Guest guest Posted August 10, 2002 Report Share Posted August 10, 2002 Hi Pierre Gawd blimey mate, what a concoction!!! Boiled celery leaves, yuk!!!! Like you I too before I discovered the group, was ramming all sorts of rubbish down my neck, then I started to see my current Neph, who shall we say had a little word in my shell like, and that was when I decided to let him take control. Some of the stuff I was taking, and most of it was homeopathic or herbal, either gave me chronic diahorrea or the complete opposite constipation. And the headaches, they were dreadful. Nowadays as I have mentioned everyone, all I take is Cranberry Juice (Tablets and Juice), and Echinacea after periods of prolonged illness, like a cold or virus. Your experiences below Pierre do not surprise me, I remember my Neph telling me that it was highly likely that I would develop sensitivities to many things that previously did not bother me. How right he was, I now have to watch many things that I eat, dairy products have always been difficult, but my tolerance to them is nil now, and a few others too many to mention. I also found that unlike conventional medicines, alternatives very rarely come with written contraindications which I now realise is very disconcerting, I assumed that as they were supposed to be healthy, there were none, whoops steep learning curve on that one for me. Anyway as time goes on and you get to live with this condition, you learn by your mistakes I guess, but I for one am so grateful for hearing about your experiences, and I am happy to share mine, in the hope that we might spare some other person or persons who are contemplating going down this road, that it is not always the easy ride they might expect or hope. Of course we are all in charge of our own destinies, but for I personally bitterly regret messing about with stuff I had not researched, or ran by my medical team, a lot of it was I was in denial at the time, and was so pig headed that I knew better.....ahem ! I knew nothing and a week in a renal ward while they tried to sort out why my white cell count was all over the place, and that the fact that my BP was well out of control, taught me a lesson. I am seriously not trying to scare people but as is usual adding a word of caution. I hope this clarifies my position on alternatives, and now to be honest think I have put my feelings on this matter across as fair as I can. Bye for now. Some things... Well, the crisis has passed, and, I think I should let all of you in on a little secret. It's not really a secret, as I've mentioned it before, a long time ago, I think. Or maybe it was on another group. Anyway, when you've had 25 years to get to the point I am now, you don't get there without ever having some, shall we say, experiences with alternative meds along the way. Things I have tried in the past (but not within the last 8-10 years or more): - boiled celery leaves That was the first thing anyone ever told me to try as being good for the kidneys. Well, I tried it. I boiled some celery leaves and made " tea " with the liquid. Later that day, I was so sick I thought I was going to die, literally. I remember being sick the whole weekend, and I was alone with the 2 kids at the time (wife was away to visit parents). I was so sick I had to get a neighbour to feed the kids. I was too embarrassed to go to the hospital! This one, I would REALLY abvise you to totally not try!!!! - garlic I eat garlic. Always have, in cooking, often chopped raw. Renal diet even suggests it as a way of adding flavour to foods. But what I'm talking about is concentrated garlic pills. I had read somewhere that (a) it was good for blood pressure, and ( kidney diseases might be related to yeast infections in the kidneys, and that large doses of garlic extract might help. Well, it didn't help my BP at all, and after a couple of weeks, not only did I have terrible esophagitis, but I literally smelled like I'd fallen in a garlic patch. It just oozed out of my pores. People couldn't stand to be near me. By the way, it's probably not harmful, but did you know that megadoses of concentrated garlic can cause anemia? - flax oil This is before anyone ever heard of fish oil. I have a known allergy to sunflower seeds and oil, nuts and such, and as luck would have it, I didn't do very well with flax oil either. For one thing, I couldn't digest it. Pretty much just passed the oil unmodified, if you know what I mean. - some kind of herbal tea which I forget, with honey to sweeten it. Ended up in Emergency after that one. No kidding! My throat swelled up until it was almost shut, within two minutes of drinking it. They had to give me Benadryl through an IV. I still don't know if it was the