Re: Coinfections testing - should it be provoked?

[Guest guest]

How long ago did you do the Lyme test? IgeneX keeps the sample for two months.

Our DAN does the Lyme first, then if a positive shows then she orders the

co-infections. It is just a money thing. Usually if the Lyme is negative, then

she doesn't do the co-infections. Our DAN always does a provoked test.

RobinH.

>

> We are going to be running a complete coinfections panel from IGeneX. Is it

best for this to be a provoked test? I've read that this is best in order to

more accurately assess Lyme, and I wondered if the same were true for the

coinfections.

>

> Thanks!

> Sheri

>

[Guest guest]

Thanks for the reply!

The Lyme test was run quite a while ago, more than 2 months. She was positive

on band 31. It was an unprovoked test though. What kind of protocol have you

followed for a provocation?

I'm considering naturals. My DAN doesn't seem to think provacation matters, but

he and I don't always agree on everything

Sheri

> >

> > We are going to be running a complete coinfections panel from IGeneX. Is it

best for this to be a provoked test? I've read that this is best in order to

more accurately assess Lyme, and I wondered if the same were true for the

coinfections.

> >

> > Thanks!

> > Sheri

> >

>

[Guest guest]

I am not remembering seeing it being discussed by the Lyme-autism docs.

I know that I do see a trend in the posts -- of children testing

negative to bacterial infections in general when they do have them. So

there does appear to be a lowered ability to test positive to bacterial

infections in general due to the lowered amount of ability to produce

antibodies. For example, you will often see posts saying their children

tested negative for Strep, but then their stools were checked for Strep

and they were positive. I do think that Lyme is much more difficult to

get the antibodies to show than the coinfections. If you do too much

provocation, some feel that the infection level will be too low to show

in testing. That could refer to the more healthy folks. My best guess

is that a small amount of provocation would probably be best, but that

generally speaking, Lyme is the one that needs the provoking.

Unfortunately, there are variances. What I have seen reported is the

healthy folks and folks who have been infected a couple of months only

are more likely to show a positive. The folks who have been sick for a

very long time, like years, and show lots of symptoms are less likely to

show a positive unless provoked. I have seen people post that they were

on antibiotics for a year or longer before their Lyme antibodies showed

up in testing. I think with coinfections, what I see most, is the need

to use a good lab. Igenex and Fry seem to be the top two, with

disagreement as to which is better. When we tested positive for

coinfections, we had been on treatments for about a month and then went

off for a couple or few days. That was the first time we tested for

coinfections. I was so sick back then that I thought I was going to die

going off those treatments. I could barely walk and talk.

Love and prayers,

Heidi N

How long ago did you do the Lyme test? IgeneX keeps the sample for two

months. Our DAN does the Lyme first, then if a positive shows then she

orders the co-infections. It is just a money thing. Usually if the Lyme

is negative, then she doesn't do the co-infections. Our DAN always does

a provoked test.

RobinH.

[Guest guest]

Thank you Heidi! That makes sense.

Does anyone know, is the IGeneX coninfections panel checking for antibodies as

well? Or does it look for the infection/microbe itself?

Sheri

>

> I am not remembering seeing it being discussed by the Lyme-autism docs.

> I know that I do see a trend in the posts -- of children testing

> negative to bacterial infections in general when they do have them. So

> there does appear to be a lowered ability to test positive to bacterial

> infections in general due to the lowered amount of ability to produce

> antibodies. For example, you will often see posts saying their children

> tested negative for Strep, but then their stools were checked for Strep

> and they were positive. I do think that Lyme is much more difficult to

> get the antibodies to show than the coinfections. If you do too much

> provocation, some feel that the infection level will be too low to show

> in testing. That could refer to the more healthy folks. My best guess

> is that a small amount of provocation would probably be best, but that

> generally speaking, Lyme is the one that needs the provoking.

> Unfortunately, there are variances. What I have seen reported is the

> healthy folks and folks who have been infected a couple of months only

> are more likely to show a positive. The folks who have been sick for a

> very long time, like years, and show lots of symptoms are less likely to

> show a positive unless provoked. I have seen people post that they were

> on antibiotics for a year or longer before their Lyme antibodies showed

> up in testing. I think with coinfections, what I see most, is the need

> to use a good lab. Igenex and Fry seem to be the top two, with

> disagreement as to which is better. When we tested positive for

> coinfections, we had been on treatments for about a month and then went

> off for a couple or few days. That was the first time we tested for

> coinfections. I was so sick back then that I thought I was going to die

> going off those treatments. I could barely walk and talk.

>

> Love and prayers,

>

> Heidi N

>

>

>

>

>

>

> How long ago did you do the Lyme test? IgeneX keeps the sample for two

> months. Our DAN does the Lyme first, then if a positive shows then she

> orders the co-infections. It is just a money thing. Usually if the Lyme

> is negative, then she doesn't do the co-infections. Our DAN always does

> a provoked test.

>

> RobinH.

>

[Guest guest]

My favorite DAN ran an unprovoked igenex WB on my son with only an IND on 39 and

called him lyme free. We went to the ped lyme spec that put him on omnicef for

3 months and then tested WB and babesia to find + babesia and + for 39 and

another band too. It actually took 3 years of treatment to get a + lyme and

bartonella hensalae. You must see a dr that can dx clinically. You must assess

your own symptoms for dx.

Caryn

> > >

> > > We are going to be running a complete coinfections panel from IGeneX. Is

it best for this to be a provoked test? I've read that this is best in order to

more accurately assess Lyme, and I wondered if the same were true for the

coinfections.

> > >

> > > Thanks!

> > > Sheri

> > >

> >

>