Guest guest Posted January 18, 2011 Report Share Posted January 18, 2011 Mine was just below L2. Where most of my surgeries were done. Sent from my iPhone Am I wrong in thinking that these occur mainly in patients with spinal issues in the thoracic area? Hers is Lower...L1-L4. > > > My daughter (28) is in the hospital now trying to get her pain under > control. Her 4th detethering surgery was 2 years ago and she has not > bounced back since. Her pain has not been controlled. We have seen three > different pain management people and none of them have worked out. The > first had her so doped up all she did was sleep. We are now on the 3rd and > she moved so slow that Beth has begun a downward spiral. Duke believes is > related to inactivity. Not sure I agree with that. She has lost a lot of > tone in her legs and feet, to the point of literally just draggin them. She > went from walking unassisted in Oct. to walking with a cane, to a walker, to > mainly a wheelchair now. All in just a couple of months. She is now having > some bladder issues. They are trying to get her pain better managed then > move her to a rehab facility for some inpatient rehab. > I am just wondering how you guys feel about the pain scale. The Dr.s and > nurses come in and ask her about her pain, when she tells them sometimes > they question her like they don't believe that hse is in that much pain. To > be honest, I have questioned her myself. I have seen her when her pain was > without doubt a 10, heart racing, sweating bullets, BP high. But, I have > also seen her say 10 around a mouthfull of pizza. When questioned she says > that it's different pain. The throbbing causes her to sweat and have high > rates, the shocks are equally as painful but don't cause her to react the > same way. It's so hard to know. > I don't want to question her and I don't want them looking at us like we > are abusing things. Somtimes they even make negative notes in her charts > about it. What are some of your experiences or ideas on this? > <<NEXT MESSAGE>> When I asked if she would help with the FMLA paperwork, she told me she > didn't treat me she treated my daughter. > <<NEXT MESSAGE>> One of the PT's came in and said there was soemthing new on the MRI, a fluid filled pocket. Does anybody have any ideas about that? > Livvie > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2011 Report Share Posted January 18, 2011 I see...what is the treatment for this? > > > My daughter (28) is in the hospital now trying to get her pain under > control. Her 4th detethering surgery was 2 years ago and she has not > bounced back since. Her pain has not been controlled. We have seen three > different pain management people and none of them have worked out. The > first had her so doped up all she did was sleep. We are now on the 3rd and > she moved so slow that Beth has begun a downward spiral. Duke believes is > related to inactivity. Not sure I agree with that. She has lost a lot of > tone in her legs and feet, to the point of literally just draggin them. She > went from walking unassisted in Oct. to walking with a cane, to a walker, to > mainly a wheelchair now. All in just a couple of months. She is now having > some bladder issues. They are trying to get her pain better managed then > move her to a rehab facility for some inpatient rehab. > I am just wondering how you guys feel about the pain scale. The Dr.s and > nurses come in and ask her about her pain, when she tells them sometimes > they question her like they don't believe that hse is in that much pain. To > be honest, I have questioned her myself. I have seen her when her pain was > without doubt a 10, heart racing, sweating bullets, BP high. But, I have > also seen her say 10 around a mouthfull of pizza. When questioned she says > that it's different pain. The throbbing causes her to sweat and have high > rates, the shocks are equally as painful but don't cause her to react the > same way. It's so hard to know. > I don't want to question her and I don't want them looking at us like we > are abusing things. Somtimes they even make negative notes in her charts > about it. What are some of your experiences or ideas on this? > <<NEXT MESSAGE>> When I asked if she would help with the FMLA paperwork, she told me she > didn't treat me she treated my daughter. > <<NEXT MESSAGE>> One of the PT's came in and said there was soemthing new on the MRI, a fluid filled pocket. Does anybody have any ideas about that? > Livvie > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2011 Report Share Posted January 18, 2011 There are two different surgeries. One is to install a shunt from above the blockage to below so the CSF can flow freely as it should. This is the original method. But shunts can become blocked, infected, etc. The other method is to widen the spinal canal to create more room for the CSF. But, they can't always create enough room to alleviate the blockage. This is the surgery I had. I opted for it because the problems that can happen with shunts. We agreed to this surgery and only if he couldn't open the canal enough to free the blockage would he have to put in a shunt. This was my 3rd surgery. I woke from it a T12 para. But there are others here who have had it done & no complications. My surgeon said the risks for me going into this surgery were higher than with my previous ones. He was surprised bc he said everything looked great when he closed me up. I had a stat MRI as soon as they woke me & the MRI was normal. They thought it was due to swelling & put me on very high dose steroids. I got a little movement & feeling, but still not able to walk. But, I couldn't walk well going into the surgery. I was using AFOs & forearm crutches & still very unstable. I couldn't drive either. He also gave me the opportunity it wait. & c bc he said that the neuro decline often plateaus. But it had been months and I could hardly walk & no plateau in sight so I opted for the surgery. Jenn Sent from my iPhone I see...what is the treatment for this? > > > My daughter (28) is in the hospital now trying to get her pain under > control. Her 4th detethering surgery was 2 years ago and she has not > bounced back since. Her pain has not been controlled. We have seen three > different pain management people and none of them have worked out. The > first had her so doped up all she did was sleep. We are now on the 3rd and > she moved so slow that Beth has begun a downward spiral. Duke believes is > related to inactivity. Not sure I agree with that. She has lost a lot of > tone in her legs and feet, to the point of literally just draggin them. She > went from walking unassisted in Oct. to walking with a cane, to a walker, to > mainly a wheelchair now. All in just a couple of months. She is now having > some bladder issues. They are trying to get her pain better managed then > move her to a rehab facility for some inpatient rehab. > I am just wondering how you guys feel about the pain scale. The Dr.s and > nurses come in and ask her about her pain, when she tells them sometimes > they question her like they don't believe that hse is in that much pain. To > be honest, I have questioned her myself. I have seen her when her pain was > without doubt a 10, heart racing, sweating bullets, BP high. But, I have > also seen her say 10 around a mouthfull of pizza. When questioned she says > that it's different pain. The throbbing causes her to sweat and have high > rates, the shocks are equally as painful but don't cause her to react the > same way. It's so hard to know. > I don't want to question her and I don't want them looking at us like we > are abusing things. Somtimes they even make negative notes in her charts > about it. What are some of your experiences or ideas on this? > <<NEXT MESSAGE>> When I asked if she would help with the FMLA paperwork, she told me she > didn't treat me she treated my daughter. > <<NEXT MESSAGE>> One of the PT's came in and said there was soemthing new on the MRI, a fluid filled pocket. Does anybody have any ideas about that? > Livvie > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.