tea itself or the honey, and I didn't repeat the experiment. Luckily, we lived not far from the local hospital at the time. - co-enzyme Q10 Supposed to be good for bloodpressure. Didn't work. - Hawthorne berry extract. Supposed to be good for bloodpressure. Didn't work either. - Stresstabs After a couple of days, developed a large red dry, scaley rash on my hands. Stopped it and it went away within a few days. Tried the Stresstabs again. Same thing. So, never tried them again, and never got the rash again. - Selenium, and other things I can't even remember. Now, this is all long before the World Wide Web came along. I don't know what I might have tried had the Internet been available at the time. Well, what can I say. We all learn from our mistakes. Unfortunately, with kidney disease, some of those mistakes could be very harmful indeed. Luckily, other than the life-threatening herbal tea episode (and possibly the celery), nothing too serious ever happened to me. But, after that phase, I just decided to settle in and let my doctor do the work. Pierre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2002 Report Share Posted August 10, 2002 Pierre, BRILLIANT e-mail it made me laugh out loud all the way through!!!!!!! This is one 'homeopathic' remedy anyone can take with tested side affects....... laughter. Sally. Some things... Well, the crisis has passed, and, I think I should let all of you in on a little secret. It's not really a secret, as I've mentioned it before, a long time ago, I think. Or maybe it was on another group. Anyway, when you've had 25 years to get to the point I am now, you don't get there without ever having some, shall we say, experiences with alternative meds along the way. Things I have tried in the past (but not within the last 8-10 years or more): - boiled celery leaves That was the first thing anyone ever told me to try as being good for the kidneys. Well, I tried it. I boiled some celery leaves and made " tea " with the liquid. Later that day, I was so sick I thought I was going to die, literally. I remember being sick the whole weekend, and I was alone with the 2 kids at the time (wife was away to visit parents). I was so sick I had to get a neighbour to feed the kids. I was too embarrassed to go to the hospital! This one, I would REALLY abvise you to totally not try!!!! - garlic I eat garlic. Always have, in cooking, often chopped raw. Renal diet even suggests it as a way of adding flavour to foods. But what I'm talking about is concentrated garlic pills. I had read somewhere that (a) it was good for blood pressure, and ( kidney diseases might be related to yeast infections in the kidneys, and that large doses of garlic extract might help. Well, it didn't help my BP at all, and after a couple of weeks, not only did I have terrible esophagitis, but I literally smelled like I'd fallen in a garlic patch. It just oozed out of my pores. People couldn't stand to be near me. By the way, it's probably not harmful, but did you know that megadoses of concentrated garlic can cause anemia? - flax oil This is before anyone ever heard of fish oil. I have a known allergy to sunflower seeds and oil, nuts and such, and as luck would have it, I didn't do very well with flax oil either. For one thing, I couldn't digest it. Pretty much just passed the oil unmodified, if you know what I mean. - some kind of herbal tea which I forget, with honey to sweeten it. Ended up in Emergency after that one. No kidding! My throat swelled up until it was almost shut, within two minutes of drinking it. They had to give me Benadryl through an IV. I still don't know if it was the tea itself or the honey, and I didn't repeat the experiment. Luckily, we lived not far from the local hospital at the time. - co-enzyme Q10 Supposed to be good for bloodpressure. Didn't work. - Hawthorne berry extract. Supposed to be good for bloodpressure. Didn't work either. - Stresstabs After a couple of days, developed a large red dry, scaley rash on my hands. Stopped it and it went away within a few days. Tried the Stresstabs again. Same thing. So, never tried them again, and never got the rash again. - Selenium, and other things I can't even remember. Now, this is all long before the World Wide Web came along. I don't know what I might have tried had the Internet been available at the time. Well, what can I say. We all learn from our mistakes. Unfortunately, with kidney disease, some of those mistakes could be very harmful indeed. Luckily, other than the life-threatening herbal tea episode (and possibly the celery), nothing too serious ever happened to me. But, after that phase, I just decided to settle in and let my doctor do the work. Pierre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2002 