Re: Flutter?

[Guest guest]

I live in the Pacific Northwest, Washington State. The hospital where I was a

patient had several Rom-Hill vests that they would share with the patients who

were in need of them. I was very thankful for having a chance to use the vest to

see if it was beneficial to me as I have heard a lot of good things about it

here, however in my case the flutter valve is the only device that helps with

getting rid of the junk sticking to my lungs. I wish you the best.

Tony.

> >

> > Hello, I am new to the site.  I live in the Manchester, UK.

> >

> > After having lung problems for some time, I have had my fair share of chest

infections! 

> > Could anyone advise me what is the most common antibiotic treatment that

helps them gain a quick recovery than 'umpteen ones that appear to be a waste of

time!'

> >

> > Also, I have trouble clearing my chest at times to keep it clear to prevent

infection developing  a chest infection over time.  Does any one use something

called a Flutter? I've never had one before and wondered if anyone on this site

has had any success with one?

> > Thank you.

> > Best wishes, a

> >

> >

> >

> >

> > ________________________________

> > From: Joy <endiandra@>

> > To: bronchiectasis

> > Sent: Wed, 19 May, 2010 10:46:00

> > Subject: Re: too late to have clearing of the lungs help?

> >

> > starpam - just in case ...  maybe I am wrong, but it's still the 

> > most unusual and amazing thing I've ever come across!

> >

> > joy

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

Hi

I have a Flutter. It is very effective. You are better off following your dr's advice regarding your disease. Unfortunately there are no quick fixes. I have had bronch since childhood & I am now 58. The disease is manageable but requires persistent management.

Best wishes.

Keep well everyone. Theresa

Subject: Re: Flutter?To: bronchiectasis Received: Wednesday, 19 May, 2010, 7:53 AM

Hello, I am new to the site. I live in the Manchester, UK.

After having lung problems for some time, I have had my fair share of chest infections!

Could anyone advise me what is the most common antibiotic treatment that helps them gain a quick recovery than 'umpteen ones that appear to be a waste of time!'

Also, I have trouble clearing my chest at times to keep it clear to prevent infection developing a chest infection over time. Does any one use something called a Flutter? I've never had one before and wondered if anyone on this site has had any success with one?

Thank you.

Best wishes, a

From: Joy <endiandralizzy (DOT) com.au>To: bronchiectasis@ yahoogroups. comSent: Wed, 19 May, 2010 10:46:00Subject: Re: too late to have clearing of the lungs help?starpam - just in case ... maybe I am wrong, but it's still the most unusual and amazing thing I've ever come across!joy------------ --------- --------- ------

[Guest guest]

Hi a,

I was born in Sheffield, but lived most of my life in Oz - the latter

years in the Wet Tropics if you can imagine the difference (I loved

the warm rain, soft humid air). Welcome to this wonderful group of

people, who have so much empathy, knowledge, experience & humour to

share.

I was recommended Flutter Valve by my specialist, cost AUD$170. Some

people find it good, but by the time I bought one I think I'd had too

many infx and coughing fits, abdo and diaphragm too tired already. I

believe some people find the Acapella better than Flutter valve.

I find nebulised 6% saline or Mucomyst best. (Both prescription

here & start on low % saline nebs, see how you go).

Re abx (antibiotics) - sounds a bit like your dr should be asking for

a sputum specimen to send to pathology to test for resistance to abx

and the main pathogens making you ill. THEN it can be determined

which abx to use. It really should never be a let's try this, oh

let's try that - it only has more potential to encourage resistance

(btw which will develop anyway to a degree).

Do hope this helps clarify things a bit - it sure isn't the easiest

of diseases to cope with,

cheers,

Joy

[Guest guest]

Well we cannot get Mucinex in Australia either.

To: bronchiectasis Sent: Fri, 21 May, 2010 6:52:12 AMSubject: Re: Flutter?

Hi a

Yes the Flutter Valve or Acapella ( both create vibrations in your lungs as you blow out ) together with chest percussion therapy and a mucous dilutant like Mucinex are the single best things you can do DAILY to keep the Lungs clear. That was advice given to me by my Dr's 30 years ago in the UK and it still holds true today. Do that and all the problems with continued use of antibiotics and steroids go away.

