Guest guest Posted June 27, 2003 Report Share Posted June 27, 2003 I guess this day has been in the making for quite some time now. I have decided that the time has come for me to has come for me to hang up my moderator badge. Next month will be two years since we graduated, and took the bands off for the final time. I'd like to think during the past two years I have done for the members of this group what you all have done for me when I first came here; and that is to offer up my experiences, support, and above all else, friendship. You all have gotten me thru some crazy mommy moments, and some of you have made me laugh so hard that I cried. It is these wonderful memories that I hold dear and thank you for from the bottom of my heart. Having said all that, I think it would be neglectful of me to close here without a few words. And I will try to keep it to a " few " ;o) The past half year I have not been quite so active within the group for a variety reasons. The kids are growing and getting involved in various sports and such, I volunteer my Sunday mornings to our church, and just the regular day to day life cuts into my time greatly. Yet, the biggest factor that has kept me from posting is the very group itself that I love so dearly. Over and over again we come down to the same arguments, disagreements, debates....whatever you want to call it. Over and over again we try to rectify this, try to make changes within the group, trying our hardest not to have any of our members feeling alienated. But we always come right back to the old ways after a few weeks or so. I know it has been said that I have never offered up suggestions on what it is that needs to be changed, but that couldn't be further than the truth. I think that comment in and of itself just proves my point that I can talk until I am blue in the face, and two seconds later it will all be forgotten. I think a good portion of this group has become hostile and biased against all cranial molding devices except for one. How many times have we read from new members that they were afraid to be going with one band instead of another? That's not right. Its one thing to educate our members, but its another thing altogether to frighten them. That needs to be changed. The purpose of this group is to support parents who are dealing with the emotions and struggles that present itself when dealing with plagiocephaly. However, increasingly, the focus has shifted and this group is no longer a plagio support group, but rather a support group for those that have used one device over any other. That needs to change. This group needs to come up with specific guidelines to avoid this in the future, and if you've been paying attention to this long winded post, then you'll know my suggestions for where to begin. Although I am no longer a moderator of the board, I hope to remain a supportive member and educate other parents objectively about plagiocephaly and treatment options for our kids in the future. I will remain respectful and passionate when sharing my views, especially if I do not agree with what is being said. I am forever grateful to those who have helped me when I started out on this journey. I am not ready to leave this group, I don't feel I have repaid the favor in full just yet. Wow, ok, I lied when I said it would be a few words ;o) Niki Resigned as moderator as of June 25, 2003….but STILL a passionate member of this group! Kaylie & Danny (STAR grads) Phila., PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2003 Report Share Posted June 27, 2003 Niki, I am glad you are still staying in the group! You gave Jenna and I so much support as well as many others. I can only imagine how busy you are with the kids and sports. We are just starting with extra activities. Thanks for all your support! Angie and jenna I guess this day has been in the making for quite some time now. I have decided that the time has come for me to has come for me to hang up my moderator badge.Next month will be two years since we graduated, and took the bands off for the final time. I'd like to think during the past two years I have done for the members of this group what you all have done for me when I first came here; and that is to offer up my experiences, support, and above all else, friendship. You all have gotten me thru some crazy mommy moments, and some of you have made me laugh so hard that I cried. It is these wonderful memories that I hold dear and thank you for from the bottom of my heart.Having said all that, I think it would be neglectful of me to close here without a few words. And I will try to keep it to a "few" ;o) The past half year I have not been quite so active within the group for a variety reasons. The kids are growing and getting involved in various sports and such, I volunteer my Sunday mornings to our church, and just the regular day to day life cuts into my time greatly. Yet, the biggest factor that has kept me from posting is the very group itself that I love so dearly.Over and over again we come down to the same arguments, disagreements, debates....whatever you want to call it. Over and over again we try to rectify this, try to make changes within the group, trying our hardest not to have any of our members feeling alienated. But we always come right back to the old ways after a few weeks or so. I know it has been said that I have never offered up suggestions on what it is that needs to be changed, but