Guest guest Posted April 18, 2011 Report Share Posted April 18, 2011 Right now, autism and Lyme relapse rates appear to be high. Those who stay on treatments to keep symptoms away, do not appear to be relapsing. I can only go on what I see and hear; no official research on this yet. None of my children favored one side, nor are they small for their age, but I have heard of such. I would look into quantum neurology for the one-sided weakness if that symptom doesn't improve with the typical Lyme/autism treatments. For my family, a healthy diet will probably be needed forever. I think the oxalate and salicylate problems improve, but I think wheat, GMOs, and pesticides will continue to be a problem for many. We do experience lots of ups and downs in symptoms. It is unnerving. Good thing we have these forums to understand that it is typical. Sorry to inform you that my children have been in regular school now for about 3 years, and they still get a return of symptoms, weekly or so. It is manageable, but stressful. It's a lot of work, and takes a lot of patience. As time goes by, I get more used to all the work it entails. My favorite treatments are turmeric and Modifilan. We recently added Enzo-professional and love it so very much. It causes lots of die-off for us. I hope you know about die-off and all. You might escape it if you do homeopathy. Love and prayers, Heidi N > > Hello! > I am the mother of two young children (12 months and 29 months). We have recently found out that our family (me, my children, my mother, and probably husband) has lyme and co-infections. We sort of stumbled upon this by visiting with a DAN doctor when we became concerned that our son was showing signs of autism. I actually work in the field of autism and I am just astounded with the connection of lyme and autism. The past few months have been quite surreal in that I can't seem to wrap my brain around all of the information out out there. We are doing SCD, which was a huge undertaking, lots of supplements for methylation, and herbals/homeopathics for the lyme and viral load. We have seen progress in both of our children, but I am realizing that this is a long process and that the healing goes in regression/progression cycles, which can be very unnerving. I feel like I'm constantly questioning everything when we are in a regression. > > I am very glad to have found this group because we don't seem to " fit in " anywhere. There is a big autism community out there, but not a lot of awareness about the lyme/autism connection. For those of you who have been doing this for awhile I have a few questions: > > 1. My 12 month old daughter has had weakness on her right side since birth. She crawled with her hand flipped so that the top of her hand touched the floor. Now that she is walking, she has a very obvious limp. We had an MRI done at 6 months and she has no sign of stroke or tumor. Our DAN/LLMD says he has never seen this before, but I don't think he's treated many babies for lyme. My question is: Is this related to lyme? Did any of your children exhibit this when they were younger? She has babesia and bartonella co-infections. She is also very small for her age...is this possibly related? > > 2. Will the diet issues resolve as the infections resolve? For instance, will an oxalate or salicylate issue resolve as the body heals or is this something that never goes away? Are there tests to see if you have these issues? > > Thank you so much and sorry for the long post. I appreciate any input. We are in the Bay Area in CA. If there is anyone else in this area that knows of a support group or would like to get together please email me. > > Thanks, > na H > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2011 Report Share Posted April 19, 2011 na- Could it be a form of Palsey? We all have Lyme and Biofilm disease. But, virus from Cold Sores, Fifth Disease, or Chicken Pox might be the culprit. http://www.bellspalsy.ws/cause.htm http://en.wikipedia.org/wiki/Bell's_palsy My son gets a three hour bells palsey 25hours after he ingests Xanthum Gum, Potato, or SAM-e. Symptoms are: nausea, aversions to smells, back pain and headaches, eyelids wouldn't open, and MAJOR fatigue and dizziness and inability to use the right side of his body. Couldn't walk two steps without falling over. Imagine an 8YO that's drunk. Definitely affects his brain. Our Immunosciences viral tests pointed to variations of the herpes virus. My oldest son got chickenpox although he was immunized. Their dad has had chickenpox and shingles so many times we have lost count. For us, antivirals such as /Lemon Balm, Lysine/Ornithine/Arginine, Polygonum cuspidatum/Resveratrol, or Acyclovir all worked well but were not a definite cure. And as an aside, all " phos " supplements, enzymes such as ViraStop, and good oils like coconut seem to help a little. Before starting any of these (most available at iherb.com) I'd highly suggest getting blood tests. We still have these virus' and it's a life long vigilance to keep them at bay. If this applies to your family, ya really need to know what you might be up against. Hope any or all is helpful, ~zeph > > > > Hello! > > I am the mother of two young children (12 months and 29 months). We have recently found out that our family (me, my children, my mother, and probably husband) has lyme and co-infections. We sort of stumbled upon this by visiting with a DAN doctor when we became concerned that our son was showing signs of autism. I actually work in the field of autism and I am just astounded with the connection of lyme and autism. The past few months have been quite surreal in that I can't seem to wrap my brain around all of the information out out there. We are doing SCD, which was a huge undertaking, lots of supplements for methylation, and herbals/homeopathics for the lyme and viral load. We have seen progress in both of our children, but I am realizing that this is a long process and that the healing goes in regression/progression cycles, which can be very unnerving. I feel like I'm constantly questioning everything when we are in a regression. > > > > I am very glad to have found this group because we don't seem to " fit in " anywhere. There is a big autism community out there, but not a lot of awareness about the lyme/autism connection. For those of you who have been doing this for awhile I have a few questions: > > > > 1. My 12 month old daughter has had weakness on her right side since birth. She crawled with her hand flipped so that the top of her hand touched the floor. Now that she is walking, she has a very obvious limp. We had an MRI done at 6 months and she has no sign of stroke or tumor. Our DAN/LLMD says he has never seen this before, but I don't think he's treated many babies for lyme. My question is: Is this related to lyme? Did any of your children exhibit this when they were younger? She has babesia and bartonella co-infections. She is also very small for her age...is this possibly related? > > > > 2. Will the diet issues resolve as the infections resolve? For instance, will an oxalate or salicylate issue resolve as the body heals or is this something that never goes away? Are there tests to see if you have these issues? > > > > Thank you so much and sorry for the long post. I appreciate any input. We are in the Bay Area in CA. If there is anyone else in this area that knows of a support group or would like to get together please email me. > > > > Thanks, > > na H > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2011 Report Share Posted April 19, 2011 Thanks for your thoughts Zeph. Yes... it could definitely be viral. My son has a very high viral load and although we didn't get tested for the exact virus, our LLMD thinks it's probably HHV-6. Our daughter could also have viral infections we just haven't done the testing yet. I will mention it to our doc at the next appt. Thanks, na > > > > > > Hello! > > > I am the mother of two young children (12 months and 29 months). We have recently found out that our family (me, my children, my mother, and probably husband) has lyme and co-infections. We sort of stumbled upon this by visiting with a DAN doctor when we became concerned that our son was showing signs of autism. I actually work in the field of autism and I am just astounded with the connection of lyme and autism. The past few months have been quite surreal in that I can't seem to wrap my brain around all of the information out out there. We are doing SCD, which was a huge undertaking, lots of supplements for methylation, and herbals/homeopathics for the lyme and viral load. We have seen progress in both of our children, but I am realizing that this is a long process and that the healing goes in regression/progression cycles, which can be very unnerving. I feel like I'm constantly questioning everything when we are in a regression. > > > > > > I am very glad to have found this group because we don't seem to " fit in " anywhere. There is a big autism community out there, but not a lot of awareness about the lyme/autism connection. For those of you who have been doing this for awhile I have a few questions: > > > > > > 1. My 12 month old daughter has had weakness on her right side since birth. She crawled with her hand flipped so that the top of her hand touched the floor. Now that she is walking, she has a very obvious limp. We had an MRI done at 6 months and she has no sign of stroke or tumor. Our DAN/LLMD says he has never seen this before, but I don't think he's treated many babies for lyme. My question is: Is this related to lyme? Did any of your children exhibit this when they were younger? She has babesia and bartonella co-infections. She is also very small for her age...is this possibly related? > > > > > > 2. Will the diet issues resolve as the infections resolve? For instance, will an oxalate or salicylate issue resolve as the body heals or is this something that never goes away? Are there tests to see if you have these issues? > > > > > > Thank you so much and sorry for the long post. I appreciate any input. We are in the Bay Area in CA. If there is anyone else in this area that knows of a support group or would like to get together please email me. > > > > > > Thanks, > > > na H > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2011 Report Share Posted April 20, 2011 I have free computer resource CD I compiled over the years helping my wife. You can get it at my website below www.lyme-resource.com You can lead a person to a fact, but you can't make them think! - > New to lyme/autism > > Hello! > I am the mother of two young children (12 months and 29 > months). We have recently found out that our family (me, my > children, my mother, and probably husband) has lyme and > co-infections. We sort of stumbled upon this by visiting with > a DAN doctor when we became concerned that our son was > showing signs of autism. I actually work in the field of > autism and I am just astounded with the connection of lyme > and autism. The past few months have been quite surreal in > that I can't seem to wrap my brain around all of the > information out out there. We are doing SCD, which was a > huge undertaking, lots of supplements for methylation, and > herbals/homeopathics for the lyme and viral load. We have > seen progress in both of our children, but I am realizing > that this is a long process and that the healing goes in > regression/progression cycles, which can be very unnerving. I > feel like I'm constantly questioning everything when we are > in a regression. > > I am very glad to have found this group because we don't seem > to " fit in " anywhere. There is a big autism community out > there, but not a lot of awareness about the lyme/autism > connection. For those of you who have been doing this for > awhile I have a few questions: > > 1. My 12 month old daughter has had weakness on her right > side since birth. She crawled with her hand flipped so that > the top of her hand touched the floor. Now that she is > walking, she has a very obvious limp. We had an MRI done at > 6 months and she has no sign of stroke or tumor. Our > DAN/LLMD says he has never seen this before, but I don't > think he's treated many babies for lyme. My question is: Is > this related to lyme? Did any of your children exhibit this > when they were younger? She has babesia and bartonella > co-infections. She is also very small for her age...is this > possibly related? > > 2. Will the diet issues resolve as the infections resolve? > For instance, will an oxalate or salicylate issue resolve as > the body heals or is this something that never goes away? > Are there tests to see if you have these issues? > > Thank you so much and sorry for the long post. I appreciate > any input. We are in the Bay Area in CA. If there is anyone > else in this area that knows of a support group or would like > to get together please email me. > > Thanks, > na H > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2011 Report Share Posted April 20, 2011 yes to both I have my youngest with lyme and she is undersized. she has a metabolic disorder tided into her lyme and when we tested her growth hormons are off. so I would encourage you to look into that, as far as the one side I had a son that after vaccine injury crawled with one hand fisted instead of open. this can be a palsey type thing. and can be related to PANDAS From: briannahall80 Sent: Monday, April 18, 2011 12:15 PM To: BorreliaMultipleInfectionsAndAutism Subject: New to lyme/autism Hello!I am the mother of two young children (12 months and 29 months). We have recently found out that our family (me, my children, my mother, and probably husband) has lyme and co-infections. We sort of stumbled upon this by visiting with a DAN doctor when we became concerned that our son was showing signs of autism. I actually work in the field of autism and I am just astounded with the connection of lyme and autism. The past few months have been quite surreal in that I can't seem to wrap my brain around all of the information out out there. We are doing SCD, which was a huge undertaking, lots of supplements for methylation, and herbals/homeopathics for the lyme and viral load. We have seen progress in both of our children, but I am realizing that this is a long process and that the healing goes in regression/progression cycles, which can be very unnerving. I feel like I'm constantly questioning everything when we are in a regression.I am very glad to have found this group because we don't seem to "fit in" anywhere. There is a big autism community out there, but not a lot of awareness about the lyme/autism connection. For those of you who have been doing this for awhile I have a few questions:1. My 12 month old daughter has had weakness on her right side since birth. She crawled with her hand flipped so that the top of her hand touched the floor. Now that she is walking, she has a very obvious limp. We had an MRI done at 6 months and she has no sign of stroke or tumor. Our DAN/LLMD says he has never seen this before, but I don't think he's treated many babies for lyme. My question is: Is this related to lyme? Did any of your children exhibit this when they were younger? She has babesia and bartonella co-infections. She is also very small for her age...is this possibly related?2. Will the diet issues resolve as the infections resolve? For instance, will an oxalate or salicylate issue resolve as the body heals or is this something that never goes away? Are there tests to see if you have these issues? Thank you so much and sorry for the long post. I appreciate any input. We are in the Bay Area in CA. If there is anyone else in this area that knows of a support group or would like to get together please email me. Thanks,na H Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2011 Report Share Posted April 21, 2011 Welcome to our group and I only want to touch one thing from your post. If there are oxalate issue you shouldnt be doing SCD, because SCD is very high in oxalates and will hurt more than help a person that already has this problem. There is Trying Low Oxalates group here on Yahoo, I suggest you join it and learn moire. And just take one step at a time and pieces will start falling into right places. Sorry cannot be of more help with other questions. Take care, Dina.k > > I have free computer resource CD I compiled over the years helping my wife. > You can get it at my website below > > > www.lyme-resource.com > You can lead a person to a fact, but you can't make them think! - > > > > > New to lyme/autism > > > > Hello! > > I am the mother of two young children (12 months and 29 > > months). We have recently found out that our family (me, my > > children, my mother, and probably husband) has lyme and > > co-infections. We sort of stumbled upon this by visiting with > > a DAN doctor when we became concerned that our son was > > showing signs of autism. I actually work in the field of > > autism and I am just astounded with the connection of lyme > > and autism. The past few months have been quite surreal in > > that I can't seem to wrap my brain around all of the > > information out out there. We are doing SCD, which was a > > huge undertaking, lots of supplements for methylation, and > > herbals/homeopathics for the lyme and viral load. We have > > seen progress in both of our children, but I am realizing > > that this is a long process and that the healing goes in > > regression/progression cycles, which can be very unnerving. I > > feel like I'm constantly questioning everything when we are > > in a regression. > > > > I am very glad to have found this group because we don't seem > > to " fit in " anywhere. There is a big autism community out > > there, but not a lot of awareness about the lyme/autism > > connection. For those of you who have been doing this for > > awhile I have a few questions: > > > > 1. My 12 month old daughter has had weakness on her right > > side since birth. She crawled with her hand flipped so that > > the top of her hand touched the floor. Now that she is > > walking, she has a very obvious limp. We had an MRI done at > > 6 months and she has no sign of stroke or tumor. Our > > DAN/LLMD says he has never seen this before, but I don't > > think he's treated many babies for lyme. My question is: Is > > this related to lyme? Did any of your children exhibit this > > when they were younger? She has babesia and bartonella > > co-infections. She is also very small for her age...is this > > possibly related? > > > > 2. Will the diet issues resolve as the infections resolve? > > For instance, will an oxalate or salicylate issue resolve as > > the body heals or is this something that never goes away? > > Are there tests to see if you have these issues? > > > > Thank you so much and sorry for the long post. I appreciate > > any input. We are in the Bay Area in CA. If there is anyone > > else in this area that knows of a support group or would like > > to get together please email me. > > > > Thanks, > > na H > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2011 Report Share Posted April 21, 2011 Thank you for your concern. I actually joined the group a few days ago and I am doing a trial right now of low-oxalate. My son wasn't eating any nuts or many high oxalate veggies...but the ones that he was eating we've cut out. I like SCD for many reasons so I'm thinking we will stick with low-ox SCD if he shows any progress. His biggest symptom is excessive urination. I am closely monitoring his liquid intake to see if he's possibly just drinking a lot of water. He's in diapers to it's hard for me to monitor the frequency. His other big symptom is distended belly and not having regular BMs. Thanks again for the advice! na > > > > I have free computer resource CD I compiled over the years helping my wife. > > You can get it at my website below > > > > > > www.lyme-resource.com > > You can lead a person to a fact, but you can't make them think! - > > > > > > > > > New to lyme/autism > > > > > > Hello! > > > I am the mother of two young children (12 months and 29 > > > months). We have recently found out that our family (me, my > > > children, my mother, and probably husband) has lyme and > > > co-infections. We sort of stumbled upon this by visiting with > > > a DAN doctor when we became concerned that our son was > > > showing signs of autism. I actually work in the field of > > > autism and I am just astounded with the connection of lyme > > > and autism. The past few months have been quite surreal in > > > that I can't seem to wrap my brain around all of the > > > information out out there. We are doing SCD, which was a > > > huge undertaking, lots of supplements for methylation, and > > > herbals/homeopathics for the lyme and viral load. We have > > > seen progress in both of our children, but I am realizing > > > that this is a long process and that the healing goes in > > > regression/progression cycles, which can be very unnerving. I > > > feel like I'm constantly questioning everything when we are > > > in a regression. > > > > > > I am very glad to have found this group because we don't seem > > > to " fit in " anywhere. There is a big autism community out > > > there, but not a lot of awareness about the lyme/autism > > > connection. For those of you who have been doing this for > > > awhile I have a few questions: > > > > > > 1. My 12 month old daughter has had weakness on her right > > > side since birth. She crawled with her hand flipped so that > > > the top of her hand touched the floor. Now that she is > > > walking, she has a very obvious limp. We had an MRI done at > > > 6 months and she has no sign of stroke or tumor. Our > > > DAN/LLMD says he has never seen this before, but I don't > > > think he's treated many babies for lyme. My question is: Is > > > this related to lyme? Did any of your children exhibit this > > > when they were younger? She has babesia and bartonella > > > co-infections. She is also very small for her age...is this > > > possibly related? > > > > > > 2. Will the diet issues resolve as the infections resolve? > > > For instance, will an oxalate or salicylate issue resolve as > > > the body heals or is this something that never goes away? > > > Are there tests to see if you have these issues? > > > > > > Thank you so much and sorry for the long post. I appreciate > > > any input. We are in the Bay Area in CA. If there is anyone > > > else in this area that knows of a support group or would like > > > to get together please email me. > > > > > > Thanks, > > > na H > > > > > > > > > > > > ------------------------------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2011 Report Share Posted April 21, 2011 Hi Christel, Thank you for your feedback. How did you test for metabolic issues? Was this through a specialist or your primary doctor? There is a neurometabolic center here at UCSF. Has anyone on here gone to them? na > > yes to both I have my youngest with lyme and she is undersized. she has a metabolic disorder tided into her lyme and when we tested her growth hormons are off. so I would encourage you to look into that, as far as the one side I had a son that after vaccine injury crawled with one hand fisted instead of open. this can be a palsey type thing. and can be related to PANDAS > > > > From: briannahall80 > Sent: Monday, April 18, 2011 12:15 PM > To: BorreliaMultipleInfectionsAndAutism > Subject: New to lyme/autism > > > > Hello! > I am the mother of two young children (12 months and 29 months). We have recently found out that our family (me, my children, my mother, and probably husband) has lyme and co-infections. We sort of stumbled upon this by visiting with a DAN doctor when we became concerned that our son was showing signs of autism. I actually work in the field of autism and I am just astounded with the connection of lyme and autism. The past few months have been quite surreal in that I can't seem to wrap my brain around all of the information out out there. We are doing SCD, which was a huge undertaking, lots of supplements for methylation, and herbals/homeopathics for the lyme and viral load. We have seen progress in both of our children, but I am realizing that this is a long process and that the healing goes in regression/progression cycles, which can be very unnerving. I feel like I'm constantly questioning everything when we are in a regression. > > I am very glad to have found this group because we don't seem to " fit in " anywhere. There is a big autism community out there, but not a lot of awareness about the lyme/autism connection. For those of you who have been doing this for awhile I have a few questions: > > 1. My 12 month old daughter has had weakness on her right side since birth. She crawled with her hand flipped so that the top of her hand touched the floor. Now that she is walking, she has a very obvious limp. We had an MRI done at 6 months and she has no sign of stroke or tumor. Our DAN/LLMD says he has never seen this before, but I don't think he's treated many babies for lyme. My question is: Is this related to lyme? Did any of your children exhibit this when they were younger? She has babesia and bartonella co-infections. She is also very small for her age...is this possibly related? > > 2. Will the diet issues resolve as the infections resolve? For instance, will an oxalate or salicylate issue resolve as the body heals or is this something that never goes away? Are there tests to see if you have these issues? > > Thank you so much and sorry for the long post. I appreciate any input. We are in the Bay Area in CA. If there is anyone else in this area that knows of a support group or would like to get together please email me. > > Thanks, > na H > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2011 Report Share Posted April 22, 2011 Distended belly is often associated with parasites like worms. Constipation can also be a symptom of worms. Very important to get regular BMs. For constipation we usemagnesiumaloe vera juice (also good for worms)Paragone for kids (for worms)Thank you for your concern. I actually joined the group a few days ago and I am doing a trial right now of low-oxalate. My son wasn't eating any nuts or many high oxalate veggies...but the ones that he was eating we've cut out. I like SCD for many reasons so I'm thinking we will stick with low-ox SCD if he shows any progress. His biggest symptom is excessive urination. I am closely monitoring his liquid intake to see if he's possibly just drinking a lot of water. He's in diapers to it's hard for me to monitor the frequency. His other big symptom is distended belly and not having regular BMs.Thanks again for the advice!na> >> > I have free computer resource CD I compiled over the years helping my wife.> > You can get it at my website below> > > > > > www.lyme-resource.com> > You can lead a person to a fact, but you can't make them think! - > >  > > > > > > > New to lyme/autism> > > > > > Hello!> > > I am the mother of two young children (12 months and 29 > > > months). We have recently found out that our family (me, my > > > children, my mother, and probably husband) has lyme and > > > co-infections. We sort of stumbled upon this by visiting with > > > a DAN doctor when we became concerned that our son was > > > showing signs of autism. I actually work in the field of > > > autism and I am just astounded with the connection of lyme > > > and autism. The past few months have been quite surreal in > > > that I can't seem to wrap my brain around all of the > > > information out out there. We are doing SCD, which was a > > > huge undertaking, lots of supplements for methylation, and > > > herbals/homeopathics for the lyme and viral load. We have > > > seen progress in both of our children, but I am realizing > > > that this is a long process and that the healing goes in > > > regression/progression cycles, which can be very unnerving. I > > > feel like I'm constantly questioning everything when we are > > > in a regression.> > > > > > I am very glad to have found this group because we don't seem > > > to "fit in" anywhere. There is a big autism community out > > > there, but not a lot of awareness about the lyme/autism > > > connection. For those of you who have been doing this for > > > awhile I have a few questions:> > > > > > 1. My 12 month old daughter has had weakness on her right > > > side since birth. She crawled with her hand flipped so that > > > the top of her hand touched the floor. Now that she is > > > walking, she has a very obvious limp. We had an MRI done at > > > 6 months and she has no sign of stroke or tumor. Our > > > DAN/LLMD says he has never seen this before, but I don't > > > think he's treated many babies for lyme. My question is: Is > > > this related to lyme? Did any of your children exhibit this > > > when they were younger? She has babesia and bartonella > > > co-infections. She is also very small for her age...is this > > > possibly related?> > > > > > 2. Will the diet issues resolve as the infections resolve? > > > For instance, will an oxalate or salicylate issue resolve as > > > the body heals or is this something that never goes away? > > > Are there tests to see if you have these issues? > > > > > > Thank you so much and sorry for the long post. I appreciate > > > any input. We are in the Bay Area in CA. If there is anyone > > > else in this area that knows of a support group or would like > > > to get together please email me. > > > > > > Thanks,> > > na H> > > > > > > > > > > > ------------------------------------> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2011 Report Share Posted April 22, 2011 na, The frequent urination is often due to genetics and mold...but mold can due u in without the genetics. Low vasopresin, adh etc is a tell tale sign....also, dr. K said most Lyme patients due have oxalate issues.... Www.survingmold.com will give you an overview of the labs, codes as well as some case histories and research. Hth, Sent from my iPad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2011 Report Share Posted April 22, 2011 Thank you for your insights. I think you could be right. My daughter tested positive for babesia, but my son did not. I don't know how she would have it and he wouldn't, except that I did have a tick bite during my daughter's pregnancy. I believe our lyme is congenital and has been in our family for generations, though. Were you thinking parasites in other forms rather than babesia? I hope we will figure it out. Thank you for the suggestions on getting regular BMs. I started juicing (carrots, celery, cucumber) for him and it helped get him to have a BM everyday, but I stopped the juice because we are trying low-ox SCD. When I stopped, his BM's started fluctuating again. Do you know if aloe-vera is low-ox? He gets two magnesium complexes everyday, which definitely helps. na > > > > > > > > I have free computer resource CD I compiled over the years > > helping my wife. > > > > You can get it at my website below > > > > > > > > > > > > www.lyme-resource.com > > > > You can lead a person to a fact, but you can't make them think! > > - > > > > > > > > > > > > > > > > > New to lyme/ > > autism > > > > > > > > > > Hello! > > > > > I am the mother of two young children (12 months and 29 > > > > > months). We have recently found out that our family (me, my > > > > > children, my mother, and probably husband) has lyme and > > > > > co-infections. We sort of stumbled upon this by visiting with > > > > > a DAN doctor when we became concerned that our son was > > > > > showing signs of autism. I actually work in the field of > > > > > autism and I am just astounded with the connection of lyme > > > > > and autism. The past few months have been quite surreal in > > > > > that I can't seem to wrap my brain around all of the > > > > > information out out there. We are doing SCD, which was a > > > > > huge