Re: Frustrated with my Boston friend - plagio/tort m om

[Guest guest]

Rhonda,

Just wanted to say hang in there - you're being a great friend, and I

know you have this little boy's best interests in mind, but there

comes a time when you'll just have to let her do what she will... I

KNOW how frustrating that can be. I know 2 people who's babies would

have benefitted from getting bands, and they have not gone through

with it. One is a similar situation to your friend - the ped. has

said not to worry about it - " it's NORMAL to have a flat head "

AAAAARGH (sorry to vent on your post!) Anywhoo, try to relax and see

what happens. Her baby is still nice and young, where if things

didn't work out with the STARband (which I truly hope they do) she'll

still have time to go to CT if need be...

Kerri

's mom

>

>

>

>

>

> > I guess I am really turning into the overbearing Plagio Police and

> > everything that goes with that...

> >

> > I just don't understand why I feel like (sometimes) as if I am

the

> only one

> > who is concerned about flat heads and torticollis and getting it

> corrected

> > -- and getting the best possible treatment out there that exists -

-

> even if

> > it requires some sacrifice on my part...

> >

> > My friend is heading to the neuro on Thursday for her 3 month old

> who has

> > plagio. While she may have had some success with repositioning,

> the

> > flatness still exists along with the favoring of that side. In

> addition to

> > that, since I just saw her last weekend, her daughter has

> torticollis. It

> > is pretty evident to me by seeing her and looking at all the

> pictures of

> > her. In addition, since my SIL is a PT, and it was the first

> thing she

> > noticed - just reaffirms my thinking. Her pediatrician

says " no " ,

> so my

> > friends believes him. I could send you all pictures of her

> daughter and

> > GUARANTEED you would think the same.

> >

> > My friend lives in Boston and will be going to Children's

Hospital

> for the

> > neuro visit. I have heard several stories about some getting

> referred to

> > NOPCO and some to other places - for the local helmets and as of

> late,

> > StarBands. I have heard more negative than positive experiences

> about both.

> >

> >

> > Not to toot CT's horn again (as I always do), but I have found it

> a very

> > rare occurence to hear something negative about DOC Bands the

> product and/or

> > treatment, and orthotists. I for one, have only positive things

> to say

> > about them. I am sure people have had bad experiences, don't get

> me wrong -

> > I'm just saying that the ratio of bad vs. good is much lower in

my

> opinion.

> > The closest location for her is in Clinton, CT and is 1 hr. 20

> minutes away.

> >

> >

> > She tells me, " ...after reading all that stuff [good and bad]

that

> I am

> > definitely telling him not to send me to the NOPCO place...that I

> want a

> > StarBand...I'm just not into driving to Clinton every two weeks,

> it'll be

> > too much of a pain with [son] in the car too. "

> >

> > I'm fine with this, but then I hear another bad experience with

> the StarBand

> > - so I guess that I need someone to convince me that she'll be

> fine with the

> > STARBand in the Boston area...Although I'd wish she would put her

> own

> > inconveniences aside and go to CT (I'm biased, I guess).

> >

> > Thanks for listening -

> > Rhonda

> >

> > Mom to Collin - DOC Band Grad 2003

> > < http://www.collingillespie.com/

<http://www.collingillespie.com/> >

> www.collingillespie.com

> > www.preciousbambino.com < http://www.preciousbambino.com/

> <http://www.preciousbambino.com/> >

>

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