To Christie

[Guest guest]

Message text written by INTERNET:onelist

>My PCP and specialists say I'm too complicated for them to deal with - I

hope you are having better luck with yours!

Take care,

Christie

tab@...

<

There IS someone out there to handle it; it might take going to a different

specialist for each 'system' like an endocrinologist for thyroid/hormonal

area, a neurolgist for pain/neuro symptoms and a rheumotolgosit for muscle

or joint pain and an immunologist for viral or immune things. I would give

anything to tell you that one doc would coordinate all of this, and handle

the info as a center but they tend to have 20 minutes allotted per patient

and couldn't if they wanted to. I hope you get to see the right docs for

the right problems. Is there a local support group that can recommend a

better physician? This is not the end of the line, you are NOT receiving

the best care you need and deserve.

Christa R

[Guest guest]

Hi,

I have a million specialists!! BUt they forget the knee bone is connected,

etc! And tell me to see PCP. Under my insurance, I must have PCP to

manage my case. Also, my husband doesn't pay medical bills, my mother has.

And neither of them approve of me going to doctors and I am under constant

criticism. My daughter just says I cannot change them, so if I can't get

medical care then just accept it!

I am very sick right now, and on prednisone which I do not tolerate well at

all, so please forgive my mood. I have so little control or support in my

life that it has seriously gotten to me.

ENDO wanted me to take florinef when I actually have high BP, even tho it

gets low sometimes when standing. I also cannot stand for any length of

time without getting hot and nearly fainting. Yet bp has been as high as

200/110. But he was unconcerned about rest of my history.

Immunologist says there is nothing wrong with immune system, but I'm on

antibotics all the time for infection and I have autoimmune disease!

Rheum at U of Michigan told me to go home, stop worrying about not being

able to function and join a gym, although exercise brings on infection and

days of bed rest!

ANd that mycoplasma is not cause of disease and use of interferon is

totally out of the question.

Regular Rheum believes me, but will not even read 's info on

interferon and neither will any other doc!

And now PCP says, as others, that I'm too complicated and therefore does

not want to deal with me. All while I cannot breathe, move with out

falling -says that is ONLY my word and does not constitute objective

evidence of anything. Also am not keeping food in, but again my word has

no place here.

I hope you are right, but I've been through a few docs. Lately, since

managed care, health care has become a business only, withdocs rushing pts.

through while they collect their fees & purchase their 3rd homes and

country club memberships. HMO's are dropping pts. over 65 because it is

unprofitable to treat them!

Well, I'm just plain mad! There is no responsibility toward our fellow

humans! It's all about what's in it for me. This attitude is human

nature, but it has gotten out of hand. And while I have been confident in

the past to handle any situation, I am losing this battle. I feel that

I'm being told to just go away from SSD to family, and am wondering if it

is worth the while anymore. I NEVER have felt this way in my life = never

been a quiter, ever! But now I have too many weights and am losing hope.

I must stop this rant, but I meant each word!! I am an educated person,

did what I was supposed to do, and while life isn't fair, I hate being

punished for things that are beyond my control as getting sick. My fault -

I take it back!

Mad as H*** in MI,

Christie

><

>

>There IS someone out there to handle it; it might take going to a different

>specialist for each 'system' like an endocrinologist for thyroid/hormonal

>area, a neurolgist for pain/neuro symptoms and a rheumotolgosit for muscle

>or joint pain and an immunologist for viral or immune things. I would give

>anything to tell you that one doc would coordinate all of this, and handle

>the info as a center but they tend to have 20 minutes allotted per patient

>and couldn't if they wanted to. I hope you get to see the right docs for

>the right problems. Is there a local support group that can recommend a

>better physician? This is not the end of the line, you are NOT receiving

>the best care you need and deserve.

>

>Christa R

>

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[Guest guest]

Christie,

You're in an awful spot and have every right to feel terrible, both

physically and mentally. Your array of doctors seem like they belong in a

museum of atrocities. Is you PCP a bit more lenient? You may ask him to

test you for DIC through Hemex. It's covered by most insurances and, if you

are positive, and you certainly sound as if you will be moderately, not if

low, positive, perhaps the result and a talk between the PCP and Berg

at Hemex may make him take you much more seriously and try the protocol for

that since he's found black and white results. I've spoken recently to some

who began the protocol and they've found improvement after just weeks.

Just a thought that might help.

