Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 Welcome ! Why did you stop Copaxone? So you stopped work due to the stress and long hours. What kind of problems did the long hours cause you? Sharon wrote: I am 31, married 11yrs, 2 daughters 6 & 9, and I was Dx with RR MS3yrs ago. I was on Copaxone at first but I no longer take it. Now I'mnot on anything and am doing quite well. I used to work in healthcarein geriatrics but I had to quit last year due to stress & long hours.Now I just stay home with the girls. E.Colorado Sharon (MSersLife creator/owner) Keep true to the dreams of thy youth. (Albert Einstein) Ring'em or ping'em. Make PC-to-phone calls as low as 1¢/min with Yahoo! Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 I worked as a CNA at first & then worked my way up to director of patient care. I was responsible for scheduling CNA's on all shifts & I was frequently on call. I averaged around 50hrs a week. I wound up being on steroids on & off for 6 months. I got sick (colds & such) & that made my MS symptoms worse. I wasn't recovering from the colds so they gave me oral steroids as well as IV. As far as the Copaxone goes I had excellent insurance at that job & it only cost $50 a month. I'm on my husband's insurance now & their price is $750 a month. Needless to say I can't do much about that. I tried calling various companies about assistance but since I do have insurance they aren't going to offer much help if any at all. So for now I just take my vitamin supplements. I have only had to be on IV once a year so far due to optic neuritis. I guess that's pretty good compared to what other people go through. I've only had to use a cane twice since being Dx. After being on these types of groups I realize that I am very lucky. I had no idea how bad it can get for some people. E. Colorado --- Sharon Marsden wrote: > Welcome ! Why did you stop Copaxone? So you > stopped work due to the stress and long hours. What > kind of problems did the long hours cause you? > > Sharon " Insanity runs in my family. It practically gallops. " Cary Grant __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2007 Report Share Posted March 25, 2007 --- " " wrote: > > The new meds have finally got me pain almost under control. Next week the dr wants me to let her know if i need to increase my MS Contin, which i think i am going to because the pill runs out after me being on it for 8 hours and it supposed to last 12. \ Hi - Welcome to the list. One comment on the dosing of your MSContin. It is well-recognized among knowledgeable pain management doctors and the pain community that the " contins " or continuous release pain drugs do NOT last 12 hours like the drug companies claim. They should all be prescribed on an eight-hour dosing schedule instead. The solution is not to increase the milligrams you are taking - that will not solve your problem. The meds will still run out of your system after eight hours and you will be in pain for the last four hours. The solution is to have your doctor prescribe the same effective dose you are taking at this time, but write it so that you have enough pills to be taken every 8 hours instead of every 12. If your insurance fights you on this because the drug company claims it is a 12-hour med, the doctor can apply for an override. All of us on these " contin " meds - Oxycontin, MSContin, etc - all have to take them on an 8-hour dosing schedule, so you are not experiencing anything unusual. Make sure your doctor writes the script for the correct dosing schedule and you'll find your life is a lot less painful! Cheryl in AZ Moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2007 Report Share Posted March 25, 2007 , You have been through so much to be so young. Sounds like you have a wonderful family though! So glad you got in to see a pain management specialist and she has been able to help you. Annie > wrote: >My name is I am a 33 year old male. I have been married for 14 years now and have 6 wonderful children aged from 2to 14. 3 boys and 3 girls. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2007 Report Share Posted March 25, 2007 Annie Thank you, it was awesome that my primary care physician and the specialist were there at my apt at the same time. Gave me options and let me chose. Then said if at any time I want to try the other options that they would be there for me. I wish that every one primary care physician would be the same with them. My clinic has a dedicated website for all it patients so they can see their medical records and write an email directly to your doctor 24/7 this helps my doctor keep up to date because I write to her sometimes every day and sometimes once a week. Then I can tell my doctor how I am feeling and going threw on a regular basis so she can adjust my meds accordingly. I think all clinics should offer this. But for now Theda care in central Wisconsin does. Thank you for taking the time to read my post and respond it meant a lot to me. thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2007 Report Share Posted March 25, 2007 You are so welcome . We are here to give each other encouragment, support, hugs, etc. Annie wrote: Thank you for taking the time to read my post and respond it meant a lot to me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 Hello, My name is Doris. My husband has RSD and I have joined the group so that I can get some information about the disease and hopefully find ways to help him. He has had RSD for as long as I have known him, so it isn't a new development. I know that he is looking into a number of diffrent ways to help him cope and I would appreceate any suggestions, as to what has worked for you all. Thank you and Ilook forward to giving and recieving support. Doris Quote Link to comment Share on other sites More sharing options...
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