Guest guest Posted December 6, 2001 Report Share Posted December 6, 2001 Welcome to Dave and others who have recently signed up and not sent " entry (I'm new here!) messages. As others have said, there is a lot to take in when you're diagnosed with this disease. But this group can provide a lot of support and answers to questions about living with the disease and the problems it brings, both physical, emotional, and administrative (insurance and other work or medical issues.) Martha, I'm not sure how your medical system works but I can't imagine the insurance paying for a procedure that wasn't accomplished. I would think they would want to retest as soon as is reasonable to find out why you're anemic and loosing blood through your gut. There are other products other than Golytely that are affected, as atested to by our group members. I've used Phosphates of soda for my last few colonoscopies. Not great tasting but very affective. There are really no other good tests that allow the possibility of direct view and biopsy as a colonoscopy does. They can do an MRI, but then if something is seen that they need to biopsy, you still need a colonoscopy. So one test is better than two in this case. Although, having said that they may want an MRI afterwards if they see a large tumor. Barby, you can find restaurants that offer lower fat meals or you can choose meals that are lower fat by asking the chef to decrease the usual oil or putting dressings on the side, not adding gravy and so on. But some of this is added to the food prior to cooking can't be avoided. The best thing is to eat most meals at home and cook them yourself. Then you know exactly what's in it. Darin, you can give your meds to someone else. I've done that after my tx. Just don't sell the stuff or advertise it on the package when you send it. What you're doing, or attempting to do, is a very nice and good thing. I agree with Andi, the Japanese are lovely people. Caroline and I stayed with a Japanese woman who was a friend of a friend. She didn't know us from Adam and yet, allowed us to stay with her for 4 days, took us all over her home city of Kanazawa and told us all about it and Japanese ways. Made meals for us. Hosted a party, partially in our honour. Wonderful!! During that trip we met many other warm, caring Japanese people. They have some different ideas about death, but this requires education to increase organ donation. They do donate to family, living-donor situations. And because of that, this aspect of transplantation has been perfected in that country. I don't think their two major religions (Shinto and Buddhism) are against donation. But there are lots of misconceptions and inertia about this concept. They only recently passed a law concerning brain death, which is a criterion for donation. Aubrey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2002 Report Share Posted January 4, 2002 Thanks Aubrey! But hey, he does have regular blood work done every six months. Last labs in Sept 01. So now what? Is this of concern, is there anything that can be done anyway that cant be taken care of at his next apt. in march? Or should it be of concern now? I know he has portal hypertension, etc.. Is the clotting difference of a concern right now? Thankyou so much for the help! P.S. congrats on the engagement Mr. Romeo;) We are very very happy for you!!!! Sincerely, wife of dx 97 Quote Link to comment Share on other sites More sharing options...
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