Hello

[Guest guest]

Hi Vicki, Welcome to MSersLife! ) There are so many possible symptoms. I wonder why your doc didn't let you know what it was that made him consider MS. Perhaps you could call his office and ask that he call you? What had you seen him for, or told him of, that lead to mention of MS? Maybe... Numbing? Pain? Fatigue? Cognitive dulling/Dysfunction? Bladder problems? Ah, I could do this for a while. LOL There are some good websites in our list's links section. Some are specificially for describing symptoms and they might help get this figured out. They have helped me. I don't have an MS dx myself. Something is "wrong" with my body and MS seems to fit better than anything else I've looked into. I had an eval, lab work and MRI

of my brain only. No answers were found so I wait. Yay. LOL I think I can trace symptoms back a good decade, though really started becoming more aware of them (as they increased greatly?) around seven years ago or so. My Mother has MS (she's Sharon "Wobbletowalk"). Between her, this list, a few others, and lots of reading, I've found a lot of help and comfort. Challis Vicki West wrote: Hi Everyone ! My name is Vicky & I'm new to the group here. My doctor is suspecting that I may I have MS. He hasn't stated why. He just asked me a bunch of questions is all. I don't know anything about MS or its symtoms. Could somebody please help me here?!? Vicki ~~ Memorial Day. Remember… each of the brave and loving soldiers who died in battle, fighting for what we all believe in. As diverse as our beliefs, so were their backgrounds, their colors, religions, families and lives. Honor them, as well as their surviving comrades and loves ones, by remembering all they sacrificed. ~~Remembered, honored, loved... A man of great integrity and incredible faith.~ "A nation reveals itself not only by the men it produces but also by the men in honors, the men it remembers." -- Fitzgerald Kennedy --------

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[Guest guest]

I joined this group to gain information and understanding. I have no

idea if I have MS. Whatever this is, it's the 2nd episode in 2 years.

The first time, the neuro thought I had transverse myelitis and most

all symptoms cleared after a year.All MRI's at that time were negative

and he didn't feel there was need for any further testing. Now, I

have new symptoms although the searing back pain is not there. I have

been taking Lyrica for 2 months.

I can't see the neuro for another 3 weeks as I'm considered a new

patient cause I haven't seem him in a couple years.

Does ANYONE understand when I talk about a flutter in my chest and the

intention tremors in my arms and hands. I've tried to explain my

symptoms to some people I know, but they have no idea what I'm

babbling about. I have also developed a stutter this week that's very

irritating.

Sometimes I truly think perhaps I'm just imagining all this stuff and

could make it all stop. One person asked me if I was just having

anxiety attacks??? I don't know anymore and hope I can get feedback

from some of you. Thank you so much for just letting me vent.

[Guest guest]

Hi ! I was dx with MS 9 yrs ago, then clarified as Primary Progressive

MS 5 yrs ago when I steadily deteriorated and had no clear exacerbations. I

now have started getting a tingly kind of pain on my legs at the touch,

determined to be paresthesia. My neuro gave me Lyrica for that pain, which

made me instantly feel slightly out-of-it and dopey--so I quit the drug

immediately. What reaction have you noticed to the Lyrica, and was it the

back pain that you were taking it for?

Did the fluttering start after the Lyrica? Any co-relation that you see?

The stutter could well be an MS symptom. Take your time and try to collect

your thoughts before you speak. I sometimes get into trouble when I start

talking to fast or I'm rushed in response to a question, and sometimes the

strangest things come flying out of my mouth!

3 weeks is a long time to wait, but the tradeoff is that you'll get a

dedicated, long block of time with the neuro when you do see him/her. Hang

in there and try to be patient. Write down the questions you want to ask

during your appointment and try to organize your thoughts so that you get as

much out of it as possible.

Feel free to vent here! You're among friends...

Hugs, Rae

Hello

I joined this group to gain information and understanding. I have no idea if

I have MS. Whatever this is, it's the 2nd episode in 2 years.

The first time, the neuro thought I had transverse myelitis and most all

symptoms cleared after a year.All MRI's at that time were negative and he

didn't feel there was need for any further testing. Now, I have new

symptoms although the searing back pain is not there. I have been taking

Lyrica for 2 months.

I can't see the neuro for another 3 weeks as I'm considered a new patient

cause I haven't seem him in a couple years.

Does ANYONE understand when I talk about a flutter in my chest and the

intention tremors in my arms and hands. I've tried to explain my symptoms to

some people I know, but they have no idea what I'm babbling about. I have

also developed a stutter this week that's very irritating.

Sometimes I truly think perhaps I'm just imagining all this stuff and could

make it all stop. One person asked me if I was just having anxiety

attacks??? I don't know anymore and hope I can get feedback from some of

you. Thank you so much for just letting me vent.

