Re: the problem with hands that do not work--not exactly MS-related

[Guest guest]

WOW! n! What a story! But what happened with the lawyers? Did you, in fact, sue the guy? Did you win? Did you get Millions? Will you adopt me? Ok even without the millions...you're worth them whether they're in your bank or not.Did you ever find out WHY he went ballistic? I am SO glad you're getting your hands back!

Love you like a big sis!

Peace and Blessings

~*~ Akiba ~*~

Pragmatic Visionary

http://yodamamma.blogspot.com/

http://www.solay-twinflames.com

-- the problem with hands that do not work--not exactly MS-related

I have thought of writing about this one, but until I had realised what Jackie

was enduring, I had not done so. My experience with hands is very different, but is NOT caused by MS "that any neurologist knows of," and

is most likely caused by severe injury to the rotator cuff of each shoulder.

You can delete all this if you wish, because it gets more detailed from here

on.

Ahem! In about 1989 I was physically attacked by the third administrator

from the top (I was the top); no one ever figured out what had come over

the man, but he rushed into a therapeutically confidential group, led by

me and my colleagure, D. (male) for people who had been abused in child

hood or adulthood or in a marriage or partnership relationship.

The man's office was not far from our meeting room, but we WERE surprised when he came in and headed for me, shook me by both shoulders, and banged me against the edge of the door and the door jamb.

My colleague tried to help, and though strong and muscular, was about

seven inches shorter than I. My attacker was about four inches taller than

I, and, as I suddenly realised, was NOT wearing his hearing aids!

Thus, I could not "talk"him into reteating into his own office, after which we

could lock the doors. After he had beat me to pieces, he attacked my col

league, D., and then, heaven knows why, French kissed the man in front of

all these traumatised patients! He may have known that D. had been attack

ed by his own father in childhood.

We somehow managed to IGNORE the whole thing, and go back on topic

and continue the meeting! We saw everyone out and walked them safely

to their cars. It was the only time that D. and I had worked together and

NOT discussed things at least briefly before parting for the night.

The leader of another group saw us leave, noticed the above, and asked me

if we were "alright?" Numbly, we individually said that we were. The next

morning, D. phoned me and said, "We must each have our own stories,

make them congruent, but NOT identical and have separate lawyers and

sue that guy!" I agreed, as did my lawyer. We each called in sick the

next morning. I had visited the ER the previous night and as no major dama

ge to the cranium had occurred, I suffered from the illusion that I was O.K.

Wrong! It took over eight months before I realised that something was wrong with my arm muscles, which appeared to be atrophying (the were),

and my hands, which were turning an unsightly purple-blue and growing

hair. I was working in Oregon at the time, loved the job, loved the CF Center

in Portland, and did not really want to go back to California. I went to my

MS doctor, Dennis Bourdette at OHSU in Portland, and he referred me to

rheumatology, but in fact made the correct diagnosis, Reflex Sympathetic

Dystrophy.

I called my cousin, who was living (we were both widowed) in a house that

we shared in Berkeley, and she said "Come Home!" My housekeeper

(ahhhh, those days!) packed my stuff in my car; I sold my house, lock,

stock, barrel and furniture, and drove NON-stop to Berkeley.

My brother, , drove me to Stanford, to Rheumatology where they diag

nosed it accurately, and (these were the good old medical days) Medicare,

which I had applied for (SSDI) in Oregon payed for NINE YEARS of physical

therapy! I survived. To those who did not know me before this happened,

all LOOKS more or less o.k.

But the truth is that I have lost the ability to play thirteen musical instru

ments that I played before, and can still play the piano (don't have one in

my studio apartment!) I have only recently begun to be able to sign a

check myself and this past week began to write one, (the rent).

Since this injury has occurred, my osteoarthritis has gone mad; I have

had four joints replaced in seven surgeries (long legs) and am slowly losing

the use of my legs due to both arthritis and MS (finally back to the subject),

and now can use a wheel chair with my "hands!"

Were it not for Jackie, I would never have bored anyone with this. But, I guess the point is that all that is wrong with us is NOT always Multiple

Sclerosis, though it may be any one of Multiple Surprises!

And, thanks to family, friends, neighbors and the kindest attendant in the

world, I carry on, quite happily, actually. I am sure that all my adult kids

think that I am a disaster waiting to happen, but I do not wait; I just LIVE!

Yesterday, I had a tooth pulled out, which was easy, but the Lidocaine nearly did my entire face, neck and nerves IN! So, today, I have decided

to turn the phone ringer off as I sound a little oddd, that is, unintelligible!

Tomorrow, I am going nature-watching in my car, Marco-Polo, with my dear

friend, E. and maybe one of the dogs, for fun (they take care of MYdogs!)

Deduction: I CAN drive, thank heavens, I being a driver and a half!

Love to all of you on our list; do we not have the best people on this list?

Sure we do!

n

[Guest guest]

Akiba, I did sue the offender himself, took his license to practice, and he was not wealthy; I have long since used up what I received. I think that D. got more, as the trauma, the effect on him was more immediately evident. In Oregon one only has one year

to sue an agency, and by the time I had even the faintest clue (thank you, Dr. Bourdette, the MS guy)

as to what was wrong I did not have time to file a larger suit. D. ultimately chose to continue to work

with the agency (four young children) and went on to big time stuff with great references, probably the wiser move. My severence package was rather hefty, as

well, so I did not beocme eligible for Medicaid unlike Medicare for about three to four years, which, eventually gave me my attendant! Sometimes there is much that is more important than money. When my cousin died a few years ago, I moved into HUD housing and my young cousin, C. keeps charge of a trust fund to be spent on essentials (auto repairs) for me; there is still some left, and I certainly had not counted on that. Life just works itself out--not always, but sometimes. The guy who attacked us, to no one's surprise, had been head of the Alcohol and Drug Program--had the whole staff relieved when he left. The other two administrators were so kind and helpful that it would have felt really WRONG to sue the whole agency for one man's evilness, anyway. Thank you, Akiba, for your kind post. My cousin, actually my husband's cousin, loved the white-tailed deer back of the house that we shared. One evening she trotted out to see the deer, as usual, and there were NONE there. She was, as was my husband (German) a Holocaust survivor, and unlike him, she was not appreciative of humour. However, on this one occasion, she peered out into the lovely back yard, and upon seeing no deer, turned to me and said, in a voice almost reminiscent of my own mother's voice, "Not TONIGHT, Deer," batted her similarly black eyelashes, and smiled sweetly. Her FIRST original joke! In her late seventies, yet! Love to you, Akiba, and to all on our list, especially to Jackie!

n, the witless, hapless, and feckless!

the problem with hands that do not work--not exactly MS-related

I have thought of writing about this one, but until I had realised what Jackie

was enduring, I had not done so. My experience with hands is very different, but is NOT caused by MS "that any neurologist knows of," and

is most likely caused by severe injury to the rotator cuff of each shoulder.

You can delete all this if you wish, because it gets more detailed from here

on.

Ahem! In about 1989 I was physically attacked by the third administrator

from the top (I was the top); no one ever figured out what had come over

the man, but he rushed into a therapeutically confidential group, led by

me and my colleagure, D. (male) for people who had been abused in child

hood or adulthood or in a marriage or partnership relationship.

The man's office was not far from our meeting room, but we WERE surprised when he came in and headed for me, shook me by both shoulders, and banged me against the edge of the door and the door jamb.

My colleague tried to help, and though strong and muscular, was about

seven inches shorter than I. My attacker was about four inches taller than

I, and, as I suddenly realised, was NOT wearing his hearing aids!

Thus, I could not "talk"him into reteating into his own office, after which we

could lock the doors. After he had beat me to pieces, he attacked my col

league, D., and then, heaven knows why, French kissed the man in front of

all these traumatised patients! He may have known that D. had been attack

ed by his own father in childhood.

We somehow managed to IGNORE the whole thing, and go back on topic

and continue the meeting! We saw everyone out and walked them safely

to their cars. It was the only time that D. and I had worked together and

NOT discussed things at least briefly before parting for the night.

The leader of another group saw us leave, noticed the above, and asked me

if we were "alright?" Numbly, we individually said that we were. The next

morning, D. phoned me and said, "We must each have our own stories,

make them congruent, but NOT identical and have separate lawyers and

sue that guy!" I agreed, as did my lawyer. We each called in sick the

next morning. I had visited the ER the previous night and as no major dama

ge to the cranium had occurred, I suffered from the illusion that I was O.K.

Wrong! It took over eight months before I realised that something was wrong with my arm muscles, which appeared to be atrophying (the were),

and my hands, which were turning an unsightly purple-blue and growing

hair. I was working in Oregon at the time, loved the job, loved the CF Center

in Portland, and did not really want to go back to California. I went to my

MS doctor, Dennis Bourdette at OHSU in Portland, and he referred me to

rheumatology, but in fact made the correct diagnosis, Reflex Sympathetic

Dystrophy.

I called my cousin, who was living (we were both widowed) in a house that

we shared in Berkeley, and she said "Come Home!" My housekeeper

(ahhhh, those days!) packed my stuff in my car; I sold my house, lock,

stock, barrel and furniture, and drove NON-stop to Berkeley.

My brother, , drove me to Stanford, to Rheumatology where they diag

nosed it accurately, and (these were the good old medical days) Medicare,

which I had applied for (SSDI) in Oregon payed for NINE YEARS of physical

therapy! I survived. To those who did not know me before this happened,

all LOOKS more or less o.k.

But the truth is that I have lost the ability to play thirteen musical instru

ments that I played before, and can still play the piano (don't have one in

my studio apartment!) I have only recently begun to be able to sign a

check myself and this past week began to write one, (the rent).

