Guest guest Posted February 9, 2000 Report Share Posted February 9, 2000 What I have been told in meetings on radiation and from others in AN groups is that they do not like to radiate any tumors larger than 2-3 cm. -Beck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2000 Report Share Posted February 10, 2000 Couldn't agree with you more; in 10 or 15 years, there will probably be stats available to show what method works best, but for right know, I consider it a crap shoot! And I don't think the docs really know what is best either! Why are some giving 5 shots and some giving 28? I attached a note I wrote to my neurologist, just to let you see what you think of my reasoning. How concerned are you about swelling? The thought SEEMS to be that FRS would cause less swelling than GK, but I also think GK would be more apt to kill the tumor for sure. Did you see the note about Ojeman recommending FRS? marie Thanks much; I get an MRI on Friday, and really want to take some action. See if you agree with my reasoning; saving hearing looks doubtful, altho I still hear for the best; Facial nerve preservation now becomes even more of a priority; since the ENT said they will have difficulty removing my size tumor, etc without damaging the facial nerve; and since supposedly radiosurgery has a decent track record with saving facial nerve ( at Hopkins tells me they have not lost a facial nerve, but of course we know that is mostly unilaterals); so I take the radiosurgery route, knowing that I am taking the chance that it won't stop tumor growth, and I would be right back where I am. I have experienced what brain stem distention does to you, and I do NOT what to have that quality of life. That said, even tho I know there is not the degree of precision with fractionation as there is with GK, there is also not the degree of damage to the nerve and less of a danger of swelling. I would be interested in fractionated GK, but I realize I do not have the time to wait for that potential, unless Brackman thinks otherwise. I really appreciate your being my " sounding board " . Marie Drew Peacock >> >> >>>From: Bfrank4fr@... >>> >>>If I remember correctly, a major advantage of peacock is that the center of >>>the tumor gets the largest doses of radiation, while the perimeter, nearest >>>the healthy tissue and nerves, gets the least, or " none " . >>> >>>In this way, the tumor can really get zapped, and much more accurately. >>> >>>Is there a size limitation of tumor for this form of treatment? >>>Barbara lin >>> >>> >>>See what's happening for NF2Con 2000! >>>http://msnhomepages.talkcity.com/DeckDr/earld/nf2convegas2000.html >>> >>> >> >> >>See what's happening for NF2Con 2000! >>http://msnhomepages.talkcity.com/DeckDr/earld/nf2convegas2000.html >> >> >> > > >See what's happening for NF2Con 2000! >http://msnhomepages.talkcity.com/DeckDr/earld/nf2convegas2000.html > > Quote Link to comment Share on other sites More sharing options...
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