Re: Frustrated at neuro

[Guest guest]

Well, this same neuro office can send you back for MRI of the brain stem,

C-spine, etc. and/or the spinal tap for the oligoconal bands, etc. There is

probably little doubt by now of the diagnosis. Fingers crossed, n

Frustrated at neuro

WEll, I just got back from a 6 hour drive to have the tests done that my neurologist ordered for me last month. I had he evoked potential tests where you look at the stupid black and white checks with a bunch of wires hanging off your head and ears, and then I had to put on headphones and listen to a bunch of annoying "clicks". I fell asleep during that one, though! And I had my MRI of my brain. ONLY my brain. The whole point of this MRI was to get my spinal cord and C-spine; and obviously compare the one i had of the brain six months ago at my initial dx. There was a mistake at my neuro's office, though, and they didn't mark spinal cord/c-spine on the orders, just brain. And they called the Dr's office, and yes, she said that's what she wanted, but due to my STUPID insurance company, I had to get pre-approval, and that apparently takes more time than we had. That is a very long drive for me, and I haven't had good experiences with my neurologist. I don't like her, I don't like her office staff. It's a six hour drive. I"m looking into different neuros, and I want to try Wake Forest. Has anyone been there? Would it be bad of me to switch neuros in the midst of appealing my SSDI case? I know my health should come first, but let's face it, I can't afford to be sick, so I have to be smart. I'm so tired, I will post more later. I'm so upset...~

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[Guest guest]

,

So sorry you are frustrated with your

neurologist. There are too many out there to go to one you don’t like. I

like mine but yesterday I had a run-in with the receptionist. I am supposed to

have an MRI done this summer and have had to call 3 times to get the ball

rolling. I wanted to do it while school was out so I wouldn’t have to

miss a day and get a sub. She was so rude to me; I hung up and called another

neuro’s office. I have an appointment in late August. I will wait on the

MRI until I see the new neuro. Life is too short to put up with people that are

rude and uncaring.

Good luck,

Connie

From: MSersLife [mailto:MSersLife ] On Behalf Of pebbles1175

Sent: Thursday, June 29, 2006

12:31 AM

To: MSersLife

Subject: Frustrated at

neuro

WEll, I just got back from a 6 hour drive to have the

tests done

that my neurologist ordered for me last month. I had he evoked

potential tests where you look at the stupid black and white checks

with a bunch of wires hanging off your head and ears, and then I had

to put on headphones and listen to a bunch of annoying " clicks " . I

fell asleep during that one, though! And I had my MRI of my brain.

ONLY my brain. The whole point of this MRI was to get my spinal cord

and C-spine; and obviously compare the one i had of the brain six

months ago at my initial dx. There was a mistake at my neuro's

office, though, and they didn't mark spinal cord/c-spine on the

orders, just brain. And they called the Dr's office, and yes, she

said that's what she wanted, but due to my STUPID insurance company,

I had to get pre-approval, and that apparently takes more time than

we had. That is a very long drive for me, and I haven't had good

experiences with my neurologist. I don't like her, I don't like her

office staff. It's a six hour drive. I " m looking into different

neuros, and I want to try Wake

Forest. Has anyone been

there? Would

it be bad of me to switch neuros in the midst of appealing my SSDI

case? I know my health should come first, but let's face it, I can't

afford to be sick, so I have to be smart. I'm so tired, I will post

more later. I'm so upset...

~

[Guest guest]

I can certainly understand your frustration . Refresh my memory--why did SSDI refuse you? Did your neuro say you were disabled and unable to ever return to work on the SSDI forms? Did you get a copy of what he wrote?