Since this injury has occurred, my osteoarthritis has gone mad; I have

had four joints replaced in seven surgeries (long legs) and am slowly losing

the use of my legs due to both arthritis and MS (finally back to the subject),

and now can use a wheel chair with my "hands!"

Were it not for Jackie, I would never have bored anyone with this. But, I guess the point is that all that is wrong with us is NOT always Multiple

Sclerosis, though it may be any one of Multiple Surprises!

And, thanks to family, friends, neighbors and the kindest attendant in the

world, I carry on, quite happily, actually. I am sure that all my adult kids

think that I am a disaster waiting to happen, but I do not wait; I just LIVE!

Yesterday, I had a tooth pulled out, which was easy, but the Lidocaine nearly did my entire face, neck and nerves IN! So, today, I have decided

to turn the phone ringer off as I sound a little oddd, that is, unintelligible!

Tomorrow, I am going nature-watching in my car, Marco-Polo, with my dear

friend, E. and maybe one of the dogs, for fun (they take care of MYdogs!)

Deduction: I CAN drive, thank heavens, I being a driver and a half!

Love to all of you on our list; do we not have the best people on this list?

Sure we do!

n

No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.6/338 - Release Date: 5/12/2006

[Guest guest]

Wow, n. That's quite a story. I'm glad Jackie spurred you into sharing it. Thank you for doing so. I'm thrilled you've written your first check! Too bad it was for a bill. LOL And a big ouch over you tooth pulled. Rest, recoup, enjoy your travels with Marco-Polo tomorrow. ) Challis n Rojas wrote: I have thought of writing about this one, but until I had realised what Jackie was enduring, I had not done so. My experience with hands is very different, but is NOT caused by MS "that any neurologist knows of,"

and is most likely caused by severe injury to the rotator cuff of each shoulder. You can delete all this if you wish, because it gets more detailed from here on. Ahem! In about 1989 I was physically attacked by the third administrator from the top (I was the top); no one ever figured out what had come over the man, but he rushed into a therapeutically confidential group, led by me and my colleagure, D. (male) for people who had been abused in child hood or adulthood or in a marriage or partnership relationship. The man's office was not far from our meeting room,

but we WERE surprised when he came in and headed for me, shook me by both shoulders, and banged me against the edge of the door and the door jamb. My colleague tried to help, and though strong and muscular, was about seven inches shorter than I. My attacker was about four inches taller than I, and, as I suddenly realised, was NOT wearing his hearing aids! Thus, I could not "talk"him into reteating into his own office, after which we could lock the doors. After he had beat me to pieces, he attacked my col league, D., and then, heaven knows why, French kissed the man in front of all these traumatised patients! He may have known that D. had been attack ed by his own

father in childhood. We somehow managed to IGNORE the whole thing, and go back on topic and continue the meeting! We saw everyone out and walked them safely to their cars. It was the only time that D. and I had worked together and NOT discussed things at least briefly before parting for the night. The leader of another group saw us leave, noticed the above, and asked me if we were "alright?" Numbly, we individually said that we were. The next morning, D. phoned me and said, "We must each have our own stories, make them congruent, but NOT identical and have separate lawyers and sue that guy!" I agreed, as did my lawyer. We each called in sick the next morning. I had visited the ER the previous night and as no major dama ge to the cranium had occurred, I suffered from the illusion that I was O.K. Wrong! It took over eight months before I realised that something was wrong with my arm muscles, which appeared to be atrophying (the were), and my hands, which were turning an unsightly purple-blue and growing hair. I was working in Oregon at the time, loved the job, loved the CF Center in Portland, and did not really want to go back to California. I went to my MS doctor, Dennis Bourdette at OHSU in Portland, and he referred me to rheumatology, but in fact made the correct diagnosis, Reflex Sympathetic Dystrophy. I called my cousin, who was living (we were both widowed) in a house that we shared in Berkeley, and she said "Come Home!" My housekeeper (ahhhh, those days!) packed my stuff in my car; I sold my house, lock, stock, barrel and furniture, and drove NON-stop to Berkeley. My brother, , drove me to Stanford, to Rheumatology where they diag nosed it accurately, and (these were the good old medical days) Medicare, which I had applied for (SSDI) in Oregon payed for NINE YEARS of physical therapy! I

survived. To those who did not know me before this happened, all LOOKS more or less o.k. But the truth is that I have lost the ability to play thirteen musical instru ments that I played before, and can still play the piano (don't have one in my studio apartment!) I have only recently begun to be able to sign a check myself and this past week began to write one, (the rent). Since this injury has occurred, my osteoarthritis has gone mad; I have had four joints replaced in seven surgeries (long legs) and am slowly losing the use of my legs due to both arthritis and MS (finally back to the subject), and

now can use a wheel chair with my "hands!" Were it not for Jackie, I would never have bored anyone with this. But, I guess the point is that all that is wrong with us is NOT always Multiple Sclerosis, though it may be any one of Multiple Surprises! And, thanks to family, friends, neighbors and the kindest attendant in the world, I carry on, quite happily, actually. I am sure that all my adult kids think that I am a disaster waiting to happen, but I do not wait; I just LIVE! Yesterday, I had a tooth pulled out, which was easy, but the Lidocaine nearly did my entire face, neck and nerves IN! So, today, I have decided to

turn the phone ringer off as I sound a little oddd, that is, unintelligible! Tomorrow, I am going nature-watching in my car, Marco-Polo, with my dear friend, E. and maybe one of the dogs, for fun (they take care of MYdogs!) Deduction: I CAN drive, thank heavens, I being a driver and a half! Love to all of you on our list; do we not have the best people on this list? Sure we do! n

Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min with Yahoo! Messenger with Voice.

[Guest guest]

Yes, n-

We do have the best people on here. You being one of them. I just couldn't believe what I was reading! You have really gone through a lot! I am angered that someone could do such a thing to another person.

Your will power and strength amaze me! After all you've gone through, you still seem to be able to see the cloud with the silver lining. To tell you the truth, I don't know if I could endure all that you have to deal with. I am glad to know you. From now on whenever I start getting frustrated with my situation, I'll think of you.

God bless you n....Val

-- the problem with hands that do not work--not exactly MS-related

I have thought of writing about this one, but until I had realised what Jackie

was enduring, I had not done so. My experience with hands is very different, but is NOT caused by MS "that any neurologist knows of," and

is most likely caused by severe injury to the rotator cuff of each shoulder.

You can delete all this if you wish, because it gets more detailed from here

on.

Ahem! In about 1989 I was physically attacked by the third administrator

from the top (I was the top); no one ever figured out what had come over

the man, but he rushed into a therapeutically confidential group, led by

me and my colleagure, D. (male) for people who had been abused in child

hood or adulthood or in a marriage or partnership relationship.

The man's office was not far from our meeting room, but we WERE surprised when he came in and headed for me, shook me by both shoulders, and banged me against the edge of the door and the door jamb.

My colleague tried to help, and though strong and muscular, was about

seven inches shorter than I. My attacker was about four inches taller than

I, and, as I suddenly realised, was NOT wearing his hearing aids!

Thus, I could not "talk"him into reteating into his own office, after which we

could lock the doors. After he had beat me to pieces, he attacked my col

league, D., and then, heaven knows why, French kissed the man in front of

all these traumatised patients! He may have known that D. had been attack

ed by his own father in childhood.

We somehow managed to IGNORE the whole thing, and go back on topic

and continue the meeting! We saw everyone out and walked them safely

to their cars. It was the only time that D. and I had worked together and

NOT discussed things at least briefly before parting for the night.

The leader of another group saw us leave, noticed the above, and asked me

if we were "alright?" Numbly, we individually said that we were. The next

morning, D. phoned me and said, "We must each have our own stories,

make them congruent, but NOT identical and have separate lawyers and

sue that guy!" I agreed, as did my lawyer. We each called in sick the

next morning. I had visited the ER the previous night and as no major dama

ge to the cranium had occurred, I suffered from the illusion that I was O.K.

Wrong! It took over eight months before I realised that something was wrong with my arm muscles, which appeared to be atrophying (the were),

and my hands, which were turning an unsightly purple-blue and growing

hair. I was working in Oregon at the time, loved the job, loved the CF Center

in Portland, and did not really want to go back to California. I went to my

MS doctor, Dennis Bourdette at OHSU in Portland, and he referred me to

rheumatology, but in fact made the correct diagnosis, Reflex Sympathetic

Dystrophy.

I called my cousin, who was living (we were both widowed) in a house that

we shared in Berkeley, and she said "Come Home!" My housekeeper

(ahhhh, those days!) packed my stuff in my car; I sold my house, lock,

stock, barrel and furniture, and drove NON-stop to Berkeley.

My brother, , drove me to Stanford, to Rheumatology where they diag

nosed it accurately, and (these were the good old medical days) Medicare,

which I had applied for (SSDI) in Oregon payed for NINE YEARS of physical

therapy! I survived. To those who did not know me before this happened,

all LOOKS more or less o.k.

But the truth is that I have lost the ability to play thirteen musical instru

ments that I played before, and can still play the piano (don't have one in

my studio apartment!) I have only recently begun to be able to sign a

check myself and this past week began to write one, (the rent).

Since this injury has occurred, my osteoarthritis has gone mad; I have

had four joints replaced in seven surgeries (long legs) and am slowly losing

the use of my legs due to both arthritis and MS (finally back to the subject),

and now can use a wheel chair with my "hands!"

Were it not for Jackie, I would never have bored anyone with this. But, I guess the point is that all that is wrong with us is NOT always Multiple

Sclerosis, though it may be any one of Multiple Surprises!

And, thanks to family, friends, neighbors and the kindest attendant in the

world, I carry on, quite happily, actually. I am sure that all my adult kids

think that I am a disaster waiting to happen, but I do not wait; I just LIVE!

