Re: fatigue

[Guest guest]

Hi ,

I can understand and certainly sympathize with your

situation. I have unrelenting fatigue which doesn't

go away no matter when or how much I sleep. Some days

are better than others but I'm never entirely fatigue

free.

I'm not sure how old your children are or even how old

you are. I am 55 with 3 sons. My youngest is 12. I

work only 4 hours a week for pay. I schedule rest

times for when the boys are at school. If they need

to go somewhere, I encourage them to wait if they can

or to go with a friend and have their friend's parent

take them.

It's not easy, but I try to avoid stress if at all

possible. Stress and fatigue make whatever other

symptoms that much more pronounced.

There is a medication called Provigil that is supposed

to help a person stay awake and be more alert. The

sleep doctor prescribed it for my son. It's not

covered by medicaid and when the doctor signed the

form to request authorization he had used a different

diagnosis than the one he should have used. We're

having the manufacturer help with getting it approved.

Since my son has not used this medication, I can't

verify that it will work. But maybe this is something

you can ask your doctor about. It's only approved by

the FDA for three different diagnoses:

Obstructive sleep apnea/hypopnea syndrome

Shift work sleep disorder (SWSD)

Narcolepsy

You can read more at the provigil web site:

http://www.provigil.com/patient/disorders/disorders.aspx

Try to maintain good nutrition. Rest when you can.

If your children are young, hire a babysitter to

entertain them while you take care of yourself.

Donna

It does not require many words to speak the truth.

--Chief ph

__________________________________________________

[Guest guest]

I have been very lucky no to have any fatigue trouble with my MS just

no balance and bladder trouble. I think sometimes I would trade having

fatigue for being able to walk around my city block again. I probably

should be careful what I wish for.

Bill

pebbles1175 wrote:

Hello, all. I'm wondering if anyone has any suggestions for

dealing

with extreme fatigue. I know the whole deal about using your energy

like a bank account, spacing and pacing yourself, taking naps and

breaks when needed, etc. But I have two very active children, and

I'm wondering if there is a vitamin or something I could take to

help. I've researched vitamin b-12 but it seems that only works if

you have a deficiency of that particular vitamin. I've tried the so

call "energy drinks" and they taste so horrible I can't stand it. I

don't know if my meds have affected my taste or what, but it seems

like I am much more sensitive to tastes and smells. I especially

have a difficult time the two days after my Avonex injection. I

inject on Sunday nights, Monday's I'm completely out of commission

until late in the afternoon or early in the evening, meaning I'm in

bed. Then I gradulally force myself to get up for a few hours before

going back to bed. Tuesdays are usually alot better, and it

increases gradually until it's time to take another injection. Isn't

that a hoot?! I've began eating healthier, I'm still overweight,

though but I have lost 20 pounds since my dx in December, not

necessarily trying to do that, so I don't know if that's good or

not, being overweight to begin with, i'm not complaining.. I have

bought exercise equipment (haven't we all?) and do plan on starting

to use my treadmill once we get moved in our new home, which

hopefully will be in the coming month. I could just really use some

extra energy and I don't know where to find it~~This is a symptom

that I am having alot of trouble coping with. I used to be able to

do so much and I look back now and wonder if I could do it all again

if I had to; I don't think I could. It's so frustrating, any

suggestions are appreciated. I feel like my time in bed, resting and

napping, is time wasted. Maybe I just need to quit looking for a

magic pill and learn to accept my limitations better? What do you

experienced MSers suggest? BTW, I have my first counseling

appointment tomorrow. I'm nervous and excited at the same time. I'm

hoping it will help me cope with all of this. Has anyone had

positive experiences with counseling this soon after dx? Sometimes

it seems like just yesterday and other days it seems like i've been

dealing with this for my whole life! Sorry didnt' mean to ramble on

so much. It's just so nice to be able to have this sounding board

and hear from other people who I know understand. I haven't had that

until now, and hopefully for everyone in the group, once the newness

of this group wears off I will quit posting and aggravating you all

so much!! Thanks ahead,

~

[Guest guest]

