Guest guest Posted August 7, 2003 Report Share Posted August 7, 2003 Roe, You are not alone! Oh boy did people piss me off while my daughter was banded. I am one of the ones that never got use to the stares and people gawking at my daughter. It made me so MAD! It got to the point that I started saying really rude things to people who wouldn't stop staring at her. The last few weeks that Giannna was banded we decorated her band to say in big, black, bold letters, " What are you looking at? " across the front it. It really did help, ppl would just take a quick look at her, it made them stop gawking at her. I hope you're one of the ones that gets over it quickly, I never did. > Caitlin got her band on Monday and is doing great with it! We did go > back 2 days later for a little adjustment and now the spots go away > within 10 minutes of taking it off. > > When I took her out a few people looked at her and kept walking by, a > few gave double takes, a few told me how pretty she was and a few > asked me what was wrong. > > One woman made a face like she ate a lemon and said to her > friend " What is wrong with that kid? How terrible she looks " etc. I > felt my face getting all red and my blood felt like it was boiling. > I decided to keep walking past her into another isle (I was at the > grocery store). I really would have loved to scream at her, but I > didn't let my temper get to me. I swear, if I did say something I > would have probably hit her too. lol > > I just want to know if anyone else has ignorant people like this and > if so how did you handle it? Thanks. > > > Roe and Caitlin in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2003 Report Share Posted August 7, 2003 My mother had a great experience in Walmart this week. The greeter at the door asked my mom if Josie fell down and hit her head a lot. LOL My mom said, " yeah you know those 6 month olds, always running around and falling down! " duh > Caitlin got her band on Monday and is doing great with it! We did go > back 2 days later for a little adjustment and now the spots go away > within 10 minutes of taking it off. > > When I took her out a few people looked at her and kept walking by, a > few gave double takes, a few told me how pretty she was and a few > asked me what was wrong. > > One woman made a face like she ate a lemon and said to her > friend " What is wrong with that kid? How terrible she looks " etc. I > felt my face getting all red and my blood felt like it was boiling. > I decided to keep walking past her into another isle (I was at the > grocery store). I really would have loved to scream at her, but I > didn't let my temper get to me. I swear, if I did say something I > would have probably hit her too. lol > > I just want to know if anyone else has ignorant people like this and > if so how did you handle it? Thanks. > > > Roe and Caitlin in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2003 Report Share Posted August 7, 2003 LOL That was a funny one. Thanks for sharing. --- In Plagiocephaly , " avid_gal " <avid_gal@y...> wrote: > My mother had a great experience in Walmart this week. The greeter > at the door asked my mom if Josie fell down and hit her head a lot. > LOL My mom said, " yeah you know those 6 month olds, always running > around and falling down! " duh > > > > --- In Plagiocephaly , " rrmovie " <rrmovie@y...> wrote: > > Caitlin got her band on Monday and is doing great with it! We did > go > > back 2 days later for a little adjustment and now the spots go away > > within 10 minutes of taking it off. > > > > When I took her out a few people looked at her and kept walking by, > a > > few gave double takes, a few told me how pretty she was and a few > > asked me what was wrong. > > > > One woman made a face like she ate a lemon and said to her > > friend " What is wrong with that kid? How terrible she looks " etc. > I > > felt my face getting all red and my blood felt like it was > boiling. > > I decided to keep walking past her into another isle (I was at the > > grocery store). I really would have loved to scream at her, but I > > didn't let my temper get to me. I swear, if I did say something I > > would have probably hit her too. lol > > > > I just want to know if anyone else has ignorant people like this > and > > if so how did you handle it? Thanks. > > > > > > Roe and Caitlin in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 I've had children laugh and point at her, and say " look at her head, what's wrong with her " , but I just keep in mind that they're children and ignore them. I've had lots of people tell her how pretty she is, and several people honest enough to come up and say " may I ask what's wrong with her? " and I just answer them. I've never had an adult say anything like that. Obviously, she was a tactless, ignorant person, and I think ignoring her was the way to go. I would have been angry, too, and would have regretted it if I'd have said anything to her. If she doesn't have the gumption to come ask what's wrong to your face, then she's not worthy of an answer. You just have to ignore a lot of people. One day, they just might find out what they're for, then they'll be embarrassed that they said that where you could hear! I think the strangest thing an adult has said to me was that her granddaughter had one too, and did my daughter have epilepsy, too? I guess her granddaughter had one to keep her from hurting herself? I told her, no, that it was because her head wasn't shaped just right, and we were working on reshaping