Guest guest Posted August 10, 2002 Report Share Posted August 10, 2002 Thank you everyone for your kind words of support and advice on this troubling subject. I agree with the fact that we should look at the options he does have rather than dwell on what he must now give up. He is going into Junior High and seems anxious to join the Track team and already is addicted to golf! Keeping him involved by redirecting his interests will be the ticket to a happy young boy. I was wondering though why the doctor has not done one of those 24 hour urine tests? Is that something that should be done? He also mentioned a condition called benign Hematuria which he thought might be the diagnosis. When he tested the rest of the family and none of us showed signs he was reluctant to diagnose him as most of the time such a thing is Familial. I guess it will just be a game of sitting around and waiting on pins and needles to see if he has another bout of the blood and protein. Things like this really take your life on some major twists and turns though. I have a 14 year old son that is mentally retarded with some special needs and thought that this would be my challenge as a parent, however, thinking of the future of my 11 year old scares me to death when you hear so much about kidney problems and transplants. This is much more of a health issue with this son. I don't know I guess I will muddle through and learn along the way just as I did with my oldest son. Thanks again for letting me vent. You all have been in this position at one point and realize that acceptance, action and education can take you a long way! Kassie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2002 Report Share Posted August 10, 2002 Hi Kassie. There are a number of nephritis-type conditions that can lead to blood in the urine. The one your doctor suspected, familial nephritis, is better known these days as " thin basement membrane disease " . I can't remember who it is, or was, but we had another woman in the group who, if I recall, had both husband and son with it (and I think the son showed evidence of both IgAN and thin-basement membrane). The actual differences in the kidneys from all of these are very subtle, and can only be determined by looking at a sample of glomeruli tissues (and even them, sometimes it's not a cut-and-dried diagnosis). If it is IgAN, you should be aware that it's not uncommon at all for it to go into remission when it's pediatric. The reason your nephrologist didn't order a 24 hour urine collection is probably because he uses protein/creatinine ratio instead. This is often used in pediatric cases, apparently, because it avoids problems with improper collection of the urine (such as forgetting). It's reportedly just as good. Another one of our members, Erna, has a lot of experience with her son and his protein/creatinine ratios. Pierre 11 year old son > Thank you everyone for your kind words of support and advice on this > troubling subject. I agree with the fact that we should look at the > options he does have rather than dwell on what he must now give up. > He is going into Junior High and seems anxious to join the Track team > and already is addicted to golf! Keeping him involved by redirecting > his interests will be the ticket to a happy young boy. I was > wondering though why the doctor has not done one of those 24 hour > urine tests? Is that something that should be done? He also > mentioned a condition called benign Hematuria which he thought might > be the diagnosis. When he tested the rest of the family and none of > us showed signs he was reluctant to diagnose him as most of the time > such a thing is Familial. I guess it will just be a game of sitting > around and waiting on pins and needles to see if he has another bout > of the blood and protein. Things like this really take your life on > some major twists and turns though. I have a 14 year old son that is > mentally retarded with some special needs and thought that this would > be my challenge as a parent, however, thinking of the future of my 11 > year old scares me to death when you hear so much about kidney > problems and transplants. This is much more of a health issue with > this son. I don't know I guess I will muddle through and learn along > the way just as I did with my oldest son. Thanks again for letting me > vent. You all have been in this position at one point and realize > that acceptance, action and education can take you a long way! > Kassie > Quote Link to comment Share on other sites More sharing options...
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