11 year old son with possible IgA N

[Guest guest]

I have been reading some of the past posts and wondering if I am

doing the right thing. I took my 11 year old son to the doctor after

having intermittant episodes of brownish urine for about 2 weeks.

One evening his urine was almost complete blood so I figured this

must be serious. After a urine test and ultrasound were done he was

found to have no laceration or contusion as we originally thought

(being an extremely active, daredevilsh boy) and also found to have

been born with only one kidney. We were then referred to a Pediatric

Nephrologist who ran tests for calcium, protein, blood and a few

others as well. All came back negative but he said that there was no

conclusive test for IgA Nephropathy other than a kidney biopsy which

he would rather not do at this point unless he shows signs of protein

or blood in the urine in coming months since it would have to be done

under a general anesthesia and surgically due to the fact that he has

only the one kidney and would have less chance to injure or lacerate

it. He suggested that for now our son be on a low protein, low

sodium diet and be followed every four months for a blood pressure

check and urinalysis. He also suggested omitting all contact

sports. Although this has been a difficult life adjustment for my

son I am proud of his committment to the new diet but am having a

difficult time keeping him from his favorite activities which all

include a chance for injury. If any of you have suggestions

regarding which way for me to turn I would greatly appreciate it.

Although he has not been officially diagnosed with this it seems to

be something that the doctor is keeping in mind. Thank you in

advance for any advice.

Kassie