Gail

[Guest guest]

Message text written by INTERNET:onelist

>I must stop this rant, but I meant each word!! I am an educated person,

did what I was supposed to do, and while life isn't fair, I hate being

punished for things that are beyond my control as getting sick. My fault -

I take it back!

Mad as H*** in MI,

Christie<

You're right, you're right, you're right. Keep that anger and passion

directed at not accepting doc's statements like 'go to the gym'. It's a

shame that when we are at our weakest point and really, really need good

care, it's so much work and constant struggle. I'm in the same place

myself. The endocrinologist I saw because of missed periods thought I

should have a baby to make me happy. Sigh, move on...

So I just want to say that at this time in history, we do have to deal with

a great deal of resistance and disbelief but the good ones are out there...

I know because i'm still looking but determined!

Christa R

[Guest guest]

Hi Christie

> Well, I'm just plain mad! There is no responsibility toward our fellow

> humans! It's all about what's in it for me. This attitude is human

> nature, but it has gotten out of hand. And while I have been confident in

> the past to handle any situation, I am losing this battle. I feel that

> I'm being told to just go away from SSD to family, and am wondering if it

> is worth the while anymore. I NEVER have felt this way in my life = never

> been a quiter, ever! But now I have too many weights and am losing hope.

>

> I must stop this rant, but I meant each word!! I am an educated person,

> did what I was supposed to do, and while life isn't fair, I hate being

> punished for things that are beyond my control as getting sick. My fault -

> I take it back!

Boy, I couldn't have said it better. I have been ill for 21 years and that was

the same level of care I got and just gave up! I started going to a Nurse

Practitioner who was sympathetic and

willing to listen and write any Rxs. I read about and wanted to try. The

medical system STINKS. They don't care about suffering, or sick people,

especially sick POOR people, who have lost their

earning capacity.

I feel as you do, like I've been punished for something unknown by all the bad

judgements from my friends, family and med. profession. As a rule we CFSers are

a hardy lot, and we keep struggling

on in spite of no support (after we always gave it to others) and terrible

opposition! You will come through this! Write to me any time you need to

" vent " I have been there and completely

understand!!!

Take care and hang in there. Someday we will find a cure and then some docs,

friends and familly better RUN FOR COVER!!!

Marcia

[Guest guest]

Dear Gail,

Thank you for writing. My PCP doesn't want to manage my case because I'm

" beyond her scope. " This is OK as she has refused to see me during this

horrible flare of past weeks, and before that for pneumonia. I have a new

DR in Family Practice who is open minded and has different slant of many

things. He actually believes the patient and says medical doesn't know

everything! Imagine that! In testing he found I had been exposed to Lyme

or ricketesia, and feels I have bacterial infection that could be

chlamydia, mycoplasma or - and I cannot read his writing here, ureaplasma

(sp?). He wants me to take minocycline and Z-max for a year to more.

In addition, I have signs and symptoms of cardio-vascular disease, which is

strange because I always exercised and ate low fat. But I have had retinal

infarcts, narrowed vessels - hardening of arteries, mitral valve stenosis,

edema, high BP - although upon standing or standing any length of time

makes me feel hot and faint. Doesn't make sense, does it? Also am

positive for anti-cardiolipin antibody. Now this docs testing shows I have

Elevated Homocysteine which is strong predictor of mortlity in PT's with

documentated CAD! I have never heard of this and was wondering if anyone

else has. To treat this, I'm to eat fruits, veggies, whole grains (not

bread) beans and flax seeds.

The emphasis is on Whole foods. I have low blood sugar so I eat meat,

which he wants me to cut out - says I can ger protein from beans, but carbs

make me feel faint. So I will be adding fish and lean poultry. Can't

believe starches will help with weight loss - they never have before, but

now heart comes first! BTW, I had CFIDS dx before heart DX'es.

This doc feels that bacterial and viral infections can attack major organs

and says that autopsies are showing this to be true. He even questions the

concept of autoimmune disease - that the body makes antibodies against own

tissues, and again feels that some sort of infection could be root cause.

And there is evidence that antibotic treatment works in some autoimmune

disease as scleroderma, and even have friend, a nurse, who did the

research, presented to her DR, and is doing well on same treatment as I am

getting.

He encouraged me to research as much as I can and asked me to do a search

on a DR called Mirkin. Have you ever heard of him? I haven't had time to

search yet, but I will be doing this. In addition, he will set me try low

dose interferon only after infection is cleared up. I sure hope I'm on

right track!

