Guest guest Posted June 24, 2011 Report Share Posted June 24, 2011 I am so sorry Fransel. How are YOU doing? We have had several professionals also suggest a group home setting for my eldest so that we may safely continue with treatments. I sometimes wonder if I am being selfish keeping her at home and not continuing with treatments as aggressively as I could be. Prayers and blessings to you and . You are both in my thoughts. Sincerely, Kim > > > > Very kind of you to share your mom's recipes, Karla. Looking forward to receiving them. I hope they are also GFCF. > > Fransel > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2011 Report Share Posted June 24, 2011 wondering how you can continue treating while a child is in a group home? I cant imagine anyone else would give a child all the supplements and meds that parents do. From: kimandglen.quinn@...Reply-to: BorreliaMultipleInfectionsAndAutism To: BorreliaMultipleInfectionsAndAutism Sent: 6/24/2011 2:20:05 P.M. Eastern Daylight TimeSubj: Re: ER hold I am so sorry Fransel. How are YOU doing? We have had several professionals also suggest a group home setting for my eldest so that we may safely continue with treatments. I sometimes wonder if I am being selfish keeping her at home and not continuing with treatments as aggressively as I could be. Prayers and blessings to you and . You are both in my thoughts.Sincerely,Kim > >> > Very kind of you to share your mom's recipes, Karla. Looking forward to receiving them. I hope they are also GFCF. > > Fransel> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2011 Report Share Posted June 24, 2011 Have you considered stopping most of the meds and supplements since he could be reacting to one or many and then trying homeopathy? My son has terrible die-off behaviors from antibiotics, etc. raged this morning. We are in emergency room hospital. Might be a 72 hour hold. Weird how he is so calm. Looking at group home now so we can treat and be safe. Fransel Sender: Trying_Low_Oxalates Date: Fri, 24 Jun 2011 14:45:05 -0000 To: <Trying_Low_Oxalates > ReplyTo: Trying_Low_Oxalates Subject: [Trying_Low_Oxalates] Re: LOD plus Low Amylose Diet Not CF, but can be converted. They are GF though.Karla>> Very kind of you to share your mom's recipes, Karla. Looking forward to receiving them. I hope they are also GFCF. > Fransel> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2011 Report Share Posted June 25, 2011 My experience with such placements is that they not only won't but can't give anything that is not specifically prescribed and detailed in writing by the primary care physician of the individual, and purchased through the local pharmacy. So if you have your pcp on board with everything you are doing/using, and can purchase all the remedies through your local pharmacy, they will be required to follow through - though how meticulously may be up for question. Good luck! Sara > wondering how you can continue treating while a child is in a group home? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2011 Report Share Posted June 26, 2011 Please see if they can do an EEG. It can be seizure related, which is what we're dealing with. When my son's meds are at optimal levels he's fine, when he outgrows his dose, he has rages. I hope things resolve for you soon. > > > > Very kind of you to share your mom's recipes, Karla. Looking forward to receiving them. I hope they are also GFCF. > > Fransel > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2011 Report Share Posted June 26, 2011 Fransel, I am so sorry to hear that you are having a hard time with your son. Perhaps it wil be wise to try to give him one thing at a time to see how he goes with it. In my experience with my boy when I introduced a few supplements at once he had a bad reaction but I could not guess what it was, but with time I learnt that it was better to try one supplement at least for a week to see how he would react and that way has been working for him very well. Also homeopathy could be another alternative to look into as he may not react as badly as with supplements. I wish things get better soon for your family. Olga > > > > Very kind of you to share your mom's recipes, Karla. Looking forward to receiving them. I hope they are also GFCF. > > Fransel > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2011 Report Share Posted June 27, 2011 Fransel, Have you checked your son's cholesterol? I read an article from Dr. Forrest health where he mentions that low cholesterol is the cause for violent and aggressive behaviour, suicide and unintended injury in people. I know that kids with autism lack cholesterol and that why it is important to either supplement it or give as much natural foods that contain the good cholesterol like raw organic butter, eggs, chicken and meat fat etc. as possible I have noticed that since my 11 years old have been having raw organic butter he is better in lots of areas and have also put weight on, he loves to put butter in all his foods. I think it will be worthwhile to check. Olga > > > > Very kind of you to share your mom's recipes, Karla. Looking forward to receiving them. I hope they are also GFCF. > > Fransel > > > Quote Link to comment Share on other sites More sharing options...
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