Guest guest Posted June 25, 2010 Report Share Posted June 25, 2010 hi Eileen, yes, the Gatekeeper want there $$ too, here. We don't have Tobi in Aust - only Tobramycin which is a form for inj but used as inhalation anyway... what diff is in efficacy we don't know, no chance of knowing. How do you find being on abx on long term re side-effects... I've had some awful ones, it is a main reason it's rarely done here in Australia. Aren't the coughing fits awful - I'm sure it's from plugs - esp if get into back of throat perhaps? I'm wondering how lungs calcify - that usually belongs to bone- laying, hard tissue areas of the body... did he explain? Anyone else heard of that one? New one on me! Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2010 Report Share Posted June 25, 2010 I believe my lung doc has commented before about calcification in the lungs when he looked over my recent cxr. I'm taking my singulair now in the evening hoping to cut down on that collection of pnd in the morning. The white "plug" is so thick in my throat I have trouble hocking it up and spitting it out during my coughing spells in the morning and have to pull it out. Yuck!!! Has the singulair at night made a difference? It seems sometimes. Trial and error. What a way to live. BUT, I'm living. Subject: Re: diagnosis and treatmentTo: bronchiectasis Date: Friday, June 25, 2010, 10:15 AM Maybe it means they become stiff, hard, and unable to function? Don't know. Kay diagnosis and treatment hi Eileen,yes, the Gatekeeper want there $$ too, here.We don't have Tobi in Aust - only Tobramycin which is a form for inj but used as inhalation anyway... what diff is in efficacy we don't know, no chance of knowing.How do you find being on abx on long term re side-effects. .. I've had some awful ones, it is a main reason it's rarely done here in Australia.Aren't the coughing fits awful - I'm sure it's from plugs - esp if get into back of throat perhaps?I'm wondering how lungs calcify - that usually belongs to bone- laying, hard tissue areas of the body... did he explain? Anyone else heard of that one? New one on me!Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2010 Report Share Posted June 25, 2010 Hi Joy, Severe unproductive coughing this AM....I could hear the plug rattling in my chest, but it never came out. Had to go once again to the ER as breathing was compromised. They did blood work, Duo Neb treatment and an x-ray...all negative. DR. decided to up my Predisone to 50mg a day for 4 more days and will see my Plumonologist on Monday. They still don't know why I have this racking, unrelenting cough and he knows my history the best. They let me go home as Dr. stated that if we can speak a whole sentence at a time our we are not in danger and I was able to after the treatments. _________________________________________________________________ yes, the Gatekeeper want there $$ too, here........... I GUESS THAT'S UNIVERSAL THESE DAYS. SINCE I'M NOT IMPROVING, SHE NOE WANTS ME TO SEE MY PLUMONOLOGIST. We don't have Tobi in Aust - only Tobramycin which is a form for inj but used as inhalation anyway... what diff is in efficacy we don't know, no chance of knowing................................... ACTUALLY THAT'S WHAT I'M ON NOW AS MEDICARE DOESN'T COVER THE TOBI NEBS AT $5000.00 A MONTH!..... AND I FOUND IT TO BE JUST AS GOOD! I HAVE TO USE A SYRINGE TO TAKE IT OUT OF THE VIALS AND PLACE IT INTO THE NEBULIZER. IT'S NOT AS CONVENIENT, BUT EFFECTIVE AND CHEAPER. How do you find being on abx on long term re side-effects. .. I've had some awful ones, it is a main reason it's rarely done here in Australia........................................... I'M NOT ON THE LONG TERM.......LONGEST AMOUNT OF TIME FOR ME WITH LEVAQUIN WAS 2 MONTHS...INFECTIOUS DR. SAID BECAUSE OF OUR CONDITION WE NEED TO BE ON THE ABX FOR A LONG PERIOD OF TIME TO ERADICATE THE INFECTIONS.Aren't the coughing fits awful - I'm sure it's from plugs - esp if get into back of throat perhaps?................................................................. EVEN THE CODEINE COUGH MEDICINE DOESN'T STOP THE COUGH. IT HITS ME AT ANY TIME, ANY PLACE....IN THE CHECKOUT LINE AT THE SUPERMARKET, ON LINE IN THE POST OFFICE, TALKING TO A CLIENT AT WORK, IT SO EMBARRASSING. I'm wondering how lungs calcify - that usually belongs to bone- laying, hard tissue areas of the body... did he explain?......................................... I'VE BEEN TOLD IN THE PAST THAT OUR LUNGS GET SCARED WITH EACH PNEUMONIA, PLEURISY, BRONCHITIS, MAI INFECTION. I THINK THAT MAY CAUSE THE CALCIFICATION'S? WHEN I HAD MAI, I WAS ON 2000 MG ABX FOR 18 MONTHS AND GOT BRONCHIECTASIS ABOUT 6 MONTHS AFTER I WASW TAKEN OFF THE MEDS. NOW FOR SOME HOT SOUP AND BED...IT'S SO GOOD TO HOME AND NOT IN THE HOSPT. STAY WELL AND THANKS SO MUCH FOR YOUR CONCERN. EILEEN From: ericnkayncomcast (DOT) net <ericnkayncomcast (DOT) net>Subject: Re: diagnosis and treatmentTo: bronchiectasis@ yahoogroups. comDate: Friday, June 25, 2010, 10:15 AM Maybe it means they become stiff, hard, and unable to function? Don't know. Kay diagnosis and treatment hi Eileen,yes, the Gatekeeper want there $$ too, here.We don't have Tobi in Aust - only Tobramycin which is a form for inj but used as inhalation anyway... what diff is in efficacy we don't know, no chance of knowing.How do you find being on abx on long term re side-effects. .. I've had some awful ones, it is a main reason it's rarely done here in Australia.Aren't the coughing fits awful - I'm sure it's from plugs - esp if get into back of throat perhaps?I'm wondering how lungs calcify - that usually belongs to bone- laying, hard tissue areas of the body... did he explain? Anyone else heard of that one? New one on me!Joy Quote Link to comment Share on other sites More sharing options...
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