It seems that CFIDS is really a bunch of things - like cancer, and still a

poorly understood disease. This new doc doesn't think in terms of cfids or

lupus, but tries to get at root of problem as best he can with what

information is available. So I hope I'm on right track here to.

Traditional medicine certainly has not helped and has probably done me more

harm than good.

Well, I will end this long post and thank you and for this list.

This and lupus list are only ones I don't take in digest and consider them

my " home lists. " It is so important to be as educated and up to date as

possible, and this list does a great job at serving this purpose.

Thank you all for listening and being out there in cyber space!

CHristie

tab@...

At 11:14 AM 5/28/99 EDT, you wrote:

>From: GAILRONDA@...

>

>Christie,

>You're in an awful spot and have every right to feel terrible, both

>physically and mentally. Your array of doctors seem like they belong in a

>museum of atrocities. Is you PCP a bit more lenient? You may ask him to

>test you for DIC through Hemex. It's covered by most insurances and, if you

>are positive, and you certainly sound as if you will be moderately, not if

>low, positive, perhaps the result and a talk between the PCP and Berg

>at Hemex may make him take you much more seriously and try the protocol for

>that since he's found black and white results. I've spoken recently to some

>who began the protocol and they've found improvement after just weeks.

>Just a thought that might help.

>Gail

>

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discussed here, please consult your doctor.

>

>

[Guest guest]

Dear Gail,

Thank you for writing. My PCP doesn't want to manage my case because I'm

" beyond her scope. " This is OK as she has refused to see me during this

horrible flare of past weeks, and before that for pneumonia. I have a new

DR in Family Practice who is open minded and has different slant of many

things. He actually believes the patient and says medical doesn't know

everything! Imagine that! In testing he found I had been exposed to Lyme

or ricketesia, and feels I have bacterial infection that could be

chlamydia, mycoplasma or - and I cannot read his writing here, ureaplasma

(sp?). He wants me to take minocycline and Z-max for a year to more.

In addition, I have signs and symptoms of cardio-vascular disease, which is

strange because I always exercised and ate low fat. But I have had retinal

infarcts, narrowed vessels - hardening of arteries, mitral valve stenosis,

edema, high BP - although upon standing or standing any length of time

makes me feel hot and faint. Doesn't make sense, does it? Also am

positive for anti-cardiolipin antibody. Now this docs testing shows I have

Elevated Homocysteine which is strong predictor of mortlity in PT's with

documentated CAD! I have never heard of this and was wondering if anyone

else has. To treat this, I'm to eat fruits, veggies, whole grains (not

bread) beans and flax seeds.

The emphasis is on Whole foods. I have low blood sugar so I eat meat,

which he wants me to cut out - says I can ger protein from beans, but carbs

make me feel faint. So I will be adding fish and lean poultry. Can't

believe starches will help with weight loss - they never have before, but

now heart comes first! BTW, I had CFIDS dx before heart DX'es.

This doc feels that bacterial and viral infections can attack major organs

and says that autopsies are showing this to be true. He even questions the

concept of autoimmune disease - that the body makes antibodies against own

tissues, and again feels that some sort of infection could be root cause.

And there is evidence that antibotic treatment works in some autoimmune

disease as scleroderma, and even have friend, a nurse, who did the

research, presented to her DR, and is doing well on same treatment as I am

getting.

He encouraged me to research as much as I can and asked me to do a search

on a DR called Mirkin. Have you ever heard of him? I haven't had time to

search yet, but I will be doing this. In addition, he will set me try low

dose interferon only after infection is cleared up. I sure hope I'm on

right track! He doesn't really recommend supplements,(strong believer in

diet and infection treatment) but I'll do anything to boost immune system

and am going to start Designer Protein and Life Extension Protein from LEF.

Would someone give me a number?

It seems that CFIDS is really a bunch of things - like cancer, and still a

poorly understood disease. This new doc doesn't think in terms of cfids or

lupus, but tries to get at root of problem as best he can with what

information is available. So I hope I'm on right track here to.

Traditional medicine certainly has not helped and has probably done me more

harm than good.

Well, I will end this long post and thank you and for this list.

This and lupus list are only ones I don't take in digest and consider them

my " home lists. " It is so important to be as educated and up to date as

possible, and this list does a great job at serving this purpose.

Thank you all for listening and being out there in cyber space!

CHristie

tab@...

At 11:14 AM 5/28/99 EDT, you wrote:

>From: GAILRONDA@...