Any time I have to have a disability report filled out I have the doc fill it out and and send it back to me for me to send it. (Besides SSDI I get a disability from my employer, too, and they require a form to be filled out every year). Sometimes the office staff balks at that and they say they normally send it themselves. I explain that I have other stuff that has to be sent with it and that I'm still getting it together. A tiny lie, but it helps protect me. Then I copy the pages from the doc so I'll have the proof/evidence of what the doctor has said. If your neuro doesn't say it strongly enough that could cause you problems with disability whether it's SSDI or employer related disability program. I had one neuro (my first neuro) who told me he wouldn't say I was permanently disabled for SSDI. He said he just couldn't go on what I said. (What?!? he could go

on what I said to prescribe medication, couldn't he?) So I checked on other neuros and called one I liked and asked his office bluntly if the doctor would help me get SSDI and fill out my forms for me. She said "of course". And it was true. When I saw the new neuro I liked him right away. I asked him point blank if he would fill out my forms for SSDI. He said "well, do you have MS?" I said yes. Then he said "are you disabled to the point you can no longer work?" I said yes. He said then "why wouldn't I fill out your forms for disability?" He's wonderful and his staff is very nice. I still see him.

The point of that long story was to tell you it might be a good thing to go ahead and switch neuros. You have a lawyer for your SSDI, right? I thought that's what I remembered. If so, why don't you ask the lawyer what he thinks about switching?

Sharon

Sharon (MSersLife creator/owner)

Keep true to the dreams of thy youth. (Albert Einstein)

Frustrated at neuro

WEll, I just got back from a 6 hour drive to have the tests done that my neurologist ordered for me last month. I had he evoked potential tests where you look at the stupid black and white checks with a bunch of wires hanging off your head and ears, and then I had to put on headphones and listen to a bunch of annoying "clicks". I fell asleep during that one, though! And I had my MRI of my brain. ONLY my brain. The whole point of this MRI was to get my spinal cord and C-spine; and obviously compare the one i had of the brain six months ago at my initial dx. There was a mistake at my neuro's office, though, and they didn't mark spinal cord/c-spine on the orders, just brain. And they called the Dr's office, and yes, she said that's what she wanted, but due to my STUPID insurance company, I had to get pre-approval, and that apparently takes more time than we had. That is a very long drive for me, and I haven't had good

experiences with my neurologist. I don't like her, I don't like her office staff. It's a six hour drive. I"m looking into different neuros, and I want to try Wake Forest. Has anyone been there? Would it be bad of me to switch neuros in the midst of appealing my SSDI case? I know my health should come first, but let's face it, I can't afford to be sick, so I have to be smart. I'm so tired, I will post more later. I'm so upset...~

[Guest guest]

Here's a trip that might help you find a good neuro that's nearer to you:

Call your local MS Society branch office and find out when their local-to-you support groups are next meeting; then go along, and ask folks at the mtg for their recommendations about neuros in your area. You'll quickly get to know who's recommended (good bedside manner, etc) and who isn't (like they're too old--which matters because if its too long since their training, they're not going to be up on all the newer test procedures--one older neuro I saw once said "MRIs don't really tell us much" and just held a scan over his head and squinted at it through an overhead light [didn't even have a light box!] so I never saw him again). This was exactly how I chose my latest neuro when we moved to St Pete in February, who is now my 7th neuro (my hubby's career has moved us around a lot since I was diagnosed 9 yrs ago!)

When you're ready to make an appointment with a new neuro nearer, be sure to first retrieve all your records and test results from the first neuro and tell them you'd like "a 2nd opinion", which they'll no doubt happily support you doing.

I always recommend folks go to their SSI hearing looking as 'pitiful' as possible. If you bound in there seeming 'healthy', like there's nothing outwardly wrong with you, these Govt employees (who are paid to NOT give benefits away) may not think you're 'deserving enough' and fob you off, saying to try again next year... But if you came in with a supporter, that's maybe pushing you in a borrowed wheelchair, or you using a cane/walker, it definitely helps. Think of them as props to help your performance...

Lastly, definitely apply BEFORE you reduce your working hours (if you are still working?). Disability income is based on your last 2 years of income. If you cut your hours by working part-time, you will halve your disability paycheck when you eventually get disability. You therefore want to 'retire' at your full working pay.