Hey Bill and others, I think we should all be careful what we wish for: I once asked God to please not take my hearing or my vision senses away. When I was first diagnosed with MS, I had very little sense of touch. I almost burned myself a few times. It's amazing how important that sense of touch and speech ( I really sounded like I was drunk when I was 1st diagnosed) can be/are. I guess God really knew what he was doing when He gave me them. BarbMS-Bill wrote: I have been very lucky no to have any fatigue trouble with my MS just no balance and bladder trouble. I think sometimes I would trade having fatigue for being able to walk around my city block again. I probably should be careful what I wish

for.Billpebbles1175 wrote:> Hello, all. I'm wondering if anyone has any suggestions for dealing> with extreme fatigue. I know the whole deal about using your energy> like a bank account, spacing and pacing yourself, taking naps and> breaks when needed, etc. But I have two very active children, and> I'm wondering if there is a vitamin or something I could take to> help. I've researched vitamin b-12 but it seems that only works if> you have a deficiency of that particular vitamin. I've tried the so> call "energy drinks" and they taste so horrible I can't stand it. I> don't know if my meds have affected my taste or what, but it seems> like I am much more sensitive to tastes and smells. I especially> have a difficult time the two days after my Avonex injection. I> inject on Sunday nights, Monday's I'm completely out of commission> until late in the afternoon or early in

the evening, meaning I'm in> bed. Then I gradulally force myself to get up for a few hours before> going back to bed. Tuesdays are usually alot better, and it> increases gradually until it's time to take another injection. Isn't> that a hoot?! I've began eating healthier, I'm still overweight,> though but I have lost 20 pounds since my dx in December, not> necessarily trying to do that, so I don't know if that's good or> not, being overweight to begin with, i'm not complaining.. I have> bought exercise equipment (haven't we all?) and do plan on starting> to use my treadmill once we get moved in our new home, which> hopefully will be in the coming month. I could just really use some> extra energy and I don't know where to find it~~This is a symptom> that I am having alot of trouble coping with. I used to be able to> do so much and I look back now and wonder if I could do it all

again> if I had to; I don't think I could. It's so frustrating, any> suggestions are appreciated. I feel like my time in bed, resting and> napping, is time wasted. Maybe I just need to quit looking for a> magic pill and learn to accept my limitations better? What do you> experienced MSers suggest? BTW, I have my first counseling> appointment tomorrow. I'm nervous and excited at the same time. I'm> hoping it will help me cope with all of this. Has anyone had> positive experiences with counseling this soon after dx? Sometimes> it seems like just yesterday and other days it seems like i've been> dealing with this for my whole life! Sorry didnt' mean to ramble on> so much. It's just so nice to be able to have this sounding board> and hear from other people who I know understand. I haven't had that> until now, and hopefully for everyone in the group, once the newness> of this group

wears off I will quit posting and aggravating you all> so much!! Thanks ahead,> ~>> __________________________________________________

[Guest guest]

-

You are not aggravating anyone with your posts. And I totally know what you are talking about being fatigued all the time. I myself, have spent the last 5 days sleeping. I'm up now, but I know in just a little while, I'm going back to my bed to get some more sleep. The fatigue is the worst part of the MS for me. I literally have to force myself to get up every day. What I hate the most is...I don't really sleep a lot while I'm in bed. Most of the time, I don't get enough sleep. I just lay in bed looking up to the ceiling counting the bumps in the stucco. In my mind, I'm cleaning house like a mad woman! Scrubbing floors, dusting, washing dishes, doing laundry, etc...etc... I sure wish that's all we had to do. My house would be spotless. As it is right now, I clean one room a day. Thank goodness there are just two of us living here, that's enough.

I know I'm not much help here. Basically, I just wanted you to know that you are not alone. What works for one, may not work for another. We all have to find a way that we can deal with this. I'm in the same boat as you. I'm still trying to find something.

God bless...Val

-- fatigue

Hello, all. I'm wondering if anyone has any suggestions for dealing with extreme fatigue. I know the whole deal about using your energy like a bank account, spacing and pacing yourself, taking naps and breaks when needed, etc. But I have two very active children, and I'm wondering if there is a vitamin or something I could take to help. I've researched vitamin b-12 but it seems that only works if you have a deficiency of that particular vitamin. I've tried the so call "energy drinks" and they taste so horrible I can't stand it. I don't know if my meds have affected my taste or what, but it seems like I am much more sensitive to tastes and smells. I especially have a difficult time the two days after my Avonex injection. I inject on Sunday nights, Monday's I'm completely out of commission until late in the afternoon or early in the evening, meaning I'm in bed. Then I gradulally force myself to get up for a few hours before going back to bed. Tuesdays are usually alot better, and it increases gradually until it's time to take another injection. Isn't that a hoot?! I've began eating healthier, I'm still overweight, though but I have lost 20 pounds since my dx in December, not necessarily trying to do that, so I don't know if that's good or not, being overweight to begin with, i'm not complaining.. I have bought exercise equipment (haven't we all?) and do plan on starting to use my treadmill once we get moved in our new home, which hopefully will be in the coming month. I could just really use some extra energy and I don't know where to find it~~This is a symptom that I am having alot of trouble coping with. I used to be able to do so much and I look back now and wonder if I could do it all again if I had to; I don't think I could. It's so frustrating, any suggestions are appreciated. I feel like my time in bed, resting and napping, is time wasted. Maybe I just need to quit looking for a magic pill and learn to accept my limitations better? What do you experienced MSers suggest? BTW, I have my first counseling appointment tomorrow. I'm nervous and excited at the same time. I'm hoping it will help me cope with all of this. Has anyone had positive experiences with counseling this soon after dx? Sometimes it seems like just yesterday and other days it seems like i've been dealing with this for my whole life! Sorry didnt' mean to ramble on so much. It's just so nice to be able to have this sounding board and hear from other people who I know understand. I haven't had that until now, and hopefully for everyone in the group, once the newness of this group wears off I will quit posting and aggravating you all so much!! Thanks ahead,~