>

>Christie,

>You're in an awful spot and have every right to feel terrible, both

>physically and mentally. Your array of doctors seem like they belong in a

>museum of atrocities. Is you PCP a bit more lenient? You may ask him to

>test you for DIC through Hemex. It's covered by most insurances and, if you

>are positive, and you certainly sound as if you will be moderately, not if

>low, positive, perhaps the result and a talk between the PCP and Berg

>at Hemex may make him take you much more seriously and try the protocol for

>that since he's found black and white results. I've spoken recently to some

>who began the protocol and they've found improvement after just weeks.

>Just a thought that might help.

>Gail

>

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>

>Discuss your thoughts; get informed at ONElist. See our homepage.

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>This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

[Guest guest]

Dear Marcia, Ellice, ,

Thank you so much for your kind words. Something different is happening

with my body and it is just plain scary! But the attitudes of medical and

other people are really what make being sick the pits as you point out.

I take a Fibro list in digest and hardly ever read it but last night I did.

A Woman with Fm and diabetes was in trouble and posted a goodbye to the

list. She has neuropathy in hands and cannot self-inject, she had no money

or food and could not drive. She asked a couple of friends for help and

was refused. Then she called a couple of churches and again was refused

help. A list member(who is dispatcher for 911) on west coast took her

post seriously and located this woman, and called paramedics. They said

she would have been dead in another half hour due to High BP and high

glucose. She wasn't trying suicide - she knew she was dying and that no

one cared - expect a few wonderful people on this list, who are now trying

to get assistance for her in terms of money, food, someone to help in home.

She has no family, is on SSDI. Talk about falling through the cracks!

And she is in this position merely for getting sick.

I was getting into advocacy efforts with lupus foundation, but now if I get

any better, I would like to put my efforts into bringing out into the open

cases as this. No one, especially in USA should be treated in such a

fashion. I have a friend who didn't know these things even went on until I

got sick and saw my battles with SSD, family, friends, DR's. And generally

people do look away, say they can't handle it, or blame the ill person. In

addition, there is little or no political will to address these issues at

this time. We are in a selfish period in our history in which it truly

each person for themselves with little regard to our responsibility

torwards each other. As a society, we have a history of the rugged

individual making it on his own, but it has become much too extreme.

I feel to ill and brain fogged to even think what to do! I used to be so

competent and this is so hard to be so disabled! But does anyone feel the

way I do about these issues? I want so much to get involved and can hardly

get through my mail! I wonder how all the activists did what they did

while being so sick?? I just know that I want to get into some sort of

action if I can, and for once in my life, I don't know where to start! Do

any of the activists have any suggestions, comments - I would appreciate

any input.

Again, thanks for listening,

CHristie

[Guest guest]

Christie, there is a small group attemping to help the patients with cFS who

have fallen through the cracks. It's called CFIDSERS (CFIDS Emergency Relief

Services) and it has fund-raisers just beginning. You can e-mail Sheryl for

more information on how to help and where to refer these people. They can

use all the help they can get:

SAJEFFE@...

Gail

[Guest guest]

Hi Christie

This is Dianne. I have an e-mail with my name on it from you, but for some

reason I couldn't open it. Could you please send it again. This happens

occasionally, but I don't know why.

I talked to a friend of mine yesterday. She said her son's teacher was

manic-depressive and his insurance company wouldn't pay for his medication

because it was a chronic illness, not an acute one. He couldn't afford the

medication, didn't take it, got very depressed and killed himself. Has

anyone else had this problem with insurance companies since ours is

definitely a chronic condition? I hope his family sues the H--l out of them.

Dianne

[Guest guest]

Message text written by INTERNET:onelist

>I have a new

DR in Family Practice who is open minded and has different slant of many

things. He actually believes the patient and says medical doesn't know

everything! <

Christie;

I'm SO encouraged but your finding this person!! Your other doc, if at

least admitting you were 'beyond their scope (aka ability!) should have

sent you to someone very, very much more qualified!!! I'm a little better

about this. When someone says that a problem is not something they really

handle, they expect you to just leave and 'live with it'. Now I ask, in a

nice way, for someone they can recommend who CAN handle it.

Why they don't, I'll never understand. It's another unfortunate example of

the clear need for the patient to do the driving.

love,

Christa R

[Guest guest]

>I'm SO encouraged but your finding this person!! Your other doc, if at

>least admitting you were 'beyond their scope (aka ability!) should have

>sent you to someone very, very much more qualified!!! I'm a little better

>about this. When someone says that a problem is not something they really

>handle, they expect you to just leave and 'live with it'. Now I ask, in a

>nice way, for someone they can recommend who CAN handle it.