undertaking, lots of supplements for methylation, and > > > > > herbals/homeopathics for the lyme and viral load. We have > > > > > seen progress in both of our children, but I am realizing > > > > > that this is a long process and that the healing goes in > > > > > regression/progression cycles, which can be very unnerving. I > > > > > feel like I'm constantly questioning everything when we are > > > > > in a regression. > > > > > > > > > > I am very glad to have found this group because we don't seem > > > > > to " fit in " anywhere. There is a big autism community out > > > > > there, but not a lot of awareness about the lyme/autism > > > > > connection. For those of you who have been doing this for > > > > > awhile I have a few questions: > > > > > > > > > > 1. My 12 month old daughter has had weakness on her right > > > > > side since birth. She crawled with her hand flipped so that > > > > > the top of her hand touched the floor. Now that she is > > > > > walking, she has a very obvious limp. We had an MRI done at > > > > > 6 months and she has no sign of stroke or tumor. Our > > > > > DAN/LLMD says he has never seen this before, but I don't > > > > > think he's treated many babies for lyme. My question is: Is > > > > > this related to lyme? Did any of your children exhibit this > > > > > when they were younger? She has babesia and bartonella > > > > > co-infections. She is also very small for her age...is this > > > > > possibly related? > > > > > > > > > > 2. Will the diet issues resolve as the infections resolve? > > > > > For instance, will an oxalate or salicylate issue resolve as > > > > > the body heals or is this something that never goes away? > > > > > Are there tests to see if you have these issues? > > > > > > > > > > Thank you so much and sorry for the long post. I appreciate > > > > > any input. We are in the Bay Area in CA. If there is anyone > > > > > else in this area that knows of a support group or would like > > > > > to get together please email me. > > > > > > > > > > Thanks, > > > > > na H > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2011 Report Share Posted April 22, 2011 Excellent, thank you . I will check it out. na > > na, > > The frequent urination is often due to genetics and mold...but mold can due u in without the genetics. Low vasopresin, adh etc is a tell tale sign....also, dr. K said most Lyme patients due have oxalate issues.... > > Www.survingmold.com will give you an overview of the labs, codes as well as some case histories and research. > > Hth, > > > Sent from my iPad > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2011 Report Share Posted April 23, 2011 Here is a web site that has a chart for food oxalate levels. It shows aloe vera juice as very low.http://www.lowoxalate.info/recipes.htmlI found an interesting bit of information about calcium and oxalates, and the fact that you need calcium to decrease oxalate absorption. It is a book called Most Effective Natural Cures on Earth. Some pretty interesting stuff in the book actually, but the link to oxalate and calcium info is belowhttp://books.google.ca/books?id=2X6eCV7to28C & pg=PA155 & lpg=PA155 & dq=oxalates,+anxiety & source=bl & ots=bBB-c8TpXv & sig=-988qiJTKeU0WrNr6lXO9i-Rkv4 & hl=en & ei=hfKyTYPZC4fCsAOI19zoCw & sa=X & oi=book_result & ct=result & resnum=10 & ved=0CFkQ6AEwCQ#v=onepage & q=oxalates%2C%20anxiety & f=falseAs far as parasites in addition to microscopic parasites I was thinking worms, specifically tapeworms. They stun your intestines to slow down your motility and  rob you of B12 and suck all the nutrients from your food before your intestines get a chance.Hope this helpsThank you for your insights. I think you could be right. My daughter tested positive for babesia, but my son did not. I don't know how she would have it and he wouldn't, except that I did have a tick bite during my daughter's pregnancy. I believe our lyme is congenital and has been in our family for generations, though. Were you thinking parasites in other forms rather than babesia?I hope we will figure it out. Thank you for the suggestions on getting regular BMs. I started juicing (carrots, celery, cucumber) for him and it helped get him to have a BM everyday, but I stopped the juice because we are trying low-ox SCD. When I stopped, his BM's started fluctuating again. Do you know if aloe-vera is low-ox? He gets two magnesium complexes everyday, which definitely helps. na> > > >> > > > I have free computer resource CD I compiled over the years > > helping my wife.> > > > You can get it at my website below> > > >> > > > > > > > www.lyme-resource.com> > > > You can lead a person to a fact, but you can't make them think! > > - > > > > > > > >> > > >> > > > > New to lyme/ > > autism> > > > >> > > > > Hello!