Re: Help! StarBand concern

[Guest guest]

The band should not be pushing down on her eye. We had that issue at first with jenna's band but a little trim took care of it. Are you talking about a ring where the opining is on the top of the band? I wouldn't think this should be occurring either. Not all ortho's take measurements. Have you taken photos of your baby's progress? Do you have any photos you can post showing the fit of the band?

Have you discussed your concerns with the ortho on the fit of the band? If so what was their response?

Please keep us posted on what the neuro surgeon says.

Angie and Jenna(STARband grad 1/21/03)

Help! StarBand concern

My baby has had the StarBand for 5 weeks now. We were happy with theinitial results but after continued adjustments are growing concerned.She is getting an indent where the top of the band ends - like a ringaround the top of her head. It's also pushing down on one eye. I'vetaken the band off & am waiting the neuro. surg. to call back. They,University of Iowa, never measured her head to begin with so how willwe know if we are moving in the right direction? They just don't seemto think it's very important. Am now thinking I should have driven the4 hours each way to get a DocBand. Anyone have similar concerns orideas on what to do? Thanks, For more plagio info

[Guest guest]

Thanks so much for your quick reply. The orthotist keeps adjusting

and just says " well it's going to do that a little " (meaning twist

and rub and smooch her eye). I just feel like every time we get it

adjusted it fits worse & worse. She hasn't worn it for 4 days now.

Still awaiting the neuro. but they, obviously, don't seem concerned

either. My husband keeps telling me that they see so many more

important/terrible things every day that this must not be important

to them. But it's so important to us.

I have a digital photo from when she first got the band, will have to

take another with how it fits her now & post.

Thanks,

--- In Plagiocephaly , " Pope " <apope@g...>

wrote:

> The band should not be pushing down on her eye. We had that issue

at first with jenna's band but a little trim took care of it. Are

you talking about a ring where the opining is on the top of the

band? I wouldn't think this should be occurring either. Not all

ortho's take measurements. Have you taken photos of your baby's

progress? Do you have any photos you can post showing the fit of the

band?

>

> Have you discussed your concerns with the ortho on the fit of the

band? If so what was their response?

>

> Please keep us posted on what the neuro surgeon says.

>

> Angie and Jenna(STARband grad 1/21/03)

> Help! StarBand concern

>

>

> My baby has had the StarBand for 5 weeks now. We were happy with

the

> initial results but after continued adjustments are growing

concerned.

> She is getting an indent where the top of the band ends - like a

ring

> around the top of her head. It's also pushing down on one eye.

I've

> taken the band off & am waiting the neuro. surg. to call back.

They,

> University of Iowa, never measured her head to begin with so how

will

> we know if we are moving in the right direction? They just don't

seem

> to think it's very important. Am now thinking I should have

driven the

> 4 hours each way to get a DocBand. Anyone have similar concerns

or

> ideas on what to do? Thanks,

>

>

>

>

[Guest guest]

> > The band should not be pushing down on her eye. We had that

issue

> at first with jenna's band but a little trim took care of it. Are

> you talking about a ring where the opining is on the top of the

> band? I wouldn't think this should be occurring either. Not all

> ortho's take measurements. Have you taken photos of your baby's

> progress? Do you have any photos you can post showing the fit of

the

> band?

> >

> > Have you discussed your concerns with the ortho on the fit of

the

> band? If so what was their response?

> >

> > Please keep us posted on what the neuro surgeon says.

> >

> > Angie and Jenna(STARband grad 1/21/03)

> > Help! StarBand concern

> >

> >

> > My baby has had the StarBand for 5 weeks now. We were happy

with

> the

> > initial results but after continued adjustments are growing

> concerned.

> > She is getting an indent where the top of the band ends - like

a

> ring

> > around the top of her head. It's also pushing down on one

eye.

> I've

> > taken the band off & am waiting the neuro. surg. to call back.