[Guest guest]

Hi :

Intention tremors? So your tremors are only when you are reaching for something? Is the flutter in your chest heart palpitations or different?

I was dxed with Transverse Myelitis at first too. That was changed to MS 8 months later.

I'm glad you joined us and I'm sorry I didn't write the day you posted this.

Sharon (MSersLife creator/owner)

Keep true to the dreams of thy youth. (Albert Einstein)

Hello

I joined this group to gain information and understanding. I have noidea if I have MS. Whatever this is, it's the 2nd episode in 2 years.The first time, the neuro thought I had transverse myelitis and mostall symptoms cleared after a year.All MRI's at that time were negativeand he didn't feel there was need for any further testing. Now, Ihave new symptoms although the searing back pain is not there. I havebeen taking Lyrica for 2 months.I can't see the neuro for another 3 weeks as I'm considered a newpatient cause I haven't seem him in a couple years. Does ANYONE understand when I talk about a flutter in my chest and theintention tremors in my arms and hands. I've tried to explain mysymptoms to some people I know, but they have no idea what I'mbabbling about. I have also developed a stutter this week that's veryirritating.Sometimes I truly think perhaps I'm just imagining all this stuff andcould make it all

stop. One person asked me if I was just havinganxiety attacks??? I don't know anymore and hope I can get feedbackfrom some of you. Thank you so much for just letting me vent.

[Guest guest]

It's odd they didn't numb your back Rae.

Sharon (MSersLife creator/owner)

Keep true to the dreams of thy youth. (Albert Einstein)

Hello> > I joined this group to gain information and understanding. I have noidea if> I have MS.

Whatever this is, it's the 2nd episode in 2 years.> The first time, the neuro thought I had transverse myelitis and most > all symptoms cleared after a year.All MRI's at that time were negativeand he> didn't feel there was need for any further testing. Now, I have new > symptoms although the searing back pain is not there. I have been > taking Lyrica for 2 months.> I can't see the neuro for another 3 weeks as I'm considered a newpatient> cause I haven't seem him in a couple years. > Does ANYONE understand when I talk about a flutter in my chest and the > intention tremors in my arms and hands. I've tried to explain mysymptoms to> some people I know, but they have no idea what I'm babbling about. Ihave> also developed a stutter this week that's very irritating.> Sometimes I truly think perhaps I'm just imagining all this stuffand could> make it all stop. One person

asked me if I was just having anxiety > attacks??? I don't know anymore and hope I can get feedback from some > of you. Thank you so much for just letting me vent.> > > > > > > > > > > ------------ --------- ---

[Guest guest]

I'm just wondering if anybody that's had kids AND a spinal tap if it's similar to an epidural or an amniocentesis? I've had 2 epidurals, and THREE amnio's, I don't think anything could be worse than the amnio's........**shivers**

~

Hello> > I joined this group to gain information and understanding. I have noidea if> I have MS. Whatever this is, it's the 2nd episode in 2 years.> The first time, the neuro thought I had transverse myelitis and most > all symptoms cleared after a year.All MRI's at that time were negativeand he> didn't feel there was need for any further testing. Now, I have new > symptoms although the searing back pain is not there. I have been > taking Lyrica for 2 months.> I can't see the neuro for another 3 weeks as I'm considered a newpatient> cause I haven't seem him in a couple years. > Does ANYONE understand when I talk about a flutter in my chest and the > intention tremors in my arms and hands. I've tried to explain mysymptoms to> some people I know, but they have no idea what I'm babbling about. Ihave> also developed a stutter this week that's very irritating.> Sometimes I truly think perhaps I'm just imagining all this stuffand could> make it all stop. One person asked me if I was just having anxiety > attacks??? I don't know anymore and hope I can get feedback from some > of you. Thank you so much for just letting me vent.> > > > > > > > > > >

[Guest guest]

Hi Sharon

The flutter in my chest I think is muscle related...it improves when

I'm not trying to do anything with my arms. When I'm having an

episode, it evens effects my writing...anything at all to do with

arm/hand movement. I do get palpitations sometimes and that feels

different. Hopefully the neuro won't brush this off and figure out

what is going on.

Sharon, did you have terrible terrible spinal pain when they thought

you had TM? It was worse than anything I had ever experienced from my

lumbar down into my legs. I have always thought myself fortunate as a

lot of TMer's end up with severe pararalysis.

MSersLife , Sharon Marsden wrote:

>

> Hi :

>

> Intention tremors? So your tremors are only when you are reaching

for something? Is the flutter in your chest heart palpitations or

different?

>

> I was dxed with Transverse Myelitis at first too. That was changed

to MS 8 months later.

>

> I'm glad you joined us and I'm sorry I didn't write the day you

posted this.

