Guest guest Posted April 20, 2011 Report Share Posted April 20, 2011 Hi Kari! I'm pretty new to all of this, so you'll have to keep that in mind, but I think you've hit on something very significant. I couldn't tell from your post if your child does or doesn't have lyme, but I'll tell you that my daughter who has lyme (12 months)presents with crainial nerve involvement that caused her right eye and mouth to be effected. She still moves her tongue to one side a lot and she doesn't take food from a spoon easily. We thought my daughter had an in-utero stroke because her symptoms were so similar, but now we believe it is lyme. She is slowly gaining more strength on her right side, but certain days it's more obvious. Your son's oral issues could definitely be nerve related. Does he choke a lot or crave excessively sour or tart foods? My daughter would only eat sauerkraut when she was 6 months old! Also...augmentin is amoxillin and clavulanate. Amoxicillin is a common antibiotic given to kids with lyme, which you probably already knew. I think you are really onto something. I hope you get some concrete answers. Just curious...did you notice improvments in anything other than the eating and oral sensitivites? na > > Hi, I am wondering if oral sensitivities are common to any specific bacterias? I recently treated my son with a 10 day course of augmentin and all of his oral sensitivities went away. The augmentin was for a bladder infection so I figured this out by coincidence. > > Here is a description of some of the behaviors I am referring too: Tooth brushing would almost seem painful, especially the teeth on the top and towards the back. Eating habits were just a few different foods rotated and sometimes even those foods were rejected. He will maybe swallow a few bites sometimes only one bite and then run to the trash can and spit out the rest. He will put a new bite in his mouth and chew it, but then spit it out instead of swallowing and he would do this several times over. This is even with favorit foods. Drinking fluids has never been a problem. > > I have the impression that his mouth feels numb. I say this because he can only blow air up and from the corner of his mouth. It reminds me of the novacaine effect you get from the dentist. I am also seeing him crambing food such as bread as if he has no idea how much food is in his mouth and then he all of a sudden is choking and spitting it out. > > Now, once on the antibiotic for a few days, we couldn't believe the appetite he suddenly had and the sudden variety of foods he could enjoy. The problem has never been getting him to try a new food. It has always been getting him to chew it up and swallow successfully. Once off the antibiotic for 10 weeks now, we are back to same old scenario. I have often referred to his eating habits/apetite as " baby anorexia " . > > I have been watching and reading several message boards for a few months now and have not seen anyone mention anything other than food preferences mentioned. This is not simply about texture and/or sensory integration I learned when I saw the symptoms vanish with antibiotics. > > My son is 3 1/2 years old and just learning to speak. It is very, very difficult for him, but he is learning with lots of intensive therapy. His speech reminds me of a patient with brain damage and/or motor impairment. I see this by watching the way he is learning to use the muscles in his mouth, jaw, etc. > > Sorry this is such a long post, but I would like to know if anyone else has these common symptoms. We are preparing to test for bacterias, viruses and such at the current time and I don't want to miss anything. If anyone has any insight, please reply. > > Thank you! > > Kari > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2011 Report Share Posted April 20, 2011 Hi Kari, I didn't indicate that my daughter also has two co-infections, babesia and bartonella, but I'm not sure which infection is causing her symptoms. I was just remembering something. When we started my daughter on her herbal drops and homeopathics for lyme and co-infections she made a huge jump in her interest in eating and trying different foods. Not sure if that helps, but good luck with your testing. na > > Hi, I am wondering if oral sensitivities are common to any specific bacterias? I recently treated my son with a 10 day course of augmentin and all of his oral sensitivities went away. The augmentin was for a bladder infection so I figured this out by coincidence. > > Here is a description of some of the behaviors I am referring too: Tooth brushing would almost seem painful, especially the teeth on the top and towards the back. Eating habits were just a few different foods rotated and sometimes even those foods were rejected. He will maybe swallow a few bites sometimes only one bite and then run to the trash can and spit out the rest. He will put a new bite in his mouth and chew it, but then spit it out instead of swallowing and he would do this several times over. This is even with favorit foods. Drinking fluids has never been a problem. > > I have the impression that his mouth feels numb. I say this because he can only blow air up and from the corner of his mouth. It reminds me of the novacaine effect you get from the dentist. I am also seeing him crambing food such as bread as if he has no idea how much food is in his mouth and then he all of a sudden is choking and spitting it out. > > Now, once on the antibiotic for a few days, we couldn't believe the appetite he suddenly had and the sudden variety of foods he could enjoy. The problem has never been getting him to try a new food. It has always been getting him to chew it up and swallow successfully. Once off the antibiotic for 10 weeks now, we are back to same old scenario. I have often referred to his eating habits/apetite as " baby anorexia " . > > I have been watching and reading several message boards for a few months now and have not seen anyone mention anything other than food preferences mentioned. This is not simply about texture and/or sensory integration I learned when I saw the symptoms vanish with antibiotics. > > My son is 3 1/2 years old and just learning to speak. It is very, very difficult for him, but he is learning with lots of intensive therapy. His speech reminds me of a patient with brain damage and/or motor impairment. I see this by watching the way he is learning to use the muscles in his mouth, jaw, etc. > > Sorry this is such a long post, but I would like to know if anyone else has these common symptoms. We are preparing to test for bacterias, viruses and such at the current time and I don't want to miss anything. If anyone has any insight, please reply. > > Thank you! > > Kari > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2011 Report Share Posted April 20, 2011 Yes, I have had this. I am not sure how some meds cause it, but it appears that it's from the gums receding, exposing the tooth parts under the gum-line which are inherently sensitive to heat and cold. Brushing my teeth more often helped a lot. It really is unbearable. Love and prayers, Heidi N > > Hi, I am wondering if oral sensitivities are common to any specific bacterias? I recently treated my son with a 10 day course of augmentin and all of his oral sensitivities went away. The augmentin was for a bladder infection so I figured this out by coincidence. > > Here is a description of some of the behaviors I am referring too: Tooth brushing would almost seem painful, especially the teeth on the top and towards the back. Eating habits were just a few different foods rotated and sometimes even those foods were rejected. He will maybe swallow a few bites sometimes only one bite and then run to the trash can and spit out the rest. He will put a new bite in his mouth and chew it, but then spit it out instead of swallowing and he would do this several times over. This is even with favorit foods. Drinking fluids has never been a problem. > > I have the impression that his mouth feels numb. I say this because he can only blow air up and from the corner of his mouth. It reminds me of the novacaine effect you get from the dentist. I am also seeing him crambing food such as bread as if he has no idea how much food is in his mouth and then he all of a sudden is choking and spitting it out. > > Now, once on the antibiotic for a few days, we couldn't believe the appetite he suddenly had and the sudden variety of foods he could enjoy. The problem has never been getting him to try a new food. It has always been getting him to chew it up and swallow successfully. Once off the antibiotic for 10 weeks now, we are back to same old scenario. I have often referred to his eating habits/apetite as " baby anorexia " . > > I have been watching and reading several message boards for a few months now and have not seen anyone mention anything other than food preferences mentioned. This is not simply about texture and/or sensory integration I learned when I saw the symptoms vanish with antibiotics. > > My son is 3 1/2 years old and just learning to speak. It is very, very difficult for him, but he is learning with lots of intensive therapy. His speech reminds me of a patient with brain damage and/or motor impairment. I see this by watching the way he is learning to use the muscles in his mouth, jaw, etc. > > Sorry this is such a long post, but I would like to know if anyone else has these common symptoms. We are preparing to test for bacterias, viruses and such at the current time and I don't want to miss anything. If anyone has any insight, please reply. > > Thank you! > > Kari > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2011 Report Share Posted April 21, 2011 na, This is very interesting! I notice when he tries to blow, it is always to the left side of his mouth. He couldn't even blow on a whistle until he was 3 years old. That was a big flag when my 10 month old daughter picked up the whistle and blew so effortlessly! He also suddenly started having the right eye looking cross-eyed in photos and such. We noticed this start around 18 months or so. I did notice other symptoms vanish with the antibiotic treatment. Mostly sensory stuff like vestibular and auditory sensitivities to pitch and sound. Also he became less clingy to me. Overall I woudl say most notably that he was just a much calmer, happier and well-rounded boy. People who had recently met him said things to me like " wow, I would never know he has autism if you hadn't told me " . I could go on and on here.... As for the choking, well it seemed as though he could choke on air. I had to make the smallest bites, peel the skin off of everything, etc. He never liked anything sweet or sour. Usually, he will not accept juice or fruits. I don't push this because he has a problem with yeast overgrowth, but apples are one thing he started to enjoy while on the antibiotic. I am very much looking forward to testing for lyme and the various co-infections. We are simply waiting for our test kit to arrive in the mail and countiing down the days until our next consult. Kari > Hi Kari! > I'm pretty new to all of this, so you'll have to keep that in mind, but I think you've hit on something very significant. > > I couldn't tell from your post if your child does or doesn't have lyme, but I'll tell you that my daughter who has lyme (12 months)presents with crainial nerve involvement that caused her right eye and mouth to be effected. She still moves her tongue to one side a lot and she doesn't take food from a spoon easily. We thought my daughter had an in-utero stroke because her symptoms were so similar, but now we believe it is lyme. She is slowly gaining more strength on her right side, but certain days it's more obvious. > > Your son's oral issues could definitely be nerve related. Does he choke a lot or crave excessively sour or tart foods? My daughter would only eat sauerkraut when she was 6 months old! > > Also...augmentin is amoxillin and clavulanate. Amoxicillin is a common antibiotic given to kids with lyme, which you probably already knew. > > I think you are really onto something. I hope you get some concrete answers. > > Just curious...did you notice improvments in anything other than the eating and oral sensitivites? > > na > > > > > Hi, I am wondering if oral sensitivities are common to any specific bacterias? I recently treated my son with a 10 day course of augmentin and all of his oral sensitivities went away. The augmentin was for a bladder infection so I figured this out by coincidence. > > > > Here is a description of some of the behaviors I am referring too: Tooth brushing would almost seem painful, especially the teeth on the top and towards the back. Eating habits were just a few different foods rotated and sometimes even those foods were rejected. He will maybe swallow a few bites sometimes only one bite and then run to the trash can and spit out the rest. He will put a new bite in his mouth and chew it, but then spit it out instead of swallowing and he would do this several times over. This is even with favorit foods. Drinking fluids has never been a problem. > > > > I have the impression that his mouth feels numb. I say this because he can only blow air up and from the corner of his mouth. It reminds me of the novacaine effect you get from the dentist. I am also seeing him crambing food such as bread as if he has no idea how much food is in his mouth and then he all of a sudden is choking and spitting it out. > > > > Now, once on the antibiotic for a few days, we couldn't believe the appetite he suddenly had and the sudden variety of foods he could enjoy. The problem has never been getting him to try a new food. It has always been getting him to chew it up and swallow successfully. Once off the antibiotic for 10 weeks now, we are back to same old scenario. I have often referred to his eating habits/apetite as " baby anorexia " . > > > > I have been watching and reading several message boards for a few months now and have not seen anyone mention anything other than food preferences mentioned. This is not simply about texture and/or sensory integration I learned when I saw the symptoms vanish with antibiotics. > > > > My son is 3 1/2 years old and just learning to speak. It is very, very difficult for him, but he is learning with lots of intensive therapy. His speech reminds me of a patient with brain damage and/or motor impairment. I see this by watching the way he is learning to use the muscles in his mouth, jaw, etc. > > > > Sorry this is such a long post, but I would like to know if anyone else has these common symptoms. We are preparing to test for bacterias, viruses and such at the current time and I don't want to miss anything. If anyone has any insight, please reply. > > > > Thank you! > > > > Kari > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2011 Report Share Posted April 21, 2011 na, Can you tell me a little more details about he homeopathic treatments for lyme? Just curious what drops you use and how you purchase them. Do you need a practicioner or do you order on your own over teh internet. Unfortunatley we are overseas, but I am still trying to weigh all teh options. Kari > > > > Hi, I am wondering if oral sensitivities are common to any specific bacterias? I recently treated my son with a 10 day course of augmentin and all of his oral sensitivities went away. The augmentin was for a bladder infection so I figured this out by coincidence. > > > > Here is a description of some of the behaviors I am referring too: Tooth brushing would almost seem painful, especially the teeth on the top and towards the back. Eating habits were just a few different foods rotated and sometimes even those foods were rejected. He will maybe swallow a few bites sometimes only one bite and then run to the trash can and spit out the rest. He will put a new bite in his mouth and chew it, but then spit it out instead of swallowing and he would do this several times over. This is even with favorit foods. Drinking fluids has never been a problem. > > > > I have the impression that his mouth feels numb. I say this because he can only blow air up and from the corner of his mouth. It reminds me of the novacaine effect you get from the dentist. I am also seeing him crambing food such as bread as if he has no idea how much food is in his mouth and then he all of a sudden is choking and spitting it out. > > > > Now, once on the antibiotic for a few days, we couldn't believe the appetite he suddenly had and the sudden variety of foods he could enjoy. The problem has never been getting him to try a new food. It has always been getting him to chew it up and swallow successfully. Once off the antibiotic for 10 weeks now, we are back to same old scenario. I have often referred to his eating habits/apetite as " baby anorexia " . > > > > I have been watching and reading several message boards for a few months now and have not seen anyone mention anything other than food preferences mentioned. This is not simply about texture and/or sensory integration I learned when I saw the symptoms vanish with antibiotics. > > > > My son is 3 1/2 years old and just learning to speak. It is very, very difficult for him, but he is learning with lots of intensive therapy. His speech reminds me of a patient with brain damage and/or motor impairment. I see this by watching the way he is learning to use the muscles in his mouth, jaw, etc. > > > > Sorry this is such a long post, but I would like to know if anyone else has these common symptoms. We are preparing to test for bacterias, viruses and such at the current time and I don't want to miss anything. If anyone has any insight, please reply. > > > > Thank you! > > > > Kari > > > Quote Link to comment Share on other sites More sharing options...
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