Guest guest Posted March 28, 2011 Report Share Posted March 28, 2011 Krassi, My husband had his tonsils removed when he was a young boy and said that he never fell good after the operation. They removed them becuase he used to get lot of infections, but now he reckons he would have been better off leaving them in. He still gets that sort of annoying feeling in the throat area and he had it since then, so the operation didn't make things better for him and now he tells me that he had that organ for a purpose and it should have been never removed in the first place, that is his opinion now anyway. Olga > > Dear group, > As usual when difficult questions are going through my mind I ask for help here, so here is my latest dilemma: > We had our appointment with Dr. K last week and he advised to do tonsillectomy ASAP for my son, because he said PANDAS is severely effecting his brain and blocking his progress. He still prescribed Azithromycin once per week for the next 6 months to an year, but he said no matter what we should do tonsillectomy. > The confusing part for me is that we have done some blood testing in the past for strep, but it came back normal. However I know it depends which labs you use and who and how interpret the results, so this time we are going to do blood test specifically for PANDAS. However my concern is – is it possible that you get negative results for PANDAS and you may still have it? > My son has OCD which lately is worse (after treating for parasites, not sure what is the relationship if any). > So my big question is – how many of you have tried already the tonsillectomy and seen good results? Did anybody see improvements in speech and OCD? > Dr. K said that all of his patients have improved after tonsillectomy. > I did search for old messages here but found only 1 message from one mom who said that did the tonsillectomy for her child and that he improved after that. Has anybody regressed after that or indeed there are only positives? > Also, how difficult it is to find EENT doctor who would agree to do this here in CA? Does anybody have any recommendations for such doctor? > Thanks in advance for your help, > Krassi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2011 Report Share Posted March 28, 2011 I've heard quiet a few stories of kids improving after removing tonsils. We are going to do it for my son too soon, after we resolve some other health problems. Olga, not sure what exactly happened to your husband, but the general idea is that tonsils are VERY useful for you ONLY IF they are healthy. Healthy tonsils and adenoids are part of lymphatic drainage system and their main job is to clean the brain form toxins. BUT! if these organs are inflamed or infected even without inflammation, they start doing the opposite, they actually start dumping toxins INTO the brain, causing brain inflammation etc. And it's almost impossible to diagnose this problem here in the US, I don't remember details, but heard stories of people getting negative results on tonsils " swab " tests here in the US and then getting positive! results from the same " swab " method somewhere abroad, with very dangerous infections found living on them. Another bit of info - if tonsils are enlarged, even if there is no visible inflammation, they catch food the person eats and that food is the perfect ground for breeding bacteria and such. We saw 2 ENT docs for my son, 1st one (older, about 50 yo) recommended surgery, second one (young, under 35) said it's no big deal. But I will go with the 1st one's opinion, after all I've read and heard. The pint is, it's possible to find ENT who will think along the same lines as Dr. K. DIna. > > Dear group, > As usual when difficult questions are going through my mind I ask for help here, so here is my latest dilemma: > We had our appointment with Dr. K last week and he advised to do tonsillectomy ASAP for my son, because he said PANDAS is severely effecting his brain and blocking his progress. He still prescribed Azithromycin once per week for the next 6 months to an year, but he said no matter what we should do tonsillectomy. > The confusing part for me is that we have done some blood testing in the past for strep, but it came back normal. However I know it depends which labs you use and who and how interpret the results, so this time we are going to do blood test specifically for PANDAS. However my concern is – is it possible that you get negative results for PANDAS and you may still have it? > My son has OCD which lately is worse (after treating for parasites, not sure what is the relationship if any). > So my big question is – how many of you have tried already the tonsillectomy and seen good results? Did anybody see improvements in speech and OCD? > Dr. K said that all of his patients have improved after tonsillectomy. > I did search for old messages here but found only 1 message from one mom who said that did the tonsillectomy for her child and that he improved after that. Has anybody regressed after that or indeed there are only positives? > Also, how difficult it is to find EENT doctor who would agree to do this here in CA? Does anybody have any recommendations for such doctor? > Thanks in advance for your help, > Krassi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2011 Report Share Posted March 28, 2011 Krassi, PANDAS is an autoimmune disease. Looking at the titers of ASO and anti-DNase B alone is not sufficient. These titers fluctuate depending on raising and falling of symptoms. Also, if a child is deficient in IgG, s/he probably can not produce antibodies and will have negative Strep titers when tested. The diagnosis will also require sophisticated anti-brain antibody testing. We just brought our son for a blood draw to test ASO and anti-DNase B. If the result is within the reference range, we will proceed with Cunningham and Anne Connelly tests. Limin > Dear group, > As usual when difficult questions are going through my mind I ask for help here, so here is my latest dilemma: > We had our appointment with Dr. K last week and he advised to do tonsillectomy ASAP for my son, because he said PANDAS is severely effecting his brain and blocking his progress. He still prescribed Azithromycin once per week for the next 6 months to an year, but he said no matter what we should do tonsillectomy. > The confusing part for me is that we have done some blood testing in the past for strep, but it came back normal. However I know it depends which labs you use and who and how interpret the results, so this time we are going to do blood test specifically for PANDAS. However my concern is – is it possible that you get negative results for PANDAS and you may still have it? > My son has OCD which lately is worse (after treating for parasites, not sure what is the relationship if any). > So my big question is – how many of you have tried already the tonsillectomy and seen good results? Did anybody see improvements in speech and OCD? > Dr. K said that all of his patients have improved after tonsillectomy. > I did search for old messages here but found only 1 message from one mom who said that did the tonsillectomy for her child and that he improved after that. Has anybody regressed after that or indeed there are only positives? > Also, how difficult it is to find EENT doctor who would agree to do this here in CA? Does anybody have any recommendations for such doctor? > Thanks in advance for your help, > Krassi > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2011 Report Share Posted March 28, 2011 Krassi, I have dragged my kid to multiple gold star specialists (ha ha) for everything including the top ranks of useless ENTs...my little one's tonsils were sooo inflamed they almost touched and i thought that was contributing to the gag reflexing while eating and lack of tongue movement. He was mr. antibiotic king as a kid...finally I asked dr. j at umdnj just to give me a script to test for strep (incomplete) and have the GI swab the tonsils since he was going under for ANOTHER endo/colonoscopy. loved my GI