it. Hang in there! You'll continue to get looks and comments! It doesn't stop! Isn't it amazing how people never notice your beautiful children until there's something " wrong " with them? HRUMPH! Caro, Mom to Baby Mo, 8 1/2 months old, DOCBanded 5/23/03, 2nd DOCBanded 7/30/03, Dallas, TX area > Caitlin got her band on Monday and is doing great with it! We did go > back 2 days later for a little adjustment and now the spots go away > within 10 minutes of taking it off. > > When I took her out a few people looked at her and kept walking by, a > few gave double takes, a few told me how pretty she was and a few > asked me what was wrong. > > One woman made a face like she ate a lemon and said to her > friend " What is wrong with that kid? How terrible she looks " etc. I > felt my face getting all red and my blood felt like it was boiling. > I decided to keep walking past her into another isle (I was at the > grocery store). I really would have loved to scream at her, but I > didn't let my temper get to me. I swear, if I did say something I > would have probably hit her too. lol > > I just want to know if anyone else has ignorant people like this and > if so how did you handle it? Thanks. > > > Roe and Caitlin in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 I haven't gotten any rude commetns like that YET and I am waiting because I dont know how I will deal w/ it! People do stare and I dont even notice it and Xavier has been banded 2 weeks. I just ignore it I guess and I figure I would probably stare too if I saw a cute little baby in a helmet but I would NEVER say anything as horrible as you heard and your baby does not look terrible how narrow minded! Just because she has a band on she looks horrible I would hate to see if any of her family had a real problem how would people like that handle it? Sorry I went off but that is just not right! Great see how I am an dif anyone says anything like that to me I will probably fly off the handle! lol Donna and Xavier DOCband 7/25 > Caitlin got her band on Monday and is doing great with it! We did go > back 2 days later for a little adjustment and now the spots go away > within 10 minutes of taking it off. > > When I took her out a few people looked at her and kept walking by, a > few gave double takes, a few told me how pretty she was and a few > asked me what was wrong. > > One woman made a face like she ate a lemon and said to her > friend " What is wrong with that kid? How terrible she looks " etc. I > felt my face getting all red and my blood felt like it was boiling. > I decided to keep walking past her into another isle (I was at the > grocery store). I really would have loved to scream at her, but I > didn't let my temper get to me. I swear, if I did say something I > would have probably hit her too. lol > > I just want to know if anyone else has ignorant people like this and > if so how did you handle it? Thanks. > > > Roe and Caitlin in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 I like the look that we get that is like, "awww... pooooorrr tthinggg!...what a shame..." Look lady! There's nothing wrong with him - he's FINE he just has a FLAT HEAD, so cut it with the sympathy kick!! That's what I feel like saying. Rhonda Mom to Collin -----Original Message-----From: Donna [mailto:djs611@...]Sent: Friday, August 08, 2003 11:56 AMPlagiocephaly Subject: Re: How do you deal with people?I haven't gotten any rude commetns like that YET and I am waiting because I dont know how I will deal w/ it! People do stare and I dont even notice it and Xavier has been banded 2 weeks. I just ignore it I guess and I figure I would probably stare too if I saw a cute little baby in a helmet but I would NEVER say anything as horrible as you heard and your baby does not look terrible how narrow minded! Just because she has a band on she looks horrible I would hate to see if any of her family had a real problem how would people like that handle it? Sorry I went off but that is just not right! Great see how I am an dif anyone says anything like that to me I will probably fly off the handle! lolDonna and Xavier DOCband 7/25> Caitlin got her band on Monday and is doing great with it! We did go > back 2 days later for a little adjustment and now the spots go away > within 10 minutes of taking it off.> > When I took her out a few people looked at her and kept walking by, a > few gave double takes, a few told me how pretty she was and a few > asked me what was wrong.> > One woman made a face like she ate a lemon and said to her > friend "What is wrong with that kid? How terrible she looks" etc. I > felt my face getting all red and my blood felt like it was boiling. > I decided to keep walking past her into another isle (I was at the > grocery store). I really would have loved to scream at her, but I > didn't let my temper get to me. I swear, if I did say something I > would have probably hit her too. lol > > I just want to know if anyone else has ignorant people like this and > if so how did you handle it? Thanks.