Cheers, Rae

From: MSersLife [mailto:MSersLife ] On Behalf Of Sharon MarsdenSent: Thursday, June 29, 2006 10:28 AMTo: MSersLife Subject: Re: Frustrated at neuro

I can certainly understand your frustration . Refresh my memory--why did SSDI refuse you? Did your neuro say you were disabled and unable to ever return to work on the SSDI forms? Did you get a copy of what he wrote?

Any time I have to have a disability report filled out I have the doc fill it out and and send it back to me for me to send it. (Besides SSDI I get a disability from my employer, too, and they require a form to be filled out every year). Sometimes the office staff balks at that and they say they normally send it themselves. I explain that I have other stuff that has to be sent with it and that I'm still getting it together. A tiny lie, but it helps protect me. Then I copy the pages from the doc so I'll have the proof/evidence of what the doctor has said. If your neuro doesn't say it strongly enough that could cause you problems with disability whether it's SSDI or employer related disability program. I had one neuro (my first neuro) who told me he wouldn't say I was permanently disabled for SSDI. He said he just couldn't go on what I said. (What?!? he could go on what I said to prescribe medication, couldn't he?) So I checked on other neuros and called one I liked and asked his office bluntly if the doctor would help me get SSDI and fill out my forms for me. She said "of course". And it was true. When I saw the new neuro I liked him right away. I asked him point blank if he would fill out my forms for SSDI. He said "well, do you have MS?" I said yes. Then he said "are you disabled to the point you can no longer work?" I said yes. He said then "why wouldn't I fill out your forms for disability?" He's wonderful and his staff is very nice. I still see him.

The point of that long story was to tell you it might be a good thing to go ahead and switch neuros. You have a lawyer for your SSDI, right? I thought that's what I remembered. If so, why don't you ask the lawyer what he thinks about switching?

Sharon

Sharon (MSersLife creator/owner)

Keep true to the dreams of thy youth. (Albert Einstein)

Frustrated at neuro

WEll, I just got back from a 6 hour drive to have the tests done that my neurologist ordered for me last month. I had he evoked potential tests where you look at the stupid black and white checks with a bunch of wires hanging off your head and ears, and then I had to put on headphones and listen to a bunch of annoying "clicks". I fell asleep during that one, though! And I had my MRI of my brain. ONLY my brain. The whole point of this MRI was to get my spinal cord and C-spine; and obviously compare the one i had of the brain six months ago at my initial dx. There was a mistake at my neuro's office, though, and they didn't mark spinal cord/c-spine on the orders, just brain. And they called the Dr's office, and yes, she said that's what she wanted, but due to my STUPID insurance company, I had to get pre-approval, and that apparently takes more time than we had. That is a very long drive for me, and I haven't had good experiences with my neurologist. I don't like her, I don't like her office staff. It's a six hour drive. I"m looking into different neuros, and I want to try Wake Forest. Has anyone been there? Would it be bad of me to switch neuros in the midst of appealing my SSDI case? I know my health should come first, but let's face it, I can't afford to be sick, so I have to be smart. I'm so tired, I will post more later. I'm so upset...~

[Guest guest]

I had to do all those tests too. Getting the glue

stuff out of my hair was the worst. Anyway I had to go

through 3 neuros before I found one that wasn't an

arrogant a@#.

I even had one guy look at my meds that I take & then

decide that it was all in my head! I take meds for

bipolar disorder. Needless to say that was the first &

last time I ever saw that guy. There aren't many in

town here so if my guy ever dies (he's upper 70's) I

might have to drive to Denver. Good Luck!

E.

Colorado

--- pebbles1175 wrote:

> WEll, I just got back from a 6 hour drive to have

> the tests done

> that my neurologist ordered for me last month. I had

> he evoked

> potential tests where you look at the stupid black

> and white checks

> with a bunch of wires hanging off your head and

> ears, and then I had

> to put on headphones and listen to a bunch of

> annoying " clicks " . I

> fell asleep during that one, though! And I had my

> MRI of my brain.