and asked that he take a few pics while going down my kid's hatch again which he did. blood labs and swabs yielded NOTHING but his poop was full of 2 kinds of strep...nothing like one in the house getting giardia to start collecting poop on demand...we all have alot strep. Finally NP tested for PANDAS..older kid ripped wicked titers and my little one, still couldn't post a titer due to his depressed immune system....but lots of strep has been picked up via other testing methods. ps....mom also did a few too many detox foot baths (perhaps 3 in a week is a bit much) and the last one i did was much stronger...the water was absolutely nasty and the next day i woke up with you got it...strep throat...but it wasn't diagosed for a few days until I finally caved and went to ER for the calve wounds...it was coming out of my shins. and as caryn always reminds me...it goes hand in hand with bartonella and that we don't want in the brain. I'd love to figure out if the tonsils need to go, his adnoids went at 3 but they wouldn't take the tonsils....but i'ld love more insight into other means to take out the infected tonsils...dr. k prefers that we take our kids abroad which is a challenge for some of us. lisa > > > > Dear group, > > As usual when difficult questions are going through my mind I ask for help here, so here is my latest dilemma: > > We had our appointment with Dr. K last week and he advised to do tonsillectomy ASAP for my son, because he said PANDAS is severely effecting his brain and blocking his progress. He still prescribed Azithromycin once per week for the next 6 months to an year, but he said no matter what we should do tonsillectomy. > > The confusing part for me is that we have done some blood testing in the past for strep, but it came back normal. However I know it depends which labs you use and who and how interpret the results, so this time we are going to do blood test specifically for PANDAS. However my concern is – is it possible that you get negative results for PANDAS and you may still have it? > > My son has OCD which lately is worse (after treating for parasites, not sure what is the relationship if any). > > So my big question is – how many of you have tried already the tonsillectomy and seen good results? Did anybody see improvements in speech and OCD? > > Dr. K said that all of his patients have improved after tonsillectomy. > > I did search for old messages here but found only 1 message from one mom who said that did the tonsillectomy for her child and that he improved after that. Has anybody regressed after that or indeed there are only positives? > > Also, how difficult it is to find EENT doctor who would agree to do this here in CA? Does anybody have any recommendations for such doctor? > > Thanks in advance for your help, > > Krassi > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2011 Report Share Posted March 28, 2011 Dear Krassi, I was in the same position as you not too long ago, I have two boys who have Autism/Lyme/PANDAS. My older son was crippled by PANDAS and no matter what I do whether it was antibiotics or herbal or any other treatment it didn't help whatsoever and his titar was up and down despite all the treatment. We did a tonsillectomy earlier this year per Dr. K's advice and to be honest with you I couldn't be happier. I'm not saying he's completely recovered, but he's never been happier. For example when he comes home from school the pain he was in was so evident on his face that it broke my heart just to look at him and his sleep was terrible and now his face lights up, his complexion is much brighter and he's always happy and his OCD and body ticks have disappeared (along with the terrible sleeping habits). I know some parents say that their kids regress after the surgery and I believe that does not have anything to do with the surgery itself but the anesthesia that is used during the surgery such as nitrous oxide. Our kids have a methylation problem and if the wrong anesthesia is used they can regress. When my son had his surgery we used a gentler anesthesia and we did lot of liver support enema he done nothing but improve and when people have a chronic infection the tonsils become a toxic focus themselves and as long as the patient reacts with tonsilitis fever and rather acute symptons the tonsils might be healthy. As soon as they have stopped reacting they may have lost their health and may be a dangerous focus. Tonsils are often overlooked chronic focus and the underlying cause of many health problems according Dr. ph Issels who pioneered the work that led to the current understanding of dental and tonsil pathology. While the medical community have caught up in someways with the involved dental issues, very few practioners have paid attention to Dr. Issel's teachings in regards to the tonsils and the need for early tonsilectomy in the treatment of many chronic illnesses. If you do not address this issue right now, nothing you do will work because the tonsils have become nothing but a toxic focus in the body. My other son is having surgery next month and I'm looking forward to the positive results that will follow. It is not hard find a specialist that will agree with you to the surgery as long as you explain your child's multiple infections that he/she has been having per year. Best of luck, Adar. > > Dear group, > As usual when difficult questions are going through my mind I ask for help here, so here is my latest dilemma: > We had our appointment with Dr. K last week and he advised to do tonsillectomy ASAP for my son, because he said PANDAS is severely effecting his brain and blocking his progress. He still prescribed Azithromycin once per week for the next 6 months to an year, but he said no matter what we should do tonsillectomy. > The confusing part for me is that we have done some blood testing in the past for strep, but it came back normal. However I know it depends which labs you use and who and how interpret the results, so this time we are going to do blood test specifically for PANDAS. However my concern is – is it possible that you get negative results for PANDAS and you may still have it? > My son has OCD which lately is worse (after treating for parasites, not sure what is the relationship if any). > So my big question is – how many of you have tried already the tonsillectomy and seen good results? Did anybody see improvements in speech and OCD? > Dr. K said that all of his patients have improved after tonsillectomy. > I did search for old messages here but found only 1 message from one mom who said that did the tonsillectomy for her child and that he improved after that. Has anybody regressed after that or indeed there are only positives? > Also, how difficult it is to find EENT doctor who would agree to do this here in CA? Does anybody have any recommendations for such doctor? > Thanks in advance for your help, > Krassi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2011 Report Share Posted March 28, 2011 One of the BEST things we ever did for our daughter's PANDAS induced tourettes was to remove her tonsils .. Strep lived in them ... keeping her body constantly inflamned and there was no end to it... it was consistant and constant source of trouble. Taking out the tonsils made it possible to finally start treating the internal issues ... without having to constantly battle an ongoing exposure and insult from live bacteria that lived within the folds of the tonsils and was impossible to irradicate. With the tonsils gone ... she improved 10 fold almost immediately ... and through the years has been able to go off of all medications to control her tics .... they were at one time uncontrollable even with meds ... Today she doesn't need any ... She still suffers from tics ... but NOTHING at all like it use to be ... Most folks no longer believe her when she tells them she has tourettes. Melinda > > Dear group, > As usual when difficult questions are going through my mind I ask for help here, so here is my latest dilemma: > We had our appointment with Dr. K last week and