Nutreval test by Genova/Re: Methylation genetics and the potential for illness

[Guest guest]

Our MD wants kids to take this test. Its expansive. Tests for markers for

nutrients including B6. Only problem is the 5 vials of blood it requires.

Any thoughts or experience with this test? If your insurance company is listed

as a participant for this test, the cost is only 149$ to Genova. My MDs office

is also charging 75$ for processing.

http://www.genovadiagnostics.com/index.php?option=com_gpanel & Itemid=2 & task=view & \

nav=test & id=42

http://www.genovadiagnostics.com/files/profile_assets/sample_report/NutrEval_FMV\

_Report.pdf

Robin

> >

> > > I would love your input. Im coming into this backwards from most people

here. I am very sick. I didnt realize I was sick until about 4 years after the

birth of my second child. It was a gradual decline, so that I dont think I

really know when I began to be physically not right.

> > >

> > > I learned from you all and had my methylation genetics tested... and they

are pretty bad. So I test my daughter. Her's are better but key genes are

affected: MTHFr, MTR, MTRR, CBS A360A, all heterogeneous. NOS, BHMT 8

homogeneous. ACE deletion. (COMT+-, +-, MAO A++, SHMT +-)

> > >

> > > Is this normal these days? These genetics??????

> > >

> > > Even most alternative practioners that I have come across who are familiar

with Dr A's program are not exactly gung ho on addressing these genetics because

my daughter (and my son) are not seemingly that effected in the way they expect:

parasites, chronic candida, high gut inflammatory markers, pyloluria, metals,

restless legs, joint pains (lyme positive), gluten and dairy intolerant, low

weight for my daughter.. but they are not in the autism spectrum or obviously

ill.. we would not know there was any issue if I had not had them tested first

for gluten intolerance, then gut dysbiosis. This could have gone on for years,

like with me.

> > >

> > > My gut (fear or just obvious?) says to address. My parents have lived most

of their adult lives in chronic pain, my maternal g-mother was bedridden and

died in her early 50s after not waking up from anesthesia (as can be associated

with my MTR++ status), my sister was bedridden for around 10 years with severe

dysautonomias (also lots of tests positive for lots of " things " ) and

miraculously healed after a nde (which is its own story and leads to so many

questions), my father's family.. all heart disease and I know this can be

related to the MTHFr gene.

> > >

> > > I am really seeking perspective and validation one way or another.. I

would love to sweep these genetics under the rug and take with the theory that

genes are only one piece of the pie, but the other pieces are infections and the

environment. And.. well.. take past family history with that.

> > >

> > > Dr A's protocol is so intense.. if it werent, I wouldnt be questioning so

much or allowing the opinions of others to make me feel like a paranoid mother.

> > >

> > > How do you all see this protocol or similar therapies with children who

are potentially vunerable (as per genetics and family history, the obvious

toxicity of our world and exposure to lyme)? How far to take them? For example,

do you see taking the supportive supplements for the recycling of B12 or just

getting the b12 in with drops in fluids and chewables?

> > >

> > > If I were to run tests with Dr A, would I be opening a can of worry worms?

If there is evidence of a problem then I would think I should act on it.

> > >

> > > Its sad to be so stuck with this. It seems the answer should be obvious!

Im afraid to test further for two reasons: I might find out there are problems

brewing (as if there are not already problems but no one can tell by looking at

my kids and my kids dont feel the effects of these problems either, except the

restless legs) or I look like a nut case for pursuing and worse make my kids

feel there is something wrong with them (if there isnt). Obviously there are

problems or we would not have been treating h pylori, candida, parasites and now

metals... etc.

> > >

> > > Thanks for any input...

> > >

> > > Robin

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > >