Guest guest Posted September 4, 2002 Report Share Posted September 4, 2002 Thinking about it is probably not an issue, as most Companies insist on a medical which would show up the Igan anyway, if it was already apparent. Interestingly I had a BUPA Health Screen only a few years before I showed signs of igan during my first pregnancy and this did not turn up any problems. Mind you, when documenting my height, they managed to miss off two inches, so who knows how accurate the other tests were! Don't worry, I'm not going to grass on anyone! Frances Pierre, I've been thinking about what you wrote about being turned down for your big promotion. Some things are meant to be. You are doing a pretty good job at commanding this group, so perhaps we could be your battalion (as long as you don't want to get us involved in war like some other unmentionable people). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2002 Report Share Posted September 4, 2002 Just one clarification: kidney failure may be considered a disability (it certainly is where I live - but that means end-stage renal disease), but IgAN itself isn't, unless there are some pretty bad symptoms along with it. Luckily, most people don't fall into that category. Pierre telling people > > > > After reading Derrick's recent post I'm curious. Do many of the > > group tell co-workers about their IGAN? I know when you don't look > > sick people sometimes they think you are just angling for attention. > > I work in a bunch of awesome nurses and they understand chronic > > illness and renal disease. I don't wear a t-shirt with IGAN on it > > but it often comes up because we talk about health. In some of my > > other jobs where my co-wokrs have no health background I just skip it > > because like Derrick said " their eye just glss over " > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2002 Report Share Posted September 4, 2002 In my case, the sheer fact that I was in and out of hospital with infections that go out of control, and all the time I was absent, that led to me being examined by a Occupational Health doctor appointed by my firm. In fairness they allowed me plenty of opportunities to go part-time, flexi hours etc etc, but in the end they deemed me unfit to work in my capacity as PA, and as all my medics were insisting I take a good long look at what I was doing, I accepted the inevitable 'Pensioned Off'. After going through all the 'why me' and 'its not fair' modes, I now realise they had only my best interests at heart, I simply was not able to perform my duties. My IGAN has been recognised as disability, but only because I get such shocking symptoms along with it, which seem to affect other part of me, I firmly believe that IGAN on its own, would not be accepted as disability in the UK. Bang that together with my other problems, makes me a fair case I think for disability. That said, I still do miss my work sometimes, but on days of feeling totally awful, it never enters my head, nor does it when it is minus temperatures outside, and I would have been scraping ice off the car at 6 am! Can't have it all I guess. If I had my time again, would I tell everyone if I could avoid it, definitely not, it certainly did me no favours at all. Re: Disclosure? Just one clarification: kidney failure may be considered a disability (it certainly is where I live - but that means end-stage renal disease), but IgAN itself isn't, unless there are some pretty bad symptoms along with it. Luckily, most people don't fall into that category. Pierre telling people > > > > After reading Derrick's recent post I'm curious. Do many of the > > group tell co-workers about their IGAN? I know when you don't look > > sick people sometimes they think you are just angling for attention. > > I work in a bunch of awesome nurses and they understand chronic > > illness and renal disease. I don't wear a t-shirt with IGAN on it > > but it often comes up because we talk about health. In some of my > > other jobs where my co-wokrs have no health background I just skip it > > because like Derrick said " their eye just glss over " > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2002 Report Share Posted September 4, 2002 Thank you NY for the info and thanks for the clarification Pierre, at what point are you considered at " end stage " from a legal standpoint? Connie, USA Re: Disclosure? Just one clarification: kidney failure may be considered a disability (it certainly is where I live - but that means end-stage renal disease), but IgAN itself isn't, unless there are some pretty bad symptoms along with it. Luckily, most people don't fall into that category. Pierre telling people > > > > After reading Derrick's recent post I'm curious. Do many of the > > group tell co-workers about their IGAN? I know when you don't look > > sick people sometimes they think you are just angling for attention. > > I work in a bunch of awesome nurses and they understand chronic > > illness and renal disease. I don't wear a t-shirt with IGAN on it > > but it often comes up because we talk about health. In some of my > > other jobs where my co-wokrs have no health background I just skip it > > because like Derrick said " their eye just glss over " > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2002 Report Share Posted September 4, 2002 Just to add to et al, certainly in the UK I would advise anyone with igan to cling tightly to their jobs. it took me 7 months to get a new job when I lost mine because I was a middle manager (or should that be muddle?) and all the jobs I applied for had medical questionnaires with them. Unlike the US of A its not illegal to decline someone because of a medical condition in the UK. If I understand 's final point though I think I mildly disagree with her, here diseases like IgAN should be classed as a disability with graded eligibility to rights simply because UK law is much more protective of people with disabilities. Lets look at things objectively,if I was an employer and I had a prospective employee who had about a 30% of kidney failure and the buildup to it within their working life, would I take them? Employers when faced with choices tend to take the easy option Here endeth the opinion:-) ps Blame Connie, she said I was too quiet!!lol telling people > > > > > > > After reading Derrick's recent post I'm curious. Do many of the > > > group tell co-workers about their IGAN? I know when you don't look > > > sick people sometimes they think you are just angling for attention. > > > I work in