Guest guest Posted June 7, 2002 Report Share Posted June 7, 2002 Re: Strange feelings in my legs > I have been experiencing the same type of pain. It hits me when I sit down > at night after being on my feet all day (I work in retail). It is hard to > describe other than an " ache " in both legs. Sometimes heat works to relieve > the pain somewhat, if it really bothers me, I go to bed early. I just went > to the neph this week, and my clearance went from 27 down to 13! He thinks > that I may have been dehydrated during my 24 hr urine collection (I hope). > > (been " listening " to group for a while) > New York State > Hi . If it's dehydration bad enough to affect your creatinine number, then the question you need to ask is, how did I get this dehydrated, and what do I need to do to prevent it from happening. Dehydration is not a good thing for your kidneys, and other things as well. Hopefully, it's that rather than your real creatinine clearance though. Or even better, just a lab error. Are you redoing another collection? Pierre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2002 Report Share Posted June 7, 2002 yes, in a couple weeks. In the meantime I have increased my water intake.....and my bathroom visits! Re: Strange feelings in my legs > > > > I have been experiencing the same type of pain. It hits me when I sit down > > at night after being on my feet all day (I work in retail). It is hard to > > describe other than an " ache " in both legs. Sometimes heat works to > relieve > > the pain somewhat, if it really bothers me, I go to bed early. I just went > > to the neph this week, and my clearance went from 27 down to 13! He thinks > > that I may have been dehydrated during my 24 hr urine collection (I hope). > > > > (been " listening " to group for a while) > > New York State > > > > Hi . > If it's dehydration bad enough to affect your creatinine number, then the > question you need to ask is, how did I get this dehydrated, and what do I > need to do to prevent it from happening. Dehydration is not a good thing for > your kidneys, and other things as well. Hopefully, it's that rather than > your real creatinine clearance though. Or even better, just a lab error. Are > you redoing another collection? > Pierre > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2002 Report Share Posted June 7, 2002 , Just curious about this. Are you on a diuretic, or on a really radical low salt diet? Pierre Re: Strange feelings in my legs > > > > > > > I have been experiencing the same type of pain. It hits me when I sit > down > > > at night after being on my feet all day (I work in retail). It is hard > to > > > describe other than an " ache " in both legs. Sometimes heat works to > > relieve > > > the pain somewhat, if it really bothers me, I go to bed early. I just > went > > > to the neph this week, and my clearance went from 27 down to 13! He > thinks > > > that I may have been dehydrated during my 24 hr urine collection (I > hope). > > > > > > (been " listening " to group for a while) > > > New York State > > > > > > > Hi . > > If it's dehydration bad enough to affect your creatinine number, then the > > question you need to ask is, how did I get this dehydrated, and what do I > > need to do to prevent it from happening. Dehydration is not a good thing > for > > your kidneys, and other things as well. Hopefully, it's that rather than > > your real creatinine clearance though. Or even better, just a lab error. > Are > > you redoing another collection? > > Pierre > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2002 Report Share Posted July 4, 2002 Pierre, he hasn't complained about them recently. By the way, one of the common threads I read about here is fatigue and the need for more sleep than most. is exactly that way. More sleep for him is an absolute need. At first I thought he was just plain lazy (and he probably is!) but he needs so much more sleep than his friends. Why is that? > > Re: dehydration > > > > My son, , has been complaining of severe stomach cramps in the > > middle of the night. Although he has had a good report from his > > neph his past visit, could this be related? Pam > > > > > Hi Pam. Is still having the cramps? > Pierre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2002 Report Share Posted July 4, 2002 For the past month, since school has been out, my son (17) drags himself up from his lower floor bedroom and suddenly appears for breakfast anywhere between 1 and 3 in the afternoon. Maybe it's just a teenager thing. I really don't know about IgAN and fatigue. I would think an episode of acute nephritis with macro-hematuria and heavy proteinuria might make one tired. Blood pressure drugs definitely can make a person feel listless. But I don't