> ONLY my brain. The whole point of this MRI was to

> get my spinal cord

> and C-spine; and obviously compare the one i had of

> the brain six

> months ago at my initial dx. There was a mistake at

> my neuro's

> office, though, and they didn't mark spinal

> cord/c-spine on the

> orders, just brain. And they called the Dr's office,

> and yes, she

> said that's what she wanted, but due to my STUPID

> insurance company,

> I had to get pre-approval, and that apparently takes

> more time than

> we had. That is a very long drive for me, and I

> haven't had good

> experiences with my neurologist. I don't like her, I

> don't like her

> office staff. It's a six hour drive. I " m looking

> into different

> neuros, and I want to try Wake Forest. Has anyone

> been there? Would

> it be bad of me to switch neuros in the midst of

> appealing my SSDI

> case? I know my health should come first, but let's

> face it, I can't

> afford to be sick, so I have to be smart. I'm so

> tired, I will post

> more later. I'm so upset...

> ~

>

>

>

>

>

>

>

[Guest guest]

Aw, , I'm so sorry. {{{{{{{{Hugs}}}}}}}} Challis pebbles1175 wrote: WEll, I just got back from a 6 hour drive to have the tests done that my neurologist ordered for me last month. I had he evoked potential tests where you look at the stupid black and white checks with a bunch of wires hanging off your head and ears, and then I had to put on headphones and listen to a bunch of annoying "clicks". I fell asleep during that one, though! And I had my MRI of my brain. ONLY

my brain. The whole point of this MRI was to get my spinal cord and C-spine; and obviously compare the one i had of the brain six months ago at my initial dx. There was a mistake at my neuro's office, though, and they didn't mark spinal cord/c-spine on the orders, just brain. And they called the Dr's office, and yes, she said that's what she wanted, but due to my STUPID insurance company, I had to get pre-approval, and that apparently takes more time than we had. That is a very long drive for me, and I haven't had good experiences with my neurologist. I don't like her, I don't like her office staff. It's a six hour drive. I"m looking into different neuros, and I want to try Wake Forest. Has anyone been there? Would it be bad of me to switch neuros in the midst of appealing my SSDI case? I know my health should come first, but let's face it, I can't afford to be sick, so I have to be smart. I'm so tired, I will post

more later. I'm so upset...~

Want to be your own boss? Learn how on Yahoo! Small Business.

[Guest guest]

That sounds like a good idea. I do know there is a local MS support group that meets once a month VERY close to me. I should kick myself in the ass for not going yet, but here is the thing. Since all of my "emotional" problems have progressed lately, I do NOT do well in public, with strangers, etc. That is part of the reason why I had to stop working. I have terrible panic attacks when I get around a lot of people, which is really sad, because it keeps me home-bound a lot. That is why I am so thankful for this online group. I am in counseling and just changed from Cymbalta, to Lexepro, which hopefully will begin to improve my "social skills".....Thank you,

~

Frustrated at neuro

WEll, I just got back from a 6 hour drive to have the tests done that my neurologist ordered for me last month. I had he evoked potential tests where you look at the stupid black and white checks with a bunch of wires hanging off your head and ears, and then I had to put on headphones and listen to a bunch of annoying "clicks". I fell asleep during that one, though! And I had my MRI of my brain. ONLY my brain. The whole point of this MRI was to get my spinal cord and C-spine; and obviously compare the one i had of the brain six months ago at my initial dx. There was a mistake at my neuro's office, though, and they didn't mark spinal cord/c-spine on the orders, just brain. And they called the Dr's office, and yes, she said that's what she wanted, but due to my STUPID insurance company, I had to get pre-approval, and that apparently takes more time than we had. That is a very long drive for me, and I haven't had good experiences with my neurologist. I don't like her, I don't like her office staff. It's a six hour drive. I"m looking into different neuros, and I want to try Wake Forest. Has anyone been there? Would it be bad of me to switch neuros in the midst of appealing my SSDI case? I know my health should come first, but let's face it, I can't afford to be sick, so I have to be smart. I'm so tired, I will post more later. I'm so upset...~