Report Share Posted August 10, 2002 Hi Sally. I'm really glad you saw the humour in it. That's how I intended it, but, sometimes, without a voice behind it, humour doesn't come through as well in email. All of it is true, though. Pierre Some things... > > > Well, the crisis has passed, and, I think I should let all of you in on a > little secret. It's not really a secret, as I've mentioned it before, a long > time ago, I think. Or maybe it was on another group. > > Anyway, when you've had 25 years to get to the point I am now, you don't get > there without ever having some, shall we say, experiences with alternative > meds along the way. > > Things I have tried in the past (but not within the last 8-10 years or > more): > > - boiled celery leaves > That was the first thing anyone ever told me to try as being good for the > kidneys. Well, I tried it. I boiled some celery leaves and made " tea " with > the liquid. Later that day, I was so sick I thought I was going to die, > literally. I remember being sick the whole weekend, and I was alone with the > 2 kids at the time (wife was away to visit parents). I was so sick I had to > get a neighbour to feed the kids. I was too embarrassed to go to the > hospital! This one, I would REALLY abvise you to totally not try!!!! > > - garlic > I eat garlic. Always have, in cooking, often chopped raw. Renal diet even > suggests it as a way of adding flavour to foods. But what I'm talking about > is concentrated garlic pills. I had read somewhere that (a) it was good for > blood pressure, and ( kidney diseases might be related to yeast infections > in the kidneys, and that large doses of garlic extract might help. Well, it > didn't help my BP at all, and after a couple of weeks, not only did I have > terrible esophagitis, but I literally smelled like I'd fallen in a garlic > patch. It just oozed out of my pores. People couldn't stand to be near me. > By the way, it's probably not harmful, but did you know that megadoses of > concentrated garlic can cause anemia? > > - flax oil > This is before anyone ever heard of fish oil. I have a known allergy to > sunflower seeds and oil, nuts and such, and as luck would have it, I didn't > do very well with flax oil either. For one thing, I couldn't digest it. > Pretty much just passed the oil unmodified, if you know what I mean. > > - some kind of herbal tea which I forget, with honey to sweeten it. > Ended up in Emergency after that one. No kidding! My throat swelled up until > it was almost shut, within two minutes of drinking it. They had to give me > Benadryl through an IV. I still don't know if it was the tea itself or the > honey, and I didn't repeat the experiment. Luckily, we lived not far from > the local hospital at the time. > > - co-enzyme Q10 > Supposed to be good for bloodpressure. Didn't work. > > - Hawthorne berry extract. > Supposed to be good for bloodpressure. Didn't work either. > > - Stresstabs > After a couple of days, developed a large red dry, scaley rash on my hands. > Stopped it and it went away within a few days. Tried the Stresstabs again. > Same thing. So, never tried them again, and never got the rash again. > > - Selenium, and other things I can't even remember. Now, this is all long > before the World Wide Web came along. I don't know what I might have tried > had the Internet been available at the time. Well, what can I say. We all > learn from our mistakes. Unfortunately, with kidney disease, some of those > mistakes could be very harmful indeed. Luckily, other than the > life-threatening herbal tea episode (and possibly the celery), nothing too > serious ever happened to me. But, after that phase, I just decided to settle > in and let my doctor do the work. > > Pierre > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2002 Report Share Posted August 10, 2002 The renal dieticians I've seen love cranberry juice (well, cranberry cocktail actually, since that's readily available), and they recommend it. And it's not for any beneficial effect on the kidneys, but because it's a good source of calories (from the sugar used to sweeten it), and because, as fruit juices go, it's very low in potassium - only 30mg in a one cup serving. Altogether a very healthy drink for people with advanced renal failure. Pierre RE: Some things... > Hi Pierre > > Gawd blimey mate, what a concoction!!! Boiled celery leaves, yuk!!!! > Like you I too before I discovered the group, was ramming all sorts of > rubbish down my neck, then I started to see my current Neph, who shall > we say had a little word in my shell like, and that was when I decided > to let him take control. > > Some of the stuff I was taking, and most of it was homeopathic