know why just plain, ordinary, uncomplicated IgAN can do that, until it becomes more advanced renal failure with anemia, etc. I'm not dismissing it, but I don't think anyone can really explain it. Pierre Re: dehydration > > > > > > > My son, , has been complaining of severe stomach cramps in > the > > > middle of the night. Although he has had a good report from his > > > neph his past visit, could this be related? Pam > > > > > > > > > Hi Pam. Is still having the cramps? > > Pierre > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2002 Report Share Posted July 4, 2002 I saw a BBC show with Dr Winston a few weeks ago. Teenagers REALLY do need the extra sleep to help them deal with all the changes as their bodeis mature. Reply-To: iga-nephropathy To: <iga-nephropathy > Subject: Re: dehydration Date: Thu, 4 Jul 2002 19:38:30 -0400 For the past month, since school has been out, my son (17) drags himself up from his lower floor bedroom and suddenly appears for breakfast anywhere between 1 and 3 in the afternoon. Maybe it's just a teenager thing. I really don't know about IgAN and fatigue. I would think an episode of acute nephritis with macro-hematuria and heavy proteinuria might make one tired. Blood pressure drugs definitely can make a person feel listless. But I don't know why just plain, ordinary, uncomplicated IgAN can do that, until it becomes more advanced renal failure with anemia, etc. I'm not dismissing it, but I don't think anyone can really explain it. Pierre Re: dehydration > > > > > > > My son, , has been complaining of severe stomach cramps in > the > > > middle of the night. Although he has had a good report from his > > > neph his past visit, could this be related? Pam > > > > > > > > > Hi Pam. Is still having the cramps? > > Pierre > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2002 Report Share Posted July 5, 2002 I'm the only one in my family that needs ridiculous amounts of sleep. Also the only one with this type of illness. I need the nine hours a night, while my brother and parents have always gotten away easily with about 6!! I might be a bit lazier than them, but it is noticeable enough to get ribbed about:) In some ways I hope that it is due to this. Then I have a great excuse:). Ingrid > > > > > > Re: dehydration > > > > > > > > > > My son, , has been complaining of severe stomach cramps in > > the > > > > middle of the night. Although he has had a good report from his > > > > neph his past visit, could this be related? Pam > > > > > > > > > > > > > Hi Pam. Is still having the cramps? > > > Pierre > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2002 Report Share Posted July 5, 2002 Speaking of dehydration... I had to be rehydrated by IV fluids today. 3rd time this year. I never had this problem until I started on the renal diet. I suspect the low sodium aspect of the diet combined with the diuretic may not be appropriate for me. Will have to review that with the renal team. I take a relatively small dose of the diuretic furosemide, but it has never been to treat edema (which I don't have), but rather, for its blood pressure lowering effect. Really bad nausea, weakness, a fast heart rate, and just a feeling of being very dry prompted me to go to the nearest emergency. For some strange reason, these things always seem to happen on a weekend or Friday afternoon, when it's impossible to reach any doctor. Everything is fine now, though. Pierre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2002 Report Share Posted July 5, 2002 I hope your ER's are better than ours in southern Cal. They commonly have 8-12 hour waits. Marty Re: dehydration Speaking of dehydration... I had to be rehydrated by IV fluids today. 3rd time this year. I never had this problem until I started on the renal diet. I suspect the low sodium aspect of the diet combined with the diuretic may not be appropriate for me. Will have to review that with the renal team. I take a relatively small dose of the diuretic furosemide, but it has never been to treat edema (which I don't have), but rather, for its blood pressure lowering effect. Really bad nausea, weakness, a fast heart rate, and just a feeling of being very dry prompted me to go to the nearest emergency. For some strange reason, these things always seem to happen on a weekend or Friday afternoon, when it's impossible to reach any doctor. Everything is fine now, though. Pierre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2002 Report Share Posted July 5, 2002 Hi Pierre Hope your feeling better today, dehydration makes you feel totally yuk doesn't it. Yes strange how things always happen when doctors are not available, like the all scenario you never see a policeman when you want one! Anyway hope you have a good weekend and feel good. Love Re: dehydration Speaking of dehydration... I had to be rehydrated by IV fluids today. 