From: a Geary <geary.paula@ yahoo.co. uk>To: bronchiectasis@ yahoogroups. comSent: Wed, May 19, 2010 10:53:57 AMSubject: Re: Flutter?

Hello, I am new to the site. I live in the Manchester, UK.

After having lung problems for some time, I have had my fair share of chest infections!

Could anyone advise me what is the most common antibiotic treatment that helps them gain a quick recovery than 'umpteen ones that appear to be a waste of time!'

Also, I have trouble clearing my chest at times to keep it clear to prevent infection developing a chest infection over time. Does any one use something called a Flutter? I've never had one before and wondered if anyone on this site has had any success with one?

Thank you.

Best wishes, a

From: Joy <endiandralizzy (DOT) com.au>To: bronchiectasis@ yahoogroups. comSent: Wed, 19 May, 2010 10:46:00Subject: Re: too late to have clearing of the lungs help?starpam - just in case ... maybe I am wrong, but it's still the most unusual and amazing thing I've ever come across!joy------------ --------- --------- ------

[Guest guest]

Hi Joy,

I was under the assumption that an Acapella and flutter are one and the same

valve, however after reading your post I understand now that they are different.

I have the Acapella and it works great for me. The hospital sent my lung tissue

samples from my thorasic surgery to the Mayo clinic and they told us that I have

BOOP-not Betty Boop-it stands for Bronchiolitis Obliterans Organizing Pneumonia

as well as Bronchiectasis. I did not think that I was going to leave the

hospital alive as I had many, many severe attacks of not being able to get

enough oxygen into my lungs even though the O2 meter showed a 96 level, my

breathing was very rapid and the only thing that calmed me down to the point

where I could breathe normally again was reciting and contemplating the 23rd

Psalm, within seconds I would feel calm and so very, very thankful that I was

able to get fresh air into my lungs once again. There is no worse feeling than

that you are smothering and this happened a lot especially when I coughed and

having pneumonia I was doing a lot of coughing. I am now on 60mg Prednisone for

a month then 40 mg for another month tapering off from 20mg the third month and

I feel wonderful already. I feel that I have been given a new lease on life and

it feels so very good.

>

> Hi a,

> I was born in Sheffield, but lived most of my life in Oz - the latter

> years in the Wet Tropics if you can imagine the difference (I loved

> the warm rain, soft humid air). Welcome to this wonderful group of

> people, who have so much empathy, knowledge, experience & humour to

> share.

>

> I was recommended Flutter Valve by my specialist, cost AUD$170. Some

> people find it good, but by the time I bought one I think I'd had too

> many infx and coughing fits, abdo and diaphragm too tired already. I

> believe some people find the Acapella better than Flutter valve.

>

> I find nebulised 6% saline or Mucomyst best. (Both prescription

> here & start on low % saline nebs, see how you go).

>

> Re abx (antibiotics) - sounds a bit like your dr should be asking for

> a sputum specimen to send to pathology to test for resistance to abx

> and the main pathogens making you ill. THEN it can be determined

> which abx to use. It really should never be a let's try this, oh

> let's try that - it only has more potential to encourage resistance

> (btw which will develop anyway to a degree).

> Do hope this helps clarify things a bit - it sure isn't the easiest

> of diseases to cope with,

>

> cheers,

> Joy

>

[Guest guest]

The active ingredient guanifenesin in Mucinex is in most expectorants like Robitussin , Actifed. Bronchaid etc Are those available In Australia? The advantage of mucinex is that it's extended release. Also SIP plenty of room temperature water throughout the day. A quick search on Yahoo reveals Mucinex availability in Australia. You may want to check it out.good luck From: pam

To: bronchiectasis Sent: Fri, May 21, 2010 7:27:31 PMSubject: Re: Flutter?

Well we cannot get Mucinex in Australia either.

From: Davies <draigferchyahoo (DOT) com>To: bronchiectasis@ yahoogroups. comSent: Fri, 21 May, 2010 6:52:12 AMSubject: Re: Flutter?