Yesterday, I had a tooth pulled out, which was easy, but the Lidocaine nearly did my entire face, neck and nerves IN! So, today, I have decided

to turn the phone ringer off as I sound a little oddd, that is, unintelligible!

Tomorrow, I am going nature-watching in my car, Marco-Polo, with my dear

friend, E. and maybe one of the dogs, for fun (they take care of MYdogs!)

Deduction: I CAN drive, thank heavens, I being a driver and a half!

Love to all of you on our list; do we not have the best people on this list?

Sure we do!

n

[Guest guest]

Valene, I have had a great many GOOD things

happen to me, as well, or I would be really

NUTS! Love to you and to all on our list,

n, the usually befuddled! I love this

list and look forward eagerly to all the posts from all of you, each of you, Special

hopes to you, Valene, n

the problem with hands that do not work--not exactly MS-related

I have thought of writing about this one, but until I had realised what Jackie

was enduring, I had not done so. My experience with hands is very different, but is NOT caused by MS "that any neurologist knows of," and

is most likely caused by severe injury to the rotator cuff of each shoulder.

You can delete all this if you wish, because it gets more detailed from here

on.

Ahem! In about 1989 I was physically attacked by the third administrator

from the top (I was the top); no one ever figured out what had come over

the man, but he rushed into a therapeutically confidential group, led by

me and my colleagure, D. (male) for people who had been abused in child

hood or adulthood or in a marriage or partnership relationship.

The man's office was not far from our meeting room, but we WERE surprised when he came in and headed for me, shook me by both shoulders, and banged me against the edge of the door and the door jamb.

My colleague tried to help, and though strong and muscular, was about

seven inches shorter than I. My attacker was about four inches taller than

I, and, as I suddenly realised, was NOT wearing his hearing aids!

Thus, I could not "talk"him into reteating into his own office, after which we

could lock the doors. After he had beat me to pieces, he attacked my col

league, D., and then, heaven knows why, French kissed the man in front of

all these traumatised patients! He may have known that D. had been attack

ed by his own father in childhood.

We somehow managed to IGNORE the whole thing, and go back on topic

and continue the meeting! We saw everyone out and walked them safely

to their cars. It was the only time that D. and I had worked together and

NOT discussed things at least briefly before parting for the night.

The leader of another group saw us leave, noticed the above, and asked me

if we were "alright?" Numbly, we individually said that we were. The next

morning, D. phoned me and said, "We must each have our own stories,

make them congruent, but NOT identical and have separate lawyers and

sue that guy!" I agreed, as did my lawyer. We each called in sick the

next morning. I had visited the ER the previous night and as no major dama

ge to the cranium had occurred, I suffered from the illusion that I was O.K.

Wrong! It took over eight months before I realised that something was wrong with my arm muscles, which appeared to be atrophying (the were),

and my hands, which were turning an unsightly purple-blue and growing

hair. I was working in Oregon at the time, loved the job, loved the CF Center

in Portland, and did not really want to go back to California. I went to my

MS doctor, Dennis Bourdette at OHSU in Portland, and he referred me to

rheumatology, but in fact made the correct diagnosis, Reflex Sympathetic

Dystrophy.

I called my cousin, who was living (we were both widowed) in a house that

we shared in Berkeley, and she said "Come Home!" My housekeeper

(ahhhh, those days!) packed my stuff in my car; I sold my house, lock,

stock, barrel and furniture, and drove NON-stop to Berkeley.

My brother, , drove me to Stanford, to Rheumatology where they diag

nosed it accurately, and (these were the good old medical days) Medicare,

which I had applied for (SSDI) in Oregon payed for NINE YEARS of physical

therapy! I survived. To those who did not know me before this happened,

all LOOKS more or less o.k.

But the truth is that I have lost the ability to play thirteen musical instru

ments that I played before, and can still play the piano (don't have one in

my studio apartment!) I have only recently begun to be able to sign a

check myself and this past week began to write one, (the rent).

Since this injury has occurred, my osteoarthritis has gone mad; I have

had four joints replaced in seven surgeries (long legs) and am slowly losing

the use of my legs due to both arthritis and MS (finally back to the subject),

and now can use a wheel chair with my "hands!"

Were it not for Jackie, I would never have bored anyone with this. But, I guess the point is that all that is wrong with us is NOT always Multiple

Sclerosis, though it may be any one of Multiple Surprises!

And, thanks to family, friends, neighbors and the kindest attendant in the

world, I carry on, quite happily, actually. I am sure that all my adult kids

think that I am a disaster waiting to happen, but I do not wait; I just LIVE!

Yesterday, I had a tooth pulled out, which was easy, but the Lidocaine nearly did my entire face, neck and nerves IN! So, today, I have decided

to turn the phone ringer off as I sound a little oddd, that is, unintelligible!

Tomorrow, I am going nature-watching in my car, Marco-Polo, with my dear

friend, E. and maybe one of the dogs, for fun (they take care of MYdogs!)

Deduction: I CAN drive, thank heavens, I being a driver and a half!

Love to all of you on our list; do we not have the best people on this list?

Sure we do!

n

No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.6/338 - Release Date: 5/12/2006

[Guest guest]

We on staff always thought the guy was totally nuts. Once I was returning

from the S.F. Bay Area up highway 395, and an Elk sat on my bumber--

a small Toyota bumper, yet--looked like a mound of wheat at first. Slowly,

I backed up and off he ran; there were mule dear (black tail deer) all around,

too, ignoring all this. When I came back to work, I entertained everyone

with all this, and this strange man was the only one who did NOT believe

me! He had once tried to Forcibly French Kiss ME at a staff birthday party

for him! We had no more staff birthday parties after that. Why he would do

that to my male colleague was beyond all of us. One of the patients sug

gested that perhaps he had been snooping, hoping to see whether one of

his own adult children was in the group! Very ODD man! No one was sor

ry to see him go. And frankly, I had been documenting him for dismissal

anyway--not a tragedy; he was 68 when this occurred! I was about 52, and

despite all my hereditary conditions, had planned to work until I was 90!

So much for that! Thank you for your kindness, all of you, and you, Sharon,

for this post. Once I started physical therapy (for nine years, yet!) and I

could see progress, I perked up considerably, and just adjusted to my new

life on disability! I hope that all on this list have the kind of support that

I have had! Love to you all, n

Re: the problem with hands that do not work--not exactly MS-related

Oh my goodness! n!! What a horrible thing to have happen to you and your colleague. And in front of the clients. Wow. It was a terrible thing but I have to admit I laughed out loud about the perpetrator french kissing D. Odd behavior all around. Did this guy have any kind of history of abusive, erratic behavior or was this just out of the blue?

You have been through a lot. I'm so glad you are here with us! Maybe you aren't in one piece any longer but thankfully you are still here.

love

Sharonn Rojas wrote:

I have thought of writing about this one, but until I had realised what Jackie

was enduring, I had not done so. My experience with hands is very different, but is NOT caused by MS "that any neurologist knows of," and

is most likely caused by severe injury to the rotator cuff of each shoulder.

You can delete all this if you wish, because it gets more detailed from here

on.

Ahem! In about 1989 I was physically attacked by the third administrator

from the top (I was the top); no one ever figured out what had come over

the man, but he rushed into a therapeutically confidential group, led by

me and my colleagure, D. (male) for people who had been abused in child

hood or adulthood or in a marriage or partnership relationship.

The man's office was not far from our meeting room, but we WERE surprised when he came in and headed for me, shook me by both shoulders, and banged me against the edge of the door and the door jamb.

My colleague tried to help, and though strong and muscular, was about

seven inches shorter than I. My attacker was about four inches taller than

I, and, as I suddenly realised, was NOT wearing his hearing aids!

Thus, I could not "talk"him into reteating into his own office, after which we

could lock the doors. After he had beat me to pieces, he attacked my col

league, D., and then, heaven knows why, French kissed the man in front of

all these traumatised patients! He may have known that D. had been attack

ed by his own father in childhood.

We somehow managed to IGNORE the whole thing, and go back on topic

and continue the meeting! We saw everyone out and walked them safely

to their cars. It was the only time that D. and I had worked together and

NOT discussed things at least briefly before parting for the night.

The leader of another group saw us leave, noticed the above, and asked me

if we were "alright?" Numbly, we individually said that we were. The next

morning, D. phoned me and said, "We must each have our own stories,

make them congruent, but NOT identical and have separate lawyers and

sue that guy!" I agreed, as did my lawyer. We each called in sick the

next morning. I had visited the ER the previous night and as no major dama

ge to the cranium had occurred, I suffered from the illusion that I was O.K.

Wrong! It took over eight months before I realised that something was wrong with my arm muscles, which appeared to be atrophying (the were),

and my hands, which were turning an unsightly purple-blue and growing

hair. I was working in Oregon at the time, loved the job, loved the CF Center

in Portland, and did not really want to go back to California. I went to my

MS doctor, Dennis Bourdette at OHSU in Portland, and he referred me to

rheumatology, but in fact made the correct diagnosis, Reflex Sympathetic

Dystrophy.

I called my cousin, who was living (we were both widowed) in a house that

we shared in Berkeley, and she said "Come Home!" My housekeeper

(ahhhh, those days!) packed my stuff in my car; I sold my house, lock,

stock, barrel and furniture, and drove NON-stop to Berkeley.

My brother, , drove me to Stanford, to Rheumatology where they diag

nosed it accurately, and (these were the good old medical days) Medicare,

which I had applied for (SSDI) in Oregon payed for NINE YEARS of physical

therapy! I survived. To those who did not know me before this happened,

all LOOKS more or less o.k.

