Guest guest Posted October 5, 2010 Report Share Posted October 5, 2010 I changed the " subject " as I remember someone asking to keep that accurate to save them from reading posts they wern't concerned with.. so you were good until the fall. Well, a blunt force injury to the tailbone can cause PN, PNE and of course coccydynia. The mri or xray didnt show a broken coccyx? Regardless, broken or not it can still cause all that. As for the TC, very common for an injury to cause a previously undetected TC to surface. Not that it wasnt always there but they never thought to look for it, although some people do get TC after a trauma but it is usually higher and not a " tight fatty filum " ...that is typically congenital. As I said before, these are all very interconnected structurally so very difficult to tell what is causing what. Because you did have an injury (some people with PN, PNE and coccydynia dont have an " injury " they just develop the symptoms) it is very difficult to figure out what caused what. The " torque " on the TC could cause all that burning, tingling, numbness, elec shocks etc, too bad they didnt dx the TC before all those injections and nerve blocks...we have to be really careful what we get done. I know I was very concerned about Arachnoiditis for awhile before my PNE was verified.  ________________________________ To: tetheredspinalcord Sent: Tue, October 5, 2010 4:26:39 PM Subject: Re: pillow for sitting  I fell down 15 stairs, no carpet right on my butt, I had some pain while sitting. It then moved to my pelvis, a burning pain. I went to OB/GYN- nothing, I think I went to 3. By that time the burning spread to my knees, front and back, and I had severe pain while sitting. I think I went to urgent care 4 times- x-ray, nothing.... I went to ER at least 3 times. I was told it's heart burn etc....had colonscopy, bone scan, CT, MRI.. nothing. Lots of nerve blocks and injections. Then some surgeon (who was very confused as to why I was in his office) " remembered " a patient who had PNE, and coccyx pain.I was sent to PT (internal, external) and had an epidural. Somehow things got better for maybe 6 months, then everything started again, but the burning to my knees has been replaced with tingling.numbness/crawling/ electrical pain, and I have pelvic and back pain while sitting and standing, I consider it a 7-8 scale on average.I cannot lie on my side, I feel like something is pulling me?? From what I get- I have some muscular issue, and according to 1 pain guy scarring on tail bone... and now tethered cord. > My daughter got a prescription to go to a medical place for one of those > specially made and sized donut pillows..she had her friends autograph it like > a cast LOL Gotta love the attitude! > > > In a message dated 10/1/2010 8:55:42 P.M. Central Daylight Time, > deeinbc@... writes: > > I have had issues with sitting after both my TC surgery and now my spinal > fusion. I find a high density foam cushion (square) from the local foam > shop works well for me. > > Dee > > To: tetheredspinalcord > From: lilacs007@... > Date: Fri, 1 Oct 2010 18:53:14 -0700 > Subject: pillow for sitting > > Does anyone have issues sitting? I have a neck pillow I use to sit on, but > it's not really working. > Any suggestions? > Thanks! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2010 Report Share Posted October 6, 2010 That is why I REFUSED more injections... Thank you so much for clarifying this. Now, I was also told no PT until we get this TC resolved, due to more stretching etc. Nope nothing broken.... I was looking into the dynamic X-Ray before. Makes sense to me that if pain is caused by sitting I would need x-ray while sitting?? > My daughter got a prescription to go to a medical place for one of those > specially made and sized donut pillows..she had her friends autograph it like > a cast LOL Gotta love the attitude! > > > In a message dated 10/1/2010 8:55:42 P.M. Central Daylight Time, > deeinbc@... writes: > > I have had issues with sitting after both my TC surgery and now my spinal > fusion. I find a high density foam cushion (square) from the local foam > shop works well for me. > > Dee > > To: tetheredspinalcord > From: lilacs007@... > Date: Fri, 1 Oct 2010 18:53:14 -0700 > Subject: pillow for sitting > > Does anyone have issues sitting? I have a neck pillow I use to sit on, but > it's not really working. > Any suggestions? > Thanks! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2010 Report Share Posted October 6, 2010 Yes, I think some broken and/or dislocated coccyx's only show up in the sitting position. ________________________________ To: tetheredspinalcord Sent: Tue, October 5, 2010 5:10:18 PM Subject: Re: TC, PN and Coccydynia  That is why I REFUSED more injections... Thank you so much for clarifying this. Now, I was also told no PT until we get this TC resolved, due to more stretching etc. Nope nothing broken.... I was looking into the dynamic X-Ray before. Makes sense to me that if pain is caused by sitting I would need x-ray while sitting?? > My daughter got a prescription to go to a medical place for one of those > specially made and sized donut pillows..she had her friends autograph it like > a cast LOL Gotta love the attitude! > > > In a message dated 10/1/2010 8:55:42 P.M. Central Daylight Time, > deeinbc@... writes: > > I have had issues with sitting after both my TC surgery and now my spinal > fusion. I find a high density foam cushion (square) from the local foam > shop works well for me. > > Dee > > To: tetheredspinalcord > From: lilacs007@... > Date: Fri, 1 Oct 2010 18:53:14 -0700 > Subject: pillow for sitting > > Does anyone have issues sitting? I have a neck pillow I use to sit on, but > it's not really working. > Any suggestions? > Thanks! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2010 Report Share Posted October 6, 2010 I would disagree with the " no PT. " As long as your PT is experienced with NTDs, they should be able to have exercises that wouldn't cause further stretching of the cord. While it may not help the TC, per say, exercises to strengthen the core muscles help anyone with back problems. The stronger your core muscles, the less work the back has to do. There have been several people who did PT before their surgery to kind of be at their best when they went into surgery, so that recovery would be easier. Having strong core muscles going into surgery would make recovery easier, as they would be nice and strong and able to compensate better for the back muscles that were just sliced through. Jenn > > > That is why I REFUSED more injections... > Thank you so much for clarifying this. Now, I was also told no PT until we > get this TC resolved, due to more stretching etc. > Nope nothing broken.... I was looking into the dynamic X-Ray before. Makes > sense to me that if pain is caused by sitting I would need x-ray while > sitting?? > > > > > > My daughter got a prescription to go to a medical place for one of those > > > specially made and sized donut pillows..she had her friends autograph it > like > > > a cast LOL Gotta love the attitude! > > > > > > > > > In a message dated 10/1/2010 8:55:42 P.M. Central Daylight Time, > > > deeinbc@... <deeinbc%40hotmail.com> writes: > > > > > > I have had issues with sitting after both my TC surgery and now my spinal > > > > fusion. I find a high density foam cushion (square) from the local foam > > > shop works well for me. > > > > > > Dee > > > > > > To: tetheredspinalcord <tetheredspinalcord%40yahoogroups.com> > > > From: lilacs007@... <lilacs007%40yahoo.com> > > > Date: Fri, 1 Oct 2010 18:53:14 -0700 > > > Subject: pillow for sitting > > > > > > Does anyone have issues sitting? I have a neck pillow I use to sit on, > but > > > it's not really working. > > > Any suggestions? > > > Thanks! > > > > > > Quote Link to comment Share on other sites More sharing options...
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