he advised to do tonsillectomy ASAP for my son, because he said PANDAS is severely effecting his brain and blocking his progress. He still prescribed Azithromycin once per week for the next 6 months to an year, but he said no matter what we should do tonsillectomy. > The confusing part for me is that we have done some blood testing in the past for strep, but it came back normal. However I know it depends which labs you use and who and how interpret the results, so this time we are going to do blood test specifically for PANDAS. However my concern is – is it possible that you get negative results for PANDAS and you may still have it? > My son has OCD which lately is worse (after treating for parasites, not sure what is the relationship if any). > So my big question is – how many of you have tried already the tonsillectomy and seen good results? Did anybody see improvements in speech and OCD? > Dr. K said that all of his patients have improved after tonsillectomy. > I did search for old messages here but found only 1 message from one mom who said that did the tonsillectomy for her child and that he improved after that. Has anybody regressed after that or indeed there are only positives? > Also, how difficult it is to find EENT doctor who would agree to do this here in CA? Does anybody have any recommendations for such doctor? > Thanks in advance for your help, > Krassi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2011 Report Share Posted March 29, 2011 Thank you everybody for sharing your experience and thoughts. Adar and Milinda, if you don't mind asking you more questions - could you share if you did any preparation prior to the tonsillectomy, like anything else to support the liver? Did you give anything to your child to make him relaxed before they put the anesthesia? My son is so afraid from doctor's offices from the minute he sees somebody in white gown he panics and wants to escape. I am afraid that for any kind of testing (we need to do soon tonsil culture and deep nasal culture) he needs to be sedated, otherwise they will not be able to do any testing. About the anesthesia - besides nitrous oxide, is there anything else I need to be aware not to give to my son? Thanks again for your help, Krassi > > > > Dear group, > > As usual when difficult questions are going through my mind I ask for help here, so here is my latest dilemma: > > We had our appointment with Dr. K last week and he advised to do tonsillectomy ASAP for my son, because he said PANDAS is severely effecting his brain and blocking his progress. He still prescribed Azithromycin once per week for the next 6 months to an year, but he said no matter what we should do tonsillectomy. > > The confusing part for me is that we have done some blood testing in the past for strep, but it came back normal. However I know it depends which labs you use and who and how interpret the results, so this time we are going to do blood test specifically for PANDAS. However my concern is – is it possible that you get negative results for PANDAS and you may still have it? > > My son has OCD which lately is worse (after treating for parasites, not sure what is the relationship if any). > > So my big question is – how many of you have tried already the tonsillectomy and seen good results? Did anybody see improvements in speech and OCD? > > Dr. K said that all of his patients have improved after tonsillectomy. > > I did search for old messages here but found only 1 message from one mom who said that did the tonsillectomy for her child and that he improved after that. Has anybody regressed after that or indeed there are only positives? > > Also, how difficult it is to find EENT doctor who would agree to do this here in CA? Does anybody have any recommendations for such doctor? > > Thanks in advance for your help, > > Krassi > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2011 Report Share Posted March 29, 2011 Krassi, B12 injections before and after anesthesia can help the liver to detox the drugs. You can also discuss with the doctor to use water-soluable drugs and avoid fat-soluable drugs in anesthesia, so they are easier for the body to excrete. Here is a good article for preparation: http://www.autism.com/fam_AnesthesiaandtheAutisticchild.asp Limin > Thank you everybody for sharing your experience and thoughts. > Adar and Milinda, if you don't mind asking you more questions - could you share if you did any preparation prior to the tonsillectomy, like anything else to support the liver? Did you give anything to your child to make him relaxed before they put the anesthesia? > My son is so afraid from doctor's offices from the minute he sees somebody in white gown he panics and wants to escape. I am afraid that for any kind of testing (we need to do soon tonsil culture and deep nasal culture) he needs to be sedated, otherwise they will not be able to do any testing. > About the anesthesia - besides nitrous oxide, is there anything else I need to be aware not to give to my son? > Thanks again for your help, > Krassi > > > >>> >>> Dear group, >>> As usual when difficult questions are going through my mind I ask for help here, so here is my latest dilemma: >>> We had our appointment with Dr. K last week and he advised to do tonsillectomy ASAP for my son, because he said PANDAS is severely effecting his brain and blocking his progress. He still prescribed Azithromycin once per week for the next 6 months to an year, but he said no matter what we should do tonsillectomy. >>> The confusing part for me is that we have done some blood testing in the past for strep, but it came back normal. However I know it depends which labs you use and who and how interpret the results, so this time we are going to do blood test specifically for PANDAS. However my concern is – is it possible that you get negative results for PANDAS and you may still have it? >>> My son has OCD which lately is worse (after treating for parasites, not sure what is the relationship if any). >>> So my big question is – how many of you have tried already the tonsillectomy and seen good results? Did anybody see improvements in speech and OCD? >>> Dr. K said that all of his patients have improved after tonsillectomy. >>> I did search for old messages here but found only 1 message from one mom who said that did the tonsillectomy for her child and that he improved after that. Has anybody regressed after that or indeed there are only positives? >>> Also, how difficult it is to find EENT doctor who would agree to do this here in CA? Does anybody have any recommendations for such doctor? >>> Thanks in advance for your help, >>> Krassi >>> >> > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2011 Report Share Posted March 29, 2011 Thanks Limin - very informative article! Krassi > >>> > >>> Dear group, > >>> As usual when difficult questions are going through my mind I ask for help here, so here is my latest dilemma: > >>> We had our appointment with Dr. K last week and he advised to do tonsillectomy ASAP for my son, because he said PANDAS is severely effecting his brain and blocking his progress. He still prescribed Azithromycin once per week for the next 6 months to an year, but he said no matter what we should do tonsillectomy. > >>> The confusing part for me is that we have done some blood testing in the past for strep, but it came back normal. However I know it depends which labs you use and who and how interpret the results, so this time we are going to do blood test specifically for PANDAS. However my concern is – is it possible that you get negative results for PANDAS and you may still have it? > >>> My son has OCD which lately is worse (after treating for parasites, not sure what is the relationship if any). > >>> So my big question is – how many of you have tried already the tonsillectomy and seen good results? Did anybody see improvements in speech and OCD? > >>> Dr. K said that all of his patients have improved after tonsillectomy. > >>> I did search for old messages here but found only 1 message from one mom who said