[Guest guest]

Thanks, it looks like I’m going to have to go shopping for a new neuro. I've done decided that I'm not going back to her. My health is too important, and I have to get control over taking charge of it and get over this hatred I have of going to the doctors office/hospitals in the first place. I may as well just face it, do my research and try different doctors until I find one that I am comfortable with. It took me forever to find a Primary care physician that I liked and could talk to. I think that's the most important thing is being able to talk to your doctor, and I just have a hard time in the setting of a doctor's office being able to talk about my symptoms and my health. I feel like a complainer and a whiner and a cry baby when I go...I was never allowed to complain when I was growing up and I think that's a lot of my problem with Dr.s.....but anyway I've decided that I'm going to just keep trying one until I find one I am comfortable with. The drive is not even an issue if it would be worth it. I already know that I will have to travel due to the location we live. We live in a VERY rural section of Virginia. Some folks call us "Hillbillies"....

~

Re: Frustrated at neuro

I had to do all those tests too. Getting the gluestuff out of my hair was the worst. Anyway I had to gothrough 3 neuros before I found one that wasn't anarrogant a@#.I even had one guy look at my meds that I take & thendecide that it was all in my head! I take meds forbipolar disorder. Needless to say that was the first & last time I ever saw that guy. There aren't many intown here so if my guy ever dies (he's upper 70's) Imight have to drive to Denver. Good Luck! E.Colorado--- pebbles1175 wrote:> WEll, I just got back from a 6 hour drive to have> the tests done > that my neurologist ordered for me last month. I had> he evoked > potential tests where you look at the stupid black> and white checks > with a bunch of wires hanging off your head and> ears, and then I had > to put on headphones and listen to a bunch of> annoying "clicks". I > fell asleep during that one, though! And I had my> MRI of my brain. > ONLY my brain. The whole point of this MRI was to> get my spinal cord > and C-spine; and obviously compare the one i had of> the brain six > months ago at my initial dx. There was a mistake at> my neuro's > office, though, and they didn't mark spinal> cord/c-spine on the > orders, just brain. And they called the Dr's office,> and yes, she > said that's what she wanted, but due to my STUPID> insurance company, > I had to get pre-approval, and that apparently takes> more time than > we had. That is a very long drive for me, and I> haven't had good > experiences with my neurologist. I don't like her, I> don't like her > office staff. It's a six hour drive. I"m looking> into different > neuros, and I want to try Wake Forest. Has anyone> been there? Would > it be bad of me to switch neuros in the midst of> appealing my SSDI > case? I know my health should come first, but let's> face it, I can't > afford to be sick, so I have to be smart. I'm so> tired, I will post > more later. I'm so upset...> ~> > > > > > >

[Guest guest]

Sorry this is late:

SSDI never really came right out and said WHY they refused me, something along the lines of "based on your age, education level, work history, medical findings, blah blah blah"....then they went on to list specific justifications to several of the symptoms and side effects I mentioned like "while we do find that your recent diagnosis of MS may cause you some discomfort, we do not find the level of discomfort......blah blah blah" and "while medical evidence shows that you are experiencing *problems with bladder* you are on medication to treat this"...well, yeah, but it's not working.....just general stuff like that. I don't know specifically WHAT my neuro told them, but when I mentioned filing for my SSDI, she flat out said that she would not help me, that I should return to work and I could force my employer to make accomodations for me....?????.......I know that my primary care physician and urologist will both help me, but I don't know if the neuro is what caused me to be refused or not. It's my suspicion that it is...I am searching for a new neuro, and yes, I do have an attorney. I've been reading some of the information on the links to this group on filing for SSDI and such, anyway....it's so frustrating. They really have no idea what I go through, and it makes me mad that I KNOW I'm not able to work, yet I can still be refused....I won't get on my soap box...I'll just file my appeal and hope for the best....