But the truth is that I have lost the ability to play thirteen musical instru

ments that I played before, and can still play the piano (don't have one in

my studio apartment!) I have only recently begun to be able to sign a

check myself and this past week began to write one, (the rent).

Since this injury has occurred, my osteoarthritis has gone mad; I have

had four joints replaced in seven surgeries (long legs) and am slowly losing

the use of my legs due to both arthritis and MS (finally back to the subject),

and now can use a wheel chair with my "hands!"

Were it not for Jackie, I would never have bored anyone with this. But, I guess the point is that all that is wrong with us is NOT always Multiple

Sclerosis, though it may be any one of Multiple Surprises!

And, thanks to family, friends, neighbors and the kindest attendant in the

world, I carry on, quite happily, actually. I am sure that all my adult kids

think that I am a disaster waiting to happen, but I do not wait; I just LIVE!

Yesterday, I had a tooth pulled out, which was easy, but the Lidocaine nearly did my entire face, neck and nerves IN! So, today, I have decided

to turn the phone ringer off as I sound a little oddd, that is, unintelligible!

Tomorrow, I am going nature-watching in my car, Marco-Polo, with my dear

friend, E. and maybe one of the dogs, for fun (they take care of MYdogs!)

Deduction: I CAN drive, thank heavens, I being a driver and a half!

Love to all of you on our list; do we not have the best people on this list?

Sure we do!

n

Sharon (MSersLife creator/owner)

“One minute it's a giant cabbage and the next, ka-boom! You've got cole slaw all over you." V.R. , Palmer, Alaska, where Cabbages grow huge

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[Guest guest]

n,

You are an awesome lady with a very

interesting life. So sorry that someone like that could change your plans—your

life. You are definitely are an inspiration to all of us on this site.

Connie

From: MSersLife [mailto:MSersLife ] On Behalf Of n Rojas

Sent: Friday, May 12, 2006 9:58 PM

To: MSersLife

Subject: Re: the

problem with hands that do not work--not exactly MS-related

We on staff always thought the guy was totally nuts. Once I was

returning

from the S.F.

Bay Area up highway 395,

and an Elk sat on my bumber--

a small Toyota

bumper, yet--looked like a mound of wheat at first. Slowly,

I backed up and off he ran; there were mule dear (black tail deer) all

around,

too, ignoring all this. When I came back to work, I entertained

everyone

with all this, and this strange man was the only one who did NOT

believe

me! He had once tried to Forcibly French Kiss ME at a staff

birthday party

for him! We had no more staff birthday parties after that.

Why he would do

that to my male colleague was beyond all of us. One of the

patients sug

gested that perhaps he had been snooping, hoping to see whether one of

his own adult children was in the group! Very ODD man! No

one was sor

ry to see him go. And frankly, I had been documenting him for

dismissal

anyway--not a tragedy; he was 68 when this occurred! I was about

52, and

despite all my hereditary conditions, had planned to work until I was

90!

So much for that! Thank you for your kindness, all of you, and

you, Sharon,

for this post. Once I started physical therapy (for nine years,

yet!) and I

could see progress, I perked up considerably, and just adjusted to my

new

life on disability! I hope that all on this list have the kind of

support that

I have had! Love to you all, n

Re:

the problem with hands that do not work--not exactly MS-related

Oh my goodness! n!! What a horrible thing to have

happen to you and your colleague. And in front of the clients.

Wow. It was a terrible thing but I have to admit I laughed out loud about

the perpetrator french kissing D. Odd behavior all around. Did this

guy have any kind of history of abusive, erratic behavior or was this just out

of the blue?

You have been through a lot. I'm so glad you are

here with us! Maybe you aren't in one piece any longer but thankfully you

are still here.

love

Sharon

n Rojas

wrote:

I have thought of writing about this one, but until I had realised what

Jackie

was enduring, I had not done so. My experience with hands is very

different, but is NOT caused by MS " that any neurologist knows of, "

and

is most likely caused by severe injury to the rotator cuff of each

shoulder.

You can delete all this if you wish, because it gets more detailed from

here

on.

Ahem! In about 1989 I was physically attacked by the third

administrator

from the top (I was the top); no one ever figured out what had come

over

the man, but he rushed into a therapeutically confidential group, led

by

me and my colleagure, D. (male) for people who had been abused in child

hood or adulthood or in a marriage or partnership relationship.

The man's office was not far from our meeting room, but we WERE

surprised when he came in and headed for me, shook me by both shoulders, and

banged me against the edge of the door and the door jamb.

My colleague tried to help, and though strong and muscular, was about

seven inches shorter than I. My attacker was about four inches

taller than

I, and, as I suddenly realised, was NOT wearing his hearing aids!

Thus, I could not " talk " him into reteating into his own

office, after which we

could lock the doors. After he had beat me to pieces, he attacked

my col

league, D., and then, heaven knows why, French kissed the man in front

of

all these traumatised patients! He may have known that D. had

been attack

ed by his own father in childhood.

We somehow managed to IGNORE the whole thing, and go back on topic

and continue the meeting! We saw everyone out and walked them

safely

to their cars. It was the only time that D. and I had worked

together and

NOT discussed things at least briefly before parting for the night.

The leader of another group saw us leave, noticed the above, and asked

me

if we were " alright? " Numbly, we individually said that

we were. The next

morning, D. phoned me and said, " We must each have our own

stories,

make them congruent, but NOT identical and have separate lawyers and

sue that guy! " I agreed, as did my lawyer. We each

called in sick the

next morning. I had visited the ER the previous night and as no

major dama

ge to the cranium had occurred, I suffered from the illusion that I was

O.K.

Wrong! It took over eight months before I realised that something

was wrong with my arm muscles, which appeared to be atrophying (the were),

and my hands, which were turning an unsightly purple-blue and growing

hair. I was working in Oregon

at the time, loved the job, loved the CF Center

in Portland, and did not really want to

go back to California.

I went to my

MS doctor, Dennis Bourdette at OHSU in Portland, and he referred me to

rheumatology, but in fact made the correct diagnosis, Reflex

Sympathetic

Dystrophy.

I called my cousin, who was living (we were both widowed) in a house

that

we shared in Berkeley,

and she said " Come Home! " My housekeeper

(ahhhh, those days!) packed my stuff in my car; I sold my house, lock,

stock, barrel and furniture, and drove NON-stop to Berkeley.

My brother, , drove me to Stanford, to Rheumatology where they

diag

nosed it accurately, and (these were the good old medical days)

Medicare,

which I had applied for (SSDI) in Oregon payed for NINE YEARS of physical

therapy! I survived. To those who did not know me before

this happened,

all LOOKS more or less o.k.

But the truth is that I have lost the ability to play thirteen musical

instru

ments that I played before, and can still play the piano (don't have

one in

my studio apartment!) I have only recently begun to be able to

sign a

check myself and this past week began to write one, (the rent).

Since this injury has occurred, my osteoarthritis has gone mad; I have

had four joints replaced in seven surgeries (long legs) and am slowly

losing

the use of my legs due to both arthritis and MS (finally back to the

subject),

and now can use a wheel chair with my " hands! "

Were it not for Jackie, I would never have bored anyone with

this. But, I guess the point is that all that is wrong with us is NOT

always Multiple

Sclerosis, though it may be any one of Multiple Surprises!

And, thanks to family, friends, neighbors and the kindest attendant in

the

world, I carry on, quite happily, actually. I am sure that all my

adult kids

think that I am a disaster waiting to happen, but I do not wait; I just

LIVE!

Yesterday, I had a tooth pulled out, which was easy, but the Lidocaine

nearly did my entire face, neck and nerves IN! So, today, I have decided

to turn the phone ringer off as I sound a little oddd, that is,

unintelligible!

Tomorrow, I am going nature-watching in my car, Marco-Polo, with my

dear

friend, E. and maybe one of the dogs, for fun (they take care of

MYdogs!)

Deduction: I CAN drive, thank heavens, I being a driver and a

half!

Love to all of you on our list; do we not have the best people on this

list?

Sure we do!

n

Sharon (MSersLife creator/owner)

“One

minute it's a giant cabbage and the next, ka-boom! You've got cole slaw all

over you. "

V.R. , Palmer, Alaska,

where Cabbages grow huge

Yahoo!

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[Guest guest]

I'm glad you at least have a nest egg, however small, to help in times of need. Having just had to exchange my car I understand the car repair aspect!!!

Peace and Blessings

~*~ Akiba ~*~

Pragmatic Visionary

http://yodamamma.blogspot.com/

http://www.solay-twinflames.com

-- Re: the problem with hands that do not work--not exactly MS-related

Akiba, I did sue the offender himself, took his license to practice, and he was not wealthy; I have long since used up what I received. I think that D. got more, as the trauma, the effect on him was more immediately evident. In Oregon one only has one year

to sue an agency, and by the time I had even the faintest clue (thank you, Dr. Bourdette, the MS guy)

as to what was wrong I did not have time to file a larger suit. D. ultimately chose to continue to work

with the agency (four young children) and went on to big time stuff with great references, probably the wiser move. My severence package was rather hefty, as

well, so I did not beocme eligible for Medicaid unlike Medicare for about three to four years, which, eventually gave me my attendant! Sometimes there is much that is more important than money. When my cousin died a few years ago, I moved into HUD housing and my young cousin, C. keeps charge of a trust fund to be spent on essentials (auto repairs) for me; there is still some left, and I certainly had not counted on that. Life just works itself out--not always, but sometimes. The guy who attacked us, to no one's surprise, had been head of the Alcohol and Drug Program--had the whole staff relieved when he left. The other two administrators were so kind and helpful that it would have felt really WRONG to sue the whole agency for one man's evilness, anyway. Thank you, Akiba, for your kind post. My cousin, actually my husband's cousin, loved the white-tailed deer back of the house that we shared. One evening she trotted out to see the deer, as usual, and there were NONE there. She was, as was my husband (German) a Holocaust survivor, and unlike him, she was not appreciative of humour. However, on this one occasion, she peered out into the lovely back yard, and upon seeing no deer, turned to me and said, in a voice almost reminiscent of my own mother's voice, "Not TONIGHT, Deer," batted her similarly black eyelashes, and smiled sweetly. Her FIRST original joke! In her late seventies, yet! Love to you, Akiba, and to all on our list, especially to Jackie!

n, the witless, hapless, and feckless!

the problem with hands that do not work--not exactly MS-related

I have thought of writing about this one, but until I had realised what Jackie

was enduring, I had not done so. My experience with hands is very different, but is NOT caused by MS "that any neurologist knows of," and

is most likely caused by severe injury to the rotator cuff of each shoulder.