that couldn't be further than the truth. I think that comment in and of itself just proves my point that I can talk until I am blue in the face, and two seconds later it will all be forgotten. I think a good portion of this group has become hostile and biased against all cranial molding devices except for one. How many times have we read from new members that they were afraid to be going with one band instead of another? That's not right. Its one thing to educate our members, but its another thing altogether to frighten them. That needs to be changed.The purpose of this group is to support parents who are dealing with the emotions and struggles that present itself when dealing with plagiocephaly. However, increasingly, the focus has shifted and this group is no longer a plagio support group, but rather a support group for those that have used one device over any other. That needs to change. This group needs to come up with specific guidelines to avoid this in the future, and if you've been paying attention to this long winded post, then you'll know my suggestions for where to begin.Although I am no longer a moderator of the board, I hope to remain a supportive member and educate other parents objectively about plagiocephaly and treatment options for our kids in the future. I will remain respectful and passionate when sharing my views, especially if I do not agree with what is being said. I am forever grateful to those who have helped me when I started out on this journey. I am not ready to leave this group, I don't feel I have repaid the favor in full just yet.Wow, ok, I lied when I said it would be a few words ;o)NikiResigned as moderator as of June 25, 2003….but STILL a passionate member of this group! Kaylie & Danny (STAR grads)Phila., PAFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2003 Report Share Posted June 27, 2003 I have been a member of this group for only 2 1/2 months and I am sorry to hear that you are leaving your moderator status. But I have to say I haven't seen a bias attitude. Perhaps some posts have gone up that I haven't seen. I am grateful for this group, I would have been lost when my dd got her starband without this group. Medicine, retail, businesses everywhere have good and bad points, good and bad people, I think this is a good place to vent and share experiences with others. This is all an education for us, for this condition that is booming. I have read that 1 in 6 births have pos. plagio. now. I am so sorry Niki that you feel this way. I am glad you are staying, I think it is very important that new parents have the ability to hear experiences from someone like you that has been through it from beginning to end. Yvette mom to Katelyn Starband graduate 6/24/03 --- In Plagiocephaly , " Niki " <irisheyes175@a...> wrote: > I guess this day has been in the making for quite some time now. I > have decided that the time has come for me to has come for me to hang > up my moderator badge. > > Next month will be two years since we graduated, and took the bands > off for the final time. I'd like to think during the past two years > I have done for the members of this group what you all have done for > me when I first came here; and that is to offer up my experiences, > support, and above all else, friendship. You all have gotten me thru > some crazy mommy moments, and some of you have made me laugh so hard > that I cried. It is these wonderful memories that I hold dear and > thank you for from the bottom of my heart. > > Having said all that, I think it would be neglectful of me to close > here without a few words. And I will try to keep it to a " few " ;o) > > The past half year I have not been quite so active within the group > for a variety reasons. The kids are growing and getting involved in > various sports and such, I volunteer my Sunday mornings to our > church, and just the regular day to day life cuts into my time > greatly. Yet, the biggest factor that has kept me from posting is > the very group itself that I love so dearly. > > Over and over again we come down to the same arguments, > disagreements, debates....whatever you want to call it. Over and > over again we try to rectify this, try to make changes within the > group, trying our hardest not to have any of our members feeling > alienated. But we always come right back to the old ways after a few > weeks or so. I know it has been said that I have never offered up > suggestions on what it is that needs to be changed, but that couldn't > be further than the truth. I think that comment in and of itself > just proves my point that I can talk until I am blue in the face, and > two seconds later it will all be forgotten. I think a good portion of > this group has become hostile and biased against all cranial molding > devices except for one. > > How many times have we read from new members that they were afraid to > be going with one band instead of another? That's not right. Its > one thing to educate our members, but its another thing altogether to > frighten them. That needs to be changed. > > The purpose of this group is to support parents who are dealing with > the emotions and struggles that present itself when dealing with > plagiocephaly. However, increasingly, the focus has shifted and this > group is no longer a plagio support group, but rather a support group > for those that have used one device over any other. That needs to > change. This group needs