> They,

> > University of Iowa, never measured her head to begin with so

how

> will

> > we know if we are moving in the right direction? They just

don't

> seem

> > to think it's very important. Am now thinking I should have

> driven the

> > 4 hours each way to get a DocBand. Anyone have similar

concerns

> or

> > ideas on what to do? Thanks,

> >

> >

> >

> >

[Guest guest]

Angie,

I just posted Mia's 1st photo with band, it fit pretty well in the

beginning (now is squishing right eye & top of head). We are in Iowa,

University of Iowa is a great Hospital. Just not thrilled right now

with ortho & neuro. Am calling again today. I don't want to just go

in to ortho again for another adjustment because I feel like we are

moving farther away from a good fit.

Thanks again.

> > > The band should not be pushing down on her eye. We had that

> issue

> > at first with jenna's band but a little trim took care of it.

Are

> > you talking about a ring where the opining is on the top of the

> > band? I wouldn't think this should be occurring either. Not all

> > ortho's take measurements. Have you taken photos of your baby's

> > progress? Do you have any photos you can post showing the fit of

> the

> > band?

> > >

> > > Have you discussed your concerns with the ortho on the fit of

> the

> > band? If so what was their response?

> > >

> > > Please keep us posted on what the neuro surgeon says.

> > >

> > > Angie and Jenna(STARband grad 1/21/03)

> > > Help! StarBand concern

> > >

> > >

> > > My baby has had the StarBand for 5 weeks now. We were happy

> with

> > the

> > > initial results but after continued adjustments are growing

> > concerned.

> > > She is getting an indent where the top of the band ends -

like

> a

> > ring

> > > around the top of her head. It's also pushing down on one

> eye.

> > I've

> > > taken the band off & am waiting the neuro. surg. to call

back.

> > They,

> > > University of Iowa, never measured her head to begin with so

> how

> > will

> > > we know if we are moving in the right direction? They just

> don't

> > seem

> > > to think it's very important. Am now thinking I should have

> > driven the

> > > 4 hours each way to get a DocBand. Anyone have similar

> concerns

> > or

> > > ideas on what to do? Thanks,

> > >

> > >

> > >

> > >

[Guest guest]

She is so cute!!! I think you are probably doing the right thing. I would want to talk to her neuro surgeon before anymore adjustments. I hope they call back soon. I can only imagine how frustrated you must feel.

I am in Missouri. I don't recall off the top of my head anyone else from Iowa. I will try to search messages if my kids cooperate. My oldest is at school in 1st grade. Then i have a 3 year old son and 20 month old Jenna. They are tormenting each other right now.

Angie

Help! StarBand concern> > > > > > > > > My baby has had the StarBand for 5 weeks now. We were happy > with > > the> > > initial results but after continued adjustments are growing > > concerned.> > > She is getting an indent where the top of the band ends - like > a > > ring> > > around the top of her head. It's also pushing down on one > eye. > > I've> > > taken the band off & am waiting the neuro. surg. to call back. > > They,> > > University of Iowa, never measured her head to begin with so > how > > will> > > we know if we are moving in the right direction? They just > don't > > seem> > > to think it's very important. Am now thinking I should have > > driven the> > > 4 hours each way to get a DocBand. Anyone have similar > concerns > > or> > > ideas on what to do? Thanks, > > > > > > > > > > > >

[Guest guest]

, First I would like to say that Mia is a little cutie.

Second, that band looks extremely tight even in that picture!

Dustie

> > > > The band should not be pushing down on her eye. We had that

> > issue

> > > at first with jenna's band but a little trim took care of it.

> Are

> > > you talking about a ring where the opining is on the top of the

> > > band? I wouldn't think this should be occurring either. Not

all

> > > ortho's take measurements. Have you taken photos of your

baby's

> > > progress? Do you have any photos you can post showing the fit

of

> > the

> > > band?