Hi a

Yes the Flutter Valve or Acapella ( both create vibrations in your lungs as you blow out ) together with chest percussion therapy and a mucous dilutant like Mucinex are the single best things you can do DAILY to keep the Lungs clear. That was advice given to me by my Dr's 30 years ago in the UK and it still holds true today. Do that and all the problems with continued use of antibiotics and steroids go away.

From: a Geary <geary.paula@ yahoo.co. uk>To: bronchiectasis@ yahoogroups. comSent: Wed, May 19, 2010 10:53:57 AMSubject: Re: Flutter?

Hello, I am new to the site. I live in the Manchester, UK.

After having lung problems for some time, I have had my fair share of chest infections!

Could anyone advise me what is the most common antibiotic treatment that helps them gain a quick recovery than 'umpteen ones that appear to be a waste of time!'

Also, I have trouble clearing my chest at times to keep it clear to prevent infection developing a chest infection over time. Does any one use something called a Flutter? I've never had one before and wondered if anyone on this site has had any success with one?

Thank you.

Best wishes, a

From: Joy <endiandralizzy (DOT) com.au>To: bronchiectasis@ yahoogroups. comSent: Wed, 19 May, 2010 10:46:00Subject: Re: too late to have clearing of the lungs help?starpam - just in case ... maybe I am wrong, but it's still the most unusual and amazing thing I've ever come across!joy------------ --------- --------- ------

[Guest guest]

Hi Tony I'm glad you're feeling better and that reciting a psalm helped you so much. Do you have the Acapella choice ? It's so much easier to wash and keep it infection free after every session.To: bronchiectasis Sent: Fri, May 21, 2010 10:34:39 PMSubject: Re: Flutter?

Hi Joy,

I was under the assumption that an Acapella and flutter are one and the same valve, however after reading your post I understand now that they are different. I have the Acapella and it works great for me. The hospital sent my lung tissue samples from my thorasic surgery to the Mayo clinic and they told us that I have BOOP-not Betty Boop-it stands for Bronchiolitis Obliterans Organizing Pneumonia as well as Bronchiectasis. I did not think that I was going to leave the hospital alive as I had many, many severe attacks of not being able to get enough oxygen into my lungs even though the O2 meter showed a 96 level, my breathing was very rapid and the only thing that calmed me down to the point where I could breathe normally again was reciting and contemplating the 23rd Psalm, within seconds I would feel calm and so very, very thankful that I was able to get fresh air into my lungs once again. There is no worse feeling than that you are smothering and this

happened a lot especially when I coughed and having pneumonia I was doing a lot of coughing. I am now on 60mg Prednisone for a month then 40 mg for another month tapering off from 20mg the third month and I feel wonderful already. I feel that I have been given a new lease on life and it feels so very good.

>

> Hi a,

> I was born in Sheffield, but lived most of my life in Oz - the latter

> years in the Wet Tropics if you can imagine the difference (I loved

> the warm rain, soft humid air). Welcome to this wonderful group of

> people, who have so much empathy, knowledge, experience & humour to

> share.

>

> I was recommended Flutter Valve by my specialist, cost AUD$170. Some

> people find it good, but by the time I bought one I think I'd had too

> many infx and coughing fits, abdo and diaphragm too tired already. I

> believe some people find the Acapella better than Flutter valve.

>

> I find nebulised 6% saline or Mucomyst best. (Both prescription

> here & start on low % saline nebs, see how you go).

>

> Re abx (antibiotics) - sounds a bit like your dr should be asking for

> a sputum specimen to send to pathology to test for resistance to abx

> and the main pathogens making you ill. THEN it can be determined

> which abx to use. It really should never be a let's try this, oh

> let's try that - it only has more potential to encourage resistance

> (btw which will develop anyway to a degree).

> Do hope this helps clarify things a bit - it sure isn't the easiest

> of diseases to cope with,

>

> cheers,

> Joy

>

[Guest guest]

Thank you , I just have the regular Acapella, it would have been nice to

have been given a choice when the therapist prescribed and sold it me. I did not

know of the existence or benefits of the choice until I read your post and

googled it.

Tony.

