(was) stopping med?/ Mindy (now) Rae and her suggestions/comments

[Guest guest]

Rae, you've made some assumptions that just aren't true--at least for me. First off there isn't any city bus service here. We live in a very small community without public transportation. I believe there is still a service in this area for low income disabled but that won't help me. Your suggestions may very well help some of the others on the group though. If it was an emergency I would, of course, get to the doctor. But it's not an emergency so I can wait a few weeks. Not a biggie.

You seem to think I'm 'homebound', but I am not. I go shopping and go to lunch with friends as I want to. As far as doctor's visits go for me--because my doctors are at a considerable distance away I must coordinate my appointments with busy family members who have busy jobs of their own. I don't think I'm a 'burden' on anyone but I would be if I demanded a ride from family whenever I decided to go to the doctor, wouldn't I? Lol

Sharon (MSersLife creator/owner)

Keep true to the dreams of thy youth. (Albert Einstein)

Re: stopping med?/

I've been back on the Avonex for about 1.5 years. The first six month's is HELL but I've adjusted and now I only have a reaction like every third shot and it's nowhere near as bad as the first six months. I kinda wanted to try something different this time but both my neuro and the other neuro in town believe in Avonex. Something about immunity problems with the others???? Don't really understand the gobbldegook. But I take lots of supplements. ..b12, omega oils, mineral supplements, cranberry, ginko, daily vit, and I even chew an extra vit c tab every day. Many of my vitamins are in liquid form. I really believe in the absorbtion issue. I, also, started the SWANK diet and while haven't stuck to it religiously, I haven't eaten any red meats in four months. Not sure if it's "fixed" my MS but I've lost 28lbs (without excercise) and the whole "low-fat" thing has controlled my irritable bowel syndrome. So...I do

believe in nutrition, supplements and the meds!Mindy>

> > > > > > When did you stop all CRAB drugs? Just wondering> > > if> > > > it's been long enough for results to show on an> > > MRI.> > > > I felt so good when I stopped Avonex and it > > > lasted> > > > for a good while. But my symptoms have gotten > > > so> > > > much worse in the last year. I sure do regret my> > > > decision to stop Avonex. I fear that I may have> > > > wrecked my life by that decision.> > > > > > > > I sincerely hope you continue to do well, Akiba.> > > > > > > > Sharon> > > > > > > > > > > > > > > > > "Insanity runs in my family. It practically> > > gallops."> > > Cary Grant> > > > > > ____________

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