Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 Krassi,I am sorry your child doesn't seem to be doing well on the treatment. I dont have much experience on valtrex besides what l posted here a couple of days ago. In your place, l wouldn't wait one more week to talk to his MD, try to reach her ASAP, this doesn't seem like something that can be postponed.I wish he gets better soon...IsaEnviado desde mi oficina móvil BlackBerry® de TelcelSender: BorreliaMultipleInfectionsAndAutism Date: Mon, 16 May 2011 18:49:54 -0000To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Valtrex experience Hello all,I was wondering if those of you who have used Valtrex can give me some opinions of what might be happening with my son.We started giving him Valtrex 250mg/3 times per day as per beginning of April this year (he also takes Diflucan twice per day). After a month on this dosage we were supposed to lower the dosage to 250mg only twice per day.However, 3 weeks or so after starting Valtrex my son had a rash on his back (as big as coin and very red) and at the same time he started being more winy, sometimes he takes my hands and puts them on his head, which makes me think he has a headache (he is non-verbal, 5 years old, 37 pounds). So I thought that probably we started having die-off after 3 weeks on Valtrex and I was hoping that after week or 2 the die-off will be over and we will start seeing the gains that everybody is talking about. However, we are already 6 weeks into Valtrex (and little more than 3 weeks since supposedly the die-off started) and my son started getting again with more OCD (he is also on the Azithromycin 500mg once per week) and his eye contact is worse. Only few weeks ago he had this perfect eye contact, but now I have the feeling that when he looks at me he sees through me but not really me :(So since I think we are going through die-off I haven't lowered the dosage to twice per day, but keep still 3 times per day, because I don't want this virus to replicate and not get rid of it completely. Am I right with that? I have my phone consult with our doctor next week and I am also wondering what she is going to say.The problem is that I am getting only more and more confused why this die-off is still going on, because when I read on the yahoo boards most people say they had die-off only for 1-2 weeks. Is it possible to have die-off for 3 weeks and even more, or simply Valtrex is not the right anti-viral for my son?Any advice would be greatly appreciated,Krassi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 The rash shaped and sized as a coin makes me think of the Lyme bull’s eye rash. It is possible that by attacking the virus, you have also stimulated the Lyme (if he has it), which could account for the headache and increased OCD. None of the meds you mentioned are helpful or effective against Lyme. You might want to discuss this with the doc when you talk next week. Anne M., BSN, MSN/IH, RNmcfighter@... From: BorreliaMultipleInfectionsAndAutism [mailto:BorreliaMultipleInfectionsAndAutism ] On Behalf Of KrassiSent: Monday, May 16, 2011 11:50 AMTo: BorreliaMultipleInfectionsAndAutism Subject: Valtrex experience Hello all,I was wondering if those of you who have used Valtrex can give me some opinions of what might be happening with my son.We started giving him Valtrex 250mg/3 times per day as per beginning of April this year (he also takes Diflucan twice per day). After a month on this dosage we were supposed to lower the dosage to 250mg only twice per day.However, 3 weeks or so after starting Valtrex my son had a rash on his back (as big as coin and very red) and at the same time he started being more winy, sometimes he takes my hands and puts them on his head, which makes me think he has a headache (he is non-verbal, 5 years old, 37 pounds). So I thought that probably we started having die-off after 3 weeks on Valtrex and I was hoping that after week or 2 the die-off will be over and we will start seeing the gains that everybody is talking about. However, we are already 6 weeks into Valtrex (and little more than 3 weeks since supposedly the die-off started) and my son started getting again with more OCD (he is also on the Azithromycin 500mg once per week) and his eye contact is worse. Only few weeks ago he had this perfect eye contact, but now I have the feeling that when he looks at me he sees through me but not really me :(So since I think we are going through die-off I haven't lowered the dosage to twice per day, but keep still 3 times per day, because I don't want this virus to replicate and not get rid of it completely. Am I right with that? I have my phone consult with our doctor next week and I am also wondering what she is going to say.The problem is that I am getting only more and more confused why this die-off is still going on, because