> >

> > Hi a,

> > I was born in Sheffield, but lived most of my life in Oz - the latter

> > years in the Wet Tropics if you can imagine the difference (I loved

> > the warm rain, soft humid air). Welcome to this wonderful group of

> > people, who have so much empathy, knowledge, experience & humour to

> > share.

> >

> > I was recommended Flutter Valve by my specialist, cost AUD$170. Some

> > people find it good, but by the time I bought one I think I'd had too

> > many infx and coughing fits, abdo and diaphragm too tired already. I

> > believe some people find the Acapella better than Flutter valve.

> >

> > I find nebulised 6% saline or Mucomyst best. (Both prescription

> > here & start on low % saline nebs, see how you go).

> >

> > Re abx (antibiotics) - sounds a bit like your dr should be asking for

> > a sputum specimen to send to pathology to test for resistance to abx

> > and the main pathogens making you ill. THEN it can be determined

> > which abx to use. It really should never be a let's try this, oh

> > let's try that - it only has more potential to encourage resistance

> > (btw which will develop anyway to a degree).

> > Do hope this helps clarify things a bit - it sure isn't the easiest

> > of diseases to cope with,

> >

> > cheers,

> > Joy

> >

>

[Guest guest]

Thanks Leon,

Being able to sanitize the Acapella in the dishwasher is a biggie, however my

understanding is that with the 'Acapella Choice' I can boil it on the stove top

for 5 minutes which is bound to kill all the germs, it must be made out of heavy

duty plastic to withstand 212 degrees Fahrenheit for 5 minutes.

Tony.

> >

> > Hi a,

> > I was born in Sheffield, but lived most of my life in Oz - the latter

> > years in the Wet Tropics if you can imagine the difference (I loved

> > the warm rain, soft humid air). Welcome to this wonderful group of

> > people, who have so much empathy, knowledge, experience & humour to

> > share.

> >

> > I was recommended Flutter Valve by my specialist, cost AUD$170. Some

> > people find it good, but by the time I bought one I think I'd had too

> > many infx and coughing fits, abdo and diaphragm too tired already. I

> > believe some people find the Acapella better than Flutter valve.

> >

> > I find nebulised 6% saline or Mucomyst best. (Both prescription

> > here & start on low % saline nebs, see how you go).

> >

> > Re abx (antibiotics) - sounds a bit like your dr should be asking for

> > a sputum specimen to send to pathology to test for resistance to abx

> > and the main pathogens making you ill. THEN it can be determined

> > which abx to use. It really should never be a let's try this, oh

> > let's try that - it only has more potential to encourage resistance

> > (btw which will develop anyway to a degree).

> > Do hope this helps clarify things a bit - it sure isn't the easiest

> > of diseases to cope with,

> >

> > cheers,

> > Joy

> >

>

[Guest guest]

Hi aI am Chacha from Monterrey, México please don´t take unprescribed antibiotics. Just do what your doctor says. I have had broncho for 14 years. Had 11pneumonias, tuberclulosis and had my left lung taken out. I have developed resistance to most antibiotics now. Have a sputum culture and this will find out which antibi. are good for you. You must have a lot of courage. Take good care of yourself. Avoid crowds and cigarrette smoke. Wash your hands many timesdaily. I do not greet people kissing. I had a pin made by a friend that wear all the time. It says "I don´t kiss" Hi I have a Flutter. It is very effective. You are better off following your dr's advice regarding your disease. Unfortunately there are no quick fixes. I have had bronch since childhood & I am now 58. The disease is manageable but requires persistent management. Best wishes. Keep well everyone. Theresa From: a Geary <geary.paulayahoo (DOT) co.uk>Subject: Re: Flutter?To: bronchiectasis Received: Wednesday, 19 May, 2010, 7:53 AM Hello, I am new to the site. I live in the Manchester, UK. After having lung problems for some time, I have had my fair share of chest infections! Could anyone advise me what is the most common antibiotic treatment that helps them gain a quick recovery than 'umpteen ones that appear to be a waste of time!' Also, I have trouble clearing my chest at times to keep it clear to prevent infection developing a chest infection over time. Does any one use something called a Flutter? I've never had one before and wondered if anyone on this site has had any success with one? Thank you. Best wishes, a From: Joy <endiandralizzy (DOT) com.au>To: bronchiectasis@ yahoogroups. comSent: Wed, 19 May, 2010 10:46:00Subject: Re: too late to have clearing of the lungs help?starpam - just in case ... maybe I am wrong, but it's still the most unusual and amazing thing I've ever come across!joy------------ --------- --------- ------

[Guest guest]

Yes it does has heavy duty green plastic.

