Re: Checking in :)

[Guest guest]

OH MY GOSH!!!! How incredibly totally utterly fabulous and THANK YOU so

very much for sharing your news...Randee

In a message dated 11/26/2010 8:50:51 A.M. Central Standard Time,

kbhansel@... writes:

Hi Gang,

I haven't posted in a long time but I have some GREAT news so I needed to

check in.

After almost seven years of non-stop constant, debilitating pain which

quadrupled after my detethering 22 months ago, I am almost PAIN FREE!

I have no idea how this happened. I went from about a 6 - 8 daily average

on the pain scale to a 0 - 2 almost overnight. Well, actually over about a

months time, but it feels like overnight. I am a new person.

Since my detethering surgery I have had dozens of pain procedures. Every

single one imaginable. SI joint injects, epidurals, facet joint injections,

trigger point injections, nerve blocks, Rhizotomy, etc etc. None of these

gave me any pain relief... until the last one. It was a facet joint

injection and it cut my pain in half. I have had two prior to this one that did

not

reduce my pain at all. Why it worked this time and hasn't in the past, I

have no idea. Then it occured to me that I was only having pain when I woke

up in the morning. I thought there was no way it could be my bed, because

six years ago when I bought this bed (a VERY expensive Tempur-Pedic bed) it

decreased my pain in the morning. But after the last injection and having

pain ONLY in the morning I bought a new bed. Nothing special, just a really

good bed, without memory foam. And low and behold.... I am now waking up

pain free as well.

I do still have some pain when I over-do something, like hiking or riding

my bike, or shopping for a long time, but the great thing is those are

things I have been unable to do for years! So I'll take the pain. I can control

it with non-narcotic pain killers and it feels incredible.

So now in this (almost) pain free, narcotic free, joyous place I am in, I

would like to say, there is hope!

[Guest guest]

OMG!!! That is such WONDERFUL news!!! I am sooo happy for you! Thank you so much

for sharing, it does give one hope! HUGS,

Subject: Checking in

To: tetheredspinalcord

Date: Friday, November 26, 2010, 8:50 AM

 

Hi Gang,

I haven't posted in a long time but I have some GREAT news so I needed to check

in.

After almost seven years of non-stop constant, debilitating pain which

quadrupled after my detethering 22 months ago, I am almost PAIN FREE!

I have no idea how this happened. I went from about a 6 - 8 daily average on the

pain scale to a 0 - 2 almost overnight. Well, actually over about a months time,

but it feels like overnight. I am a new person.

Since my detethering surgery I have had dozens of pain procedures. Every single

one imaginable. SI joint injects, epidurals, facet joint injections, trigger

point injections, nerve blocks, Rhizotomy, etc etc. None of these gave me any

pain relief... until the last one. It was a facet joint injection and it cut my

pain in half. I have had two prior to this one that did not reduce my pain at

all. Why it worked this time and hasn't in the past, I have no idea. Then it

occured to me that I was only having pain when I woke up in the morning. I

thought there was no way it could be my bed, because six years ago when I bought

this bed (a VERY expensive Tempur-Pedic bed) it decreased my pain in the

morning. But after the last injection and having pain ONLY in the morning I

bought a new bed. Nothing special, just a really good bed, without memory foam.

And low and behold.... I am now waking up pain free as well.

I do still have some pain when I over-do something, like hiking or riding my

bike, or shopping for a long time, but the great thing is those are things I

have been unable to do for years! So I'll take the pain. I can control it with

non-narcotic pain killers and it feels incredible.

So now in this (almost) pain free, narcotic free, joyous place I am in, I would

like to say, there is hope!

[Guest guest]

Great , i like such good news.

So Keep On this good news. and welkome on board again.

For my self , i do realy not know anymore how it feels with no pain.

Jan Willem

Checking in

>

>

> Hi Gang,

>

> I haven't posted in a long time but I have some GREAT news so I needed to

> check in.

>

[Guest guest]

That is such great news! I had a really good bed, but bought a 2 " memory

foam overlay. I thought it was just more comfortable, but when I was having

my bathroom modified, and was sleeping in my guest bed, I developed pressure

sores on both heels in less than 2 weeks. I put the memory foam overlay from

my bed on my guest bed and they healed quickly and didn't develop any more.

That bed is REALLY high and it was difficult for me to transfer from my w/c,

so I got a new bed and a platform bed frame, so It's lower. I looked at the

Tempur, but when your body heat warms the foam, you really sink in. Since I

paralyzed, it was difficult to move around in the bed, such as rolling over

and getting up. I opted for the Strobel. It is not much cheaper, but

utilizes the entire NASA protocol. Memory foam was developed by NASA. But

it was used with lever springs (flat springs). The Strobel has the memory

foam on top, but also has the lever springs. It is a little more firm than

the Tempur and you don't sink in quite as much. Getting that bed really made

a difference, not only in my pain, but also I don't have to worry about

pressure sores if I lay in one position for a while.

When I travel and stay in hotels, I really miss my bed. Since I generally

sleep on my side, I will wake up in the middle of the night because my hips

are hurting so bad (whatever side I'm laying on).

Most of my w/c friends have either a Tempur mattress or the Sleep Number bed

that has air in it.

Its good to hear from you again and that you are doing so well.

Jenn

>

>

>

>

> Hi Gang,

>

> I haven't posted in a long time but I have some GREAT news so I needed to

> check in.

>

> After almost seven years of non-stop constant, debilitating pain which

> quadrupled after my detethering 22 months ago, I am almost PAIN FREE!

>

> I have no idea how this happened. I went from about a 6 - 8 daily average

> on the pain scale to a 0 - 2 almost overnight. Well, actually over about a

> months time, but it feels like overnight. I am a new person.

>

> Since my detethering surgery I have had dozens of pain procedures. Every

> single one imaginable. SI joint injects, epidurals, facet joint injections,

> trigger point injections, nerve blocks, Rhizotomy, etc etc. None of these

> gave me any pain relief... until the last one. It was a facet joint

> injection and it cut my pain in half. I have had two prior to this one that

> did not reduce my pain at all. Why it worked this time and hasn't in the

> past, I have no idea. Then it occured to me that I was only having pain when

> I woke up in the morning. I thought there was no way it could be my bed,

> because six years ago when I bought this bed (a VERY expensive Tempur-Pedic

> bed) it decreased my pain in the morning. But after the last injection and

> having pain ONLY in the morning I bought a new bed. Nothing special, just a

> really good bed, without memory foam. And low and behold.... I am now waking

> up pain free as well.

>

> I do still have some pain when I over-do something, like hiking or riding

> my bike, or shopping for a long time, but the great thing is those are

> things I have been unable to do for years! So I'll take the pain. I can

> control it with non-narcotic pain killers and it feels incredible.

>

> So now in this (almost) pain free, narcotic free, joyous place I am in, I

> would like to say, there is hope!

>

>

>