Guest guest Posted May 5, 2011 Report Share Posted May 5, 2011 Hello, My son (29 months) is being treated for lyme infection. He used to exhibit OCD behaviors such as lining up toys, anxiety with anyone speaking to him other me, and some repetitive sounds. Those behaviors have subsided recently and he made some very nice developmental progress. The last three days, however, I have noticed a change in his behavior going back to some of these old OCD traits plus high pitch squealing. We had his strep titers checked in January and they were not elevated enough for our LLMD/DAN to suspect PANDAS. Is there a possibility of having PANDAS without elevated strep titers? I read someone's post recently about getting strep flares when treating Bartonella. The symptoms they described were exactly like mine when treating Bartonella. I am now wondering if we don't all have strep, as well? When you are going through a " flare " is it contagious to others? My biggest question is, what can we do about it if it is PANDAS? What is the treatment? Looking on the web was a little discouraging as I read that only cognitive behavioral training is the treatment and that only some children respond to plasma exchange. My last question is if probiotics with strep strains is ok to give. We do the SCD goat yogurt using the GI ProHealth Yogurt starter. It contains strepoccocal thermo-something. Thank you for your help as I know many of you have treated PANDAS and I really look forward to your advice. PS. We recently started the low-ox diet (3 weeks ago)...could this be related to the change in his behavior? na- mother to ASD 2 year old w/ lyme, and 12 month old w/lyme Quote Link to comment Share on other sites More sharing options...
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