 & sqi=2 & ved=0CBUQ6AEwAA#v=onepage & q=epidural%20contraindications%20tethere

>

> >

>

> > d & f=false_

>

> >

>

> >

(http://books.google.ca/books?id=vEXJwhPSYpoC & pg=PA609 & lpg=PA609 & dq=epidural+con\

traindications+tethered & source=bl & ots=HC9DIRZ4-h & sig=2Ajtc1nH

>

> >

>

> > v0m8axq_Ql3TPMe67Gs & hl=en & ei=p1ODTajFA8XUgAeQ0YHTCA & sa=X & oi=book_result & ct=r

>

> >

>

> > esult & resnum=1 & sqi=2 & ved=0CBUQ6AEwAA#v=onepage & q=epidural%20contraindication

>

> >

>

> > s%20tethered & f=false)

>

> >

>

> >

>

> >

>

> > -sorry if the link doesn't work I'm not sure if it will, it is from

>

> >

>

> > Cousins and Bridenbaugh's Neural Blockade in Clinical Anesthesia and Pain-

>

> >

>

> >

>

> >

>

> > thank you

>

> >

>

> > Margaret

>

> >

>

> >

>

> >

>

> >

[Guest guest]

Margaret,

TSC is only a relative contraindication (as opposed to an absolute

contraindication) to spinal injections. Basically that means that it is a

contraindication, relative to some other factor (as opposed to an absolute

contraindication, which means that if a person has TSC it should never be

done, regardless of the situation). The relative nature of the

contraindication is as has been indicated already - it depends on knowing

where your spinal cord ends. That should be known in anyone with TC before

having this kind of injection. I think the reason that scoliosis is also a

relative contraindication is that 1) TC is a common cause for scoliosis. 2)

if you have scoliosis, your vertebral anatomy is not normal and could cause

problems with the injection and placing it in the proper location if the MD

is not familiar with the abnormal anatomy before doing the injection.

Like I said before, I have had more injections than I can count and

injections of all different kinds. The only one that helped me was the first

- and that was also the most dangerous because the MD did not know I had TC

(although he did know I had SBO, yet didn't order an MRI to make sure there

was not cord anomaly underlying or to be familiar with my abnormal vertebral

anatomy. My subsequent injections didn't make me better, but they didn't

make me worse, either. But, my MD was very familiar with my anatomy and

where my cord ended.

I know some people on this list are very pro or very con spinal injections.

I'm neutral. I think as long as the MD that is doing it has the MRI, knows

where your cord ends and knows about any vertebral anomalies before doing

it, as long as (s)he is experienced with them, then they can be done

safely. But, that is just MHO. That being said, I have to agree with

Randee, and if this doc thinks TC is no big deal and didn't know it was a

relative contraindication, then I would stay away and find one who is very

familiar with NTDs and doing spinal injections in patients with these

conditions.

Jenn

On Tue, Mar 22, 2011 at 8:48 AM, weathering_the_tethering <

patientperspective@...> wrote:

>

>

> if anyone knows any other sites besides this one and Wikipedia that mention

> TSC as a relative contraindication, (and scoliosis if you see it because I

> have mild scoliosis L3-L4 area) please give me the link

> so that I can show it to the anesthesiolgist if I feel the need.

> Margaret

>

>

>

[Guest guest]

,

The botox/steroid injections in the hips and buttocks would be different

than an epidural injection. The injections into the hips and buttocks would

not be affected by where your cord ends. However, any spinal injections for

you sound like a pretty dangerous thing until you have surgery where Dr.

Frim (or other neurosurgeon) can actually visualize the end of your cord and

note its level, since yours ends quite low and cannot be clearly determined

if it extends to the sacrum.

Jenn

On Tue, Mar 22, 2011 at 3:44 PM, Dybowski wrote:

>

>

> I just e-mailed Dr. Frim... he usually answers

> I am considering having the Botox/steroid done on hips and buttocks. So I

> need to know too!

>

>

>

[Guest guest]

Jenn and ,

I think I actually did read somewhere that scoliosis and kyphosis can occur with

TC. Just don't ask me where, I've read so many sites.

Yes I was aware that it is a relative contraindication. I believe that the

anesthesiologist will have a copy of the MRI *report* from my doctor, but not

the MRI (and I have a copy of the report too). So the anesthesiologist will

know where the cord ends (L2-L3), but what role would the fatty/tight filum

terminale play in increasing the risk of the procedure, if any? does anyone

know?