> > > Roe and Caitlin in NJFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 hi there , my name is Kris, my daughter's name KariLin.We're in the album if you want to take a peek,She has had her helmet for about a month now. You are not alone in wanting to smack the ugly out of people, i have had a real problem with this myself. I have a bit of a temper when it comes to people making inapropriate coments or pointing and stareing at my children. I allways let them know that they are being assholes and allthough im not usually pro violence ,im not opposed to it either!Just remember that you are doing whats right for your kid and the morons that offend you probably wouldnt have the strength or dedication to do the same for their own children.Dont get me wrong , I have no problem with telling people about KariLin's condition( if they ask me properly) but i refuse to excuse ignorance!! Feel free to use my fav. line, (I used it when a man and his wife were making that screwed up face that you were talking about and the wife was pointing while they were asking rude questions) " Your lucky my kids are here pal 'cause your wife would look real funny picking up all your teeth with her nasty little pointing fingers all broken up " The " woman " quikly put her fingers in her pockets (before i had the chance to snap them off)the " man " put his hand over his mouth and they walked away as fast as posible. I find it quite refreshing to unload on these dumb shits, my wife thinks i actualy look for people who stare just so i can confront them,she says i hunt them, LOL. good luck i wish you all the best and happy hunting!!! Kris KariLins DAD.. > Caitlin got her band on Monday and is doing great with it! We did go > back 2 days later for a little adjustment and now the spots go away > within 10 minutes of taking it off. > > When I took her out a few people looked at her and kept walking by, a > few gave double takes, a few told me how pretty she was and a few > asked me what was wrong. > > One woman made a face like she ate a lemon and said to her > friend " What is wrong with that kid? How terrible she looks " etc. I > felt my face getting all red and my blood felt like it was boiling. > I decided to keep walking past her into another isle (I was at the > grocery store). I really would have loved to scream at her, but I > didn't let my temper get to me. I swear, if I did say something I > would have probably hit her too. lol > > I just want to know if anyone else has ignorant people like this and > if so how did you handle it? Thanks. > > > Roe and Caitlin in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 Not sure if someone already replied this to you. But I read a post a few months ago where one of the moms, when asked what was wrong with her child, basically said: " nothing is wrong with her, she is a wonderful daughter, ..... oh, you mean the helmet, it is just to help her round her head, have a good day " . I actually used that line a few times and I think people realized they needed to be more careful how they asked the question. It also made me feel better. - carolina (mommy to Mateo, 10 months, DOC badn graduate) > Caitlin got her band on Monday and is doing great with it! We did go > back 2 days later for a little adjustment and now the spots go away > within 10 minutes of taking it off. > > When I took her out a few people looked at her and kept walking by, a > few gave double takes, a few told me how pretty she was and a few > asked me what was wrong. > > One woman made a face like she ate a lemon and said to her > friend " What is wrong with that kid? How terrible she looks " etc. I > felt my face getting all red and my blood felt like it was boiling. > I decided to keep walking past her into another isle (I was at the > grocery store). I really would have loved to scream at her, but I > didn't let my temper get to me. I swear, if I did say something I > would have probably hit her too. lol > > I just want to know if anyone else has ignorant people like this and > if so how did you handle it? Thanks. > > > Roe and Caitlin in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 Hi Roe I know exactly what you mean about the ignorance of others. We had to travel for Kassidy's band and in the Airport in Halifax, Nova Scotia as we waited for our connector to home I started to count the women who looked at Kassidy and her helmet and noticed a great deal of them looked at her with this " I am so sorry for you " , look onm their face. I really hate that... There was one woman who came over and asked me why she had it on, and I appreciate these people cause they are actually concerned about it, and curious. I get that alot at the malls and supermarket now..and I just look at the ones who have a puzzled look, or sad for me look and tell them she has a flat spot and like a dented can, the contents are fine, she just has a flat spot. The best way to deal with people is to consider that the most of them are unaware of plagio and use every single opportunity to educate the public on why she has it, and why it works! That has been my mission. And now I get more questions on her treatment and less blank looks from the ignorant! I hope Caitlyn has lots of progress, and I hope you get more curious people and less who just shower you in pity with their ignorance! Good luck Wanda, Mom to Kassidy 1 year old, banded April 25, 2003 -- In Plagiocephaly , " rowwith " <rowwith@y...