that did the tonsillectomy for her child and that he improved after that. Has anybody regressed after that or indeed there are only positives? > >>> Also, how difficult it is to find EENT doctor who would agree to do this here in CA? Does anybody have any recommendations for such doctor? > >>> Thanks in advance for your help, > >>> Krassi > >>> > >> > > > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2011 Report Share Posted March 29, 2011 Krassi, I feel that my son became more OCD through treating parasites. He has had PANDAS for a long time. I wonder if the worms were housing strep that has been dumped in the system? My son does not have throat strep, rather alpha and gamma haemolytic strep a stool test. I have this as well, even on an oral test and I actually break out into scarlet fever from this type of strep. I don't feel that my son has strep in his tonsils. Although I have strep in my tonsils, I think my son did not catch his orally. Caryn > > Dear group, > As usual when difficult questions are going through my mind I ask for help here, so here is my latest dilemma: > We had our appointment with Dr. K last week and he advised to do tonsillectomy ASAP for my son, because he said PANDAS is severely effecting his brain and blocking his progress. He still prescribed Azithromycin once per week for the next 6 months to an year, but he said no matter what we should do tonsillectomy. > The confusing part for me is that we have done some blood testing in the past for strep, but it came back normal. However I know it depends which labs you use and who and how interpret the results, so this time we are going to do blood test specifically for PANDAS. However my concern is – is it possible that you get negative results for PANDAS and you may still have it? > My son has OCD which lately is worse (after treating for parasites, not sure what is the relationship if any). > So my big question is – how many of you have tried already the tonsillectomy and seen good results? Did anybody see improvements in speech and OCD? > Dr. K said that all of his patients have improved after tonsillectomy. > I did search for old messages here but found only 1 message from one mom who said that did the tonsillectomy for her child and that he improved after that. Has anybody regressed after that or indeed there are only positives? > Also, how difficult it is to find EENT doctor who would agree to do this here in CA? Does anybody have any recommendations for such doctor? > Thanks in advance for your help, > Krassi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2011 Report Share Posted March 29, 2011 Krassi We been fighting PANDA's for years, all kinds of treatments, and I am sick of it all, and the slow down of progress. Nothing has worked out, and my son has had tons of work to treat it. Your only option would be to go to Germany, and have the laser treatment, but it could take up to 3 treatments of freezing the tonsils. They stay intact and then can remain healthy after that. But that would mean you may need to stay there 2 months to have this treatment done. I am bummed they don't do this in the USA! My son is going to have his tonsils out, advised by DR K as well. You might ask there office what else you can do to boost the system. I am doing some things but don;t want to suggest them, since its just for my son. The Methyl B-12 shots are good to do, as someone mentioned already. Best to your son Allie > > > > Dear group, > > As usual when difficult questions are going through my mind I ask for help here, so here is my latest dilemma: > > We had our appointment with Dr. K last week and he advised to do tonsillectomy ASAP for my son, because he said PANDAS is severely effecting his brain and blocking his progress. He still prescribed Azithromycin once per week for the next 6 months to an year, but he said no matter what we should do tonsillectomy. > > The confusing part for me is that we have done some blood testing in the past for strep, but it came back normal. However I know it depends which labs you use and who and how interpret the results, so this time we are going to do blood test specifically for PANDAS. However my concern is – is it possible that you get negative results for PANDAS and you may still have it? > > My son has OCD which lately is worse (after treating for parasites, not sure what is the relationship if any). > > So my big question is – how many of you have tried already the tonsillectomy and seen good results? Did anybody see improvements in speech and OCD? > > Dr. K said that all of his patients have improved after tonsillectomy. > > I did search for old messages here but found only 1 message from one mom who said that did the tonsillectomy for her child and that he improved after that. Has anybody regressed after that or indeed there are only positives? > > Also, how difficult it is to find EENT doctor who would agree to do this here in CA? Does anybody have any recommendations for such doctor? > > Thanks in advance for your help, > > Krassi > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2011 Report Share Posted March 29, 2011 Allie, My son has such a fear of doctors, that the problem is he will not stay still for 18 seconds (the time they need to do the laser treatment in Germany) and unfortunately for this procedure he will have to be fully sedated each time they do it. So the fact that takes more than once is big draw back for us, as the fact that it will be very very expensive because we will have to fly each time there or stay for months. Please let me know how your son's tonsillectomy goes and crossing my fingers you see big gains after that. Krassi > > > > > > Dear group, > > > As usual when difficult questions are going through my mind I ask for help here, so here is my latest dilemma: > > > We had our appointment with Dr. K last week and he advised to do tonsillectomy ASAP for my son, because he said PANDAS is severely effecting his brain and blocking his progress. He still prescribed Azithromycin once per week for the next 6 months to an year, but he said no matter what we should do tonsillectomy. > > > The confusing part for me is that we have done some blood testing in the past for strep, but it came back normal. However I know it depends which labs you use and who and how interpret the results, so this time we are going to do blood test specifically for PANDAS. However my concern is – is it possible that you get negative results for PANDAS and you may still have it? > > > My son has OCD which lately is worse (after treating for parasites, not sure what is the relationship if any). > > > So my big question is – how many of you have tried already the tonsillectomy and seen good results? Did anybody see improvements in speech and OCD? > > > Dr. K said that all of his patients have improved after tonsillectomy. > > > I did search for old messages here but found only 1 message from one mom who said that did the tonsillectomy for her child and that he improved after that. Has anybody regressed after that or indeed there are only positives? > > > Also, how difficult it is to find EENT doctor who would agree to do this here in CA? Does anybody have any recommendations for such doctor? > > > Thanks in advance for your help, > > > Krassi > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2011 Report Share Posted March 29, 2011 Adar, would you mind sharing what exactly you used for Anaesthesia for your kid? And which Liver enemas you're talking about? Thanks, Sasmita > > > > Dear group, > > As usual when difficult questions are going through my mind I ask for help here, so here is my latest dilemma: > > We had our appointment with Dr. K last week and he advised to do tonsillectomy ASAP for my son, because he said PANDAS is severely effecting his brain and blocking his progress. He still prescribed Azithromycin once per week for the next 6 months to an year, but he said no matter what we should do tonsillectomy. > > The confusing part for me is that we have done some blood testing in the past for strep, but it came back