Plus the MRI report says there is mild scoliosis L3-L4, but that might not be

enough information, he won't see how it curves.

like I said before, I am going to ask this man what experience he has giving

injections to people with tethered cords. I plan to ask him more questions if

needed to gauge his knowledge about them and his opinion about their importance.

thank you

Margaret

>

> >

> >

> > if anyone knows any other sites besides this one and Wikipedia that mention

> > TSC as a relative contraindication, (and scoliosis if you see it because I

> > have mild scoliosis L3-L4 area) please give me the link

> > so that I can show it to the anesthesiolgist if I feel the need.

> > Margaret

> >

> >

> >

>

>

>

[Guest guest]

Okay I am so confused. Yes I know that. I had the injections done prior to my

surgery and knowledge of TC, and stopped them before. I just needed an excuse

to ask him about the epidural.That is exactly what I said, he couldn't tell

where my cord ended so he said no way to injections.Are you missing a part of

the conversation?

>

>

> I just e-mailed Dr. Frim... he usually answers

> I am considering having the Botox/steroid done on hips and buttocks. So I

> need to know too!

>

>

>

[Guest guest]

Did your neurosurgeon who read the MRI tell you to get it done?

I just e-mailed Dr. Frim to see what the deal is...

You may be a different case, I literally had the head of neuro at a

prominent institution call my boss and scream to cancel the epidural. He

called the pain guy an F & $$@#! moron (and he wasn't the only one either)

I would ask a neurosurgeon, just saying

Injections are unfortunately a lot of money.. I think all of us have had them,

and I know people with TC who had them, but I have not heard a good story. I

would hate for you to have your pain levels spike like mine did. 

Subject: Re: epidural contraindications

To: tetheredspinalcord

Date: Tuesday, March 22, 2011, 4:06 PM

 

Jenn and ,

I think I actually did read somewhere that scoliosis and kyphosis can occur with

TC. Just don't ask me where, I've read so many sites.

Yes I was aware that it is a relative contraindication. I believe that the

anesthesiologist will have a copy of the MRI *report* from my doctor, but not

the MRI (and I have a copy of the report too). So the anesthesiologist will

know where the cord ends (L2-L3), but what role would the fatty/tight filum

terminale play in increasing the risk of the procedure, if any? does anyone

know?

Plus the MRI report says there is mild scoliosis L3-L4, but that might not be

enough information, he won't see how it curves.

like I said before, I am going to ask this man what experience he has giving

injections to people with tethered cords. I plan to ask him more questions if

needed to gauge his knowledge about them and his opinion about their importance.

thank you

Margaret

>

> >

> >

> > if anyone knows any other sites besides this one and Wikipedia that mention

> > TSC as a relative contraindication, (and scoliosis if you see it because I

> > have mild scoliosis L3-L4 area) please give me the link

> > so that I can show it to the anesthesiolgist if I feel the need.

> > Margaret

> >

> >

> >

>

>

>

[Guest guest]

Its possible I missed something. Who knows LOL. Then again, I drive my dad

nuts, bc according to him, I repeat myself a lot. Maybe I just wanted to

hear myself type - LOL. Maybe I was confused, since you said you were

asking Frim about the epidural... I don't know. Just ignore me if need be -

that's what my dad does - LOL

Have a great day!

Jenn

On Tue, Mar 22, 2011 at 5:08 PM, Dybowski wrote:

>

>

> Okay I am so confused. Yes I know that. I had the injections done prior to

> my surgery and knowledge of TC, and stopped them before. I just needed an

> excuse to ask him about the epidural.That is exactly what I said, he

> couldn't tell where my cord ended so he said no way to injections.Are you

> missing a part of the conversation?

>

>

>

[Guest guest]

It happens. I was just confused lol

Funny, he said after surgery only muscular injections and only mid back

epidurals since there is no space in my lower back.

As to before surgery because they can't tell where the cord ends, even with an

MRI in some cases until they go in and they could cause more damage. 

>

>

> Okay I am so confused. Yes I know that. I had the injections done prior to

> my surgery and knowledge of TC, and stopped them before. I just needed an

> excuse to ask him about the epidural.That is exactly what I said, he

> couldn't tell where my cord ended so he said no way to injections.Are you

> missing a part of the conversation?