You can delete all this if you wish, because it gets more detailed from here

on.

Ahem! In about 1989 I was physically attacked by the third administrator

from the top (I was the top); no one ever figured out what had come over

the man, but he rushed into a therapeutically confidential group, led by

me and my colleagure, D. (male) for people who had been abused in child

hood or adulthood or in a marriage or partnership relationship.

The man's office was not far from our meeting room, but we WERE surprised when he came in and headed for me, shook me by both shoulders, and banged me against the edge of the door and the door jamb.

My colleague tried to help, and though strong and muscular, was about

seven inches shorter than I. My attacker was about four inches taller than

I, and, as I suddenly realised, was NOT wearing his hearing aids!

Thus, I could not "talk"him into reteating into his own office, after which we

could lock the doors. After he had beat me to pieces, he attacked my col

league, D., and then, heaven knows why, French kissed the man in front of

all these traumatised patients! He may have known that D. had been attack

ed by his own father in childhood.

We somehow managed to IGNORE the whole thing, and go back on topic

and continue the meeting! We saw everyone out and walked them safely

to their cars. It was the only time that D. and I had worked together and

NOT discussed things at least briefly before parting for the night.

The leader of another group saw us leave, noticed the above, and asked me

if we were "alright?" Numbly, we individually said that we were. The next

morning, D. phoned me and said, "We must each have our own stories,

make them congruent, but NOT identical and have separate lawyers and

sue that guy!" I agreed, as did my lawyer. We each called in sick the

next morning. I had visited the ER the previous night and as no major dama

ge to the cranium had occurred, I suffered from the illusion that I was O.K.

Wrong! It took over eight months before I realised that something was wrong with my arm muscles, which appeared to be atrophying (the were),

and my hands, which were turning an unsightly purple-blue and growing

hair. I was working in Oregon at the time, loved the job, loved the CF Center

in Portland, and did not really want to go back to California. I went to my

MS doctor, Dennis Bourdette at OHSU in Portland, and he referred me to

rheumatology, but in fact made the correct diagnosis, Reflex Sympathetic

Dystrophy.

I called my cousin, who was living (we were both widowed) in a house that

we shared in Berkeley, and she said "Come Home!" My housekeeper

(ahhhh, those days!) packed my stuff in my car; I sold my house, lock,

stock, barrel and furniture, and drove NON-stop to Berkeley.

My brother, , drove me to Stanford, to Rheumatology where they diag

nosed it accurately, and (these were the good old medical days) Medicare,

which I had applied for (SSDI) in Oregon payed for NINE YEARS of physical

therapy! I survived. To those who did not know me before this happened,

all LOOKS more or less o.k.

But the truth is that I have lost the ability to play thirteen musical instru

ments that I played before, and can still play the piano (don't have one in

my studio apartment!) I have only recently begun to be able to sign a

check myself and this past week began to write one, (the rent).

Since this injury has occurred, my osteoarthritis has gone mad; I have

had four joints replaced in seven surgeries (long legs) and am slowly losing

the use of my legs due to both arthritis and MS (finally back to the subject),

and now can use a wheel chair with my "hands!"

Were it not for Jackie, I would never have bored anyone with this. But, I guess the point is that all that is wrong with us is NOT always Multiple

Sclerosis, though it may be any one of Multiple Surprises!

And, thanks to family, friends, neighbors and the kindest attendant in the

world, I carry on, quite happily, actually. I am sure that all my adult kids

think that I am a disaster waiting to happen, but I do not wait; I just LIVE!

Yesterday, I had a tooth pulled out, which was easy, but the Lidocaine nearly did my entire face, neck and nerves IN! So, today, I have decided

to turn the phone ringer off as I sound a little oddd, that is, unintelligible!

Tomorrow, I am going nature-watching in my car, Marco-Polo, with my dear

friend, E. and maybe one of the dogs, for fun (they take care of MYdogs!)

Deduction: I CAN drive, thank heavens, I being a driver and a half!

Love to all of you on our list; do we not have the best people on this list?

Sure we do!

n

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[Guest guest]

Dear Connie and list, well on the other "hand," it could be said that I am just

plain stubborn or, as my maternal grandmother (this in a jewish family) said, "pigheaded!" We all laughed at that, and I could enjoy the laugh as

I am the ONLY one with a relatively short nose, having broken it at the age

of ten while rollerskating, and had about one-third of the poor thing's cartilage removed. My parents had survived WWI, the Depression, WWII,

the Korean War, etc. and in my era it was not unusual to have chronic

illness--in the pre-vaccine and pre-antibiotic era, everyone was sick all the

time. This was definitely a bummer, though--I doubt, however, that my

apartment complex naighbors are truly sorry that I no longer play so many

musical instruments! After all, I AM a night owl! Love to you, Connie, and

to all on our list and all that each goes through! n

Re: the problem with hands that do not work--not exactly MS-related

Oh my goodness! n!! What a horrible thing to have happen to you and your colleague. And in front of the clients. Wow. It was a terrible thing but I have to admit I laughed out loud about the perpetrator french kissing D. Odd behavior all around. Did this guy have any kind of history of abusive, erratic behavior or was this just out of the blue?

You have been through a lot. I'm so glad you are here with us! Maybe you aren't in one piece any longer but thankfully you are still here.

love

Sharonn Rojas wrote:

I have thought of writing about this one, but until I had realised what Jackie

was enduring, I had not done so. My experience with hands is very different, but is NOT caused by MS "that any neurologist knows of," and

is most likely caused by severe injury to the rotator cuff of each shoulder.

You can delete all this if you wish, because it gets more detailed from here

on.

Ahem! In about 1989 I was physically attacked by the third administrator

from the top (I was the top); no one ever figured out what had come over

the man, but he rushed into a therapeutically confidential group, led by

me and my colleagure, D. (male) for people who had been abused in child

hood or adulthood or in a marriage or partnership relationship.

The man's office was not far from our meeting room, but we WERE surprised when he came in and headed for me, shook me by both shoulders, and banged me against the edge of the door and the door jamb.

My colleague tried to help, and though strong and muscular, was about

seven inches shorter than I. My attacker was about four inches taller than

I, and, as I suddenly realised, was NOT wearing his hearing aids!

Thus, I could not "talk"him into reteating into his own office, after which we

could lock the doors. After he had beat me to pieces, he attacked my col

league, D., and then, heaven knows why, French kissed the man in front of

all these traumatised patients! He may have known that D. had been attack

ed by his own father in childhood.

We somehow managed to IGNORE the whole thing, and go back on topic

and continue the meeting! We saw everyone out and walked them safely

to their cars. It was the only time that D. and I had worked together and

NOT discussed things at least briefly before parting for the night.

The leader of another group saw us leave, noticed the above, and asked me

if we were "alright?" Numbly, we individually said that we were. The next

morning, D. phoned me and said, "We must each have our own stories,

make them congruent, but NOT identical and have separate lawyers and

sue that guy!" I agreed, as did my lawyer. We each called in sick the

next morning. I had visited the ER the previous night and as no major dama

ge to the cranium had occurred, I suffered from the illusion that I was O.K.

Wrong! It took over eight months before I realised that something was wrong with my arm muscles, which appeared to be atrophying (the were),

and my hands, which were turning an unsightly purple-blue and growing

hair. I was working in Oregon at the time, loved the job, loved the CF Center

in Portland, and did not really want to go back to California. I went to my

MS doctor, Dennis Bourdette at OHSU in Portland, and he referred me to

rheumatology, but in fact made the correct diagnosis, Reflex Sympathetic

Dystrophy.

I called my cousin, who was living (we were both widowed) in a house that

we shared in Berkeley, and she said "Come Home!" My housekeeper

(ahhhh, those days!) packed my stuff in my car; I sold my house, lock,

stock, barrel and furniture, and drove NON-stop to Berkeley.

My brother, , drove me to Stanford, to Rheumatology where they diag

nosed it accurately, and (these were the good old medical days) Medicare,

which I had applied for (SSDI) in Oregon payed for NINE YEARS of physical

therapy! I survived. To those who did not know me before this happened,

all LOOKS more or less o.k.

But the truth is that I have lost the ability to play thirteen musical instru

ments that I played before, and can still play the piano (don't have one in

my studio apartment!) I have only recently begun to be able to sign a

check myself and this past week began to write one, (the rent).

Since this injury has occurred, my osteoarthritis has gone mad; I have

had four joints replaced in seven surgeries (long legs) and am slowly losing

the use of my legs due to both arthritis and MS (finally back to the subject),

and now can use a wheel chair with my "hands!"

Were it not for Jackie, I would never have bored anyone with this. But, I guess the point is that all that is wrong with us is NOT always Multiple

Sclerosis, though it may be any one of Multiple Surprises!

And, thanks to family, friends, neighbors and the kindest attendant in the

world, I carry on, quite happily, actually. I am sure that all my adult kids

think that I am a disaster waiting to happen, but I do not wait; I just LIVE!