~

Frustrated at neuro

WEll, I just got back from a 6 hour drive to have the tests done that my neurologist ordered for me last month. I had he evoked potential tests where you look at the stupid black and white checks with a bunch of wires hanging off your head and ears, and then I had to put on headphones and listen to a bunch of annoying "clicks". I fell asleep during that one, though! And I had my MRI of my brain. ONLY my brain. The whole point of this MRI was to get my spinal cord and C-spine; and obviously compare the one i had of the brain six months ago at my initial dx. There was a mistake at my neuro's office, though, and they didn't mark spinal cord/c-spine on the orders, just brain. And they called the Dr's office, and yes, she said that's what she wanted, but due to my STUPID insurance company, I had to get pre-approval, and that apparently takes more time than we had. That is a very long drive for me, and I haven't had good experiences with my neurologist. I don't like her, I don't like her office staff. It's a six hour drive. I"m looking into different neuros, and I want to try Wake Forest. Has anyone been there? Would it be bad of me to switch neuros in the midst of appealing my SSDI case? I know my health should come first, but let's face it, I can't afford to be sick, so I have to be smart. I'm so tired, I will post more later. I'm so upset...~

[Guest guest]

Yes, I agree. I am in the process of looking for a new neuro. I don't like her, her office staff, her nurse, her lady that takes blood or anything....it's never been a positive experience for me as far as Dr's appts can be, with her....

~

RE: Frustrated at neuro

,

So sorry you are frustrated with your neurologist. There are too many out there to go to one you don’t like. I like mine but yesterday I had a run-in with the receptionist. I am supposed to have an MRI done this summer and have had to call 3 times to get the ball rolling. I wanted to do it while school was out so I wouldn’t have to miss a day and get a sub. She was so rude to me; I hung up and called another neuro’s office. I have an appointment in late August. I will wait on the MRI until I see the new neuro. Life is too short to put up with people that are rude and uncaring.

Good luck, Connie

From: MSersLife [mailto:MSersLife ] On Behalf Of pebbles1175Sent: Thursday, June 29, 2006 12:31 AMTo: MSersLife Subject: Frustrated at neuro

WEll, I just got back from a 6 hour drive to have the tests done that my neurologist ordered for me last month. I had he evoked potential tests where you look at the stupid black and white checks with a bunch of wires hanging off your head and ears, and then I had to put on headphones and listen to a bunch of annoying "clicks". I fell asleep during that one, though! And I had my MRI of my brain. ONLY my brain. The whole point of this MRI was to get my spinal cord and C-spine; and obviously compare the one i had of the brain six months ago at my initial dx. There was a mistake at my neuro's office, though, and they didn't mark spinal cord/c-spine on the orders, just brain. And they called the Dr's office, and yes, she said that's what she wanted, but due to my STUPID insurance company, I had to get pre-approval, and that apparently takes more time than we had. That is a very long drive for me, and I haven't had good experiences with my neurologist. I don't like her, I don't like her office staff. It's a six hour drive. I"m looking into different neuros, and I want to try Wake Forest. Has anyone been there? Would it be bad of me to switch neuros in the midst of appealing my SSDI case? I know my health should come first, but let's face it, I can't afford to be sick, so I have to be smart. I'm so tired, I will post more later. I'm so upset...~

[Guest guest]

yeah, but that means ANOTHER five or six hour drive TO the appt, which means THAT far back, which means my hubby will have to take ANOTHER day off from work for a mistake that HER office made! SHEESH!