or > herbal, either gave me chronic diahorrea or the complete opposite > constipation. And the headaches, they were dreadful. Nowadays as I > have mentioned everyone, all I take is Cranberry Juice (Tablets and > Juice), and Echinacea after periods of prolonged illness, like a cold or > virus. > > Your experiences below Pierre do not surprise me, I remember my Neph > telling me that it was highly likely that I would develop sensitivities > to many things that previously did not bother me. How right he was, I > now have to watch many things that I eat, dairy products have always > been difficult, but my tolerance to them is nil now, and a few others > too many to mention. > > I also found that unlike conventional medicines, alternatives very > rarely come with written contraindications which I now realise is very > disconcerting, I assumed that as they were supposed to be healthy, there > were none, whoops steep learning curve on that one for me. > > Anyway as time goes on and you get to live with this condition, you > learn by your mistakes I guess, but I for one am so grateful for hearing > about your experiences, and I am happy to share mine, in the hope that > we might spare some other person or persons who are contemplating going > down this road, that it is not always the easy ride they might expect or > hope. > > Of course we are all in charge of our own destinies, but for I > personally bitterly regret messing about with stuff I had not > researched, or ran by my medical team, a lot of it was I was in denial > at the time, and was so pig headed that I knew better.....ahem ! I knew > nothing and a week in a renal ward while they tried to sort out why my > white cell count was all over the place, and that the fact that my BP > was well out of control, taught me a lesson. > > I am seriously not trying to scare people but as is usual adding a word > of caution. > > I hope this clarifies my position on alternatives, and now to be honest > think I have put my feelings on this matter across as fair as I can. > > > Bye for now. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2002 Report Share Posted August 10, 2002 Pierre, I used (but only for a month) some homeopathic products in a desperate attempt to find something by chance useful for my IGAN. It was a cocktail of many meds. The one described for glomerulonephritis was called Albumoheel and among its components there was a mercury containing compound. I know that the amount of it was ridiculous, however I was not happy at all taking something containing such a nephrotoxic element like mercury. Also I was having a prep of Echinacea and it does cointain also " mercury solubilis " , and I did not like either, so I stopped them both. Maybe If my renal fuction were still normal I would try those, but with an impaired renal function like mine I decided not to try anything without proved scientific evidence of their benefits for kidney desease. I take garlic pills daily and was very concerned when I read Pierre´s message stating that they can cause anemia. Where did you find this information Pierre? In which amount are they suppossed to cause anemia? I decided to take garlic for two reasons: for blood pressure and for its natural antibiotic activity protecting the body against bacteria and fungi. Thanks Rita > Pierre > > RE: Some things... > > > > Hi Pierre > > > > Gawd blimey mate, what a concoction!!! Boiled celery leaves, yuk!!!! > > Like you I too before I discovered the group, was ramming all sorts of > > rubbish down my neck, then I started to see my current Neph, who shall > > we say had a little word in my shell like, and that was when I decided > > to let him take control. > > > > Some of the stuff I was taking, and most of it was homeopathic or > > herbal, either gave me chronic diahorrea or the complete opposite > > constipation. And the headaches, they were dreadful. Nowadays as I > > have mentioned everyone, all I take is Cranberry Juice (Tablets and > > Juice), and Echinacea after periods of prolonged illness, like a cold or > > virus. > > > > Your experiences below Pierre do not surprise me, I remember my Neph > > telling me that it was highly likely that I would develop sensitivities > > to many things that previously did not bother me. How right he was, I > > now have to watch many things that I eat, dairy products have always > > been difficult, but my tolerance to them is nil now, and a few others > > too many to mention. > > > > I also found that unlike conventional medicines, alternatives very > > rarely come with written contraindications which I now realise is very > > disconcerting, I assumed that as they were supposed to be healthy, there > > were none, whoops steep learning