> > > >

> > > > Have you discussed your concerns with the ortho on the fit of

> > the

> > > band? If so what was their response?

> > > >

> > > > Please keep us posted on what the neuro surgeon says.

> > > >

> > > > Angie and Jenna(STARband grad 1/21/03)

> > > > Help! StarBand concern

> > > >

> > > >

> > > > My baby has had the StarBand for 5 weeks now. We were

happy

> > with

> > > the

> > > > initial results but after continued adjustments are growing

> > > concerned.

> > > > She is getting an indent where the top of the band ends -

> like

> > a

> > > ring

> > > > around the top of her head. It's also pushing down on one

> > eye.

> > > I've

> > > > taken the band off & am waiting the neuro. surg. to call

> back.

> > > They,

> > > > University of Iowa, never measured her head to begin with

so

> > how

> > > will

> > > > we know if we are moving in the right direction? They just

> > don't

> > > seem

> > > > to think it's very important. Am now thinking I should have

> > > driven the

> > > > 4 hours each way to get a DocBand. Anyone have similar

> > concerns

> > > or

> > > > ideas on what to do? Thanks,

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Dustie,

Thanks, she's a really good baby too. What makes you say that it

looks too tight? What has your experience been? I really want to

make sure that we do the best for Mia - but I'm not sure that I have

the best people to work with...

> > > > > The band should not be pushing down on her eye. We had

that

> > > issue

> > > > at first with jenna's band but a little trim took care of

it.

> > Are

> > > > you talking about a ring where the opining is on the top of

the

> > > > band? I wouldn't think this should be occurring either. Not

> all

> > > > ortho's take measurements. Have you taken photos of your

> baby's

> > > > progress? Do you have any photos you can post showing the

fit

> of

> > > the

> > > > band?

> > > > >

> > > > > Have you discussed your concerns with the ortho on the fit

of

> > > the

> > > > band? If so what was their response?

> > > > >

> > > > > Please keep us posted on what the neuro surgeon says.

> > > > >

> > > > > Angie and Jenna(STARband grad 1/21/03)

> > > > > Help! StarBand concern

> > > > >

> > > > >

> > > > > My baby has had the StarBand for 5 weeks now. We were

> happy

> > > with

> > > > the

> > > > > initial results but after continued adjustments are

growing

> > > > concerned.

> > > > > She is getting an indent where the top of the band ends -

> > like

> > > a

> > > > ring

> > > > > around the top of her head. It's also pushing down on

one

> > > eye.

> > > > I've

> > > > > taken the band off & am waiting the neuro. surg. to call

> > back.

> > > > They,

> > > > > University of Iowa, never measured her head to begin with

> so

> > > how

> > > > will

> > > > > we know if we are moving in the right direction? They

just

> > > don't

> > > > seem

> > > > > to think it's very important. Am now thinking I should

have

> > > > driven the

> > > > > 4 hours each way to get a DocBand. Anyone have similar

> > > concerns

> > > > or

> > > > > ideas on what to do? Thanks,

> > > > >

> > > > >

> > > > >

> > > > >

[Guest guest]

Dustie,

That was my thought too! Way too tight.

> > > > > The band should not be pushing down on her eye. We had

that

> > > issue

> > > > at first with jenna's band but a little trim took care of

it.

> > Are

> > > > you talking about a ring where the opining is on the top of

the

> > > > band? I wouldn't think this should be occurring either. Not

> all

> > > > ortho's take measurements. Have you taken photos of your

> baby's

> > > > progress? Do you have any photos you can post showing the

fit

> of

> > > the

> > > > band?

> > > > >

> > > > > Have you discussed your concerns with the ortho on the fit

of

> > > the

> > > > band? If so what was their response?

> > > > >

> > > > > Please keep us posted on what the neuro surgeon says.

