Re: Confused and scared

[Guest guest]

I won't lie and say I know how upset and scared you are. I don't. I have bad spells of my own that are nothing like yours, but are scarey none the less. You first must calm down and try and relax.

Thank you so much,

I took a break and cried to finish the finale' of the meltdown pt. 1. The final breaking point is when I called mom 30 mins ago and was expressing my fears. She was half listening with the ole ummm hummm response and I just hung up. I then burst out crying and after 5 minutes said a prayer and began to realize that what ever happens is gonna happen and I have no control over events, people, or life. I feel better as a result.

My Mom and I are having a very strained time. She is in total denial of what is happening and has resorted into treating me cruel in some instances. I plan to get counseling because it has stressed me too much. Some of things that has happened since my diagnosis is unbelievable.

Thanks again, your words of wisdom mean a lot.

Que

[Guest guest]

Dear Que...strife and conflict between mom and daughter is upsetting...I chose not to tell my parents. My parents are 82 and 83. My mom has stated to most of the family that she prefers not to hear "bad things" as she cannot deal with the stress of it...her choice. So....last summer, on the 4th of July, my then 16 year old dtr., blurted out at a party, oh, so and so will take me out to practice driving when mom's in the hosp. for her operation--i jumped up and started to call my own dtr. a liar, because i of course didn't tell my mom i was going in for brain surgery for my trigeminal neuralgia! My mother looked at me and said what operation? my dtr. said, 'i can't believe you didn't tell your own mother!"--both my mom and i said at the exact moment to her--because her mother doesn't want to know!! so i never told her much about the surgery, no one in my family came to visit...

As a mom, I can't imagine if, heaven forbid, one of my children were to become inflicted with something--anything besides something chicken soup or a visit to the dr. couldn't fix up quick. I am not making excuses for your mom, just trying to see that you are both having a hard time. She needs space, and you need support from us here, and perhaps an MS support group you could attend in your community. Therapy would be wise for you, and perhaps for your mom too. Parents want to control and fix things...she can't fix it, so she doesn't know how to be there for you right now...Of course you are hurting, because you need her, her love, support and nurture. She is probably confused and scared. Maybe if you gave her some literature about MS, and one of the books the MS Society puts out, that is called something like,When someone you Love has MS, or something like that--it is a good book.Thinking of you Que...this unfortunately, is part of the unfolding of how we all deal with this thing called MS. I guess in writing this, I am getting some insight for myself...right now, I'm going to take time off the meds--maybe it will be just a phase for me...but it is what i have to do right now...it is part of my processing, it all takes time....blessings , friend, kate

-- Re: Confused and scared

I won't lie and say I know how upset and scared you are. I don't. I have bad spells of my own that are nothing like yours, but are scarey none the less. You first must calm down and try and relax.

Thank you so much,

I took a break and cried to finish the finale' of the meltdown pt. 1. The final breaking point is when I called mom 30 mins ago and was expressing my fears. She was half listening with the ole ummm hummm response and I just hung up. I then burst out crying and after 5 minutes said a prayer and began to realize that what ever happens is gonna happen and I have no control over events, people, or life. I feel better as a result.

My Mom and I are having a very strained time. She is in total denial of what is happening and has resorted into treating me cruel in some instances. I plan to get counseling because it has stressed me too much. Some of things that has happened since my diagnosis is unbelievable.

Thanks again, your words of wisdom mean a lot.

Que

[Guest guest]

I do know how you feel about the MOM thing. My mom was in total denial and refused to believe any of my doctors. Her best friend is a nurse and she wanted to me to call her and talk to her about all this!?!? Like her nurse best friend was going to give me a different Dx over the phone than a Neuro at the hospital that physically checked me out did??? LOLOLOL Don't feel bad about the MOM issue. She will come around. Mine did after a couple of months. She loves you very much. You are her child and soon the mothering gene will kick in and she will give all the support you need!! I know it in my heart. No mother could deny her child. Well....no sane mother! Keep the tissues handy as I'm sure you will need plenty if you are anything like me! Keep your chin up as well. Tammy, Txqscholar wrote: I won't lie and say I know how upset and scared you are. I don't. I have bad spells of my own that are nothing like yours, but are scarey none the less. You first must calm down and try and relax. Thank you so much, I took a break and cried to finish the finale' of the meltdown pt. 1. The final breaking point is when I called mom 30 mins ago and was expressing my fears. She was half listening with the ole ummm hummm response and I

just hung up. I then burst out crying and after 5 minutes said a prayer and began to realize that what ever happens is gonna happen and I have no control over events, people, or life. I feel better as a result. My Mom and I are having a very strained time. She is in total denial of what is happening and has resorted into treating me cruel in some instances. I plan to get counseling because it has stressed me too much. Some of things that has happened since my diagnosis is unbelievable. Thanks again, your words of wisdom mean a lot. Que

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[Guest guest]

Everything you describe can be symptoms of ms. I can't do any of the walking without severe tremors. When you force yourself to do something when your tired it makes it worse 'qscholar wrote: Hi again, today has progressed into a scary and bad day for me. As I posted earlier I was getting ready for my Physical therapy at 1:00 pm. I had my onset of optic neuritis in late April and things have improved. My Dr. told me that for six months I can have good days and days of

setbacks which I have. Usually my vision will blur with too much movement, steam, heat, the sun, etc. I had grown comfortable in knowing that this is normal. Today is a different story altogether. I have been severely blurred all day today, but didn't think much of it because I have been told what to expect. I also figured that since I am now down to 2 prednisones a day and hadn't been taking the naproxen 500 for inflammation that this could be the reason. Well....My therapist arrives and I informed him that because of my blurriness I may have difficulty in performing the tasks that he has for me during our session. THAT WAS AN UNDERSTATEMENT! I told him that I am always willing to try but just wanted him to know. We began our first repititions of me walking to the door sideways and back and I did well. Next was walking cross

legged and I did that. Third is walking heel to toe and I could not do it without losing my total balance and almost going down. He stopped that one and then we talked some more. He then asked me to do the toe lifts and I did that. After that was a set of 10 lunges for each leg. I was fine with the right leg but my weaker leg (everything is affected on my left side ie: optic neuritis, leg, vertigo) I went down again. It was scary to say the least. He then immediately wanted me to call the Dr. because he thinks I am having TIA's (mini-strokes) It took much convincing for me to keep him from calling 9-11 because I told him that since the onset of the vision problem I had been diagnosed with MS and that all of the other issues had taken place before as well before he began the P/T. He first saw me after I had improved so he had never witnessed me at my worst. He finally relented and then gave me instructions on what to do if

this happens again. Ofcourse I, (Miss gotta research it all) looked up TIA on the net and every symptom is what I have been having right down to the vision loss in one eye. Now I am scared that I am a stroke casualty waiting to happen. I dont know enough about MS to calm down enough to wonder if what happened today was indeed MS related. My Neuro is out of town until I go back on the 5th and I dont know what to think or do. One thing is that my blood pressure was 110/70 and the PT said that one sign of tias and stroke is a high bp reading so that eased my fear a little. I am fine while sitting still, when I move I blur all over again. With no exertion my legs are fine, but now I am paranoid. My head keeps going tight, my arm was hurting, and I am very anxiey. (sp) Help! I just need to be told that these same symptoms can also be a symptom of

MS because I am totally confused due to anxiety and fear. I live alone but I did call my Mom. I also took a naproxen for the eye inflammation. I was told to take that as needed so with today being bad with the vision I took one. This usually helps and gets me back on track. I am sitting here at the computer paranoid to even move. Thanks, I hope that I do not sound more of the mess that I am. Any words of wisdom will help. Que (the one who will probably look back at this post a year from now and think OMG I can't believe I typed that)

[Guest guest]

Everything you describe can be symptoms of ms. I can't do any of the walking without severe tremors. When you force yourself to do something when your tired it makes it worse

Howdy,

thereeeeees my fellow cheerleader....GO mavs...

Thanks for the answer and encouragement. I am finally back to reality and am actually turning the tide and feeling a little better physically and emotionally. I must adjust and will definately request to go back on my beloved Wellbutrin on the 5th. I believe that it is the MS symptoms. Later today both legs felt real heavy as I was walking. (still do) and I know that strokes do not do all of that. I decided to call on tomorrow and request that PT be stopped at least until all of the final talleys come in with the Neurologist. It's too much and since we do not have all of the answers yet, I would rather leave the grueling PT out of the equasion.