Yesterday, I had a tooth pulled out, which was easy, but the Lidocaine nearly did my entire face, neck and nerves IN! So, today, I have decided

to turn the phone ringer off as I sound a little oddd, that is, unintelligible!

Tomorrow, I am going nature-watching in my car, Marco-Polo, with my dear

friend, E. and maybe one of the dogs, for fun (they take care of MYdogs!)

Deduction: I CAN drive, thank heavens, I being a driver and a half!

Love to all of you on our list; do we not have the best people on this list?

Sure we do!

n

Sharon (MSersLife creator/owner)

“One minute it's a giant cabbage and the next, ka-boom! You've got cole slaw all over you." V.R. , Palmer, Alaska, where Cabbages grow huge

Yahoo! Messenger with Voice. PC-to-Phone calls for ridiculously low rates.

No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.6/338 - Release Date: 5/12/2006

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[Guest guest]

Oh, the egg and the nest are long gone, but it did feel good to GET the guy's license and get him fired!

I live on Medicare, Social Security (SSDI), and what is left of Medicaid, and Part D-isaster of Medicare,

and live in a studio apartment in HUD housing! Any funds left for me are part of a tiny trust left for me

by my husband's cousin and dear friend at her death.

Three days before her death she fired the lawyer who

told her that it was "illegal" to leave me anything as

I was on Medicaid. She did, however, leave it to her

daughter and the law does allow a third party to pay for an expense directly so long as the money does not

pass, as it were, through my own hands. Love, n,

who feels that the poor DO have rights! I am little

better off than are you guys, Akiba, just only ONE to

worry about! more love, more n

the problem with hands that do not work--not exactly MS-related

I have thought of writing about this one, but until I had realised what Jackie

was enduring, I had not done so. My experience with hands is very different, but is NOT caused by MS "that any neurologist knows of," and

is most likely caused by severe injury to the rotator cuff of each shoulder.

You can delete all this if you wish, because it gets more detailed from here

on.

Ahem! In about 1989 I was physically attacked by the third administrator

from the top (I was the top); no one ever figured out what had come over

the man, but he rushed into a therapeutically confidential group, led by

me and my colleagure, D. (male) for people who had been abused in child

hood or adulthood or in a marriage or partnership relationship.

The man's office was not far from our meeting room, but we WERE surprised when he came in and headed for me, shook me by both shoulders, and banged me against the edge of the door and the door jamb.

My colleague tried to help, and though strong and muscular, was about

seven inches shorter than I. My attacker was about four inches taller than

I, and, as I suddenly realised, was NOT wearing his hearing aids!

Thus, I could not "talk"him into reteating into his own office, after which we

could lock the doors. After he had beat me to pieces, he attacked my col

league, D., and then, heaven knows why, French kissed the man in front of

all these traumatised patients! He may have known that D. had been attack

ed by his own father in childhood.

We somehow managed to IGNORE the whole thing, and go back on topic

and continue the meeting! We saw everyone out and walked them safely

to their cars. It was the only time that D. and I had worked together and

NOT discussed things at least briefly before parting for the night.

The leader of another group saw us leave, noticed the above, and asked me

if we were "alright?" Numbly, we individually said that we were. The next

morning, D. phoned me and said, "We must each have our own stories,

make them congruent, but NOT identical and have separate lawyers and

sue that guy!" I agreed, as did my lawyer. We each called in sick the

next morning. I had visited the ER the previous night and as no major dama

ge to the cranium had occurred, I suffered from the illusion that I was O.K.

Wrong! It took over eight months before I realised that something was wrong with my arm muscles, which appeared to be atrophying (the were),

and my hands, which were turning an unsightly purple-blue and growing

hair. I was working in Oregon at the time, loved the job, loved the CF Center

in Portland, and did not really want to go back to California. I went to my

MS doctor, Dennis Bourdette at OHSU in Portland, and he referred me to

rheumatology, but in fact made the correct diagnosis, Reflex Sympathetic

Dystrophy.

I called my cousin, who was living (we were both widowed) in a house that

we shared in Berkeley, and she said "Come Home!" My housekeeper

(ahhhh, those days!) packed my stuff in my car; I sold my house, lock,

stock, barrel and furniture, and drove NON-stop to Berkeley.

My brother, , drove me to Stanford, to Rheumatology where they diag

nosed it accurately, and (these were the good old medical days) Medicare,

which I had applied for (SSDI) in Oregon payed for NINE YEARS of physical

therapy! I survived. To those who did not know me before this happened,

all LOOKS more or less o.k.

But the truth is that I have lost the ability to play thirteen musical instru

ments that I played before, and can still play the piano (don't have one in

my studio apartment!) I have only recently begun to be able to sign a

check myself and this past week began to write one, (the rent).

Since this injury has occurred, my osteoarthritis has gone mad; I have

had four joints replaced in seven surgeries (long legs) and am slowly losing

the use of my legs due to both arthritis and MS (finally back to the subject),

and now can use a wheel chair with my "hands!"

Were it not for Jackie, I would never have bored anyone with this. But, I guess the point is that all that is wrong with us is NOT always Multiple

Sclerosis, though it may be any one of Multiple Surprises!

And, thanks to family, friends, neighbors and the kindest attendant in the

world, I carry on, quite happily, actually. I am sure that all my adult kids

think that I am a disaster waiting to happen, but I do not wait; I just LIVE!

Yesterday, I had a tooth pulled out, which was easy, but the Lidocaine nearly did my entire face, neck and nerves IN! So, today, I have decided

to turn the phone ringer off as I sound a little oddd, that is, unintelligible!

Tomorrow, I am going nature-watching in my car, Marco-Polo, with my dear

friend, E. and maybe one of the dogs, for fun (they take care of MYdogs!)

Deduction: I CAN drive, thank heavens, I being a driver and a half!

Love to all of you on our list; do we not have the best people on this list?

Sure we do!

n

No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.6/338 - Release Date: 5/12/2006

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[Guest guest]

Like my honey has said to me ~ You're not stubborn, you're tenacious!

Peace and Blessings

~*~ Akiba ~*~

Pragmatic Visionary

http://yodamamma.blogspot.com/

http://www.solay-twinflames.com

-- Re: the problem with hands that do not work--not exactly MS-related

Dear Connie and list, well on the other "hand," it could be said that I am just

plain stubborn or, as my maternal grandmother (this in a jewish family) said, "pigheaded!"

[Guest guest]

Oh, I do like that one! Thank you, Akiba, and Rob!

Love, n

Re: the problem with hands that do not work--not exactly MS-related

Dear Connie and list, well on the other "hand," it could be said that I am just

plain stubborn or, as my maternal grandmother (this in a jewish family) said, "pigheaded!"

[Guest guest]

You are very welcome!

Peace and Blessings

~*~ Akiba ~*~

Pragmatic Visionary

http://yodamamma.blogspot.com/

http://www.solay-twinflames.com

-- Re: the problem with hands that do not work--not exactly MS-related

Oh, I do like that one! Thank you, Akiba, and Rob!

Love, n

Re: the problem with hands that do not work--not exactly MS-related

Dear Connie and list, well on the other "hand," it could be said that I am just

plain stubborn or, as my maternal grandmother (this in a jewish family) said, "pigheaded!"

[Guest guest]

We are currently living on Robbin's and my SSI with the occasional donation and Jimmy paying 1/2 the rent. He knows he could NEVER find a place like this for what he is paying so he ponies up. He did, late last night, give me $80 that he owed me from LAST month for his share of the bills, first time he's actually PAID it, still owes for this month but I was able to go pay the past due part of the electric bill so at least we won't get shut off...the cable Co. Is getting ready to be the next to get hostile, but I think we have time for that. I hope. If I suddenly am not there you'll know we were not in time.

HUGS

Peace and Blessings

~*~ Akiba ~*~

Pragmatic Visionary

http://yodamamma.blogspot.com/

http://www.solay-twinflames.com

-- Re: the problem with hands that do not work--not exactly MS-related

Oh, the egg and the nest are long gone, but it did feel good to GET the guy's license and get him fired!

I live on Medicare, Social Security (SSDI), and what is left of Medicaid, and Part D-isaster of Medicare,

and live in a studio apartment in HUD housing! Any funds left for me are part of a tiny trust left for me

by my husband's cousin and dear friend at her death.

Three days before her death she fired the lawyer who

told her that it was "illegal" to leave me anything as

I was on Medicaid. She did, however, leave it to her

daughter and the law does allow a third party to pay for an expense directly so long as the money does not

pass, as it were, through my own hands. Love, n,

who feels that the poor DO have rights! I am little

better off than are you guys, Akiba, just only ONE to

worry about! more love, more n

the problem with hands that do not work--not exactly MS-related

I have thought of writing about this one, but until I had realised what Jackie

was enduring, I had not done so. My experience with hands is very different, but is NOT caused by MS "that any neurologist knows of," and

is most likely caused by severe injury to the rotator cuff of each shoulder.

You can delete all this if you wish, because it gets more detailed from here

on.

Ahem! In about 1989 I was physically attacked by the third administrator

from the top (I was the top); no one ever figured out what had come over

the man, but he rushed into a therapeutically confidential group, led by

me and my colleagure, D. (male) for people who had been abused in child

hood or adulthood or in a marriage or partnership relationship.

The man's office was not far from our meeting room, but we WERE surprised when he came in and headed for me, shook me by both shoulders, and banged me against the edge of the door and the door jamb.

My colleague tried to help, and though strong and muscular, was about

seven inches shorter than I. My attacker was about four inches taller than

I, and, as I suddenly realised, was NOT wearing his hearing aids!