> > > > >

> > > > > Angie and Jenna(STARband grad 1/21/03)

> > > > > Help! StarBand concern

> > > > >

> > > > >

> > > > > My baby has had the StarBand for 5 weeks now. We were

> happy

> > > with

> > > > the

> > > > > initial results but after continued adjustments are

growing

> > > > concerned.

> > > > > She is getting an indent where the top of the band ends -

> > like

> > > a

> > > > ring

> > > > > around the top of her head. It's also pushing down on

one

> > > eye.

> > > > I've

> > > > > taken the band off & am waiting the neuro. surg. to call

> > back.

> > > > They,

> > > > > University of Iowa, never measured her head to begin with

> so

> > > how

> > > > will

> > > > > we know if we are moving in the right direction? They

just

> > > don't

> > > > seem

> > > > > to think it's very important. Am now thinking I should

have

> > > > driven the

> > > > > 4 hours each way to get a DocBand. Anyone have similar

> > > concerns

> > > > or

> > > > > ideas on what to do? Thanks,

> > > > >

> > > > >

> > > > >

> > > > >

[Guest guest]

How come I am not seeing any pics in Mia's folder?

Help! StarBand concern> > > > > > > > > > > > My baby has had the StarBand for 5 weeks now. We were happy > > with > > > the> > > > initial results but after continued adjustments are growing > > > concerned.> > > > She is getting an indent where the top of the band ends - > like > > a > > > ring> > > > around the top of her head. It's also pushing down on one > > eye. > > > I've> > > > taken the band off & am waiting the neuro. surg. to call > back. > > > They,> > > > University of Iowa, never measured her head to begin with so > > how > > > will> > > > we know if we are moving in the right direction? They just > > don't > > > seem> > > > to think it's very important. Am now thinking I should have > > > driven the> > > > 4 hours each way to get a DocBand. Anyone have similar > > concerns > > > or> > > > ideas on what to do? Thanks, > > > > > > > > > > > > > > > >

[Guest guest]

Hi :

I'm sorry things aren't going better I totally understand your

concerns and will agree with everyone else's reply that the band

appears to be too small on her pretty little head.

Have you contacted your orthotist yet today? Has Mia grown a lot

after receiving her band? Maybe she's outgrowing this one, or did it

get small AFTER your orthotist made an adjustment to it?

Have you seen any correction as of yet?

Sorry - but I'd keep it off her right now to be safe, ill fitting

bands can do more harm than good to baby's heads, that happened to my

daughter while STARbanded

Keep us posted.

Debbie Abby's mom DOCGrad

MI

> > > > The band should not be pushing down on her eye. We had that

> > issue

> > > at first with jenna's band but a little trim took care of it.

> Are

> > > you talking about a ring where the opining is on the top of the

> > > band? I wouldn't think this should be occurring either. Not

all

> > > ortho's take measurements. Have you taken photos of your

baby's

> > > progress? Do you have any photos you can post showing the fit

of

> > the

> > > band?

> > > >

> > > > Have you discussed your concerns with the ortho on the fit of

> > the

> > > band? If so what was their response?

> > > >

> > > > Please keep us posted on what the neuro surgeon says.

> > > >

> > > > Angie and Jenna(STARband grad 1/21/03)

> > > > Help! StarBand concern

> > > >

> > > >

> > > > My baby has had the StarBand for 5 weeks now. We were

happy

> > with

> > > the

> > > > initial results but after continued adjustments are growing

> > > concerned.

> > > > She is getting an indent where the top of the band ends -

> like

> > a

> > > ring

> > > > around the top of her head. It's also pushing down on one

> > eye.

> > > I've

> > > > taken the band off & am waiting the neuro. surg. to call

> back.

> > > They,

> > > > University of Iowa, never measured her head to begin with

so

> > how

> > > will

> > > > we know if we are moving in the right direction? They just

> > don't

> > > seem

> > > > to think it's very important. Am now thinking I should have

> > > driven the

> > > > 4 hours each way to get a DocBand. Anyone have similar

> > concerns

> > > or

> > > > ideas on what to do? Thanks,

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Hi, I don't know, it was there yesterday. I will try again!