3rd time this year. I never had this problem until I started on the renal diet. I suspect the low sodium aspect of the diet combined with the diuretic may not be appropriate for me. Will have to review that with the renal team. I take a relatively small dose of the diuretic furosemide, but it has never been to treat edema (which I don't have), but rather, for its blood pressure lowering effect. Really bad nausea, weakness, a fast heart rate, and just a feeling of being very dry prompted me to go to the nearest emergency. For some strange reason, these things always seem to happen on a weekend or Friday afternoon, when it's impossible to reach any doctor. Everything is fine now, though. Pierre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2002 Report Share Posted July 6, 2002 I was in as soon as the triage nurse saw me. Within 5 minutes, I was in an observation bed. For things that aren't really urgent, a 3-4 hour wait is about average, I think. I was surprised I got in that quickly, but I guess having renal failure is an advantage in some cases. There is great pressure on the doctors not to admit anyone though. You have to really be in immediate danger to get past emerg. It's interesting to hear the chatter between the emerg doctors, nurses and specialists. I was right next to the desk where they all work. Pierre Re: dehydration > > > Speaking of dehydration... > > I had to be rehydrated by IV fluids today. 3rd time this year. > > I never had this problem until I started on the renal diet. I suspect the > low sodium aspect of the diet combined with the diuretic may not be > appropriate for me. Will have to review that with the renal team. > > I take a relatively small dose of the diuretic furosemide, but it has never > been to treat edema (which I don't have), but rather, for its blood pressure > lowering effect. > > Really bad nausea, weakness, a fast heart rate, and just a feeling of being > very dry prompted me to go to the nearest emergency. For some strange > reason, these things always seem to happen on a weekend or Friday afternoon, > when it's impossible to reach any doctor. > > Everything is fine now, though. > > Pierre > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2002 Report Share Posted July 6, 2002 Thanks . I'm feeling pretty chipper this morning. Last night, I had three big pieces of pizza for supper, with lots of cheese and pepperoni. It was about as salty as it gest. I rationalised it: if I'm going to be dehydrated, I may as well eat and enjoy myself : ) As far as I can tell, it's uncommon to have this problem. Most people at this stage retain sodium and water. I seem to be the opposite. But now that it has happened again, I'm going to want some answers! Pierre Re: dehydration > > Speaking of dehydration... > > I had to be rehydrated by IV fluids today. 3rd time this year. > > I never had this problem until I started on the renal diet. I suspect > the > low sodium aspect of the diet combined with the diuretic may not be > appropriate for me. Will have to review that with the renal team. > > I take a relatively small dose of the diuretic furosemide, but it has > never > been to treat edema (which I don't have), but rather, for its blood > pressure > lowering effect. > > Really bad nausea, weakness, a fast heart rate, and just a feeling of > being > very dry prompted me to go to the nearest emergency. For some strange > reason, these things always seem to happen on a weekend or Friday > afternoon, > when it's impossible to reach any doctor. > > Everything is fine now, though. > > Pierre > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2002 Report Share Posted July 6, 2002 Pierre, Another reason that a diuretic is often prescribed as you approach end-stage is that it flushes out some of the excess potassium that your kidneys can¹t filter. Glad to hear you are doing better now. Take care- Betsy > Speaking of dehydration... > > I had to be rehydrated by IV fluids today. 