>

>Why they don't, I'll never understand. It's another unfortunate example of

>the clear need for the patient to do the driving.

>

>love,

>Christa R

>

Dear Christa,

My PCP keeps sending me to specialists, who in turn tended to send me

elsewhere - excpect for the RHEUM at U of Michigan who told me to join a

gym. And yes, I believe PCP expects me to " live " with it. What I cannot

forgive is her indifference during this crisis - there are times when we

cannot do the driving - literally and figuratively, and need our doctor to

do their job!

Thanks for writing,

Christie

tab@...

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[Guest guest]

te:

>From: FDSCAFE@...

>

>Hi Christie

>

>This is Dianne. I have an e-mail with my name on it from you, but for some

>reason I couldn't open it. Could you please send it again. This happens

>occasionally, but I don't know why.

>

Dear Dianne,

Was it addressed to list or to you? I don't see your addy in my outbox,

but I'll keep looking.

talked to a friend of mine yesterday. She said her son's teacher was

>manic-depressive and his insurance company wouldn't pay for his medication

>because it was a chronic illness, not an acute one. He couldn't afford the

>medication, didn't take it, got very depressed and killed himself. Has

>anyone else had this problem with insurance companies since ours is

>definitely a chronic condition? I hope his family sues the H--l out of

them.

Sometimes I think our gov't, health insurance co's, and medical profession

are trying to kill the sickest of us off by denying needed care. I don't

mean to sound like nutcase, but I just see too many horror stories as this

one and the one I wrote about yesterday.

take care,

CHtisrie

[Guest guest]

Christie,

Yes,I would recommend Advanced OrthoPro! They are super nice & have been

doing this for about 8 yrs or so.

Luke is doing great,having a great time playing with his brothers.He still

has a bit of a flat spot but he was nearly a year old when treatment began

so I didn't expect 100% correction.

I attached a pic (notice the dump truck)

Let me know if I can help in any other way.

Kelli & Luke (20 mos old,helmet grad)

Indiana

Q about Advanced OrthroPro from Christie at Group

> Kelli,

>

> I don't know if you remember me, but you were kind enough to help me

> find an orthotist close to Lexington, Kentucky for my daughter,

> Remy. We ended up with successful results from repositioning, so we

> opted not to get a helmet. Thank you so much for helping me, though!

>

> Anyway, there is a new member on the plagio board who lives in

> Louisville. She inquired about nearby orthotists, so I gave her the

> name, address, and phone for Advanced OrthoPro, but couldn't give

> her a review of treatment there since I didn't use it. Would you

> recommend this center? If you have time, you can let me know by

> email, or post a note on the board.

>

> Thank you for any help, and I hope you and Luke are doing great!

>

> Take care,

>

> Christie Kline

>

>

>

>

[Guest guest]

Hi There,

Congrats on your pregnancy! You know so much more about this than I

do. However, I just took my son to a cranialfacial specialist on

Tuesday. I think she was trying to convince me it wasn't my fault,

but she said that plagio is most common in first borns. I thought it

was because after that we know sooo much more, but she said maybe it

was because our uterus is tighter. Just thought I'd try to give you

some peace of mind on baby #2. Either way, you will be the perfect

mommy for baby, and know just what to do!

Melany, Kody's Mommy

Dallas

In Plagiocephaly , " redlocks2003 " <redlocks@i...>

wrote:

> Hi ,

>

> Welcome to the group!

>

> I'm so sorry that you didn't receive any support as far as your

> older son's diagnosis. My daughter's ped was the same exact way,

> but by some stroke of luck, I came upon this group when she was 5

> months old, and was able to reposition her successfully. If you

> would like to see her progress photos, they are in the

photos/before

> and after/repositioned folder.

>

> I can totally sympathize with the nighttime repo dilemma you are

> having with your daughter! I am currently pregnant, and, even

> though I don't know of any science to back it up, I believe it is

> likely my new baby could be excessively susceptible to head-

> flattening also. My daughter Remy, by some miracle, started to

> sleep on her sides all on her own at about 5 months. This was a

> huge help with repo'ing! I truly belive that nighttime repo

success

> is key to getting good repo results.