to come up with specific guidelines to > avoid this in the future, and if you've been paying attention to this > long winded post, then you'll know my suggestions for where to begin. > > Although I am no longer a moderator of the board, I hope to remain a > supportive member and educate other parents objectively about > plagiocephaly and treatment options for our kids in the future. I > will remain respectful and passionate when sharing my views, > especially if I do not agree with what is being said. I am forever > grateful to those who have helped me when I started out on this > journey. I am not ready to leave this group, I don't feel I have > repaid the favor in full just yet. > > Wow, ok, I lied when I said it would be a few words ;o) > > Niki > Resigned as moderator as of June 25, 2003….but STILL a passionate > member of this group! > Kaylie & Danny (STAR grads) > Phila., PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2003 Report Share Posted June 27, 2003 Wow Niki, all I have to say is that you have been just wondering in helping myself, along with all of the other plagio moms and dad. You have been a real insperation to us all. Thank you so much for helping me and answering all of the questions that I had. You have done an awesome job as a moderator! Best wishes, Heidi, mom to Jeffry, local helmet grad, MN Hugs & Drool, Jeffry, Heidi & Brett Zimmerman >From: " Niki " <irisheyes175@...> >Reply-Plagiocephaly >Plagiocephaly >Subject: Down, But Not Out >Date: Fri, 27 Jun 2003 15:05:46 -0000 > >I guess this day has been in the making for quite some time now. I >have decided that the time has come for me to has come for me to hang >up my moderator badge. > >Next month will be two years since we graduated, and took the bands >off for the final time. I'd like to think during the past two years >I have done for the members of this group what you all have done for >me when I first came here; and that is to offer up my experiences, >support, and above all else, friendship. You all have gotten me thru >some crazy mommy moments, and some of you have made me laugh so hard >that I cried. It is these wonderful memories that I hold dear and >thank you for from the bottom of my heart. > >Having said all that, I think it would be neglectful of me to close >here without a few words. And I will try to keep it to a " few " ;o) > >The past half year I have not been quite so active within the group >for a variety reasons. The kids are growing and getting involved in >various sports and such, I volunteer my Sunday mornings to our >church, and just the regular day to day life cuts into my time >greatly. Yet, the biggest factor that has kept me from posting is >the very group itself that I love so dearly. > >Over and over again we come down to the same arguments, >disagreements, debates....whatever you want to call it. Over and >over again we try to rectify this, try to make changes within the >group, trying our hardest not to have any of our members feeling >alienated. But we always come right back to the old ways after a few >weeks or so. I know it has been said that I have never offered up >suggestions on what it is that needs to be changed, but that couldn't >be further than the truth. I think that comment in and of itself >just proves my point that I can talk until I am blue in the face, and >two seconds later it will all be forgotten. I think a good portion of >this group has become hostile and biased against all cranial molding >devices except for one. > >How many times have we read from new members that they were afraid to >be going with one band instead of another? That's not right. Its >one thing to educate our members, but its another thing altogether to >frighten them. That needs to be changed. > >The purpose of this group is to support parents who are dealing with >the emotions and struggles that present itself when dealing with >plagiocephaly. However, increasingly, the focus has shifted and this >group is no longer a plagio support group, but rather a support group >for those that have used one device over any other. That needs to >change. This group needs to come up with specific guidelines to >avoid this in the future, and if you've been paying attention to this >long winded post, then you'll know my suggestions for where to begin. > >Although I am no longer a moderator of the board, I hope to remain a >supportive member and educate other parents objectively about >plagiocephaly and treatment options for our kids in the future. I >will remain respectful and passionate when sharing my views, >especially if I do not agree with what is being said. I am forever >grateful to those who have helped me when I started out on this >journey. I am not ready to leave this group, I don't feel I have >repaid the favor in full just yet. > >Wow, ok, I lied when I said it would be a few words ;o) > >Niki >Resigned as moderator as of June 25, 2003….but STILL a passionate >member of this group! >Kaylie & Danny (STAR grads) >Phila., PA > > > > >For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2003 Report Share Posted June 27, 2003 > > How many times have we read from new members that they were afraid > to > > be going with one band instead of another? That's not right. Its > > one thing to educate our members, but its another thing altogether > to > > frighten them. That needs to be changed. Niki, I'm glad you'll be sticking around even though you're giving up