>

>

>

[Guest guest]

hi ,

no I don't have a Neurosurgeon, my regular doctor is suggesting the cortisone

treatments.

>

> >

>

> > >

>

> > >

>

> > > if anyone knows any other sites besides this one and Wikipedia that

mention

>

> > > TSC as a relative contraindication, (and scoliosis if you see it because I

>

> > > have mild scoliosis L3-L4 area) please give me the link

>

> > > so that I can show it to the anesthesiolgist if I feel the need.

>

> > > Margaret

>

> > >

>

> > >

>

> > >

>

> >

>

> >

>

> >

[Guest guest]

Good luck to you! Hope it brings you relief

On Tue Mar 22nd, 2011 6:10 PM CDT weathering_the_tethering wrote:

>hi ,

>

>no I don't have a Neurosurgeon, my regular doctor is suggesting the cortisone

treatments.

>

>

>>

>> >

>>

>> > >

>>

>> > >

>>

>> > > if anyone knows any other sites besides this one and Wikipedia that

mention

>>

>> > > TSC as a relative contraindication, (and scoliosis if you see it because

I

>>

>> > > have mild scoliosis L3-L4 area) please give me the link

>>

>> > > so that I can show it to the anesthesiolgist if I feel the need.

>>

>> > > Margaret

>>

>> > >

>>

>> > >

>>

>> > >

>>

>> >

>>

>> >

>>

>> >

[Guest guest]

weathering_the_tethering said the following on 3/22/2011 1:26 PM:

> So if my MRI shows my conus between L2-L3, then it might be different for me?

>

>

>

>> I was told because there is no way to see how far the cord is stretched.

Actually on my MRI Dr. Frim went all the way down and said he has trouble seeing

how far it goes, he thought it was past L5, but beyond that it was hard to

tell.Secondly because of inflammation..Â

>> now mind you my pain doc explained that TC was " no big deal' and that the

NERVES were bundled together... and you have surgery to " unbundle " them. He even

drew me a picture

My conus was released from L5 and popped up to L2-L3. As I understand a

conus at L2-L3 is normal. That doesnt mean it can not be at L2-L3 though.

R

[Guest guest]

Rick,

I have read that some neurologists say L2 and up is normal and others say higher

is normal.

But with the tight/fatty terminale then it would still be tethered, is my

understanding. I wish I could talk to a neurologist about it.

> >

> >> I was told because there is no way to see how far the cord is stretched.

Actually on my MRI Dr. Frim went all the way down and said he has trouble seeing

how far it goes, he thought it was past L5, but beyond that it was hard to

tell.Secondly because of inflammation..Â

> >> now mind you my pain doc explained that TC was " no big deal' and that the

NERVES were bundled together... and you have surgery to " unbundle " them. He even

drew me a picture

> My conus was released from L5 and popped up to L2-L3. As I understand a

> conus at L2-L3 is normal. That doesnt mean it can not be at L2-L3 though.

>

> R

>

[Guest guest]

From my reading the vast majority are L1-2 but they consider the conus to be

normal to L2.  I would think that a L2-3 is just below 'normal'.  My dd conus

was bottom of L2 and she was symptomatic.  Mri results were borderline and her

thick/abnormal filum did not show up on her mri.  mri had read fatty filum vs

artifact.  1st peds nsg said no to surgery that she did not have tc. 2nd nsg

did

the surgery and she is getting better.carol

________________________________

To: tetheredspinalcord

Sent: Wed, March 23, 2011 5:50:13 AM

Subject: Re: epidural contraindications

 

Rick,

I have read that some neurologists say L2 and up is normal and others say higher

is normal.

But with the tight/fatty terminale then it would still be tethered, is my

understanding. I wish I could talk to a neurologist about it.

> >

> >> I was told because there is no way to see how far the cord is stretched.

>Actually on my MRI Dr. Frim went all the way down and said he has trouble

seeing

>how far it goes, he thought it was past L5, but beyond that it was hard to

>tell.Secondly because of inflammation..Â

>

> >> now mind you my pain doc explained that TC was " no big deal' and that the

>NERVES were bundled together... and you have surgery to " unbundle " them. He

even

>drew me a picture

>

> My conus was released from L5 and popped up to L2-L3. As I understand a

> conus at L2-L3 is normal. That doesnt mean it can not be at L2-L3 though.

>

> R

>