Thanks,

> > > > > The band should not be pushing down on her eye. We had

that

> > > issue

> > > > at first with jenna's band but a little trim took care of

it.

> > Are

> > > > you talking about a ring where the opining is on the top of

the

> > > > band? I wouldn't think this should be occurring either.

Not

> all

> > > > ortho's take measurements. Have you taken photos of your

> baby's

> > > > progress? Do you have any photos you can post showing the

fit

> of

> > > the

> > > > band?

> > > > >

> > > > > Have you discussed your concerns with the ortho on the

fit of

> > > the

> > > > band? If so what was their response?

> > > > >

> > > > > Please keep us posted on what the neuro surgeon says.

> > > > >

> > > > > Angie and Jenna(STARband grad 1/21/03)

> > > > > Help! StarBand concern

> > > > >

> > > > >

> > > > > My baby has had the StarBand for 5 weeks now. We were

> happy

> > > with

> > > > the

> > > > > initial results but after continued adjustments are

growing

> > > > concerned.

> > > > > She is getting an indent where the top of the band

ends -

> > like

> > > a

> > > > ring

> > > > > around the top of her head. It's also pushing down on

one

> > > eye.

> > > > I've

> > > > > taken the band off & am waiting the neuro. surg. to

call

> > back.

> > > > They,

> > > > > University of Iowa, never measured her head to begin

with

> so

> > > how

> > > > will

> > > > > we know if we are moving in the right direction? They

just

> > > don't

> > > > seem

> > > > > to think it's very important. Am now thinking I should

have

> > > > driven the

> > > > > 4 hours each way to get a DocBand. Anyone have similar

> > > concerns

> > > > or

> > > > > ideas on what to do? Thanks,

> > > > >

> > > > >

> > > > >

> > > > >

[Guest guest]

,

I made a folder for Mia, her picture is in there.

> > > > > > The band should not be pushing down on her eye. We had

> that

> > > > issue

> > > > > at first with jenna's band but a little trim took care of

> it.

> > > Are

> > > > > you talking about a ring where the opining is on the top

of

> the

> > > > > band? I wouldn't think this should be occurring either.

> Not

> > all

> > > > > ortho's take measurements. Have you taken photos of your

> > baby's

> > > > > progress? Do you have any photos you can post showing

the

> fit

> > of

> > > > the

> > > > > band?

> > > > > >

> > > > > > Have you discussed your concerns with the ortho on the

> fit of

> > > > the

> > > > > band? If so what was their response?

> > > > > >

> > > > > > Please keep us posted on what the neuro surgeon says.

> > > > > >

> > > > > > Angie and Jenna(STARband grad 1/21/03)

> > > > > > Help! StarBand concern

> > > > > >

> > > > > >

> > > > > > My baby has had the StarBand for 5 weeks now. We

were

> > happy

> > > > with

> > > > > the

> > > > > > initial results but after continued adjustments are

> growing

> > > > > concerned.

> > > > > > She is getting an indent where the top of the band

> ends -

> > > like

> > > > a

> > > > > ring

> > > > > > around the top of her head. It's also pushing down

on

> one

> > > > eye.

> > > > > I've

> > > > > > taken the band off & am waiting the neuro. surg. to

> call

> > > back.

> > > > > They,

> > > > > > University of Iowa, never measured her head to begin

> with

> > so

> > > > how

> > > > > will

> > > > > > we know if we are moving in the right direction?

They

> just

> > > > don't

> > > > > seem

> > > > > > to think it's very important. Am now thinking I

should

> have

> > > > > driven the

> > > > > > 4 hours each way to get a DocBand. Anyone have

similar

> > > > concerns

> > > > > or

> > > > > > ideas on what to do? Thanks,

> > > > > >

> > > > > >

> > > > > >

> > > > > >