your moderator status. I just wanted to say that I never felt anyone was pushing me in any direction. I really think it is important that everyone shares their stories because that is what a support group is all about. We were in the boat of having to make a choice between bands and I have to say that all I feel like I got here was education through facts and personal stories and I don't feel I was " frightened " away from anything. I just took the information I had and made what I felt was the best decision for us. Everyone has to do what is within their own comfort level. I was greatful for everyone who posted about everything, both good and bad. I think a person's experience here is what they make of it and that nobody tries to push their beliefs, but that they simply share what facts and personal experiences they know. Thank you for helping me and so many others! , mom to Hannah DOCbanded 5/12 Cape Cod, Ma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2003 Report Share Posted June 28, 2003 Niki, I am happy you are staying with group too I am sorry to hear you feel the group has been bias. I have only been with board for six months, but I have always felt supported by group memebers with our ped's suggestion to band A.J. with passive style helmet ****UGH***** A decision I regret since we saw no progress. When I asked about other bands when we didn't see results everyone chimed in that either band may be right for A.J., and that it is the orthotist that really makes results happen. Three moderators specifically, including you, I believe, helped me find a STAR band and DOC ortho. I really apreciate both users advice, both for and against bands. When I say the passive style, U of M helmet was bad for us, I hope no one takes offense. I am stating a fact. It didn't work for us. Others have seen fabulous results. In fact I would suggest people to use active over passive. I hope that is not wrong to say. I was so happy to find this board. Everyone in A.J.'s plagio team is for U of M helmet (pt, ped. ped plastic surgeon) and without your opinions on helmets, I would never have known we had options. If you want to hear bias - talk to A.J.'s plastic surgeopn. WOW! Did I get an earful on other makers of helmets. Now that is where I resent bias (the medical field who should have my child's best interest at heart-not support own product), not on an opinion board where everyone comes with own experiences to share. Wow! I guess I got on a little soap box against my plastic surgeon. YIKES. I'll stop now. and A.J. Drop outs after five months > Niki, > > I am glad you are still staying in the group! You gave Jenna and I so much support as well as many others. I can only imagine how busy you are with the kids and sports. We are just starting with extra activities. > > Thanks for all your support! > > Angie and jenna > > > I guess this day has been in the making for quite some time now. I > have decided that the time has come for me to has come for me to hang > up my moderator badge. > > Next month will be two years since we graduated, and took the bands > off for the final time. I'd like to think during the past two years > I have done for the members of this group what you all have done for > me when I first came here; and that is to offer up my experiences, > support, and above all else, friendship. You all have gotten me thru > some crazy mommy moments, and some of you have made me laugh so hard > that I cried. It is these wonderful memories that I hold dear and > thank you for from the bottom of my heart. > > Having said all that, I think it would be neglectful of me to close > here without a few words. And I will try to keep it to a " few " ;o) > > The past half year I have not been quite so active within the group > for a variety reasons. The kids are growing and getting involved in > various sports and such, I volunteer my Sunday mornings to our > church, and just the regular day to day life cuts into my time > greatly. Yet, the biggest factor that has kept me from posting is > the very group itself that I love so dearly. > > Over and over again we come down to the same arguments, > disagreements, debates....whatever you want to call it. Over and > over again we try to rectify this, try to make changes within the > group, trying our hardest not to have any of our members feeling > alienated. But we always come right back to the old ways after a few > weeks or so. I know it has been said that I have never offered up > suggestions on what it is that needs to be changed, but that couldn't > be further than the truth. I think that comment in and of itself > just proves my point that I can talk until I am blue in the face, and > two seconds later it will all be forgotten. I think a good portion of > this group has become hostile and biased against all cranial molding > devices except for one. > > How many times have we read from new members that they were afraid to > be going with one band instead of another? That's not right. Its > one thing to educate our members, but its another thing altogether to > frighten them. That needs to be changed. > > The purpose of this group is to support parents who are dealing with > the emotions and struggles that present itself when dealing with > plagiocephaly. However, increasingly, the focus has shifted and this > group is no longer a plagio support group, but rather a support group > for those that have used one device over