[Guest guest]

Thanks Barb for the most part I am very happy even with my MS but I

still wonder if sometimes and I do know you are correct. My wifes father

Herb has Alzhiemers and has been in a nursing home now for several

year's. He doesn't even know he has new grandkids. My MS is mild

compared to what he is going through.

Bill

batman robin wrote:

> Hey Bill and others, I think we should all be careful what we wish

> for: I once asked God to please not take my hearing or my vision

> senses away. When I was first diagnosed with MS, I had very little

> sense of touch. I almost burned myself a few times. It's amazing how

> important that sense of touch and speech ( I really sounded like I was

> drunk when I was 1st diagnosed) can be/are.

>

> I guess God really knew what he was doing when He gave me them.

>

> Barb

> */MS-Bill /* wrote:

>

>

>

> I have been very lucky no to have any fatigue trouble with my MS

> just no

> balance and bladder trouble. I think sometimes I would trade having

> fatigue for being able to walk around my city block again. I probably

> should be careful what I wish for.

> Bill

>

> pebbles1175 wrote:

>

> > Hello, all. I'm wondering if anyone has any suggestions for dealing

> > with extreme fatigue. I know the whole deal about using your energy

> > like a bank account, spacing and pacing yourself, taking naps and

> > breaks when needed, etc. But I have two very active children, and

> > I'm wondering if there is a vitamin or something I could take to

> > help. I've researched vitamin b-12 but it seems that only works if

> > you have a deficiency of that particular vitamin. I've tried the so

> > call " energy drinks " and they taste so horrible I can't stand it. I

> > don't know if my meds have affected my taste or what, but it seems

> > like I am much more sensitive to tastes and smells. I especially

> > have a difficult time the two days after my Avonex injection. I

> > inject on Sunday nights, Monday's I'm completely out of commission

> > until late in the afternoon or early in the evening, meaning I'm in

> > bed. Then I gradulally force myself to get up for a few hours before

> > going back to bed. Tuesdays are usually alot better, and it

> > increases gradually until it's time to take another injection. Isn't

> > that a hoot?! I've began eating healthier, I'm still overweight,

> > though but I have lost 20 pounds since my dx in December, not

> > necessarily trying to do that, so I don't know if that's good or

> > not, being overweight to begin with, i'm not complaining.. I have

> > bought exercise equipment (haven't we all?) and do plan on starting

> > to use my treadmill once we get moved in our new home, which

> > hopefully will be in the coming month. I could just really use some

> > extra energy and I don't know where to find it~~This is a symptom

> > that I am having alot of trouble coping with. I used to be able to

> > do so much and I look back now and wonder if I could do it all again

> > if I had to; I don't think I could. It's so frustrating, any

> > suggestions are appreciated. I feel like my time in bed, resting and

> > napping, is time wasted. Maybe I just need to quit looking for a

> > magic pill and learn to accept my limitations better? What do you

> > experienced MSers suggest? BTW, I have my first counseling

> > appointment tomorrow. I'm nervous and excited at the same time. I'm

> > hoping it will help me cope with all of this. Has anyone had

> > positive experiences with counseling this soon after dx? Sometimes

> > it seems like just yesterday and other days it seems like i've been

> > dealing with this for my whole life! Sorry didnt' mean to ramble on

> > so much. It's just so nice to be able to have this sounding board

> > and hear from other people who I know understand. I haven't had that

> > until now, and hopefully for everyone in the group, once the newness

> > of this group wears off I will quit posting and aggravating you all

> > so much!! Thanks ahead,

> > ~

> >

> >

>

>

> __________________________________________________

>