Thus, I could not "talk"him into reteating into his own office, after which we

could lock the doors. After he had beat me to pieces, he attacked my col

league, D., and then, heaven knows why, French kissed the man in front of

all these traumatised patients! He may have known that D. had been attack

ed by his own father in childhood.

We somehow managed to IGNORE the whole thing, and go back on topic

and continue the meeting! We saw everyone out and walked them safely

to their cars. It was the only time that D. and I had worked together and

NOT discussed things at least briefly before parting for the night.

The leader of another group saw us leave, noticed the above, and asked me

if we were "alright?" Numbly, we individually said that we were. The next

morning, D. phoned me and said, "We must each have our own stories,

make them congruent, but NOT identical and have separate lawyers and

sue that guy!" I agreed, as did my lawyer. We each called in sick the

next morning. I had visited the ER the previous night and as no major dama

ge to the cranium had occurred, I suffered from the illusion that I was O.K.

Wrong! It took over eight months before I realised that something was wrong with my arm muscles, which appeared to be atrophying (the were),

and my hands, which were turning an unsightly purple-blue and growing

hair. I was working in Oregon at the time, loved the job, loved the CF Center

in Portland, and did not really want to go back to California. I went to my

MS doctor, Dennis Bourdette at OHSU in Portland, and he referred me to

rheumatology, but in fact made the correct diagnosis, Reflex Sympathetic

Dystrophy.

I called my cousin, who was living (we were both widowed) in a house that

we shared in Berkeley, and she said "Come Home!" My housekeeper

(ahhhh, those days!) packed my stuff in my car; I sold my house, lock,

stock, barrel and furniture, and drove NON-stop to Berkeley.

My brother, , drove me to Stanford, to Rheumatology where they diag

nosed it accurately, and (these were the good old medical days) Medicare,

which I had applied for (SSDI) in Oregon payed for NINE YEARS of physical

therapy! I survived. To those who did not know me before this happened,

all LOOKS more or less o.k.

But the truth is that I have lost the ability to play thirteen musical instru

ments that I played before, and can still play the piano (don't have one in

my studio apartment!) I have only recently begun to be able to sign a

check myself and this past week began to write one, (the rent).

Since this injury has occurred, my osteoarthritis has gone mad; I have

had four joints replaced in seven surgeries (long legs) and am slowly losing

the use of my legs due to both arthritis and MS (finally back to the subject),

and now can use a wheel chair with my "hands!"

Were it not for Jackie, I would never have bored anyone with this. But, I guess the point is that all that is wrong with us is NOT always Multiple

Sclerosis, though it may be any one of Multiple Surprises!

And, thanks to family, friends, neighbors and the kindest attendant in the

world, I carry on, quite happily, actually. I am sure that all my adult kids

think that I am a disaster waiting to happen, but I do not wait; I just LIVE!

Yesterday, I had a tooth pulled out, which was easy, but the Lidocaine nearly did my entire face, neck and nerves IN! So, today, I have decided

to turn the phone ringer off as I sound a little oddd, that is, unintelligible!

Tomorrow, I am going nature-watching in my car, Marco-Polo, with my dear

friend, E. and maybe one of the dogs, for fun (they take care of MYdogs!)

Deduction: I CAN drive, thank heavens, I being a driver and a half!

Love to all of you on our list; do we not have the best people on this list?

Sure we do!

n

No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.6/338 - Release Date: 5/12/2006

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[Guest guest]

May he pay on time, from here on out--finally! Love,

n--praying that you be spared by the utility com

pany!

the problem with hands that do not work--not exactly MS-related

I have thought of writing about this one, but until I had realised what Jackie

was enduring, I had not done so. My experience with hands is very different, but is NOT caused by MS "that any neurologist knows of," and

is most likely caused by severe injury to the rotator cuff of each shoulder.

You can delete all this if you wish, because it gets more detailed from here

on.

Ahem! In about 1989 I was physically attacked by the third administrator

from the top (I was the top); no one ever figured out what had come over

the man, but he rushed into a therapeutically confidential group, led by

me and my colleagure, D. (male) for people who had been abused in child

hood or adulthood or in a marriage or partnership relationship.

The man's office was not far from our meeting room, but we WERE surprised when he came in and headed for me, shook me by both shoulders, and banged me against the edge of the door and the door jamb.

My colleague tried to help, and though strong and muscular, was about

seven inches shorter than I. My attacker was about four inches taller than

I, and, as I suddenly realised, was NOT wearing his hearing aids!

Thus, I could not "talk"him into reteating into his own office, after which we

could lock the doors. After he had beat me to pieces, he attacked my col

league, D., and then, heaven knows why, French kissed the man in front of

all these traumatised patients! He may have known that D. had been attack

ed by his own father in childhood.

We somehow managed to IGNORE the whole thing, and go back on topic

and continue the meeting! We saw everyone out and walked them safely

to their cars. It was the only time that D. and I had worked together and

NOT discussed things at least briefly before parting for the night.

The leader of another group saw us leave, noticed the above, and asked me

if we were "alright?" Numbly, we individually said that we were. The next

morning, D. phoned me and said, "We must each have our own stories,

make them congruent, but NOT identical and have separate lawyers and

sue that guy!" I agreed, as did my lawyer. We each called in sick the

next morning. I had visited the ER the previous night and as no major dama

ge to the cranium had occurred, I suffered from the illusion that I was O.K.

Wrong! It took over eight months before I realised that something was wrong with my arm muscles, which appeared to be atrophying (the were),

and my hands, which were turning an unsightly purple-blue and growing

hair. I was working in Oregon at the time, loved the job, loved the CF Center

in Portland, and did not really want to go back to California. I went to my

MS doctor, Dennis Bourdette at OHSU in Portland, and he referred me to

rheumatology, but in fact made the correct diagnosis, Reflex Sympathetic

Dystrophy.

I called my cousin, who was living (we were both widowed) in a house that

we shared in Berkeley, and she said "Come Home!" My housekeeper

(ahhhh, those days!) packed my stuff in my car; I sold my house, lock,

stock, barrel and furniture, and drove NON-stop to Berkeley.

My brother, , drove me to Stanford, to Rheumatology where they diag

nosed it accurately, and (these were the good old medical days) Medicare,

which I had applied for (SSDI) in Oregon payed for NINE YEARS of physical

therapy! I survived. To those who did not know me before this happened,

all LOOKS more or less o.k.

But the truth is that I have lost the ability to play thirteen musical instru

ments that I played before, and can still play the piano (don't have one in

my studio apartment!) I have only recently begun to be able to sign a

check myself and this past week began to write one, (the rent).

Since this injury has occurred, my osteoarthritis has gone mad; I have

had four joints replaced in seven surgeries (long legs) and am slowly losing

the use of my legs due to both arthritis and MS (finally back to the subject),

and now can use a wheel chair with my "hands!"

Were it not for Jackie, I would never have bored anyone with this. But, I guess the point is that all that is wrong with us is NOT always Multiple

Sclerosis, though it may be any one of Multiple Surprises!

And, thanks to family, friends, neighbors and the kindest attendant in the

world, I carry on, quite happily, actually. I am sure that all my adult kids

think that I am a disaster waiting to happen, but I do not wait; I just LIVE!

Yesterday, I had a tooth pulled out, which was easy, but the Lidocaine nearly did my entire face, neck and nerves IN! So, today, I have decided

to turn the phone ringer off as I sound a little oddd, that is, unintelligible!

Tomorrow, I am going nature-watching in my car, Marco-Polo, with my dear

friend, E. and maybe one of the dogs, for fun (they take care of MYdogs!)

Deduction: I CAN drive, thank heavens, I being a driver and a half!

Love to all of you on our list; do we not have the best people on this list?

Sure we do!

n

No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.6/338 - Release Date: 5/12/2006

No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.6/338 - Release Date: 5/12/2006

No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.6/338 - Release Date: 5/12/2006

[Guest guest]

Things are looking up! I just got a candle order (and you Know who you are) and Rob is at this very moment doing a reading for a long-time client who calls about once a month at this time and his normal donation is $75! Now, mind you, we don't set a price, the people donate what *they* feel is right, and Dougie almost always gives that! SO what with one thing and another, we're whittling it down to where I might still be online and not have my cable go *poof* YAY! And they say Prayers don't get answers!

Happy Mother's Day to ALL Moms on this List, or not on this list, or Everywhere!!! We have the hardest job on Earth!My sweet son made me a e-card all by himself!!! I cried it was SO sweet! This from a child who didn't even speak until he was 4 1/2!!! (He's 8 now)

Peace and Blessings

~*~ Akiba ~*~

Pragmatic Visionary

http://yodamamma.blogspot.com/

http://www.solay-twinflames.com

-- Re: the problem with hands that do not work--not exactly MS-related

May he pay on time, from here on out--finally! Love,

n--praying that you be spared by the utility com

pany!

the problem with hands that do not work--not exactly MS-related

I have thought of writing about this one, but until I had realised what Jackie

was enduring, I had not done so. My experience with hands is very different, but is NOT caused by MS "that any neurologist knows of," and

is most likely caused by severe injury to the rotator cuff of each shoulder.

You can delete all this if you wish, because it gets more detailed from here

on.

Ahem! In about 1989 I was physically attacked by the third administrator

from the top (I was the top); no one ever figured out what had come over

the man, but he rushed into a therapeutically confidential group, led by

me and my colleagure, D. (male) for people who had been abused in child

hood or adulthood or in a marriage or partnership relationship.

The man's office was not far from our meeting room, but we WERE surprised when he came in and headed for me, shook me by both shoulders, and banged me against the edge of the door and the door jamb.

My colleague tried to help, and though strong and muscular, was about

seven inches shorter than I. My attacker was about four inches taller than

I, and, as I suddenly realised, was NOT wearing his hearing aids!

