Conference Attendees - Attention

July 13, 2001

To all of my CEDA precious family, I wish you all a happy conference and

lots of hugs from the other members of our family. I am sure it will be

lovely to meet the faces and personalities of our sisters and brothers

with EDS and I am just so sad that I cannot be with you this year.

I had hopes but they were dashed with my hospital admission on 17th

July. Take care everyone and have a fabulous time. Maybe next year I

will be one of you, I pray so.

Love, prayers and hugs,

Lilian.

Note to Sue G. Good luck with the G.I visit today, I hope you can

persuade him in the right direction, but then I am sure your charm will

work wonders.

smginleyrn@... wrote:

>

> Wow, thanks AJ. Have to see the GI doc today, and was going to make my plea

> for more Flagyl/Cipro so as not to have trouble at the conference. Will

> bring this along. He is going to want to run the other way, as he now knows

> what I have, and probably won't know what to do with me. At least I can make

> an argument for treatment if it works. Thanks Again. Love, Sue Ginley

>

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