Spoon Theory - ~Imagine & The Thief of Many Lives~

[Guest guest]

There's a great little story called "the spoon theory" on a young lady's website, who has Lupus. Of course she has Lupus but her spoon theory could be applied to any chronic illness like ours. I liked the story sooo much, I forwarded the website address to many people, last year lol!

If you want me to find the site, I can. The girl was trying to explain her illness, or rather what it does to her; makes her disabled, to her friend. She said she was shocked, after all this time of her friend knowing she is sick, when they were sitting in a cafe one day and her friend still just didn't get it. So - she immedicately came up with this little spoon story, and I guess that really helped her friend to understand.

Of course for your own spoon stories, we could say we start the day with 12 spoons or 3... I have been having many 3 spoon days for a long time now, and I think that is largely due to the Fibro.

Ok now I have to find the site... wait a minute...

http://www.butyoudontlooksick.com/ Here is the main website

and here is the story http://www.butyoudontlooksick.com/spoons.htm

Her spoon story became quite popular so she is pretty well-known in the Lupus world now. But as I say - her story applies to anyone with Lupus, FM or many diseases. ;-) For those wanting to share how difficult our lives are to our families and friends, maybe you can print out the story and mail it to them. It's a simple story but helps the "norms" to understand it a little better....

xxo li

----- Original Message -----

Thank you for that . You are such a gifted writer and put your thought down on paper so well. I am forwarding this to a few friends and family members.

[Guest guest]

Oh, I'm so glad you know where to find that story. I read it about a

month ago on another site, then the site went bye-bye, and I couldn't

find that dern spoon story anymore. Now that I have a printer I can

give that story to my dumb family when they say dumb things.

Hugs,

> There's a great little story called " the spoon theory " on a young

lady's website, who has Lupus. Of course she has Lupus but her spoon

theory could be applied to any chronic illness like ours. I liked the

story sooo much, I forwarded the website address to many people, last

year lol!

>

> If you want me to find the site, I can. The girl was trying to

explain her illness, or rather what it does to her; makes her

disabled, to her friend. She said she was shocked, after all this

time of her friend knowing she is sick, when they were sitting in a

cafe one day and her friend still just didn't get it. So - she

immedicately came up with this little spoon story, and I guess that

really helped her friend to understand.

>

> Of course for your own spoon stories, we could say we start the day

with 12 spoons or 3... I have been having many 3 spoon days for a

long time now, and I think that is largely due to the Fibro.

>

> Ok now I have to find the site... wait a minute...

>

> http://www.butyoudontlooksick.com/ Here is the main website

>

> and here is the story http://www.butyoudontlooksick.com/spoons.htm

> Her spoon story became quite popular so she is pretty well-known in

the Lupus world now. But as I say - her story applies to anyone with

Lupus, FM or many diseases. ;-) For those wanting to share how

difficult our lives are to our families and friends, maybe you can

print out the story and mail it to them. It's a simple story but

helps the " norms " to understand it a little better....

>

> xxo li

> ----- Original Message -----

>

>

> Thank you for that . You are such a gifted writer and put

your

> thought down on paper so well. I am forwarding this to a few

friends

> and family members.

[Guest guest]

Just read that story, I think it is amazingly put... Im going to fwd

it to my hubby's parents, who dont seem to understand my pain...

what idiots!! sorry had to vent that....

> > There's a great little story called " the spoon theory " on a

young

> lady's website, who has Lupus. Of course she has Lupus but her

spoon

> theory could be applied to any chronic illness like ours. I liked

the

> story sooo much, I forwarded the website address to many people,

last

> year lol!

> >

> > If you want me to find the site, I can. The girl was trying to

> explain her illness, or rather what it does to her; makes her

> disabled, to her friend. She said she was shocked, after all this

> time of her friend knowing she is sick, when they were sitting in

a

> cafe one day and her friend still just didn't get it. So - she

> immedicately came up with this little spoon story, and I guess

that

> really helped her friend to understand.

> >

> > Of course for your own spoon stories, we could say we start the

day

> with 12 spoons or 3... I have been having many 3 spoon days for a

> long time now, and I think that is largely due to the Fibro.

> >

> > Ok now I have to find the site... wait a minute...

> >

> > http://www.butyoudontlooksick.com/ Here is the main website

> >

> > and here is the story

http://www.butyoudontlooksick.com/spoons.htm

> > Her spoon story became quite popular so she is pretty well-known

in

> the Lupus world now. But as I say - her story applies to anyone

with

> Lupus, FM or many diseases. ;-) For those wanting to share how

> difficult our lives are to our families and friends, maybe you can

> print out the story and mail it to them. It's a simple story but

> helps the " norms " to understand it a little better....

> >

> > xxo li

> > ----- Original Message -----

> >

> >

> > Thank you for that . You are such a gifted writer and

put

> your

> > thought down on paper so well. I am forwarding this to a few

> friends

> > and family members.

[Guest guest]

lol! Yes... and for me; I understand what she means about starting with 12 spoons, although really for a while now I often have a lot of 6 spoon days. Be sure to remind your family there are 3 spoon or 5 spoon or 12 spoon days - just depends! I had I think 1 spoon days 10 years ago when I couldn't even wipe my own butt; the joint pain was so bad in my hands and wrists.

Back when it was just mostly joint pain and fatigue [and side effects from meds], I had a lot of 12 spoon days though...and I think that is what she [] was mostly going through. Some days now, you can use up 6 spoons just trying to get going in the mornings. :-P

xo li

----- Original Message -----

Oh, I'm so glad you know where to find that story. I read it about a month ago on another site, then the site went bye-bye, and I couldn't find that dern spoon story anymore. Now that I have a printer I can give that story to my dumb family when they say dumb things.Hugs,