~

Frustrated at neuro

WEll, I just got back from a 6 hour drive to have the tests done that my neurologist ordered for me last month. I had he evoked potential tests where you look at the stupid black and white checks with a bunch of wires hanging off your head and ears, and then I had to put on headphones and listen to a bunch of annoying "clicks". I fell asleep during that one, though! And I had my MRI of my brain. ONLY my brain. The whole point of this MRI was to get my spinal cord and C-spine; and obviously compare the one i had of the brain six months ago at my initial dx. There was a mistake at my neuro's office, though, and they didn't mark spinal cord/c-spine on the orders, just brain. And they called the Dr's office, and yes, she said that's what she wanted, but due to my STUPID insurance company, I had to get pre-approval, and that apparently takes more time than we had. That is a very long drive for me, and I haven't had good experiences with my neurologist. I don't like her, I don't like her office staff. It's a six hour drive. I"m looking into different neuros, and I want to try Wake Forest. Has anyone been there? Would it be bad of me to switch neuros in the midst of appealing my SSDI case? I know my health should come first, but let's face it, I can't afford to be sick, so I have to be smart. I'm so tired, I will post more later. I'm so upset...~

No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.394 / Virus Database: 268.9.6/378 - Release Date: 6/28/2006

[Guest guest]

On medication to treat it? Oh good grief. LOL Folks with Epilepsy are on meds, know how to drive, are of any age and educational background, but "being on meds" doens't mean This-One-Person can drive. Bleh. <~~ that's iritation being polite. LOLOL I don't remember the ins and outs, but I do recall one of my Mother's Neuros wasn't so *comfy* with the SSDI stuff. She moved on to another Neuro. He helped. ) Hugs, Challis Damron wrote: Sorry this is late: SSDI never really came right out and said WHY they refused me, something along the lines of "based on your age, education level, work history, medical findings, blah blah blah"....then they went on to list specific justifications to several of the symptoms and side effects I mentioned like "while we do find that your recent diagnosis of MS may cause you some discomfort, we do not find the level of discomfort......blah blah blah" and "while medical evidence shows that you are experiencing *problems with bladder* you are on medication to treat this"...well, yeah, but it's not working.....just general stuff like that. I don't know specifically WHAT my neuro told them, but when I mentioned filing for my SSDI, she flat out said that she would not help me, that I should return to

work and I could force my employer to make accomodations for me....?????.......I know that my primary care physician and urologist will both help me, but I don't know if the neuro is what caused me to be refused or not. It's my suspicion that it is...I am searching for a new neuro, and yes, I do have an attorney. I've been reading some of the information on the links to this group on filing for SSDI and such, anyway....it's so frustrating. They really have no idea what I go through, and it makes me mad that I KNOW I'm not able to work, yet I can still be refused....I won't get on my soap box...I'll just file my appeal and hope for the best.... ~ Frustrated at neuro WEll, I just got back from a 6 hour drive to have the

tests done that my neurologist ordered for me last month. I had he evoked potential tests where you look at the stupid black and white checks with a bunch of wires hanging off your head and ears, and then I had to put on headphones and listen to a bunch of annoying "clicks". I fell asleep during that one, though! And I had my MRI of my brain. ONLY my brain. The whole point of this MRI was to get my spinal cord and C-spine; and obviously compare the one i had of the brain six months ago at my initial dx. There was a mistake at my neuro's office, though, and they didn't mark spinal cord/c-spine on the orders, just brain. And they called the Dr's office, and yes, she said that's what she wanted, but due to my STUPID insurance company, I had to get pre-approval, and that apparently takes more time than we had. That is a very long drive for me, and I haven't had good experiences with my neurologist. I don't like her, I

don't like her office staff. It's a six hour drive. I"m looking into different neuros, and I want to try Wake Forest. Has anyone been there? Would it be bad of me to switch neuros in the midst of appealing my SSDI case? I know my health should come first, but let's face it, I can't afford to be sick, so I have to be smart. I'm so tired, I will post more later. I'm so upset...~

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