any other. That needs to > change. This group needs to come up with specific guidelines to > avoid this in the future, and if you've been paying attention to this > long winded post, then you'll know my suggestions for where to begin. > > Although I am no longer a moderator of the board, I hope to remain a > supportive member and educate other parents objectively about > plagiocephaly and treatment options for our kids in the future. I > will remain respectful and passionate when sharing my views, > especially if I do not agree with what is being said. I am forever > grateful to those who have helped me when I started out on this > journey. I am not ready to leave this group, I don't feel I have > repaid the favor in full just yet. > > Wow, ok, I lied when I said it would be a few words ;o) > > Niki > Resigned as moderator as of June 25, 2003..but STILL a passionate > member of this group! > Kaylie & Danny (STAR grads) > Phila., PA > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2003 Report Share Posted June 28, 2003 Hi Niki, I'm so sad that you have decided to stop being a mod. I have always enjoyed reading your informative posts and I hope that you will continue to stay involved. I can only speak for myself but I do not feel like the board is biased. I think that education for clinicians whether they be orthos or physical therapists is the issue at hand. Not the product. So many people have received such great results with all sorts of different devices, passive, active, whatever. If I recall when someone new asks for help they are usually refered to both the cranial tech and orthoamerica websites. I like to think that I have been pretty active on the board for the past few months and even though my son uses one company here in Atlanta I always mention that the other provider has an excellent reputation too. So either way if you are going to have plagio in Atlanta you have excellent choices. If I had known about the other choice I may have leaned that way but I just went to who my neurosurgeon gave me a script for. I have been thankful for all the advice and help when I was such a skeptic in the beginning to now when I have become so involved in the little " plagio " community. Just my two cents, have a great weekend, Natasha --- In Plagiocephaly , " Niki " <irisheyes175@a...> wrote: > I guess this day has been in the making for quite some time now. I > have decided that the time has come for me to has come for me to hang > up my moderator badge. > > Next month will be two years since we graduated, and took the bands > off for the final time. I'd like to think during the past two years > I have done for the members of this group what you all have done for > me when I first came here; and that is to offer up my experiences, > support, and above all else, friendship. You all have gotten me thru > some crazy mommy moments, and some of you have made me laugh so hard > that I cried. It is these wonderful memories that I hold dear and > thank you for from the bottom of my heart. > > Having said all that, I think it would be neglectful of me to close > here without a few words. And I will try to keep it to a " few " ;o) > > The past half year I have not been quite so active within the group > for a variety reasons. The kids are growing and getting involved in > various sports and such, I volunteer my Sunday mornings to our > church, and just the regular day to day life cuts into my time > greatly. Yet, the biggest factor that has kept me from posting is > the very group itself that I love so dearly. > > Over and over again we come down to the same arguments, > disagreements, debates....whatever you want to call it. Over and > over again we try to rectify this, try to make changes within the > group, trying our hardest not to have any of our members feeling > alienated. But we always come right back to the old ways after a few > weeks or so. I know it has been said that I have never offered up > suggestions on what it is that needs to be changed, but that couldn't > be further than the truth. I think that comment in and of itself > just proves my point that I can talk until I am blue in the face, and > two seconds later it will all be forgotten. I think a good portion of > this group has become hostile and biased against all cranial molding > devices except for one. > > How many times have we read from new members that they were afraid to > be going with one band instead of another? That's not right. Its > one thing to educate our members, but its another thing altogether to > frighten them. That needs to be changed. > > The purpose of this group is to support parents who are dealing with > the emotions and struggles that present itself when dealing with > plagiocephaly. However, increasingly, the focus has shifted and this > group is no longer a plagio support group, but rather a support group > for those that have used one device over any other. That needs to > change. This group needs to come up with specific guidelines to > avoid this in the future, and if you've been paying attention to this > long winded post, then you'll know my suggestions for where to begin. > > Although I am no longer a moderator of the board, I hope to remain a > supportive member and educate other parents objectively about > plagiocephaly and treatment options for our kids in the future. I > will remain respectful and passionate when sharing my views, > especially if I do