Guest guest Posted August 2, 2001 Report Share Posted August 2, 2001 Hi : I have had a CPAP machine for almost a year. All I had done was the overnight sat monitoring but it showed plenty. There were enough variations that they were able to determine I was coming near wakening about once a minute, was desaturating (my O2 sats went as low as 85, they were never that low with my asthma attacks) and my pulse was all over the place. I had theorized for awhilethat part of my airway was collapsing. I got he name of a US doc from someone on the list here and spoke with him for about half an hour. He said there were several problems he has seen in EDS: the pharynx collapses, particularly as the person gets to about stage 3 then the distress from this happening either wakes the person or brings them back to stage 1, so they never get any REm sleep. He also said he thought the muscular support around the airways was insufficient from the EDS and finally that the diaphragm is weak. My physio was able to check the diaphragm and surprise surpriose, mine is very weak. They didnt do the full sleep study because the doc didnt want me off all my meds (like the narcotics, the carnitor, etc) for 2 weeks and given my sleep problems, she thought I might not even get to sleep when I went for the test. I was diagnosed with a mixed sleep disorder, which is the most difficult to treat asthere are so many factors contributing and it isnt just one problem - i have problems getting to sleep, staying asleep, waking and not getting back to sleep then sometimes excessive sleep Hope this helps Hugs, Joyce Quote Link to comment Share on other sites More sharing options...
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