Thus, I could not "talk"him into reteating into his own office, after which we

could lock the doors. After he had beat me to pieces, he attacked my col

league, D., and then, heaven knows why, French kissed the man in front of

all these traumatised patients! He may have known that D. had been attack

ed by his own father in childhood.

We somehow managed to IGNORE the whole thing, and go back on topic

and continue the meeting! We saw everyone out and walked them safely

to their cars. It was the only time that D. and I had worked together and

NOT discussed things at least briefly before parting for the night.

The leader of another group saw us leave, noticed the above, and asked me

if we were "alright?" Numbly, we individually said that we were. The next

morning, D. phoned me and said, "We must each have our own stories,

make them congruent, but NOT identical and have separate lawyers and

sue that guy!" I agreed, as did my lawyer. We each called in sick the

next morning. I had visited the ER the previous night and as no major dama

ge to the cranium had occurred, I suffered from the illusion that I was O.K.

Wrong! It took over eight months before I realised that something was wrong with my arm muscles, which appeared to be atrophying (the were),

and my hands, which were turning an unsightly purple-blue and growing

hair. I was working in Oregon at the time, loved the job, loved the CF Center

in Portland, and did not really want to go back to California. I went to my

MS doctor, Dennis Bourdette at OHSU in Portland, and he referred me to

rheumatology, but in fact made the correct diagnosis, Reflex Sympathetic

Dystrophy.

I called my cousin, who was living (we were both widowed) in a house that

we shared in Berkeley, and she said "Come Home!" My housekeeper

(ahhhh, those days!) packed my stuff in my car; I sold my house, lock,

stock, barrel and furniture, and drove NON-stop to Berkeley.

My brother, , drove me to Stanford, to Rheumatology where they diag

nosed it accurately, and (these were the good old medical days) Medicare,

which I had applied for (SSDI) in Oregon payed for NINE YEARS of physical

therapy! I survived. To those who did not know me before this happened,

all LOOKS more or less o.k.

But the truth is that I have lost the ability to play thirteen musical instru

ments that I played before, and can still play the piano (don't have one in

my studio apartment!) I have only recently begun to be able to sign a

check myself and this past week began to write one, (the rent).

Since this injury has occurred, my osteoarthritis has gone mad; I have

had four joints replaced in seven surgeries (long legs) and am slowly losing

the use of my legs due to both arthritis and MS (finally back to the subject),

and now can use a wheel chair with my "hands!"

Were it not for Jackie, I would never have bored anyone with this. But, I guess the point is that all that is wrong with us is NOT always Multiple

Sclerosis, though it may be any one of Multiple Surprises!

And, thanks to family, friends, neighbors and the kindest attendant in the

world, I carry on, quite happily, actually. I am sure that all my adult kids

think that I am a disaster waiting to happen, but I do not wait; I just LIVE!

Yesterday, I had a tooth pulled out, which was easy, but the Lidocaine nearly did my entire face, neck and nerves IN! So, today, I have decided

to turn the phone ringer off as I sound a little oddd, that is, unintelligible!

Tomorrow, I am going nature-watching in my car, Marco-Polo, with my dear

friend, E. and maybe one of the dogs, for fun (they take care of MYdogs!)

Deduction: I CAN drive, thank heavens, I being a driver and a half!

Love to all of you on our list; do we not have the best people on this list?

Sure we do!

n

No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.6/338 - Release Date: 5/12/2006

No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.1.392 / Virus Database: 268.5.6/338 - Release Date: 5/12/2006

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[Guest guest]

See...if you just wait and have faith these things always find a way

to work out. Hope everyone has a wonderful mother's day.

'

Mom of 2 kids, 2 dogs, a rabbit, hamster and cat. Oh yea, and a

husband too!

>

> Things are looking up! I just got a candle order (and you Know who

you are)

> and Rob is at this very moment doing a reading for a long-time

client who

> calls about once a month at this time and his normal donation is

$75! Now,

> mind you, we don't set a price, the people donate what *they* feel

is right,

> and Dougie almost always gives that! SO what with one thing and

another, we

> re whittling it down to where I might still be online and not have

my cable

> go *poof* YAY! And they say Prayers don't get answers!

> Happy Mother's Day to ALL Moms on this List, or not on this list,

or

> Everywhere!!! We have the hardest job on Earth!My sweet son made

me a e-card

> all by himself!!! I cried it was SO sweet! This from a child who

didn't even

> speak until he was 4 1/2!!! (He's 8 now)

> Peace and Blessings

> ~*~ Akiba ~*~

> Pragmatic Visionary

> http://yodamamma.blogspot.com/

> http://www.solay-twinflames.com

>

> -- Re: the problem with hands that do not work--

not

> exactly MS-related

>

> May he pay on time, from here on out--finally! Love,

> n--praying that you be spared by the utility com

> pany!

> the problem with hands that do not work--not

exactly

> MS-related

>

> I have thought of writing about this one, but until I had realised

what

> Jackie

> was enduring, I had not done so. My experience with hands is very

different

> but is NOT caused by MS " that any neurologist knows of, " and

> is most likely caused by severe injury to the rotator cuff of each

shoulder.

>

> You can delete all this if you wish, because it gets more detailed

from here

> on.

>

> Ahem! In about 1989 I was physically attacked by the third

administrator

> from the top (I was the top); no one ever figured out what had

come over

> the man, but he rushed into a therapeutically confidential group,

led by

> me and my colleagure, D. (male) for people who had been abused in

child

> hood or adulthood or in a marriage or partnership relationship.

>

> The man's office was not far from our meeting room, but we WERE

surprised

> when he came in and headed for me, shook me by both shoulders, and

banged me

> against the edge of the door and the door jamb.

> My colleague tried to help, and though strong and muscular, was

about

> seven inches shorter than I. My attacker was about four inches

taller than

> I, and, as I suddenly realised, was NOT wearing his hearing aids!

>

> Thus, I could not " talk " him into reteating into his own office,

after which

> we

> could lock the doors. After he had beat me to pieces, he attacked

my col

> league, D., and then, heaven knows why, French kissed the man in

front of

> all these traumatised patients! He may have known that D. had

been attack

> ed by his own father in childhood.

>

> We somehow managed to IGNORE the whole thing, and go back on topic

> and continue the meeting! We saw everyone out and walked them

safely

> to their cars. It was the only time that D. and I had worked

together and

> NOT discussed things at least briefly before parting for the

night.

>

> The leader of another group saw us leave, noticed the above, and

asked me

> if we were " alright? " Numbly, we individually said that we were.

The next

> morning, D. phoned me and said, " We must each have our own stories,

> make them congruent, but NOT identical and have separate lawyers

and

> sue that guy! " I agreed, as did my lawyer. We each called in

sick the

> next morning. I had visited the ER the previous night and as no

major dama

> ge to the cranium had occurred, I suffered from the illusion that

I was O.K.

>

> Wrong! It took over eight months before I realised that something

was wrong

> with my arm muscles, which appeared to be atrophying (the were),

> and my hands, which were turning an unsightly purple-blue and

growing

> hair. I was working in Oregon at the time, loved the job, loved

the CF

> Center

> in Portland, and did not really want to go back to California. I

went to my

> MS doctor, Dennis Bourdette at OHSU in Portland, and he referred

me to

> rheumatology, but in fact made the correct diagnosis, Reflex

Sympathetic

> Dystrophy.

>

> I called my cousin, who was living (we were both widowed) in a

house that

> we shared in Berkeley, and she said " Come Home! " My housekeeper

> (ahhhh, those days!) packed my stuff in my car; I sold my house,

lock,

> stock, barrel and furniture, and drove NON-stop to Berkeley.

>

> My brother, , drove me to Stanford, to Rheumatology where

they diag

> nosed it accurately, and (these were the good old medical days)

Medicare,

> which I had applied for (SSDI) in Oregon payed for NINE YEARS of

physical

> therapy! I survived. To those who did not know me before this

happened,

> all LOOKS more or less o.k.

>

> But the truth is that I have lost the ability to play thirteen

musical

> instru

> ments that I played before, and can still play the piano (don't

have one in

> my studio apartment!) I have only recently begun to be able to

sign a

> check myself and this past week began to write one, (the rent).

>

> Since this injury has occurred, my osteoarthritis has gone mad; I

have

> had four joints replaced in seven surgeries (long legs) and am

slowly losing

> the use of my legs due to both arthritis and MS (finally back to

the

> subject),

> and now can use a wheel chair with my " hands! "

>

> Were it not for Jackie, I would never have bored anyone with

this. But, I

> guess the point is that all that is wrong with us is NOT always

Multiple

> Sclerosis, though it may be any one of Multiple Surprises!

>

> And, thanks to family, friends, neighbors and the kindest

attendant in the

> world, I carry on, quite happily, actually. I am sure that all my

adult

> kids

> think that I am a disaster waiting to happen, but I do not wait; I

just

> LIVE!

>

> Yesterday, I had a tooth pulled out, which was easy, but the

Lidocaine

> nearly did my entire face, neck and nerves IN! So, today, I have

decided

> to turn the phone ringer off as I sound a little oddd, that is,

> unintelligible!

>

> Tomorrow, I am going nature-watching in my car, Marco-Polo, with

my dear

> friend, E. and maybe one of the dogs, for fun (they take care of

MYdogs!)

>

> Deduction: I CAN drive, thank heavens, I being a driver and a

half!

>

> Love to all of you on our list; do we not have the best people on

this list?

> Sure we do!

>

> n

>

>

>

>

>

>

>

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>

>

>

>

>

>

>

>

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> Checked by AVG Anti-Virus.

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5/12/2006

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>

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>

>

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> Checked by AVG Anti-Virus.

> Version: 7.1.392 / Virus Database: 268.5.6/338 - Release Date:

5/12/2006

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>

>

>