curve on that one for me. > > > > Anyway as time goes on and you get to live with this condition, you > > learn by your mistakes I guess, but I for one am so grateful for hearing > > about your experiences, and I am happy to share mine, in the hope that > > we might spare some other person or persons who are contemplating going > > down this road, that it is not always the easy ride they might expect or > > hope. > > > > Of course we are all in charge of our own destinies, but for I > > personally bitterly regret messing about with stuff I had not > > researched, or ran by my medical team, a lot of it was I was in denial > > at the time, and was so pig headed that I knew better.....ahem ! I knew > > nothing and a week in a renal ward while they tried to sort out why my > > white cell count was all over the place, and that the fact that my BP > > was well out of control, taught me a lesson. > > > > I am seriously not trying to scare people but as is usual adding a word > > of caution. > > > > I hope this clarifies my position on alternatives, and now to be honest > > think I have put my feelings on this matter across as fair as I can. > > > > > > Bye for now. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2002 Report Share Posted August 10, 2002 I remember reading it long ago Rita. There are many sources though. Just one quick search of medline gives this abstract, for example (one of many): Nippon Yakurigaku Zasshi 1997 Oct;110 Suppl 1:93P-97P Sumiyoshi H Wakunaga Pharmaceutical Co., Ltd., Hiroshima, Japan. According to the recent pharmacological findings, garlic is a preventive rather than therapeutic. Epidemiological studies in China, Italy and USA showed the inverse relationship between stomach and colon cancer incidences and dietary garlic intake. Anti-carcinogenic activities of garlic and its constituents including sulfides and S-allyl cysteine, have been demonstrated using several animal models. Garlic preparations has been also shown to lower serum cholesterol and triglyceride levels, which are major risk factors of cardiovascular diseases, through inhibition of their bio-synthesis in the liver, and to inhibit oxidation of low density lipoprotein. Furthermore, in vitro and in vivo studies have revealed that aged garlic extract stimulated immune functions, such as proliferation of lymphocyte, cytokine release, NK activity and phagocytosis. More recently, aged garlic extract has been demonstrated to prolong life span of senescence accelerated mice and prevent brain atrophy. Manufacturing processes significantly affect chemical constituents in garlic preparations. Different forms contain different phytochemicals and may have different effects and toxicities. For example, aged garlic extract inhibited t-BuOOH-induced oxidation, whereas raw garlic stimulated the oxidation. Although garlic has been used as a condiment and folklore for a long time, it has been noted to cause adverse reactions, such as stomach ulcer and anemia. Among the garlic preparations, only aged garlic extract has been proven to be safe through toxicological studies. Thus, aged garlic extract could be the most promising garlic preparation for disease prevention. Pierre Re: Some things... Pierre, [snip]I take garlic pills daily and was very concerned when I read Pierre´s message stating that they can cause anemia. Where did you find this information Pierre? In which amount are they suppossed to cause anemia? [snip]Thanks Rita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2002 Report Share Posted August 11, 2002 Pierre, I can't believe you did all of that! I did get the humor. Is that all true? Margie > Well, the crisis has passed, and, I think I should let all of you in on a > little secret. It's not really a secret, as I've mentioned it before, a long > time ago, I think. Or maybe it was on another group. > > Anyway, when you've had 25 years to get to the point I am now, you don't get > there without ever having some, shall we say, experiences with alternative > meds along the way. > > Things I have tried in the past (but not within the last 8-10 years or > more): > > - boiled celery leaves > That was the first thing anyone ever told me to try as being good for the > kidneys. Well, I tried it. I boiled some celery leaves and made " tea " with > the liquid. Later that day, I was so sick I thought I was going to die, > literally. I remember being sick the whole weekend, and I was alone with the > 2 kids at the time (wife was away to visit parents). I was so sick I had to > get a neighbour to feed the kids. I was too embarrassed to go to the > hospital! This one, I would REALLY abvise you to totally not try!!!! > > - garlic > I eat garlic. Always have, in cooking, often