3rd time this year. > > I never had this problem until I started on the renal diet. I suspect the > low sodium aspect of the diet combined with the diuretic may not be > appropriate for me. Will have to review that with the renal team. > > I take a relatively small dose of the diuretic furosemide, but it has never > been to treat edema (which I don't have), but rather, for its blood pressure > lowering effect. > > Really bad nausea, weakness, a fast heart rate, and just a feeling of being > very dry prompted me to go to the nearest emergency. For some strange > reason, these things always seem to happen on a weekend or Friday afternoon, > when it's impossible to reach any doctor. > > Everything is fine now, though. > > Pierre > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2002 Report Share Posted July 6, 2002 Pierre, Glad you got in quickly. My wife works in an ER. You wouldn't believe the stories she tells me; not about patients, about the doctors being so burned-out and rude to patients, nurses, etc. It's a county hospital so a lot of patients are indigent, drug addicts, etc. Many of the docs don't even think of them as being human. My wife doesn't subscribe to that philosophy. PS I had an upward trend in serum creat. Was stable at 1.5 mg/dl, then went to 1.7, 1.8. Last lab perform on July 3rd it was 1.3! Needless to say, I'm very relieved and thankful. Marty Re: dehydration > > > Speaking of dehydration... > > I had to be rehydrated by IV fluids today. 3rd time this year. > > I never had this problem until I started on the renal diet. I suspect the > low sodium aspect of the diet combined with the diuretic may not be > appropriate for me. Will have to review that with the renal team. > > I take a relatively small dose of the diuretic furosemide, but it has never > been to treat edema (which I don't have), but rather, for its blood pressure > lowering effect. > > Really bad nausea, weakness, a fast heart rate, and just a feeling of being > very dry prompted me to go to the nearest emergency. For some strange > reason, these things always seem to happen on a weekend or Friday afternoon, > when it's impossible to reach any doctor. > > Everything is fine now, though. > > Pierre > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2002 Report Share Posted July 6, 2002 Marty, Funny (and good) to hear you talking about serum creatinine again, after having been on dialysis. That's what happens you get a transplant - you become like a mild IgANer again : ) They checked mine yesterday, while I was there. It's back up to 330 (3.7) from 302 (3.4). Seems to be up and down every time someone measures it, but 330 isn't too bad, considering. Same lab as last time, so it is what it is. I've seen some pretty rude doctors and, especially, nurses, here too in Emerg over the years. We have five hospitals in the city here, some are better than others. There's one where the Emerg staff is very rude, but once you get admitted for anything, the nurses in the other departments are excellent. Currently, my fistula seems to be my ticket to reasonably civil treatment. Yesterday, as I said, I could here them talking. They were quite overworked yesterday, and anxious to clear some patients out of the observation room. There was a very old man in a bed across the room. They had someone from the geriatric department look at him. They determined that he didn't require admission, and that he could go home, despite not being able to even take a shower by himself, and no family. A little while later, a social worker called the " discharge specialist " came around, and I overheard her say to another nurse that there was no way this man should go home, but she had to follow orders. Sad sometimes. It's apparent that there is lots of pressure from administration not to admit patients unless they are just about dead. Pierre Re: dehydration > Pierre, > > Glad you got in quickly. My wife works in an ER. You wouldn't believe the stories she tells me; not about patients, about the doctors being so burned-out and rude to patients, nurses, etc. It's a county hospital so a lot of patients are indigent, drug addicts, etc. Many of the docs don't even think of them as being human. My wife doesn't subscribe to that philosophy. > > PS I had an upward trend in serum creat. Was stable at 1.5 mg/dl, then went to 1.7, 1.8. Last lab perform on July 3rd it was 1.3! Needless to say, I'm very relieved and thankful. > > Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 Hi Pierre, We've had trouble with our Internet Server lately at work, probably from the overload of e-mails from kid..neyland Hope that you're feeling better by now. I do need help though... Does anyone have any statistics or information in regards to if IgAN is inherited or if it tends to run in families? My 22 year old daughter spent all day yesterday in the Emergency Room due to unexplained pain in her right side and they ruled out the appendix, bowel, stomach, female and kidney stone problems. But she did have a fair amount of blood in her urine and this is not her time (if you know what I mean) and I am freaking out. ( Plus she would kill me if she knew I told 400 people around the world that information!) I have let my mind do a number on me and I feel like I am going to have a " melt down " today from worry...I would like to have any information that anyone has in regards to passing IgAN along to our children. Does anyone in group have IgAN and also their children? Years ago, I read that it wasn't considered inherited but that it could run in families. Please forward me any information, good or bad. The surgeon that she saw yesterday had her come back to the lab today for additional blood tests, which we don't have back yet. As usual you are all gems, thanks in advance for any help. A Mommy that's worried about her baby... Connie, USA Re: dehydration Speaking of dehydration... I had to be rehydrated by IV fluids today. 