a bunch of awesome nurses and they understand chronic > > > illness and renal disease. I don't wear a t-shirt with IGAN on it > > > but it often comes up because we talk about health. In some of my > > > other jobs where my co-wokrs have no health background I just skip > it > > > because like Derrick said " their eye just glss over " > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2002 Report Share Posted September 4, 2002 Frances, It would be my kinda luck that it would be my weight that was off by 2 numbers, IE; 150lbs to 350lbs! Connie, USA Re: Disclosure? Thinking about it is probably not an issue, as most Companies insist on a medical which would show up the Igan anyway, if it was already apparent. Interestingly I had a BUPA Health Screen only a few years before I showed signs of igan during my first pregnancy and this did not turn up any problems. Mind you, when documenting my height, they managed to miss off two inches, so who knows how accurate the other tests were! Don't worry, I'm not going to grass on anyone! Frances Pierre, I've been thinking about what you wrote about being turned down for your big promotion. Some things are meant to be. You are doing a pretty good job at commanding this group, so perhaps we could be your battalion (as long as you don't want to get us involved in war like some other unmentionable people). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2002 Report Share Posted September 4, 2002 , I agree, it would be easier to take initially if YOU were the one to make the decision to not work rather than have yourself labeled as " unfit to work " . How long have you been off? As I advance with IgAN, I can really understand that there may be a time when it will be more difficult to hold down the demands and work schedule associated with being employed full time. Connie, USA Re: Disclosure? Just one clarification: kidney failure may be considered a disability (it certainly is where I live - but that means end-stage renal disease), but IgAN itself isn't, unless there are some pretty bad symptoms along with it. Luckily, most people don't fall into that category. Pierre telling people > > > > After reading Derrick's recent post I'm curious. Do many of the > > group tell co-workers about their IGAN? I know when you don't look > > sick people sometimes they think you are just angling for attention. > > I work in a bunch of awesome nurses and they understand chronic > > illness and renal disease. I don't wear a t-shirt with IGAN on it > > but it often comes up because we talk about health. In some of my > > other jobs where my co-wokrs have no health background I just skip it > > because like Derrick said " their eye just glss over " > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2002 Report Share Posted September 4, 2002 Good job I employ myself I think! Sally. Re: Disclosure? Just to add to et al, certainly in the UK I would advise anyone with igan to cling tightly to their jobs. it took me 7 months to get a new job when I lost mine because I was a middle manager (or should that be muddle?) and all the jobs I applied for had medical questionnaires with them. Unlike the US of A its not illegal to decline someone because of a medical condition in the UK. If I understand 's final point though I think I mildly disagree with her, here diseases like IgAN should be classed as a disability with graded eligibility to rights simply because UK law is much more protective of people with disabilities. Lets look at things objectively,if I was an employer and I had a prospective employee who had about a 30% of kidney failure and the buildup to it within their working life, would I take them? Employers when faced with choices tend to take the easy option Here endeth the opinion:-) ps Blame Connie, she said I was too quiet!!lol telling people > > > > > > > After reading Derrick's recent post I'm curious. Do many of the > > > group tell co-workers about their IGAN? I know when you don't look > > > sick people sometimes they think you are just angling for attention. > > > I work in a bunch of awesome nurses and they understand chronic > > > illness and renal disease. I don't wear a t-shirt with IGAN on it > > > but it often comes up because we talk about health. In some of my > > > other jobs where my co-wokrs have no health background I just skip > it > > > because like Derrick said " their eye just glss over " > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2002 Report Share Posted September 4, 2002 Connie, I have been away from work now for just over 2 yrs, but it still seems like only yesterday. Re: Disclosure? Just one clarification: kidney failure may be considered a disability (it certainly is where I live - but that means end-stage renal disease), but IgAN itself isn't, unless there are some pretty bad symptoms along with it. Luckily, most people don't fall into that category. Pierre telling people > > > > After reading Derrick's recent post I'm curious. Do many of the > > group tell co-workers about their IGAN? I know when you don't look > > sick people sometimes they think you are just angling for attention. > > I work in a bunch of awesome nurses and they understand chronic > > illness and renal disease. I don't wear a t-shirt with IGAN on it > > but it often comes up because we talk about health. In some of my > > other jobs where my co-wokrs have no health background I just skip it > > because like Derrick said " their eye just glss over " > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2002 Report Share Posted September 5, 2002 I never thought about promotion or discrimination. There have never been any medical questions for my jobs except " am I physically capable of doing the work? " , which has never been a problem so far. My current job was far more concnerned that my vaccinations were upto date, in case I have contact with children. I work in a call center not accessible to the public, go figure I now know I am lucky to work in a supportive environment. Co-workers have disclosed celiac disease, heart conditions, irritable bowel disease, and kidney transplant(not IGAN related)and there has never been any bad outcomes from that. It is kind of ironic, one of the things I do at work is monitor hemodialysis clients around the province on home nocturnal dialysis. There have been more questions about my kidney disease since the orientation we had for that. Sara H Quote Link to comment Share on other sites More sharing options...
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