> > > > > I am the mother of two young children (12 months and 29> > > > > months). We have recently found out that our family (me, my> > > > > children, my mother, and probably husband) has lyme and> > > > > co-infections. We sort of stumbled upon this by visiting with> > > > > a DAN doctor when we became concerned that our son was> > > > > showing signs of autism. I actually work in the field of> > > > > autism and I am just astounded with the connection of lyme> > > > > and autism. The past few months have been quite surreal in> > > > > that I can't seem to wrap my brain around all of the> > > > > information out out there. We are doing SCD, which was a> > > > > huge undertaking, lots of supplements for methylation, and> > > > > herbals/homeopathics for the lyme and viral load. We have> > > > > seen progress in both of our children, but I am realizing> > > > > that this is a long process and that the healing goes in> > > > > regression/progression cycles, which can be very unnerving. I> > > > > feel like I'm constantly questioning everything when we are> > > > > in a regression.> > > > >> > > > > I am very glad to have found this group because we don't seem> > > > > to "fit in" anywhere. There is a big autism community out> > > > > there, but not a lot of awareness about the lyme/autism> > > > > connection. For those of you who have been doing this for> > > > > awhile I have a few questions:> > > > >> > > > > 1. My 12 month old daughter has had weakness on her right> > > > > side since birth. She crawled with her hand flipped so that> > > > > the top of her hand touched the floor. Now that she is> > > > > walking, she has a very obvious limp. We had an MRI done at> > > > > 6 months and she has no sign of stroke or tumor. Our> > > > > DAN/LLMD says he has never seen this before, but I don't> > > > > think he's treated many babies for lyme. My question is: Is> > > > > this related to lyme? Did any of your children exhibit this> > > > > when they were younger? She has babesia and bartonella> > > > > co-infections. She is also very small for her age...is this> > > > > possibly related?> > > > >> > > > > 2. Will the diet issues resolve as the infections resolve?> > > > > For instance, will an oxalate or salicylate issue resolve as> > > > > the body heals or is this something that never goes away?> > > > > Are there tests to see if you have these issues?> > > > >> > > > > Thank you so much and sorry for the long post. I appreciate> > > > > any input. We are in the Bay Area in CA. If there is anyone> > > > > else in this area that knows of a support group or would like> > > > > to get together please email me.> > > > >> > > > > Thanks,> > > > > na H> > > > >> > > > >> > > > >> > > > > ------------------------------------> > > > >> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2011 Report Share Posted April 24, 2011 frequent urination may be due to ureaplasma lyticum or the new protzoan that Fry labs has found. Subject: Re: New to lyme/autismTo: "BorreliaMultipleInfectionsAndAutism " <BorreliaMultipleInfectionsAndAutism >Date: Saturday, April 23, 2011, 3:34 AM na,The frequent urination is often due to genetics and mold...but mold can due u in without the genetics. Low vasopresin, adh etc is a tell tale sign....also, dr. K said most Lyme patients due have oxalate issues....Www.survingmold.com will give you an overview of the labs, codes as well as some case histories and research.Hth,Sent from my iPad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2011 Report Share Posted April 24, 2011 Hummm....Matt is doing the pee pee poke and it's really moldy weather wise here. Isa, go to www.survivingmold.com. some tests that would help figure out if it is mold is alpha MSH, leptin, VIP....you could also run a Real Time Lab urine screen for molds. As for Oxalates, I'd go to Low Oxalate Group. There is a alot of info out on the other lists that is incorrect, most notably green beans are high and blueberries are low. lisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2011 Report Share Posted April 30, 2011 - are blueberries high oxalate and green beans low oxalate? Sorry to bother you with this question. FranselFrom: personalcargo@...Sender: BorreliaMultipleInfectionsAndAutism Date: Mon, 25 Apr 2011 00:05:35 -0400To: <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: New to lyme/autism Hummm....Matt is doing the pee pee poke and it's really moldy weather wise here. Isa, go to www.survivingmold.com. some tests that would help figure out if it is mold is alpha MSH, leptin, VIP....you could also run a Real Time Lab urine screen for molds.As for Oxalates, I'd go to Low Oxalate Group. There is a alot of info out on the other lists that is incorrect, most notably green beans are high and blueberries are low.lisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2011 Report Share Posted May 1, 2011 Blueberries are low and green beans are high....the opposite was thought on both foods and retesting showed otherwise. I think I saw that macadamia nuts were low or medium, but I might be mistaken....only go by susan Owens list. HTH, Sent from my iPad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2011 Report Share Posted May 2, 2011 So happy to hear that blueberries are low! Yeah!FranselSender: BorreliaMultipleInfectionsAndAutism Date: Sun, 1 May 2011 17:02:46 -0400To: BorreliaMultipleInfectionsAndAutism <BorreliaMultipleInfectionsAndAutism >ReplyTo: BorreliaMultipleInfectionsAndAutism Subject: Re: New to lyme/autism Blueberries are low and green beans are high....the opposite was thought on both foods and retesting showed otherwise. I think I saw that macadamia nuts were low or medium, but I might be mistaken....only go by susan Owens list.HTH,Sent from my iPad Quote Link to comment Share on other sites More sharing options...
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