Guest guest Posted October 19, 2010 Report Share Posted October 19, 2010 Dear : That's GREAT! Best, Cate > Hi Cate, > > This is my 2nd opinion! After I get my MRI planning on going. > Heard a lot of great things, actually my TC friend went there. > She had a very difficult case, EDS also. > Misdx @ Northwestern etc > > > > >Hi, : > > > >I am so glad to hear it. He really is outstanding. Brilliant. He enjoys the thrill of diagnosing the most difficult cases. For him, a " regular " detethering or " fatty filum " are a peice of cake...but he also fixes alot of blunders by other NS's like TCI...when I was post op, there were quite a few people who were refugees from TCI (where I was " supposed " to be detethered an have a posterior fossa decompression shortly after in May of 09, but all hell broke loose that week re the law suit from the April 09 patient, so mine was cancelled and they did a terrible job handling those of us who were shocked and upset by what happened). > > > >He has taken a great deal of time learning about heritable connective tissue disorders like EDS from Dr. Clair Francomano, the EDS and Marfan guru in Baltimore, and he has educated all of the nurses and techs in the hosptial where he now operates (he was previously a big shot at town, but took it on the road to a small hospital near Greenbelt, MD near NASA, called Doctors Community Hospital in Lanham, MD. he is chief of NS there, and the wing of the hospital that he runs has the very best team. > > > >He's Australian originally but did his undergrad and med school at U of Va, and looks very proper and gentelmanly. He is incredibly un-egocentric...prays before surgery with his whole team and after when you thank him, he says not to thank him, and infers God did it....amazing. > > > >I believe that some of the TCS'ers also have versions of EDS and are just not aware of it, so going to a highly skilled NS who is very tuned into connective tissue issues is a GREAT thing. > > > >If you have any questions or need further info or support, pls feel free to call me in Miami at . i will be happy to call you back so you don't have to pay a toll call. > >305-668-=8815. Please don't publish my #. > > > >Best, > >Cate > > > > > > > > > >> Cate, > >> > >> Thanks for adding your information about Dr. to the spreadsheet I put together. In fact, it really helped me out because I live in Central PA and I was trying to locate possible surgeons in this area. Bethesda, MD isn't too far away so he is a potential candidate. > >> > >> I hope others can do the same because it can end up being a valuable resource to locate TSC surgeons. > >> > >> > >> > >> https://spreadsheets.google.com/ccc?key=tdQCa1tQwKGlubdezcR-9vA & authkey=CMaj56gP\ #gid=0 > >> > >> > >> > >> > >> Subject: List of surgeons and other TSC resources (Help requested) > >> To: tetheredspinalcord > >> Date: Wednesday, October 13, 2010, 5:13 PM > >> > >> > >> > >> Hi All, > >> > >> I am putting together a list of TSC resources that will be available for people to use. > >> > >> Seems like questions about available surgeons is a recurring theme. Figured it makes sense to put something together that folks can refer to. > >> > >> Please go to the link below and input any info you might have. The referring patient section is for your name so that someone would know who to speak to about that particular surgeon. I left three slots for referring patients but can add more if necessary. Also, if you need to add more than one line of text in a cell hold down the ALT key and select the enter key. > >> > >> Let me know if there are any suggestions for additional columns, etc. This a work in progress. > >> > >> > >> > >> https://spreadsheets.google.com/ccc?key=tdQCa1tQwKGlubdezcR-9vA & authkey=CMaj56gP\ #gid=0 > >> > >> Quote Link to comment Share on other sites More sharing options...
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