not agree with what is being said. I am forever > grateful to those who have helped me when I started out on this > journey. I am not ready to leave this group, I don't feel I have > repaid the favor in full just yet. > > Wow, ok, I lied when I said it would be a few words ;o) > > Niki > Resigned as moderator as of June 25, 2003….but STILL a passionate > member of this group! > Kaylie & Danny (STAR grads) > Phila., PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2003 Report Share Posted June 28, 2003 I just wanted to say that I also felt very supported when faced with a choice between bands. I thought everyone was very positive with whatever decision I made. I appreciated all of the tips on finding the right Ortho. That is definitely what I took from my experience. I did not care which band he got, as long as the Ortho treating him knew what they were doing. We got a late start, so I felt that at least now I needed to be armed with as much info as possible. I felt so guilty not having done something sooner, I wanted to make sure that this time I was pro-active about knowing all of the info out there. So, thank you to everyone that helped me! Jen- TXTrentyn- 13 mo. DocBand 06/12/03 Re: Down, But Not Out > > How many times have we read from new members that they were afraid > to > > be going with one band instead of another? That's not right. Its > > one thing to educate our members, but its another thing altogether > to > > frighten them. That needs to be changed.Niki,I'm glad you'll be sticking around even though you're giving up your moderator status. I just wanted to say that I never felt anyone was pushing me in any direction. I really think it is important that everyone shares their stories because that is what a support group is all about. We were in the boat of having to make a choice between bands and I have to say that all I feel like I got here was education through facts and personal stories and I don't feel I was "frightened" away from anything. I just took the information I had and made what I felt was the best decision for us. Everyone has to do what is within their own comfort level. I was greatful for everyone who posted about everything, both good and bad. I think a person's experience here is what they make of it and that nobody tries to push their beliefs, but that they simply share what facts and personal experiences they know. Thank you for helping me and so many others!, mom to Hannah DOCbanded 5/12Cape Cod, Ma For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2003 Report Share Posted June 29, 2003 Hi Niki: I'm so sorry you feel it's necessary to resign as a moderator. I am fairly new to this group and I just wanted to say that I've only gotten great replies and never once felt pressured to use a certain type of band. I've truly enjoyed reading everyone's experiences good and bad. One can only learn from experience and it's so wonderful that there are so many that are willing to share them. Without this support group I may not have banded on. I was laughed at by most of family and friends (except wonderful hubby) when I was considering a band for him...they kept implying that nothing was wrong with his flat head and that it would round out. But there is always that " what if. " This group has given me the knowledge, support and courage to do what others thought was silly. I'm glad you decided to stay with the group...this support group is wonderful and I would truly benefit any suggestions/experiences you may have. Lori and on doc banded 6/23/03 --- In Plagiocephaly , " Niki " <irisheyes175@a...> wrote: > I guess this day has been in the making for quite some time now. I > have decided that the time has come for me to has come for me to hang > up my moderator badge. > > Next month will be two years since we graduated, and took the bands > off for the final time. I'd like to think during the past two years > I have done for the members of this group what you all have done for > me when I first came here; and that is to offer up my experiences, > support, and above all else, friendship. You all have gotten me thru > some crazy mommy moments, and some of you have made me laugh so hard > that I cried. It is these wonderful memories that I hold dear and > thank you for from the bottom of my heart. > > Having said all that, I think it would be neglectful of me to close > here without a few words. And I will try to keep it to a " few " ;o) > > The past half year I have not been quite so active within the group > for a variety reasons. The kids are growing and getting involved in > various sports and such, I volunteer my Sunday mornings to our > church, and just the regular day to day life cuts into my time > greatly. Yet, the biggest factor that has kept me from posting is > the very group itself that I love so dearly. > > Over and over again we come down to the same arguments, > disagreements, debates....whatever you want to call it. Over and > over again we try to rectify this, try to make changes within the > group, trying our hardest not to have any of our members feeling > alienated. But we always come right back to the old ways after a few > weeks or so. I know it has been said that I have never offered up > suggestions on what it is that needs to be changed, but that couldn't > be further than the truth. I think that comment in and of itself > just proves my point that I can talk until I am blue in the face, and > two