normal. However I know it depends which labs you use and who and how interpret the results, so this time we are going to do blood test specifically for PANDAS. However my concern is – is it possible that you get negative results for PANDAS and you may still have it? > > My son has OCD which lately is worse (after treating for parasites, not sure what is the relationship if any). > > So my big question is – how many of you have tried already the tonsillectomy and seen good results? Did anybody see improvements in speech and OCD? > > Dr. K said that all of his patients have improved after tonsillectomy. > > I did search for old messages here but found only 1 message from one mom who said that did the tonsillectomy for her child and that he improved after that. Has anybody regressed after that or indeed there are only positives? > > Also, how difficult it is to find EENT doctor who would agree to do this here in CA? Does anybody have any recommendations for such doctor? > > Thanks in advance for your help, > > Krassi > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2011 Report Share Posted March 29, 2011 Lynn from PANDAS Network said that 73% of PANDAS children do not have elevated ASO and anti-DNase B. Her doctor Dr. DB also mentioned there is a high rate of false negative test results in nasal and throat culture. Further, Strep might not be the only bacterial family that cause PANDAS. Microbial flora of surface vs. core tonsillar cultures in recurrent tonsillitis in children: http://www.sciencedirect.com/science?_ob=ArticleURL & _udi=B6T7V-4C4WFSV-1P & _user=\ 10 & _coverDate=05%2F31%2F1988 & _rdoc=1 & _fmt=high & _orig=gateway & _origin=gateway & _so\ rt=d & _docanchor= & view=c & _searchStrId=1698631953 & _rerunOrigin=google & _acct=C00005\ 0221 & _version=1 & _urlVersion=0 & _userid=10 & md5=1aa0d95d2dd193967822967409f8b516 & se\ archtype=a Limin > Krassi, > > PANDAS is an autoimmune disease. Looking at the titers of ASO and anti-DNase B alone is not sufficient. These titers fluctuate depending on raising and falling of symptoms. Also, if a child is deficient in IgG, s/he probably can not produce antibodies and will have negative Strep titers when tested. > > The diagnosis will also require sophisticated anti-brain antibody testing. > > We just brought our son for a blood draw to test ASO and anti-DNase B. If the result is within the reference range, we will proceed with Cunningham and Anne Connelly tests. > > Limin > > > > >> Dear group, >> As usual when difficult questions are going through my mind I ask for help here, so here is my latest dilemma: >> We had our appointment with Dr. K last week and he advised to do tonsillectomy ASAP for my son, because he said PANDAS is severely effecting his brain and blocking his progress. He still prescribed Azithromycin once per week for the next 6 months to an year, but he said no matter what we should do tonsillectomy. >> The confusing part for me is that we have done some blood testing in the past for strep, but it came back normal. However I know it depends which labs you use and who and how interpret the results, so this time we are going to do blood test specifically for PANDAS. However my concern is – is it possible that you get negative results for PANDAS and you may still have it? >> My son has OCD which lately is worse (after treating for parasites, not sure what is the relationship if any). >> So my big question is – how many of you have tried already the tonsillectomy and seen good results? Did anybody see improvements in speech and OCD? >> Dr. K said that all of his patients have improved after tonsillectomy. >> I did search for old messages here but found only 1 message from one mom who said that did the tonsillectomy for her child and that he improved after that. Has anybody regressed after that or indeed there are only positives? >> Also, how difficult it is to find EENT doctor who would agree to do this here in CA? Does anybody have any recommendations for such doctor? >> Thanks in advance for your help, >> Krassi >> >> >> >> >> ------------------------------------ >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2011 Report Share Posted March 29, 2011 Propofol (one of drugs for anesthesia) is also something we should avoid: " Since the Cleveland Clinic's study of autism and mito dystunction, my doc has warned me most strongly to keep my son away from Propofol. She has also had normal adults in her practice who believe Propofol triggered their mito disease, so why not avoid it until more is known. " Dina. > > > > > > Dear group, > > > As usual when difficult questions are going through my mind I ask for help here, so here is my latest dilemma: > > > We had our appointment with Dr. K last week and he advised to do tonsillectomy ASAP for my son, because he said PANDAS is severely effecting his brain and blocking his progress. He still prescribed Azithromycin once per week for the next 6 months to an year, but he said no matter what we should do tonsillectomy. > > > The confusing part for me is that we have done some blood testing in the past for strep, but it came back normal. However I know it depends which labs you use and who and how interpret the results, so this time we are going to do blood test specifically for PANDAS. However my concern is – is it possible that you get negative results for PANDAS and you may still have it? > > > My son has OCD which lately is worse (after treating for parasites, not sure what is the relationship if any). > > > So my big question is – how many of you have tried already the tonsillectomy and seen good results? Did anybody see improvements in speech and OCD? > > > Dr. K said that all of his patients have improved after tonsillectomy. > > > I did search for old messages here but found only 1 message from one mom who said that did the tonsillectomy for her child and that he improved after that. Has anybody regressed after that or indeed there are only positives? > > > Also, how difficult it is to find EENT doctor who would agree to do this here in CA? Does anybody have any recommendations for such doctor? > > > Thanks in advance for your help, > > > Krassi > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2011 Report Share Posted March 29, 2011 Agreed, has similar experience, suspects it shocks the balanced or iffy brain out of neuro balance for good. There are articles on this all over the net, at least a few on ProHealth. A combo of that and the subsequent MRI and CAT scans when following certain types of surgery, the heavy metals in the contrast solutions too (gandolinium for one is a radioactive element, yes?) could easily knock a child out of balance for good, depending on the detox capacity of the child. In China and in other countries acupuncture has been successfully used for some anesthes. purposes. To: BorreliaMultipleInfectionsAndAutism Sent: Tue, March 29, 2011 10:29:30 PMSubject: Re: Tonsillectomy Propofol (one of drugs for anesthesia) is also something we should avoid: "Since the Cleveland Clinic's study of autism and mito dystunction, my doc has warned me most strongly to keep my son away from Propofol. She has also had normal adults in her practice who believe Propofol triggered their mito disease, so why not avoid it until more is known." Dina. > > > > > > Dear group, > > > As usual when difficult questions are going through my mind I ask for help here, so here is my latest dilemma: > > > We had our appointment with Dr. K last week and he advised to do tonsillectomy ASAP for my son, because he said PANDAS is severely effecting his brain and blocking his progress. He still prescribed Azithromycin once per week for the next 6 months to an year, but he said no matter what we should do tonsillectomy. > > > The confusing part for me is that we have done some blood testing in the past for strep, but it came back normal. However I know it depends which labs you use and who and how interpret the results, so this time we are going to do blood test specifically for PANDAS. However my concern is – is it possible that you