>

> Sharon (MSersLife creator/owner)

> Keep true to the dreams of thy youth. (Albert Einstein)

>

>

> Hello

>

>

> I joined this group to gain information and understanding. I have no

> idea if I have MS. Whatever this is, it's the 2nd episode in 2 years.

> The first time, the neuro thought I had transverse myelitis and most

> all symptoms cleared after a year.All MRI's at that time were negative

> and he didn't feel there was need for any further testing. Now, I

> have new symptoms although the searing back pain is not there. I have

> been taking Lyrica for 2 months.

> I can't see the neuro for another 3 weeks as I'm considered a new

> patient cause I haven't seem him in a couple years.

> Does ANYONE understand when I talk about a flutter in my chest and the

> intention tremors in my arms and hands. I've tried to explain my

> symptoms to some people I know, but they have no idea what I'm

> babbling about. I have also developed a stutter this week that's very

> irritating.

> Sometimes I truly think perhaps I'm just imagining all this stuff and

> could make it all stop. One person asked me if I was just having

> anxiety attacks??? I don't know anymore and hope I can get feedback

> from some of you. Thank you so much for just letting me vent.

>

>

>

[Guest guest]

Hi :

No I didn't have terrible spinal pain. My big attack leading to an initial diagnosis of TM was total numbness from lower ribs to toes on the left side, loss of bladder control (peed all over the floor but didn't even feel it), I had to drag my leg but I could still walk, I absolutely couldn't tell hot from cold on my skin.... The neuro said TM so I searched on line and found the TMIC (Transverse Myelitis Internet Club). I quickly figured out I wasn't like most of the folks there. It became kind of a joke at the time that the lucky ones (who weren't paralyzed, etc) went on to be diagnosed with MS. TM is a BAD thing to have happen to you. And we are lucky to only have MS. Don't we feel lucky???? lol

I have a tremor that I feel in my arms especially. It's hard to describe but it's kind of a quivering. Like Challis, my muscles will get a flutter in certain spots (that's spasms), sometimes they don't flutter but they jerk and twist. When I reach for something I feel a tremor sometimes in my hand. It seems to be worse with my right hand even though I'm left handed.

As for your palpitations--have you had your thyroid checked? I'm hypothyroid and when I'm out of meds I get some pretty bad palpitations. Just a thought.

Hang in there! And remember we are all here for you and we will try to answer any questions you have.

Sharon (MSersLife creator/owner)

Keep true to the dreams of thy youth. (Albert Einstein)

Hello> > > I joined this group to gain information and understanding. I have no> idea if I have MS. Whatever this is, it's the 2nd episode in 2 years.> The first time, the neuro thought I had transverse myelitis and most> all symptoms cleared after a year.All MRI's at that time were

negative> and he didn't feel there was need for any further testing. Now, I> have new symptoms although the searing back pain is not there. I have> been taking Lyrica for 2 months.> I can't see the neuro for another 3 weeks as I'm considered a new> patient cause I haven't seem him in a couple years. > Does ANYONE understand when I talk about a flutter in my chest and the> intention tremors in my arms and hands. I've tried to explain my> symptoms to some people I know, but they have no idea what I'm> babbling about. I have also developed a stutter this week that's very> irritating.> Sometimes I truly think perhaps I'm just imagining all this stuff and> could make it all stop. One person asked me if I was just having> anxiety attacks??? I don't know anymore and hope I can get feedback> from some of you. Thank you so much for just letting me vent.> >

>

[Guest guest]

,

Oh yeah, it's the best! The fifth season of Dallas is coming out on DVD soon, can't wait! It was really interesting when they went from the last season of Dallas to the first season on Soapnet, you could really see how the show changed over the years. I'm glad to find a fellow Dallas-watcher. I watched Dynasty too once in a while when I could but no more. Thank you for the nice welcome!

Amy

[Guest guest]

Amy,

I absolutely LOVE Dallas!! I record it every day & my

husband & I watch it. We watched most of Dynasty as

well until they took it off the air. Welcome!

E.

Colorado

--- JrMustangArtTchr@... wrote:

> Hi Sharon, Lynn and everyone,

> Thank for you're warm greetings! My name is Amy as

> you already know. It's

> been years since I did my Yahoo profile so if you

> looked at it please ignore.

> I've had MS for five years and just recently came

> out of my most recent relapse.

> I take a truckload of meds for my symptoms to keep

> me on this side of sanity.

> I am an elementary art teacher during the school

> year which is loads of fun

> but wears me out. I love it though and I get these

> hot summer months off to veg

> in the air conditioning. I like to watch Dallas on

> Soapnet in my veg time but

> I also have to take online grad classes to keep up

> my teaching certification.

> At least it keeps me from getting bored. I look

> forward to chatting with all

> of you, this should be fun.

> Amy

>

" Insanity runs in my family. It practically gallops. "

Cary Grant

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