seconds later it will all be forgotten. I think a good portion of > this group has become hostile and biased against all cranial molding > devices except for one. > > How many times have we read from new members that they were afraid to > be going with one band instead of another? That's not right. Its > one thing to educate our members, but its another thing altogether to > frighten them. That needs to be changed. > > The purpose of this group is to support parents who are dealing with > the emotions and struggles that present itself when dealing with > plagiocephaly. However, increasingly, the focus has shifted and this > group is no longer a plagio support group, but rather a support group > for those that have used one device over any other. That needs to > change. This group needs to come up with specific guidelines to > avoid this in the future, and if you've been paying attention to this > long winded post, then you'll know my suggestions for where to begin. > > Although I am no longer a moderator of the board, I hope to remain a > supportive member and educate other parents objectively about > plagiocephaly and treatment options for our kids in the future. I > will remain respectful and passionate when sharing my views, > especially if I do not agree with what is being said. I am forever > grateful to those who have helped me when I started out on this > journey. I am not ready to leave this group, I don't feel I have > repaid the favor in full just yet. > > Wow, ok, I lied when I said it would be a few words ;o) > > Niki > Resigned as moderator as of June 25, 2003….but STILL a passionate > member of this group! > Kaylie & Danny (STAR grads) > Phila., PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2003 Report Share Posted June 29, 2003 Hi Niki I'm sorry to hear that you will no longer be a moderator, but I'm thrilled to hear that you plan to stick around You helped me tremendously through 's banding experience. I have read all the posts in response to yours and I am surprised that nobody else seems to notice the trend that you pointed out. I'm not as active on this board as I once was, but I have found many occasions where I come to this board and get frustrated with a bias for one product. I know I'm not imagining it either, when I read further posts with questions as to " what makes said product better than others? " I feel like pointing out more examples but I don't want to be the beginning of a huge debate, I just want you to know that I understand where you are coming from. I'm forever grateful to you for all your help when I was clueless and trying to figure out what a band was Love, & (15 months, STARband Grad) --- In Plagiocephaly , " Niki " <irisheyes175@a...> wrote: > I guess this day has been in the making for quite some time now. I > have decided that the time has come for me to has come for me to hang > up my moderator badge. > > Next month will be two years since we graduated, and took the bands > off for the final time. I'd like to think during the past two years > I have done for the members of this group what you all have done for > me when I first came here; and that is to offer up my experiences, > support, and above all else, friendship. You all have gotten me thru > some crazy mommy moments, and some of you have made me laugh so hard > that I cried. It is these wonderful memories that I hold dear and > thank you for from the bottom of my heart. > > Having said all that, I think it would be neglectful of me to close > here without a few words. And I will try to keep it to a " few " ;o) > > The past half year I have not been quite so active within the group > for a variety reasons. The kids are growing and getting involved in > various sports and such, I volunteer my Sunday mornings to our > church, and just the regular day to day life cuts into my time > greatly. Yet, the biggest factor that has kept me from posting is > the very group itself that I love so dearly. > > Over and over again we come down to the same arguments, > disagreements, debates....whatever you want to call it. Over and > over again we try to rectify this, try to make changes within the > group, trying our hardest not to have any of our members feeling > alienated. But we always come right back to the old ways after a few > weeks or so. I know it has been said that I have never offered up > suggestions on what it is that needs to be changed, but that couldn't > be further than the truth. I think that comment in and of itself > just proves my point that I can talk until I am blue in the face, and > two seconds later it will all be forgotten. I think a good portion of > this group has become hostile and biased against all cranial molding > devices except for one. > > How many times have we read from new members that they were afraid to > be going with one band instead of another? That's not right. Its > one thing to educate our members, but its another thing altogether to > frighten them. That needs to be changed. > > The purpose of this group is to support parents who are dealing with > the emotions and struggles that present itself when dealing with > plagiocephaly. However, increasingly, the focus has shifted and this > group is no longer a plagio support group, but rather a support group > for those that have used one device over any other. That needs to > change. This group needs to come up with specific guidelines to > avoid this in the future, and