Re: New from Canada-Reply to

[Guest guest]

Hi

My name is Carolyn and I also live in Edmonton. Glad to finally have

another Edmontonian on here!

My son's name is Jordi and it was soon after he was born that we

noticed his head was not rounding out as would be. They used the

vacuum on me during the birth and I have to wonder if that did some

damage. Anyways, Jordi's got plagio and we have been doing repo since

Feb. The Public Health clinic noticed the problem early on and at the

4 month check they suggested we go to the Ped. We see Dr. Malinowski

and he agreed that things were off and immediately referred us to the

U of A. I am glad we didn't have to fight to get that referral. Who

is your Ped?

At this point we have been doing repo with success since Feb. I do

feel however that things have stopped changing and we go for our next

check-up tomorrow at the U of A. They have set a casting appt. for

tomorrow as well if required so we will see what happens. I will post

an update later this week.

Email me directly if you want or reply on here. Hopoe to talk to you

soon.

Carolyn, Mom to Cristiana (3 1/2 years) anf Jordi now 8 months(doing

repo since Feb) Edmonton

--- In Plagiocephaly , " kljansen2003 " <kljansen@s...>

wrote:

> Hello Everyone!

>

> Since we just got a computer 2 weeks ago, I am very new to the

whole

> process of message boards, etc. Not too sure of what I'm doing

yet.

> LOL! I've picked up a bit here and there by reading thru the

> messages (I believe you call it lurking?) I just replied to a

> message a few minutes ago & then realized that I should have

> introduced myself first.

>

> My name is , and I live in Edmonton, Alberta, Canada. My

> daughter is approx 10.5 months old. (She turns 1 on the 4th of

July)

> She was born with the roundest head I have ever seen on a baby, so

> she never slept with her head to one side or the other, like

> sometimes happens with babies I've seen, whose skulls get mishapen

> due to the birth process.

>

> Even though I read about plagio before she was born, I didn't think

> there was going to be a problem. She hated " tummy time " , she would

> scream whenever I'd put her on her tummy on the floor, but she

would

> sleep on my chest every afternoon for at least 3 hours straight,

with

> the back of her head not touching anything, so I figured that had

to

> be enough, since obviously a newborn is hardly awake for 3 hours

> total in the beginning, so they sure couldn't be getting 3 hours of

> tummy time in a day.

>

> When she was about 3 months, we started noticing the back of her

head

> flattening, so we asked her pediatrician about it. He said there

> was nothing to worry about, it would round out as she grew. It got

> worse over the next month, so I asked again at her next appt. Same

> answer, nothing to worry about. Meanwhile, my Mother (and perfect

> strangers too) kept telling me " did you know her head is flat? " As

> if I couldn't tell!

>

> I had been rolling up receiving blankets to put under one shoulder

or

> the other, to keep her propped up, but she'd just scoot off them

till

> she was flat on her back again. My husband used to say we should

duct

> tape her on her side. LOL!

>

> Well, after talking to her pediatrician about it a 3rd time, we

> finally got an appointment with a specialist, (by this time, the

back

> of her head was so flat you could have balanced a glass on it) and

he

> agreed that there definately was a problem, and that is how we

> started on the DOC-Band journey.

>

> The cast was made Jan 28th, and we got the band Feb 7th. Once we

got

> a look at the " headsicle " , we really could see how badly mishapen

her

> poor little head was. One of her cheeks was bulging out, her

> forehead was starting to bulge on one side, and the back of her

head,

> along with being so flat, was starting to look like a triangle.

Even

> we didn't realize how bad it really was till then. I cried when I

> saw that.

>

> On a happier note, the improvement so far is amazing! It looks

like

> she might be out of the band by her 1st birthday. Yay!!!

>

> I just recently found out that the only 2 cities in Canada that can

> do the casting & adjustments to the DOC-bands are here in Edmonton,

> and in Calgary (about a 3 hour drive). I don't know what the rest

of

> Canada does. I am so incredibly grateful to live in a city that

can

> do this.

>

> I know this was a very long message, but I just wanted to share our

> story, and say Hi to everyone.

>

> Thanks for listening. (reading?)

>

>

>

> P.S. Are there any other DOC-band babies from Canada around?