get negative results for PANDAS and you may still have it? > > > My son has OCD which lately is worse (after treating for parasites, not sure what is the relationship if any). > > > So my big question is – how many of you have tried already the tonsillectomy and seen good results? Did anybody see improvements in speech and OCD? > > > Dr. K said that all of his patients have improved after tonsillectomy. > > > I did search for old messages here but found only 1 message from one mom who said that did the tonsillectomy for her child and that he improved after that. Has anybody regressed after that or indeed there are only positives? > > > Also, how difficult it is to find EENT doctor who would agree to do this here in CA? Does anybody have any recommendations for such doctor? > > > Thanks in advance for your help, > > > Krassi > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2011 Report Share Posted March 29, 2011 Dr K recommended tonsilectomy for my son years ago also, we talked our ENT into it since my son was on his 3rd set of ear tubes and also his tonsils where a bit inflammed. The two weeks after where the worst for my son, the pain is horific (I had them out when I was 24 and it hurt BAD) and he could only eat popsicles and yogurt for two weeks, then he developed severe motor and vocal tics (which he never had before and his other PANDAS symptoms got worse (where mild prior to this). I was told there was no connection with the development of the tics and the procedure but I dont believe it. His symptoms have been getting worse and worse since then - 5years ago. I think taking his tonsils out may also have left his body without a way to filter the bad bugs and not sure why he developed the tics so bad but it is heartbreaking and i wish I could reverse time. Just our sad experience (I think PANDAS/PITANDS can be caused by other bugs , not just strep... virus/parasites/lyme etc.... deborah > > Dear group, > As usual when difficult questions are going through my mind I ask for help here, so here is my latest dilemma: > We had our appointment with Dr. K last week and he advised to do tonsillectomy ASAP for my son, because he said PANDAS is severely effecting his brain and blocking his progress. He still prescribed Azithromycin once per week for the next 6 months to an year, but he said no matter what we should do tonsillectomy. > The confusing part for me is that we have done some blood testing in the past for strep, but it came back normal. However I know it depends which labs you use and who and how interpret the results, so this time we are going to do blood test specifically for PANDAS. However my concern is – is it possible that you get negative results for PANDAS and you may still have it? > My son has OCD which lately is worse (after treating for parasites, not sure what is the relationship if any). > So my big question is – how many of you have tried already the tonsillectomy and seen good results? Did anybody see improvements in speech and OCD? > Dr. K said that all of his patients have improved after tonsillectomy. > I did search for old messages here but found only 1 message from one mom who said that did the tonsillectomy for her child and that he improved after that. Has anybody regressed after that or indeed there are only positives? > Also, how difficult it is to find EENT doctor who would agree to do this here in CA? Does anybody have any recommendations for such doctor? > Thanks in advance for your help, > Krassi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2011 Report Share Posted March 29, 2011 Our LLMD just started my son and I on bactraban ointment(for me) and nebulized for my son up our sinus's to get rid of strep, he said we just keep passing it back and forth to each other... so we will see... we did 30 day taper of prednisone to help with the autoimmune part but didnt see anything positive from it unfortunately. deborah > > > Dear group, > > As usual when difficult questions are going through my mind I ask for help here, so here is my latest dilemma: > > We had our appointment with Dr. K last week and he advised to do tonsillectomy ASAP for my son, because he said PANDAS is severely effecting his brain and blocking his progress. He still prescribed Azithromycin once per week for the next 6 months to an year, but he said no matter what we should do tonsillectomy. > > The confusing part for me is that we have done some blood testing in the past for strep, but it came back normal. However I know it depends which labs you use and who and how interpret the results, so this time we are going to do blood test specifically for PANDAS. However my concern is – is it possible that you get negative results for PANDAS and you may still have it? > > My son has OCD which lately is worse (after treating for parasites, not sure what is the relationship if any). > > So my big question is – how many of you have tried already the tonsillectomy and seen good results? Did anybody see improvements in speech and OCD? > > Dr. K said that all of his patients have improved after tonsillectomy. > > I did search for old messages here but found only 1 message from one mom who said that did the tonsillectomy for her child and that he improved after that. Has anybody regressed after that or indeed there are only positives? > > Also, how difficult it is to find EENT doctor who would agree to do this here in CA? Does anybody have any recommendations for such doctor? > > Thanks in advance for your help, > > Krassi > > > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2011 Report Share Posted March 29, 2011 After the specialist agreed to do the surgery, I booked an appointment with the anesthesiologist at that hospital. On the day of the appointment I gathered all the information that I wanted to talk to him about such as the kinds of medications I didn't want used on my son and the kinds of medication I wanted to use. What I told him to not use on my son was Nitrous Oxide which is fat-soluble drug that is difficult for the liver to metabolize and can deactivate methionine synthase which is B12 dependent enzyme important in the methylation cycle. Propofol it may be problematic for patients with allergy to soy or eggs and also raised regarding a potential to exacerbate mitochondrial disorder. Ketamine which is a dissociative anesthetic and alter the patient's sensory perception, which raises questions about its use on our children due to the sensory issues many autistic children have. What I did tell him to use on my son was, Sevoflorane and Fentanyl which is gentler on the liver due it's being easily detoxified by the liver. Midazolam for the pain. My son (like any other child) is not a big fan of needles so when he was at the hospital the anesthesiologist and the surgeon agreed that it would be best if I were to go inside the surgery room to comfort my son until the anesthesia took effect (via mask and not I.V). After he came out I mixed his apple juice with activated charcoal and when we came home I gave him an Epsom Salt bath and coffee enema. He was also given homepatheic remedies to support his system and mms to heal him faster instead of antibiotic. My son's at the best he's ever been right now and it was due to taking out his tonsils. His tonsils when taken out were not big (they were medium sized) however they were heavily scarred. Presently he is very happy despite the babesia that he is currently fighting. P.S: prior to the surgery, I also helped his methlylation cycle so he can handle the anesthesia better. I hope this helps, and if you have any more questions I will be happy to answer. Best of luck, -Adar -- In BorreliaMultipleInfectionsAndAutism , " Krassi " wrote: > > Thank you everybody for sharing your experience and thoughts. > Adar and Milinda, if you don't mind asking you more questions - could you share if you did any preparation prior to the tonsillectomy, like anything else to support the liver? Did you give anything to your child to make him relaxed before they put the anesthesia? > My son is so afraid from