> wrote: > I've had children laugh and point at her, and say " look at her head, > what's wrong with her " , but I just keep in mind that they're > children and ignore them. I've had lots of people tell her how > pretty she is, and several people honest enough to come up and > say " may I ask what's wrong with her? " and I just answer them. I've > never had an adult say anything like that. Obviously, she was a > tactless, ignorant person, and I think ignoring her was the way to > go. I would have been angry, too, and would have regretted it if > I'd have said anything to her. If she doesn't have the gumption to > come ask what's wrong to your face, then she's not worthy of an > answer. You just have to ignore a lot of people. One day, they > just might find out what they're for, then they'll be embarrassed > that they said that where you could hear! I think the strangest > thing an adult has said to me was that her granddaughter had one > too, and did my daughter have epilepsy, too? I guess her > granddaughter had one to keep her from hurting herself? I told her, > no, that it was because her head wasn't shaped just right, and we > were working on reshaping it. > > Hang in there! You'll continue to get looks and comments! It > doesn't stop! Isn't it amazing how people never notice your > beautiful children until there's something " wrong " with them? > HRUMPH! > > Caro, Mom to Baby Mo, 8 1/2 months old, DOCBanded 5/23/03, 2nd > DOCBanded 7/30/03, Dallas, TX area > > --- In Plagiocephaly , " rrmovie " <rrmovie@y...> wrote: > > Caitlin got her band on Monday and is doing great with it! We did > go > > back 2 days later for a little adjustment and now the spots go > away > > within 10 minutes of taking it off. > > > > When I took her out a few people looked at her and kept walking > by, a > > few gave double takes, a few told me how pretty she was and a few > > asked me what was wrong. > > > > One woman made a face like she ate a lemon and said to her > > friend " What is wrong with that kid? How terrible she looks " etc. > I > > felt my face getting all red and my blood felt like it was > boiling. > > I decided to keep walking past her into another isle (I was at the > > grocery store). I really would have loved to scream at her, but I > > didn't let my temper get to me. I swear, if I did say something I > > would have probably hit her too. lol > > > > I just want to know if anyone else has ignorant people like this > and > > if so how did you handle it? Thanks. > > > > > > Roe and Caitlin in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 Some people can be so mean. We only had are doc band one week and i get tons of people ask whats wrong and then quickly give me a can i catch it glance. I try to calmly explain the flat spot and how it happend and what the band does for it. Alot of people have already told me we know babys that could use that. And i even got a few bad mommy looks. i know its easy for me to say but sometimes ya just have to swallow the comments and know we love our children so much we would do anything for them! Amy & Laurel doc banded 8-01-03 > > > Caitlin got her band on Monday and is doing great with it! We > did > > go > > > back 2 days later for a little adjustment and now the spots go > > away > > > within 10 minutes of taking it off. > > > > > > When I took her out a few people looked at her and kept walking > > by, a > > > few gave double takes, a few told me how pretty she was and a > few > > > asked me what was wrong. > > > > > > One woman made a face like she ate a lemon and said to her > > > friend " What is wrong with that kid? How terrible she looks " > etc. > > I > > > felt my face getting all red and my blood felt like it was > > boiling. > > > I decided to keep walking past her into another isle (I was at > the > > > grocery store). I really would have loved to scream at her, but > I > > > didn't let my temper get to me. I swear, if I did say something > I > > > would have probably hit her too. lol > > > > > > I just want to know if anyone else has ignorant people like this > > and > > > if so how did you handle it? Thanks. > > > > > > > > > Roe and Caitlin in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2003 Report Share Posted August 8, 2003 i am totally with you on education others...i even throw in how insurance usually doesn't cover it ..etc ...etc...(i have twins so i usually just say that my little girl sat on my little boy the entire pregnancy!) in fact, in the grocery store this week a gentleman stopped me and asked...and after explaining it and the insurance issues, he suggested that he would speak to a friend of his who works for a local paper to see if they would be interested in doing and expose! who knows if it will ever happen...but i figure the more i make people aware...maybe later on down the road it will be easier for parents who have to make the decision for their children to do this! good luck to you!! > > > Caitlin got her band on Monday and is doing great with it! We > did > > go > > > back 2 days later for a little adjustment and now the spots go > > away > > > within 10 minutes of taking it off. > > > > > > When I took her out a few people looked at her and kept walking > > by, a > > > few gave double takes, a few told me how pretty she was and a > few > > > asked me what was wrong. > > > > > > One woman made a face like she ate a lemon and said to her > > > friend " What is wrong with that kid? How terrible she looks " > etc. > > I > > > felt my face getting all red and my blood felt like it was > > boiling. > > > I decided to keep walking past her into another isle (I was at > the > > > grocery store). I really would have loved to scream at her, but > I > > > didn't let my temper get to me. I swear, if I did say something > I > > > would have probably hit her too. lol > > > > > > I just want to know if anyone else has ignorant people like this > > and > > > if so how did you handle it? Thanks. > > > > > > > > > Roe and Caitlin in NJ Quote Link to comment Share on other sites More sharing options...
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