>

> Once the babies start really wriggling around at about 5 months, it

> can be difficult to use the sleep positioners. I don't know about

> the Graco sleep positioner you are talking about, but I'll keep

> searching the internet. If you are familiar with the design of the

> peaked pillow, you may be able to fashion one of your own to attach

> to an existing positioner. Some parents have ordered custom sized

> memory foam, etc. from www.foamorder.com to fashion some home-made

> repo ideas. There are some other neat ideas from our group members

> in the FILES/REPO HEADQUARTERS/REPO PHOTOS sections that you might

> find helpful as a solution to your nighttime repo dilemma. We also

> have a ton of links to repo products in the LINKS/REPO AND TUMMY

> TIME/REPO PRODUCTS folder that you could also check out. As a last

> resort, which we had to do occasionally with Remy, you could

> consider position her next to you in a guest bed, for example, and

> just make sure she stays on her side!! I was desperate for total

> compliance with nighttime repo since we started repo'ing so late at

> 5 months of age, so we had a camera installed over the crib that

> streamed live video to the computer and tv screen. I thought I'd

> never get a decent night's sleep again!

>

> I'd be concerned if her cheek gets so squashed that it's purple for

> most of the day! As mentioned in a previous reply to your post, is

> this sleeping on her cheek a stubbornness thing, or could it be a

> neck range of motion issue such as tort?

>

> I just wanted to congratulate you on the fantastic results you are

> seeing with repo'ing your daughter. I would love to see some

> progress photos if you took any, because they can really provide a

> source of encouragement to repo'ing parents. We currently have

> quite a few parents repo'ing, so I hope they see your post and come

> up with some good ideas for you.

>

> Take care,

>

> Christie (Mom to Repo'd Remy)

>

>

>

> > Hi!

> >

> > I just joined this group and needed some help. My son was born

> with

> > severe plagio, but I didn't realize it was going to be a problem

> > until he was about 4 months old. We were in the process of

moving

> > and didn't get settled until he was 8 months old. I brought it

up

> to

> > his pediatrician and she said " He will grow out of it " . She

> didn't

> > tell me to reposition him or anything. I kept him sleeping on

his

> > back and allowed him to lay on his back during the day in swings,

> > bouncy seats, and so forth. I brought it up when he was 12

months

> > and 18 months old and she said " He will grow out of it. " I

> trusted

> > her and now my son is 3 years old and has a flat head. So much

for

> > trusting. :-) I haven't taken my son to a specialist because

> > basically I don't think there is anything that can be done for

him

> > now. I don't think I want him to have surgery just for cosmetic

> > purposes.

> >

> > Anyhow, my daughter is 5 months old and was born with the most

> > perfect head...only 1 push and her head was out. :-) I had

bought

> > the sleep positioner from One Step Ahead that has the memory foam

> > pillow and I bought the boppy noggin nest and used those both and

> she

> > still got a flat head. I noticed it about a month ago, but didn't

> do

> > anything aggressive. I found the CAPPS website and read a bunch

> > about repositioning. I started a week ago with my daughter and I

> > have already seen results.

> >

> > Now for the problem. She will not sleep on her side. We have

> tried

> > rolling up blankets to wedge her in, using a sleep positioner,

and

> > everything else. She will sleep on her tummy and I'm not too

> worried

> > about that because she can roll over from tummy to back and she

> has

> > awesome head control. The problem is she will not turn her head

> to

> > lay on her right cheek so she is looking out over her left

> shoulder.

> > She doesn't lay flat on the side of her head she lays with her

> left

> > cheek on the mattress. So in the morning she has a red cheek and

> her

> > eye is red and her forehead above her left eye is red. I've gone

> in

> > and tried to turn her head to change positions and she absolutely

> > refuses. I'm afraid if I try too hard I'll break her neck. She

> > doesn't seem to complain about her cheek, but it looks awful when

> she

> > wakes up and it stays that way for almost the whole day.

> Yesterday

> > it was alittle purpleish as well. What is a good way to keep her

> off

> > of the back of her head, but to also make sure she doesn't hurt

> her

> > cheek in the process? I saw a Graco sleep positioner that had a

> > pillow that came to a peak in the middle so it forces the baby to

> > turn their head to the side when they are laying on their

> back...but

> > I can't find it anywhere to buy. Does anyone know where I can

> find

> > one? I'm desperate to not let my little girl suffer the same

fate

> as

> > my son. I don't let the back of her head ever touch anything

> except

> > when she is in her car seat and then I have the noggin nest in

> > there. I'm seeing GREAT results, but I want my little girl to be

> > more comfortable when she sleeps. Any suggestions?

> >

> > Thanks,

> > in Kennewick, WA