when I read on the yahoo boards most people say they had die-off only for 1-2 weeks. Is it possible to have die-off for 3 weeks and even more, or simply Valtrex is not the right anti-viral for my son?Any advice would be greatly appreciated,Krassi__________ Information from ESET NOD32 Antivirus, version of virus signature database 6126 (20110516) __________The message was checked by ESET NOD32 Antivirus.http://www.eset.com __________ Information from ESET NOD32 Antivirus, version of virus signature database 6126 (20110516) __________ The message was checked by ESET NOD32 Antivirus. http://www.eset.com __________ Information from ESET NOD32 Antivirus, version of virus signature database 6127 (20110516) __________ The message was checked by ESET NOD32 Antivirus. http://www.eset.com __________ Information from ESET NOD32 Antivirus, version of virus signature database 6127 (20110516) __________The message was checked by ESET NOD32 Antivirus.http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 Anne, My first though when I saw the rash was also if this is the bull's eye rash I have heard about, but as per the latest ART and Zyto testing my son has no longer Lyme (8 months ago both ART and Zyto testing were showing Lyme, but we treated it with homeopathic nosodes plus some herbals as per Dr. K's protocol), so I assumed the rash is viral die-off? So hard to say, I have always this feeling that I am playing one big guessing game. Krassi > > The rash shaped and sized as a coin makes me think of the Lyme bull's eye > rash. It is possible that by attacking the virus, you have also stimulated > the Lyme (if he has it), which could account for the headache and increased > OCD. None of the meds you mentioned are helpful or effective against Lyme. > You might want to discuss this with the doc when you talk next week. > > > > Anne M., BSN, MSN/IH, RN > > mcfighter@... > > > > From: BorreliaMultipleInfectionsAndAutism > [mailto:BorreliaMultipleInfectionsAndAutism ] On Behalf Of > Krassi > Sent: Monday, May 16, 2011 11:50 AM > To: BorreliaMultipleInfectionsAndAutism > Subject: Valtrex experience > > > > > > Hello all, > I was wondering if those of you who have used Valtrex can give me some > opinions of what might be happening with my son. > We started giving him Valtrex 250mg/3 times per day as per beginning of > April this year (he also takes Diflucan twice per day). After a month on > this dosage we were supposed to lower the dosage to 250mg only twice per > day. > However, 3 weeks or so after starting Valtrex my son had a rash on his back > (as big as coin and very red) and at the same time he started being more > winy, sometimes he takes my hands and puts them on his head, which makes me > think he has a headache (he is non-verbal, 5 years old, 37 pounds). So I > thought that probably we started having die-off after 3 weeks on Valtrex and > I was hoping that after week or 2 the die-off will be over and we will start > seeing the gains that everybody is talking about. However, we are already 6 > weeks into Valtrex (and little more than 3 weeks since supposedly the > die-off started) and my son started getting again with more OCD (he is also > on the Azithromycin 500mg once per week) and his eye contact is worse. Only > few weeks ago he had this perfect eye contact, but now I have the feeling > that when he looks at me he sees through me but not really me > So since I think we are going through die-off I haven't lowered the dosage > to twice per day, but keep still 3 times per day, because I don't want this > virus to replicate and not get rid of it completely. Am I right with that? I > have my phone consult with our doctor next week and I am also wondering what > she is going to say. > The problem is that I am getting only more and more confused why this > die-off is still going on, because when I read on the yahoo boards most > people say they had die-off only for 1-2 weeks. Is it possible to have > die-off for 3 weeks and even more, or simply Valtrex is not the right > anti-viral for my son? > Any advice would be greatly appreciated, > Krassi > > > > > > __________ Information from ESET NOD32 Antivirus, version of virus signature > database 6126 (20110516) __________ > > The message was checked by ESET NOD32 Antivirus. > > http://www.eset.com > > > > __________ Information from ESET NOD32 Antivirus, version of virus signature > database 6126 (20110516) __________ > > > > The message was checked by ESET NOD32 Antivirus. > > > > http://www.eset.com > > > > __________ Information from ESET NOD32 Antivirus, version of virus signature > database 6127 (20110516) __________ > > > > The message was checked by ESET NOD32 Antivirus. > > > > http://www.eset.com > Quote Link to comment Share on other sites More sharing options...
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