3rd time this year. I never had this problem until I started on the renal diet. I suspect the low sodium aspect of the diet combined with the diuretic may not be appropriate for me. Will have to review that with the renal team. I take a relatively small dose of the diuretic furosemide, but it has never been to treat edema (which I don't have), but rather, for its blood pressure lowering effect. Really bad nausea, weakness, a fast heart rate, and just a feeling of being very dry prompted me to go to the nearest emergency. For some strange reason, these things always seem to happen on a weekend or Friday afternoon, when it's impossible to reach any doctor. Everything is fine now, though. Pierre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2002 Report Share Posted July 11, 2002 Oh Connie PS. The surgery for the constriction of ureters, is a very simple procedure, over in about 15 minutes, and usually done as a day case, didn't want you to think it was mega surgery because it was not. Of course this may not be what is your daughters problem, and the cause of a constriction is normally infection leading to inflammation of the lining of the ureter, causing severe tummy pain in the right quandrant, hence why I mentioned it. Re: dehydration Speaking of dehydration... I had to be rehydrated by IV fluids today. 3rd time this year. I never had this problem until I started on the renal diet. I suspect the low sodium aspect of the diet combined with the diuretic may not be appropriate for me. Will have to review that with the renal team. I take a relatively small dose of the diuretic furosemide, but it has never been to treat edema (which I don't have), but rather, for its blood pressure lowering effect. Really bad nausea, weakness, a fast heart rate, and just a feeling of being very dry prompted me to go to the nearest emergency. For some strange reason, these things always seem to happen on a weekend or Friday afternoon, when it's impossible to reach any doctor. Everything is fine now, though. Pierre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 Well, believe it or not, I had to have another helping of saline fluid by IV yesterday (Thursday, 11 July 02). This would be the second time in a week, and the fourth time this year. The doctor I saw is forwarding everything to my nephrologist, so we'll see what develops. It's very strange though. The vast majority of people with my stage of renal failure have the opposite problem. They retain fluid. I figure it has got to be one of my medications (not necessarily the diuretic, since it's such a small dose). They did some blood work. My serum creatinine is up to 350, and urea is high, but other than that, potassium, phosphorus, and in fact, everything is within the normal range, including my hemoglobin. So, that's not too bad. The creatinine is still not as high as it was last January. Pierre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2002 Report Share Posted July 14, 2002 You're just trying to be difficult aren't you Pierre? Reply-To: iga-nephropathy To: <iga-nephropathy > Subject: Re: dehydration Date: Fri, 12 Jul 2002 09:29:12 -0400 Well, believe it or not, I had to have another helping of saline fluid by IV yesterday (Thursday, 11 July 02). This would be the second time in a week, and the fourth time this year. The doctor I saw is forwarding everything to my nephrologist, so we'll see what develops. It's very strange though. The vast majority of people with my stage of renal failure have the opposite problem. They retain fluid. I figure it has got to be one of my medications (not necessarily the diuretic, since it's such a small dose). They did some blood work. My serum creatinine is up to 350, and urea is high, but other than that, potassium, phosphorus, and in fact, everything is within the normal range, including my hemoglobin. So, that's not too bad. The creatinine is still not as high as it was last January. Pierre _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2002 Report Share Posted July 15, 2002 Hello Connie and , I did mention this a bit........there is research going on at my Hospital into family predisposition towards autoimmune illness. Through a mother daughter line in my family there are the following