Its another benefit since I drop it a lot when I get 'shaky hands' after a neb treatment.

I've never boiled mine. I use the water heater in the dishwasher that gets the water above 140F. After a 20-30 min cycle, its sparkly clean. Only the little magnet thingy doesn't go in there. I let that soak in straight hydrogen peroxide and rinse it real good.

Leon

Re: Flutter?

Thanks Leon,Being able to sanitize the Acapella in the dishwasher is a biggie, however my understanding is that with the 'Acapella Choice' I can boil it on the stove top for 5 minutes which is bound to kill all the germs, it must be made out of heavy duty plastic to withstand 212 degrees Fahrenheit for 5 minutes.Tony.> >> > Hi a,> > I was born in Sheffield, but lived most of my life in Oz - the latter > > years in the Wet Tropics if you can imagine the difference (I loved > > the warm rain, soft humid air). Welcome to this wonderful group of > > people, who have so much empathy, knowledge, experience & humour to > > share.> > > > I was recommended Flutter Valve by my specialist, cost AUD$170. Some > > people find it good, but by the time I bought one I think I'd had too > > many infx and coughing fits, abdo and diaphragm too tired already. I > > believe some people find the Acapella better than Flutter valve.> > > > I find nebulised 6% saline or Mucomyst best. (Both prescription > > here & start on low % saline nebs, see how you go).> > > > Re abx (antibiotics) - sounds a bit like your dr should be asking for > > a sputum specimen to send to pathology to test for resistance to abx > > and the main pathogens making you ill. THEN it can be determined > > which abx to use. It really should never be a let's try this, oh > > let's try that - it only has more potential to encourage resistance > > (btw which will develop anyway to a degree).> > Do hope this helps clarify things a bit - it sure isn't the easiest > > of diseases to cope with,> > > > cheers,> > Joy> >>

[Guest guest]

It's available in New York but it's such a big pill I could never swallow it (even if I could take it orally). It can't be ground up because it's a time-release medication. It comes in liquid form, I think I remember, but the amounts I would need would not be cost-effective.

Hwever, thanks for letting me know it works. D.

To: bronchiectasis From: ericthel@...Date: Fri, 21 May 2010 16:27:31 -0700Subject: Re: Flutter?

Well we cannot get Mucinex in Australia either.

From: Davies <draigferch>To: bronchiectasis Sent: Fri, 21 May, 2010 6:52:12 AMSubject: Re: Flutter?

Hi a

Yes the Flutter Valve or Acapella ( both create vibrations in your lungs as you blow out ) together with chest percussion therapy and a mucous dilutant like Mucinex are the single best things you can do DAILY to keep the Lungs clear. That was advice given to me by my Dr's 30 years ago in the UK and it still holds true today. Do that and all the problems with continued use of antibiotics and steroids go away.

From: a Geary <geary.paula@ yahoo.co. uk>To: bronchiectasis@ yahoogroups. comSent: Wed, May 19, 2010 10:53:57 AMSubject: Re: Flutter?

Hello, I am new to the site. I live in the Manchester, UK.

After having lung problems for some time, I have had my fair share of chest infections!

Could anyone advise me what is the most common antibiotic treatment that helps them gain a quick recovery than 'umpteen ones that appear to be a waste of time!'

Also, I have trouble clearing my chest at times to keep it clear to prevent infection developing a chest infection over time. Does any one use something called a Flutter? I've never had one before and wondered if anyone on this site has had any success with one?

Thank you.

Best wishes, a

From: Joy <endiandralizzy (DOT) com.au>To: bronchiectasis@ yahoogroups. comSent: Wed, 19 May, 2010 10:46:00Subject: Re: too late to have clearing of the lungs help?starpam - just in case ... maybe I am wrong, but it's still the most unusual and amazing thing I've ever come across!joy------------ --------- --------- ------