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Welcome to Dave and others who have recently signed up and not sent

" entry (I'm new here!) messages. As others have said, there is a lot to

take in when you're diagnosed with this disease. But this group can

provide a lot of support and answers to questions about living with the

disease and the problems it brings, both physical, emotional, and

administrative (insurance and other work or medical issues.)

Martha, I'm not sure how your medical system works but I can't imagine

the insurance paying for a procedure that wasn't accomplished. I would

think they would want to retest as soon as is reasonable to find out why

you're anemic and loosing blood through your gut. There are other

products other than Golytely that are affected, as atested to by our

group members. I've used Phosphates of soda for my last few

colonoscopies. Not great tasting but very affective. There are really no

other good tests that allow the possibility of direct view and biopsy as

a colonoscopy does. They can do an MRI, but then if something is seen

that they need to biopsy, you still need a colonoscopy. So one test is

better than two in this case. Although, having said that they may want

an MRI afterwards if they see a large tumor.

Barby, you can find restaurants that offer lower fat meals or you can

choose meals that are lower fat by asking the chef to decrease the usual

oil or putting dressings on the side, not adding gravy and so on. But

some of this is added to the food prior to cooking can't be avoided. The

best thing is to eat most meals at home and cook them yourself. Then you

know exactly what's in it.

Darin, you can give your meds to someone else. I've done that after my

tx. Just don't sell the stuff or advertise it on the package when you

send it. What you're doing, or attempting to do, is a very nice and good

thing.

I agree with Andi, the Japanese are lovely people. Caroline and I stayed

with a Japanese woman who was a friend of a friend. She didn't know us

from Adam and yet, allowed us to stay with her for 4 days, took us all

over her home city of Kanazawa and told us all about it and Japanese

ways. Made meals for us. Hosted a party, partially in our honour.

Wonderful!! During that trip we met many other warm, caring Japanese

people. They have some different ideas about death, but this requires

education to increase organ donation. They do donate to family,

living-donor situations. And because of that, this aspect of

transplantation has been perfected in that country. I don't think their

two major religions (Shinto and Buddhism) are against donation. But

there are lots of misconceptions and inertia about this concept. They

only recently passed a law concerning brain death, which is a criterion

for donation.

Aubrey

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  • 4 weeks later...

Thanks Aubrey! But hey, he does have regular blood work done every six

months.

Last labs in Sept 01. So now what? Is this of concern, is there anything

that can be done anyway that cant be taken care of at his next apt. in march?

Or should it be of concern now? I know he has portal hypertension, etc.. Is

the clotting difference of a concern right now? Thankyou so much for the

help!

P.S. congrats on the engagement Mr. Romeo;) We are very very happy for

you!!!!

Sincerely, wife of dx 97

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