doctor's offices from the minute he sees somebody in white gown he panics and wants to escape. I am afraid that for any kind of testing (we need to do soon tonsil culture and deep nasal culture) he needs to be sedated, otherwise they will not be able to do any testing. > About the anesthesia - besides nitrous oxide, is there anything else I need to be aware not to give to my son? > Thanks again for your help, > Krassi > > > > > > > > > Dear group, > > > As usual when difficult questions are going through my mind I ask for help here, so here is my latest dilemma: > > > We had our appointment with Dr. K last week and he advised to do tonsillectomy ASAP for my son, because he said PANDAS is severely effecting his brain and blocking his progress. He still prescribed Azithromycin once per week for the next 6 months to an year, but he said no matter what we should do tonsillectomy. > > > The confusing part for me is that we have done some blood testing in the past for strep, but it came back normal. However I know it depends which labs you use and who and how interpret the results, so this time we are going to do blood test specifically for PANDAS. However my concern is – is it possible that you get negative results for PANDAS and you may still have it? > > > My son has OCD which lately is worse (after treating for parasites, not sure what is the relationship if any). > > > So my big question is – how many of you have tried already the tonsillectomy and seen good results? Did anybody see improvements in speech and OCD? > > > Dr. K said that all of his patients have improved after tonsillectomy. > > > I did search for old messages here but found only 1 message from one mom who said that did the tonsillectomy for her child and that he improved after that. Has anybody regressed after that or indeed there are only positives? > > > Also, how difficult it is to find EENT doctor who would agree to do this here in CA? Does anybody have any recommendations for such doctor? > > > Thanks in advance for your help, > > > Krassi > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2011 Report Share Posted March 29, 2011 Deborah, I am with you. I too think that PANDAS/PITANDS is caused by multiple infections, not just Strep. Dr. RT mentions that " Lyme-like " infections might be involved. Dr. DB suggests to look beyond throat and tonsils. He believes that chronic, low grade sinus infections can also cause PANDAS. Dr. RS has been suggesting all these years to treat MARCONS in the sinuses to reduce inflammation and raise MSH levels. Both Strep and Staph can make a protective shield (biofilm) for Lyme and coinfecitons to hind under. In our Yasko days, we used Xylitol nasal spray daily to inhibit Strep and Staph in the sinus area. We hadn't done this for years, until very recently I resumed to spray my son daily with grapefruit extract. Limin > Dr K recommended tonsilectomy for my son years ago also, we talked our ENT into it since my son was on his 3rd set of ear tubes and also his tonsils where a bit inflammed. The two weeks after where the worst for my son, the pain is horific (I had them out when I was 24 and it hurt BAD) and he could only eat popsicles and yogurt for two weeks, then he developed severe motor and vocal tics (which he never had before and his other PANDAS symptoms got worse (where mild prior to this). I was told there was no connection with the development of the tics and the procedure but I dont believe it. His symptoms have been getting worse and worse since then - 5years ago. I think taking his tonsils out may also have left his body without a way to filter the bad bugs and not sure why he developed the tics so bad but it is heartbreaking and i wish I could reverse time. Just our sad experience > > (I think PANDAS/PITANDS can be caused by other bugs , not just strep... virus/parasites/lyme etc.... > > deborah > > >> >> Dear group, >> As usual when difficult questions are going through my mind I ask for help here, so here is my latest dilemma: >> We had our appointment with Dr. K last week and he advised to do tonsillectomy ASAP for my son, because he said PANDAS is severely effecting his brain and blocking his progress. He still prescribed Azithromycin once per week for the next 6 months to an year, but he said no matter what we should do tonsillectomy. >> The confusing part for me is that we have done some blood testing in the past for strep, but it came back normal. However I know it depends which labs you use and who and how interpret the results, so this time we are going to do blood test specifically for PANDAS. However my concern is – is it possible that you get negative results for PANDAS and you may still have it? >> My son has OCD which lately is worse (after treating for parasites, not sure what is the relationship if any). >> So my big question is – how many of you have tried already the tonsillectomy and seen good results? Did anybody see improvements in speech and OCD? >> Dr. K said that all of his patients have improved after tonsillectomy. >> I did search for old messages here but found only 1 message from one mom who said that did the tonsillectomy for her child and that he improved after that. Has anybody regressed after that or indeed there are only positives? >> Also, how difficult it is to find EENT doctor who would agree to do this here in CA? Does anybody have any recommendations for such doctor? >> Thanks in advance for your help, >> Krassi >> > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2011 Report Share Posted March 29, 2011 I heard that everyone in the family needs to be treated, including pets. Limin > Our LLMD just started my son and I on bactraban ointment(for me) and nebulized for my son up our sinus's to get rid of strep, he said we just keep passing it back and forth to each other... so we will see... we did 30 day taper of prednisone to help with the autoimmune part but didnt see anything positive from it unfortunately. > > deborah > > >> >>> Dear group, >>> As usual when difficult questions are going through my mind I ask for help here, so here is my latest dilemma: >>> We had our appointment with Dr. K last week and he advised to do tonsillectomy ASAP for my son, because he said PANDAS is severely effecting his brain and blocking his progress. He still prescribed Azithromycin once per week for the next 6 months to an year, but he said no matter what we should do tonsillectomy. >>> The confusing part for me is that we have done some blood testing in the past for strep, but it came back normal. However I know it depends which labs you use and who and how interpret the results, so this time we are going to do blood test specifically for PANDAS. However my concern is – is it possible that you get negative results for PANDAS and you may still have it? >>> My son has OCD which lately is worse (after treating for parasites, not sure what is the relationship if any). >>> So my big question is – how many of you have tried already the tonsillectomy and seen good results? Did anybody see improvements in speech and OCD? >>> Dr. K said that all of his patients have improved after tonsillectomy. >>> I did search for old messages here but found only 1 message from one mom who said that did the tonsillectomy for her child and that he improved after that. Has anybody regressed after that or indeed there are only positives? >>> Also, how difficult it is to find EENT doctor who would agree to do this here in CA? Does anybody have any recommendations for such doctor? >>> Thanks in advance for your help, >>> Krassi >>> >>> >>> >>> >>> ------------------------------------ >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2011 Report Share Posted March 30, 2011 Limin, who's Dr. DB? sasmita > >> > >> Dear group, > >> As usual when difficult questions are going through my mind I ask for help here, so here is my latest dilemma: > >> We had our appointment with Dr. K last week and he advised to do tonsillectomy ASAP for my son, because he said PANDAS is severely effecting his brain and blocking his progress. He still