illnesses which my Neph was interested in: Rheumatoid Arthritis, Diabetes, Vasculitis, Lupus, IgAN and an 'HSP-like' undiagnosed systemic illness. Also in a an e-mail recently I posted (14th June)the article Subject: Is Henoch-Schonlein Purpura the Systemic Form of IgA Nephropathy? there was reference to genetics, the extract read: GENETICS Neither lgAN nor HSP is usually considered a genetic disorder. However, increasing evidence suggests that individuals inherit a predisposition to develop lgAN, and probably also HSP. Scattered case reports describe families with more than one member with lgAN. Several families include one member with lgAN and another with HSP. One remarkable family had twins, one with HSP the other with lgAN. In addition to these families, I am aware of two others with one brother with lgAN and the other with HSP. Brothers from one family were HLA typed and found to be HLA-identical(AI1,31; B51, w62; DR 1,4). The fourth component of complement is encoded by two loci on chromosome 6 within the major histocompatability complex. Null genes(genes producing a nonfunctional gene product) occur at one of the two loci on both chromosomes (homozygous null) in < 10% of normal individuals. The frequency of homozygous null C4 genes at either locus is significantly increased in patients with IgAN or HSP. Whether this genetic finding relates to gene linkages within the major histocompatibility complex or to a functional difference in the compliment system, is unclear. An increased frequency of an unusual restriction fragment length poly-morphism allele of the immunoglobulin heavy chain switch region chromosome 14 was recently described in patients with IgAN but not HSP. The patients with HSP in this study were unselected. Might this all be more common in the subgroup of patients with HSP with a chronic course of renal involvement, similar to patients with IgAN? Hope that helps. Sally ----Original Message----- From: Malt (igan) Sent: 12 July 2002 06:43 To: iga-nephropathy Subject: RE: dehydration Hi Connie First of all welcome back, glad your back on line. Secondly so sorry that you are so worried about your daughter. I seem to remember a discussion on here about whether IGAN is hereditary, but for the life of me I cant remember what was said. I do know that my mother who has had blood in her urine for years, underwent tests for IGAN, of course as a family we all got very excited about clues to my diagnosis and a link, but it proved unfounded, i.e. she did not have IGAN. What she did have, which is what I share, is a constriction of the ureter, I have had three surgeries now to correct this, and the symptoms you describe for your daughter sound familiar. However of course there are many many reasons for these symptoms, I trust they did a UTI test (urinary tract infection), indeed was a urologist involved? I hope everything turns out to be ok Connie, and don't worry I wont tell anyone about your daughter!!! Secret safe on here :-). Try not to worry ok, if you need help you know we are here. Best wishes Re: dehydration Speaking of dehydration... I had to be rehydrated by IV fluids today. 3rd time this year. I never had this problem until I started on the renal diet. I suspect the low sodium aspect of the diet combined with the diuretic may not be appropriate for me. Will have to review that with the renal team. I take a relatively small dose of the diuretic furosemide, but it has never been to treat edema (which I don't have), but rather, for its blood pressure lowering effect. Really bad nausea, weakness, a fast heart rate, and just a feeling of being very dry prompted me to go to the nearest emergency. For some strange reason, these things always seem to happen on a weekend or Friday afternoon, when it's impossible to reach any doctor. Everything is fine now, though. Pierre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2002 Report Share Posted July 15, 2002 And it hasn't been too hard : ) I would have to be a fish to drink more water than I have been. Pierre Re: dehydration > You're just trying to be difficult aren't you Pierre? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2002 Report Share Posted July 15, 2002 Do fish drink water then tee hee!!!! How about an elephant instead, they drink mega amounts, or maybe a camel...ok I'll shut up. xx Re: dehydration And it hasn't been too hard : ) I would have to be a fish to drink more water than I have been. Pierre Re: dehydration > You're just trying to be difficult aren't you Pierre? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2002 Report Share Posted July 16, 2002 RE: Genetics Pierre, Sally, and all of my friends out there in Kid..neyland, Thank you so much for your posts and information and just plain old support! It is funny, I have a large family and lots of friends and yet I felt more secure in asking my friends in Kid...neyland for their shoulder. I went directly to the place where I knew that some-one would be able to answer my questions and if not, give me the support that I needed because they understand first hand. Pierre, as usual even though you were down and out again (dehydration) you came through for a complete stranger and posted IgAN and Genetics on our site. I can't tell you how fortunate that we are as a group to have you with us! So shape up and stay out of the hospital!!! Some-one said lately " You're the MAN " , I couldn't agree more. Just to catch the rest of you up, last week was really tough on me, as my daughter was in the ER all day on Wednesday with pain in the right side and no obvious dx forthcoming. She had additional blood and urine tests on Thursday and on Friday, (while I was in a meeting) I got the call that you don't want to get as a parent who is a kidney patient, that they were referring her to my Nephrologist. Needless to say, I didn't handle it well...prayers do help because within the next 2 hours my Nephrologist called my cell phone. He had seen the referring Doctor at the Hospital that morning and had talked about my daughter and obviously the concern of kidney disease. My Nephrologist checked out all of her tests and has determined that she indeed needs to see a Urologist instead of a Nephrologist. Her levels including protein and BUN are within the normal range, but they feel that she has a UTI, and is being treated as such. (I have been reading all of the posts today in regards to you other women that it seems have been through similar routes, and interestingly enough years ago that is where I started too, so even though I'm trying to be positive, somehow I'm not totally reassured about her dx) We are however, going to take it one day at a time. Even though I was very concerned that they were going to tell me she had kidney problems, I'll tell you all that getting news that she was to see my Nephrologist, put me into a state of shock. Once I went to bed that night, I slept for 15 hours straight, it wore me down, I actually looked worse than she did! One last note, the medical community has renewed my faith in them. The Doctor that she saw in the ER, checked on her by phone personally or through his office 5 times on Thursday and 3 times on Friday. He also searched out my Nephrologist at the Hospital to discuss her case. I am going to send him a thank-you note for the excellent care, concern and compassion that he showed to my daughter during her illness. Right now she is doing much better and says that she feels the effects of being sick, but is on the road to recovery. Thanks again for the support from each and every one of you!!! Connie, USA Re: dehydration Speaking of dehydration... I had to be rehydrated by IV fluids today. 3rd time this year. I never had this problem until I started on the renal diet. I suspect the low sodium aspect of the diet combined with the diuretic may not be appropriate for me. Will have to review that with the renal team. I take a relatively small dose of the diuretic furosemide, but it has never been to treat edema (which I don't have), but rather, for its blood pressure lowering effect. Really bad nausea, weakness, a fast heart rate, and just a feeling of being very dry prompted me to go to the nearest emergency. For some strange reason, these things always seem to happen on a weekend or Friday afternoon, when it's impossible to reach any doctor. Everything is fine now, though. Pierre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 Hello Pierre I had to go into hospital for dehydration last year,, I know what that's like NO FUN Wish you better soon Mate all the best fron Danny Pierre wrote: Well, believe it or not, I had to have another helping of saline fluid by IV yesterday (Thursday, 11 July 02). This would be the second time in a week, and the fourth time this year. The doctor I saw is forwarding everything to my nephrologist, so we'll see what develops. It's very strange though. The vast majority of people with my stage of renal failure have the opposite problem. They retain fluid. I figure it has got to be one of my medications (not necessarily the diuretic, since it's such a small dose). They did some blood work. My serum creatinine is up to 350, and urea is high, but other than that, potassium, phosphorus, and in fact, everything is within the normal range, including my hemoglobin. So, that's not too bad. The creatinine is still not as high as it was last January. Pierre Quote Link to comment Share on other sites More sharing options...
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