Re: Thumb subluxation? (fwd) What does shoulder subflexion feel like?

[Guest guest]

Hi Jill Its , Lately my oldest daughter is always complaining of joint

pain.

sometimes its in the groin , the knee the and ankle. well just the other

day She said that something happened

to her shoulder she heard a noise, after that it hurt her for a day or so

and she move it the noise and pain were

still there. WE thought it might be growing pains but it seems to be after

exersize. over the last little while I have been observing her and realized

that her skin is very tranlusent as well But just in the chest and AB area.

If the jointpain

persists should I get her tested ? Or even if Petra's results come back

postitive May be both of her siblings should

be tested. This kind of difficulty is happening about two to three times a

week where one moment a (my oldest)

can't move her leg. She will have to stay still for an hour or so . Then she

is hobbling around for while.

I mentioned all of this to our family DR. and he said that its jusat growing

pains and I have been told by other Dr's

that there is know such thing as growing pains.

Thanks

Re: Thumb subluxation? (fwd)

> Right now...yes! I hope she gets something sorted out for this, it's

a

> tough thing to send a child off to camp with an issue and I can understand

> why she wants this taken care of ASAP! Please keep me posted on this

little

> guy!

>

> She can see thumb splints of the silver ring splint variety here - this is

> Sharon Kay's hand:

>

> http://members.home.net/pghand/newceda/sharon.bmp

>

> There are more pictures of these types of splints and more in the

> yahoogroups page listed under files.

>

> Jill

>

>

>

>

>

[Guest guest]

,

Ann was told she had " growing pains " needed psychiatric treatment, and

was diagnosed with hypermobile EDS at age 22. So from 18 months old she

suffered pain in her joints and was given no medical assistance until

about 11 years of age when our G.P. thought she had osteocondritis in

the knees and told her not to exercise as it would damage the bones.

All your children need to be proberly assessed too.

Love and hugs,

Lilian

[Guest guest]

Hi ,

I am sorry to hear that your eldest daughter is having issues as well! It's

just not fair, is it?

What you are describing should be evaluated and since Petra is being

assessed for EDS, all members of the family should - it's part of the

diagnosis process with a geneticist, so yes, do follow up there.

The signs that you are describing fall into the category of hypermobility or

classical EDS issues, but having the geneticist assess the family as a whole

is critical.

Keep me posted please!

Jill

[Guest guest]

Thanks Lillian < I think That she must have it to Idon't see the other

kids suffering the pain she does after a soccer game or

just exersize. When she was 5 she suffered an episode that they thought was

juevenile arthritis, it lasted two weeks she could not use her knee. Any way

I think your right and will let Petra's Dr's know at Sick Kids. Thanks

Re: Thumb subluxation? (fwd) What does shoulder subflexion

feel like?

> ,

>

> Ann was told she had " growing pains " needed psychiatric treatment, and

> was diagnosed with hypermobile EDS at age 22. So from 18 months old she

> suffered pain in her joints and was given no medical assistance until

> about 11 years of age when our G.P. thought she had osteocondritis in

> the knees and told her not to exercise as it would damage the bones.

>

> All your children need to be proberly assessed too.

>

> Love and hugs,

>

> Lilian

>

>