prescribed Azithromycin once per week for the next 6 months to an year, but he said no matter what we should do tonsillectomy. > >> The confusing part for me is that we have done some blood testing in the past for strep, but it came back normal. However I know it depends which labs you use and who and how interpret the results, so this time we are going to do blood test specifically for PANDAS. However my concern is – is it possible that you get negative results for PANDAS and you may still have it? > >> My son has OCD which lately is worse (after treating for parasites, not sure what is the relationship if any). > >> So my big question is – how many of you have tried already the tonsillectomy and seen good results? Did anybody see improvements in speech and OCD? > >> Dr. K said that all of his patients have improved after tonsillectomy. > >> I did search for old messages here but found only 1 message from one mom who said that did the tonsillectomy for her child and that he improved after that. Has anybody regressed after that or indeed there are only positives? > >> Also, how difficult it is to find EENT doctor who would agree to do this here in CA? Does anybody have any recommendations for such doctor? > >> Thanks in advance for your help, > >> Krassi > >> > > > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2011 Report Share Posted March 30, 2011 He is Lynn 's doctor, who treats her whole family for PANDANS, and a cofounder with Lynn for PANDAS Network. Limin > Limin, who's Dr. DB? > > sasmita > >>>> >>>> Dear group, >>>> As usual when difficult questions are going through my mind I ask for help here, so here is my latest dilemma: >>>> We had our appointment with Dr. K last week and he advised to do tonsillectomy ASAP for my son, because he said PANDAS is severely effecting his brain and blocking his progress. He still prescribed Azithromycin once per week for the next 6 months to an year, but he said no matter what we should do tonsillectomy. >>>> The confusing part for me is that we have done some blood testing in the past for strep, but it came back normal. However I know it depends which labs you use and who and how interpret the results, so this time we are going to do blood test specifically for PANDAS. However my concern is – is it possible that you get negative results for PANDAS and you may still have it? >>>> My son has OCD which lately is worse (after treating for parasites, not sure what is the relationship if any). >>>> So my big question is – how many of you have tried already the tonsillectomy and seen good results? Did anybody see improvements in speech and OCD? >>>> Dr. K said that all of his patients have improved after tonsillectomy. >>>> I did search for old messages here but found only 1 message from one mom who said that did the tonsillectomy for her child and that he improved after that. Has anybody regressed after that or indeed there are only positives? >>>> Also, how difficult it is to find EENT doctor who would agree to do this here in CA? Does anybody have any recommendations for such doctor? >>>> Thanks in advance for your help, >>>> Krassi >>>> >>> >>> >>> >>> >>> ------------------------------------ >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2011 Report Share Posted March 30, 2011 Limin, One of my boys had a bad sinusitis for a long time and we did grape fruit seed extract sprays for a while without much success, but what I have found to be of great help for him is Sinuflex Super strength Homeopathic formula by natural care (iherb), it got rid of that stuffy nose and bad night sleep. Now he is clear, sleeps very well and is a much happier boy. I started applying it everyday, then 3 times a weeks and now once a week only. The product is great and the best thing is that there is no side effect just good results. Olga > >> > >> Dear group, > >> As usual when difficult questions are going through my mind I ask for help here, so here is my latest dilemma: > >> We had our appointment with Dr. K last week and he advised to do tonsillectomy ASAP for my son, because he said PANDAS is severely effecting his brain and blocking his progress. He still prescribed Azithromycin once per week for the next 6 months to an year, but he said no matter what we should do tonsillectomy. > >> The confusing part for me is that we have done some blood testing in the past for strep, but it came back normal. However I know it depends which labs you use and who and how interpret the results, so this time we are going to do blood test specifically for PANDAS. However my concern is – is it possible that you get negative results for PANDAS and you may still have it? > >> My son has OCD which lately is worse (after treating for parasites, not sure what is the relationship if any). > >> So my big question is – how many of you have tried already the tonsillectomy and seen good results? Did anybody see improvements in speech and OCD? > >> Dr. K said that all of his patients have improved after tonsillectomy. > >> I did search for old messages here but found only 1 message from one mom who said that did the tonsillectomy for her child and that he improved after that. Has anybody regressed after that or indeed there are only positives? > >> Also, how difficult it is to find EENT doctor who would agree to do this here in CA? Does anybody have any recommendations for such doctor? > >> Thanks in advance for your help, > >> Krassi > >> > > > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2011 Report Share Posted March 30, 2011 Olga, Would you kindly post an iHerb link? I research for " sinuflex " at iHerb, the result showed up for Sinuplex made by Metagenics. I couldn't find the homeopathic remedy. Thanks. http://www.iherb.com/Metagenics-Sinuplex-120-Tablets/20629?at=0 Limin > Limin, > > One of my boys had a bad sinusitis for a long time and we did grape fruit seed extract sprays for a while without much success, but what I have found to be of great help for him is Sinuflex Super strength Homeopathic formula by natural care (iherb), it got rid of that stuffy nose and bad night sleep. Now he is clear, sleeps very well and is a much happier boy. > > I started applying it everyday, then 3 times a weeks and now once a week only. > > The product is great and the best thing is that there is no side effect just good results. > > Olga > > >>>> >>>> Dear group, >>>> As usual when difficult questions are going through my mind I ask for help here, so here is my latest dilemma: >>>> We had our appointment with Dr. K last week and he advised to do tonsillectomy ASAP for my son, because he said PANDAS is severely effecting his brain and blocking his progress. He still prescribed Azithromycin once per week for the next 6 months to an year, but he said no matter what we should do tonsillectomy. >>>> The confusing part for me is that we have done some blood testing in the past for strep, but it came back normal. However I know it depends which labs you use and who and how interpret the results, so this time we are going to do blood test specifically for PANDAS. However my concern is – is it possible that you get negative results for PANDAS and you may still have it? >>>> My son has OCD which lately is worse (after treating for parasites, not sure what is the relationship if any). >>>> So my big question is – how many of you have tried already the tonsillectomy and seen good results? Did anybody see improvements in speech and OCD? >>>> Dr. K said that all of his patients have improved after tonsillectomy. >>>> I did search for old messages here but found only 1 message from one mom who said that did the tonsillectomy for her child and that he improved after that. Has anybody regressed after that or indeed there are only positives? >>>> Also, how difficult it is to find EENT doctor who would agree to do this here in CA? Does anybody have any recommendations for such doctor? >>>> Thanks in advance for your help, >>>> Krassi >>>> >>> >>> >>> >>> >>> ------------------------------------ >>> >>> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.