Guest guest Posted June 18, 2011 Report Share Posted June 18, 2011 L – Arginine can stimulate Herpes virus, causing symptoms. If he has herpes virus in the brain, that could be a problem. I can’t supplement with it at all, even with heavy anti-virals on board. Anne M., BSN, MSN/IH, RNmcfighter@... From: BorreliaMultipleInfectionsAndAutism [mailto:BorreliaMultipleInfectionsAndAutism ] On Behalf Of Fransel WyrzykowskiSent: Saturday, June 18, 2011 8:21 AMTo: BorreliaMultipleInfectionsAndAutism ; Trying_Low_Oxalates Subject: L Arginine and Rage I started L Arginine at 250mg at dinner. All was fine. Second day I gave same dose or maybe 300 mg this time (I open up a capsule of 750 and divide in 1/3 at dinner again. Then he went for his daily Epsom salt bath. After 30min in bath he started throwing shampoo and other things. When I asked what was wrong he said, " sad " . He then got up to throw more things and kick me out of his way. It continued to the living room breaking more stuff, kicking, biting, crying. Three of us held him down for 45 min until he calmed down. Gave him motrin and doubled melatonin dose to 5 mg slow release. Is this from L Arginine? Oxalate dumping? PKU? PANDAS though doc always rules it out including acupuncture VOL testing. Or Lyme? Bacteria?Only thing new is increasing zinc from 80 to 100mg, increased Biotin to 24 mg, stopped calcium citrate, stopped extra Vit C, lowered Vit D3 from 10000 to 5000. If we start antibiotics now it will be hell. I don't know how else to proceed. We are getting acupuncture for detox this morning. Monday we see his Lyme doctor. Maybe ABX with meds? Maybe even a group home until he is more stable? Very painful. I welcome all comments pls. Thank you to all. I know so many of you have been very helpful to me. God bless!FranselSent from my iPad__________ Information from ESET NOD32 Antivirus, version of virus signature database 6219 (20110618) __________The message was checked by ESET NOD32 Antivirus.http://www.eset.com __________ Information from ESET NOD32 Antivirus, version of virus signature database 6219 (20110618) __________ The message was checked by ESET NOD32 Antivirus. http://www.eset.com __________ Information from ESET NOD32 Antivirus, version of virus signature database 6219 (20110618) __________The message was checked by ESET NOD32 Antivirus.http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2011 Report Share Posted June 19, 2011 I don’t know of any current test that will demonstrate for sure that herpes is in the brain. Herpes virus has been found in the middle of Alzheimer’s lesions on autopsy, so it has been demonstrated to affect the brain; but that is the only test that I am aware of that will confirm herpes in the brain. I would tend to assume that if someone tests positive for herpes virus, AND has neurocognitive symptoms, that there is a good chance that herpes virus is either causing or complicating the neurocognitive condition. In any case, if someone tests positive for herpes, L-Arginine supplementation should be avoided. This warning should be made whenever supplementation is recommended with this product, but it is often not mention. In your son’s case, from what you have shared, especially his reaction to L-Arginine, I would highly suspect herpes involvement; but I don’t know how to confirm this. Taking an anti-viral such as Acyclovir or Valtrex may be very helpful in his case. You probably need to talk with his doc about this option, since this is a prescription medication and I do not have a license to diagnose or prescribe anything. Anne M., BSN, MSN/IH, RNmcfighter@... From: BorreliaMultipleInfectionsAndAutism [mailto:BorreliaMultipleInfectionsAndAutism ] On Behalf Of Fransel WyrzykowskiSent: Sunday, June 19, 2011 12:18 AMTo: BorreliaMultipleInfectionsAndAutism Subject: L Arginine and Rage Hello AnneMy son’s blood test shows herpes virus. How do we know if it is in the brain? He is much calmer today after we did acupuncture and laser sauna. From: BorreliaMultipleInfectionsAndAutism [mailto:BorreliaMultipleInfectionsAndAutism ] On Behalf Of Anne MearsSent: Saturday, June 18, 2011 8:48 AMTo: BorreliaMultipleInfectionsAndAutism Subject: RE: L Arginine and Rage L – Arginine can stimulate Herpes virus, causing symptoms. If he has herpes virus in the brain, that could be a problem. I can’t supplement with it at all, even with heavy anti-virals on board. Anne M., BSN, MSN/IH, RNmcfighter@... From: BorreliaMultipleInfectionsAndAutism [mailto:BorreliaMultipleInfectionsAndAutism ] On Behalf Of Fransel WyrzykowskiSent: Saturday, June 18, 2011 8:21 AMTo: BorreliaMultipleInfectionsAndAutism ; Trying_Low_Oxalates Subject: L Arginine and Rage I started L Arginine at 250mg at dinner. All was fine. Second day I gave same dose or maybe 300 mg this time (I open up a capsule of 750 and divide in 1/3 at dinner again. Then he went for his daily Epsom salt bath. After 30min in bath he started throwing shampoo and other things. When I asked what was wrong he said, " sad " . He then got up to throw more things and kick me out of his way. It continued to the living room breaking more stuff, kicking, biting, crying. Three of us held him down for 45 min until he calmed down. Gave him motrin and doubled melatonin dose to 5 mg slow release. Is this from L Arginine? Oxalate dumping? PKU? PANDAS though doc always rules it out including acupuncture VOL testing. Or Lyme? Bacteria?Only thing new is increasing zinc from 80 to 100mg, increased Biotin to 24 mg, stopped calcium citrate, stopped extra Vit C, lowered Vit D3 from 10000 to 5000. If we start antibiotics now it will be hell. I don't know how else to proceed. We are getting acupuncture for detox this morning. Monday we see his Lyme doctor. Maybe ABX with meds? Maybe even a group home until he is more stable? Very painful. I welcome all comments pls. Thank you to all. I know so many of you have been very helpful to me. God bless!FranselSent from my iPad__________ Information from ESET NOD32 Antivirus, version of virus signature database 6219 (20110618) __________The message was checked by ESET NOD32 Antivirus.http://www.eset.com __________ Information from ESET NOD32 Antivirus, version of virus signature database 6219 (20110618) __________ The message was checked by ESET NOD32 Antivirus. http://www.eset.com__________ Information from ESET NOD32 Antivirus, version of virus signature database 6219 (20110618) __________The message was checked by ESET NOD32 Antivirus.http://www.eset.com__________ Information from ESET NOD32 Antivirus, version of virus signature database 6220 (20110618) __________The message was checked by ESET NOD32 Antivirus.http://www.eset.com __________ Information from ESET NOD32 Antivirus, version of virus signature database 6220 (20110618) __________ The message was checked by ESET NOD32 Antivirus. http://www.eset.com __________ Information from ESET NOD32 Antivirus, version of virus signature database 6220 (20110618) __________The message was checked by ESET NOD32 Antivirus.http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2011 Report Share Posted June 19, 2011 Hi Fransel,Forgot to mention I remember reading a post from a member that said for Herpes you want to keep L Arginine down and raise Lysine levels.Hi Fransel;I am glad to hear he is more stable today. I totally understand those violent episodes, and I know how tiring it is to constantly be playing doctor... trying to figure out which supp is causing the raging... and WHY. Blessings to your family and I hope has a good week!Kim >> I started L Arginine at 250mg at dinner. All was fine. Second day I gave same dose or maybe 300 mg this time (I open up a capsule of 750 and divide in 1/3 at dinner again. Then he went for his daily Epsom salt bath. After 30min in bath he started throwing shampoo and other things. When I asked what was wrong he said, " sad". He then got up to throw more things and kick me out of his way. It continued to the living room breaking more stuff, kicking, biting, crying. Three of us held him down for 45 min until he calmed down. Gave him motrin and doubled melatonin dose to 5 mg slow release. > Is this from L Arginine? Oxalate dumping? PKU? PANDAS though doc always rules it out including acupuncture VOL testing. Or Lyme? Bacteria?> Only thing new is increasing zinc from 80 to 100mg, increased Biotin to 24 mg, stopped calcium citrate, stopped extra Vit C, lowered Vit D3 from 10000 to 5000. > If we start antibiotics now it will be hell. I don't know how else to proceed. We are getting acupuncture for detox this morning. Monday we see his Lyme doctor. Maybe ABX with meds? Maybe even a group home until he is more stable? Very painful. > I welcome all comments pls. Thank you to all. I know so many of you have been very helpful to me. God bless!> Fransel> > Sent from my iPad> Quote Link to comment Share on other sites More sharing options...
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