if you've been paying attention to this > long winded post, then you'll know my suggestions for where to begin. > > Although I am no longer a moderator of the board, I hope to remain a > supportive member and educate other parents objectively about > plagiocephaly and treatment options for our kids in the future. I > will remain respectful and passionate when sharing my views, > especially if I do not agree with what is being said. I am forever > grateful to those who have helped me when I started out on this > journey. I am not ready to leave this group, I don't feel I have > repaid the favor in full just yet. > > Wow, ok, I lied when I said it would be a few words ;o) > > Niki > Resigned as moderator as of June 25, 2003….but STILL a passionate > member of this group! > Kaylie & Danny (STAR grads) > Phila., PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2003 Report Share Posted June 30, 2003 I am sorry that you are leaving. I just have one comment to add. I have read a number of responses to your email, that people here have not witnessed the bias you describe in your email. I don't know how they can say that. I agree, there are several members that show no bias, however.... I also just read a post with the title " What makes the DOC Band better " (or something like that) - so, how can we HONESTLY say that we have not witnessed bias from SOME members????? My son is Star Banded (as of 6-11), and as I started reading some of the posts this morning, I actually became scarred that we made the wrong decision not to drive 2 1/2 hours one way to get the DOC Band. But after reading your message as well as some other posts, I feel like we are doing the right thing. -Holly (mama to ) StarBanded 6/11/03 - ? --- In Plagiocephaly , " Niki " <irisheyes175@a...> wrote: > I guess this day has been in the making for quite some time now. I > have decided that the time has come for me to has come for me to hang > up my moderator badge. > > Next month will be two years since we graduated, and took the bands > off for the final time. I'd like to think during the past two years > I have done for the members of this group what you all have done for > me when I first came here; and that is to offer up my experiences, > support, and above all else, friendship. You all have gotten me thru > some crazy mommy moments, and some of you have made me laugh so hard > that I cried. It is these wonderful memories that I hold dear and > thank you for from the bottom of my heart. > > Having said all that, I think it would be neglectful of me to close > here without a few words. And I will try to keep it to a " few " ;o) > > The past half year I have not been quite so active within the group > for a variety reasons. The kids are growing and getting involved in > various sports and such, I volunteer my Sunday mornings to our > church, and just the regular day to day life cuts into my time > greatly. Yet, the biggest factor that has kept me from posting is > the very group itself that I love so dearly. > > Over and over again we come down to the same arguments, > disagreements, debates....whatever you want to call it. Over and > over again we try to rectify this, try to make changes within the > group, trying our hardest not to have any of our members feeling > alienated. But we always come right back to the old ways after a few > weeks or so. I know it has been said that I have never offered up > suggestions on what it is that needs to be changed, but that couldn't > be further than the truth. I think that comment in and of itself > just proves my point that I can talk until I am blue in the face, and > two seconds later it will all be forgotten. I think a good portion of > this group has become hostile and biased against all cranial molding > devices except for one. > > How many times have we read from new members that they were afraid to > be going with one band instead of another? That's not right. Its > one thing to educate our members, but its another thing altogether to > frighten them. That needs to be changed. > > The purpose of this group is to support parents who are dealing with > the emotions and struggles that present itself when dealing with > plagiocephaly. However, increasingly, the focus has shifted and this > group is no longer a plagio support group, but rather a support group > for those that have used one device over any other. That needs to > change. This group needs to come up with specific guidelines to > avoid this in the future, and if you've been paying attention to this > long winded post, then you'll know my suggestions for where to begin. > > Although I am no longer a moderator of the board, I hope to remain a > supportive member and educate other parents objectively about > plagiocephaly and treatment options for our kids in the future. I > will remain respectful and passionate when sharing my views, > especially if I do not agree with what is being said. I am forever > grateful to those who have helped me when I started out on this > journey. I am not ready to leave this group, I don't feel I have > repaid the favor in full just yet. > > Wow, ok, I lied when I said it would be a few words ;o) > > Niki > Resigned as moderator as of June 25, 2003….but STILL a passionate > member of this group! > Kaylie & Danny (STAR grads) > Phila., PA Quote Link to comment Share on other sites More sharing options...
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