chopped raw. Renal diet even > suggests it as a way of adding flavour to foods. But what I'm talking about > is concentrated garlic pills. I had read somewhere that (a) it was good for > blood pressure, and ( kidney diseases might be related to yeast infections > in the kidneys, and that large doses of garlic extract might help. Well, it > didn't help my BP at all, and after a couple of weeks, not only did I have > terrible esophagitis, but I literally smelled like I'd fallen in a garlic > patch. It just oozed out of my pores. People couldn't stand to be near me. > By the way, it's probably not harmful, but did you know that megadoses of > concentrated garlic can cause anemia? > > - flax oil > This is before anyone ever heard of fish oil. I have a known allergy to > sunflower seeds and oil, nuts and such, and as luck would have it, I didn't > do very well with flax oil either. For one thing, I couldn't digest it. > Pretty much just passed the oil unmodified, if you know what I mean. > > - some kind of herbal tea which I forget, with honey to sweeten it. > Ended up in Emergency after that one. No kidding! My throat swelled up until > it was almost shut, within two minutes of drinking it. They had to give me > Benadryl through an IV. I still don't know if it was the tea itself or the > honey, and I didn't repeat the experiment. Luckily, we lived not far from > the local hospital at the time. > > - co-enzyme Q10 > Supposed to be good for bloodpressure. Didn't work. > > - Hawthorne berry extract. > Supposed to be good for bloodpressure. Didn't work either. > > - Stresstabs > After a couple of days, developed a large red dry, scaley rash on my hands. > Stopped it and it went away within a few days. Tried the Stresstabs again. > Same thing. So, never tried them again, and never got the rash again. > > - Selenium, and other things I can't even remember. Now, this is all long > before the World Wide Web came along. I don't know what I might have tried > had the Internet been available at the time. Well, what can I say. We all > learn from our mistakes. Unfortunately, with kidney disease, some of those > mistakes could be very harmful indeed. Luckily, other than the > life-threatening herbal tea episode (and possibly the celery), nothing too > serious ever happened to me. But, after that phase, I just decided to settle > in and let my doctor do the work. > > Pierre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 That's worth noting for me Pierre! Derrick, Sydney, Australia > The renal dieticians I've seen love cranberry juice (well, cranberry > cocktail actually, since that's readily available), and they recommend it. > And it's not for any beneficial effect on the kidneys, but because it's a > good source of calories (from the sugar used to sweeten it), and because, as > fruit juices go, it's very low in potassium - only 30mg in a one cup > serving. Altogether a very healthy drink for people with advanced renal > failure. > Pierre > > RE: Some things... > > > > Hi Pierre > > > > Gawd blimey mate, what a concoction!!! Boiled celery leaves, yuk!!!! > > Like you I too before I discovered the group, was ramming all sorts of > > rubbish down my neck, then I started to see my current Neph, who shall > > we say had a little word in my shell like, and that was when I decided > > to let him take control. > > > > Some of the stuff I was taking, and most of it was homeopathic or > > herbal, either gave me chronic diahorrea or the complete opposite > > constipation. And the headaches, they were dreadful. Nowadays as I > > have mentioned everyone, all I take is Cranberry Juice (Tablets and > > Juice), and Echinacea after periods of prolonged illness, like a cold or > > virus. > > > > Your experiences below Pierre do not surprise me, I remember my Neph > > telling me that it was highly likely that I would develop sensitivities > > to many things that previously did not bother me. How right he was, I > > now have to watch many things that I eat, dairy products have always > > been difficult, but my tolerance to them is nil now, and a few others > > too many to mention. > > > > I also found that unlike conventional medicines, alternatives very > > rarely come with written contraindications which I now realise is very > > disconcerting, I assumed that as they were supposed to be healthy, there > > were none, whoops steep learning curve on that one for me. > > > > Anyway as time goes on and you get to live with this condition, you > > learn by your mistakes I guess, but I for one am so grateful for hearing > > about your experiences, and I am happy to share mine, in the hope that > > we might spare some other person or persons who are contemplating going > > down this road, that it is not always the easy ride they might expect or > > hope. > > > > Of course we are all in charge of our own destinies, but for I > > personally bitterly regret messing about with stuff I had not > > researched, or ran by my medical team, a lot of it was I was in denial > > at the time, and was so pig headed that I knew better.....ahem ! I knew > > nothing and a week in a renal ward while they tried to sort out why my > > white cell count was all over the place, and that the fact that my BP > > was well out of control, taught me a lesson. > > > > I am seriously not trying to scare people but as is usual adding a word > > of caution. > > > > I hope this clarifies my position on alternatives, and now to be honest > > think I have put my feelings on this matter across as fair as I can. > > > > > > Bye for now. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 It made me crack up laughing too - especially the bit about the garlic!!! I'm glad I wasn't living anywhere near you then!!! (no offence meant, of course!!). " and Sally L. " wrote: Pierre, BRILLIANT e-mail it made me laugh out loud all the way through!!!!!!! This is one 'homeopathic' remedy anyone can take with tested side affects....... laughter. Sally. Some things... Well, the crisis has passed, and, I think I should let all of you in on a little secret. It's not really a secret, as I've mentioned it before, a long time ago, I think. Or maybe it was on another group. Anyway, when you've had 25 years to get to the point I am now, you don't get there without ever having some, shall we say, experiences with alternative meds along the way. Things I have tried in the past (but not within the last 8-10 years or more): - boiled celery leaves That was the first thing anyone ever told me to try as being good for the kidneys. Well, I tried it. I boiled some celery leaves and made " tea " with the liquid. Later that day, I was so sick I thought I was going to die, literally. I remember being sick the whole weekend, and I was alone with the 2 kids at the time (wife was away to visit parents). I was so sick I had to get a neighbour to feed the kids. I was too embarrassed to go to the hospital! This one, I would REALLY abvise you to totally not try!!!! - garlic I eat garlic. Always have, in cooking, often chopped raw. Renal diet even suggests it as a way of adding flavour to foods. But what I'm talking about is concentrated garlic pills. I had read somewhere that (a) it was good for blood pressure, and ( kidney diseases might be related to yeast infections in the kidneys, and that large doses of garlic extract might help. Well, it didn't help my BP at all, and after a couple of weeks, not only did I have terrible esophagitis, but I literally smelled like I'd fallen in a garlic patch. It just oozed out of my pores. People couldn't stand to be near me. By the way, it's probably not harmful, but did you know that megadoses of concentrated garlic can cause anemia? - flax oil This is before anyone ever heard of fish oil. I have a known allergy to sunflower seeds and oil, nuts and such, and as luck would have it, I didn't do very well with flax oil either. For one thing, I couldn't digest it. Pretty much just passed the oil unmodified, if you know what I mean. - some kind of herbal tea which I forget, with honey to sweeten it. Ended up in Emergency after that one. No kidding! My throat swelled up until it was almost shut, within two minutes of drinking it. They had to give me Benadryl through an IV. I still don't know if it was the tea itself or the honey, and I didn't repeat the experiment. Luckily, we lived not far from the local hospital at the time. - co-enzyme Q10 Supposed to be good for bloodpressure. Didn't work. - Hawthorne berry extract. Supposed to be good for bloodpressure. Didn't work either. - Stresstabs After a couple of days, developed a large red dry, scaley rash on my hands. Stopped it and it went away within a few days. Tried the Stresstabs again. Same thing. So, never tried them again, and never got the rash again. - Selenium, and other things I can't even remember. Now, this is all long before the World Wide Web came along. I don't know what I might have tried had the Internet been available at the time. Well, what can I say. We all learn from our mistakes. Unfortunately, with kidney disease, some of those mistakes could be very harmful indeed. Luckily, other than the life-threatening herbal tea episode (and possibly the celery), nothing too serious ever happened to me. But, after that phase, I just decided to settle in and let my doctor do the work. Pierre Quote Link to comment Share on other sites More sharing options...
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